Just frustrated really

geekesse

Member
Messages
18
Type of diabetes
Prediabetes
Treatment type
Diet only
I’m prediabetic, 63 years old, bmi 22.8, doing moderate exercise. I control my blood sugar well by eating a low carb diet, so my most recent HbA1c had fallen from 46 to just within the normal range at 41. I do fasting, pre and 2hr post meal BS checks and keep an accurate food diary. If I eat anything with a ‘normal’ amount of carbs - bread, pasta, rice, pizza - my reading spikes at 2 hrs after a meal to 10-13, up 4-5 from pre-meal readings. It takes another couple of hours to come down. (Pizza was the worst - pre 4.6, post 14.5). If I stay around 30g carbs with some fat, eg, cheese, oily fish, olive oil, the rise is 2 or less. Fasting readings are around 7-9.

When I explain this to the GP or practice nurse, they can’t see past the normal A1c. It seems as if the only way I might persuade them that there is an issue would be to eat normally for 3 months, and get a raised A1c. They repeatedly explain in words of one syllable the difference between A1c and pinprick tests - I know and understand the difference, and it is precisely because I do that I know I have a problem with carbs which is not being picked up by the A1c. It’s so frustrating to just be told ‘A1c good, you don’t have a problem’.

A T1 with accurate insulin use, a T2 eating minimal carbs or a non-diabetic could have the same A1c, for different reasons. A T1 is effectively balancing carb intake and blood sugar using injected insulin. A T2 is taking in few enough carbs that what insulin they can produce and use is able to control blood sugar. A non diabetic is producing and using insulin efficiently enough to break down a higher carb intake.

I have a significant family history of LADA, onset around 60 (mum, aunt and uncle). I was married to a T1, so lived with glucose meters and measuring carbs in family meals for years.

I am fortunate enough to have access to private health care through work, and the nurse practitioner through that has referred me to endocrinology for investigation. I hope to discover whether this might be the start of LADA or just well controlled T2. It matters to me! I don’t want kidney, eye or foot problems any time soon, but I want to be able to eat granola, garlic bread, risotto or baked potatoes sometimes. And, as a trivial aside, if I’m diabetic, I would quite like to get test strips on prescription when I retire, rather than paying for them!
 

barrym

Well-Known Member
Messages
803
Type of diabetes
LADA
Treatment type
Insulin
Regarding your concerns that HbA1c is the only indicator the HCPs look at. It is indeed a blunt instrument, but all that was available until very recently. Now of course with CGMs we can see Time in Range (TIR). This doesn't lie. With the old way you could average out a long time high with a long time low and look superficially OK. With TIR there's nowhere to hide.
 
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Resurgam

Expert
Messages
9,868
Type of diabetes
Treatment type
Diet only
If you are indeed LADA then low carb will eventually no longer work and you will see higher numbers as your normal levels, so perhaps pointing out that you have a family history of LADA and your low carb diet is only just keeping you in normal numbers would be the way to state your case.
However, as a type 2 myself, there is no way that I would test my response to high carb foods just to see how I do not cope with them - even though after almost 6 years of low carbing I can cope a bit better if I don't push my luck.
 
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geekesse

Member
Messages
18
Type of diabetes
Prediabetes
Treatment type
Diet only
Update: After moaning about my GP’s lack of engagement with my concerns, I remembered that I have private medical insurance through my job. Following a consultation with a nurse practitioner, I was referred to an endocrinologist who specialises in diabetes. I saw him today, and unlike my GP, he took my family history of LADA seriously, and said the A1c test wasn’t useful as anything more than a measure of the control effected by my diet and exercise. He’s taken very nearly an armful of blood (Tony Hancock, anyone?) to test for C-peptide, GAD antibodies, random blood glucose and something else, and explained in detail how any particular combination of results might point to different diagnoses. Once the results come back, it should become clear whether I have T2, now in remission through diet and exercise, the early stages of LADA or monogenic diabetes (which I’d never heard of before, but is relevant to family history). I know that for the time being, whatever the results, a low carb diet and exercise are necessary. Longer term, knowing which will determine how much and how often to test, what symptoms to watch out for, and what to expect in the future. I feel empowered after my appointment!
 

EllieM

Moderator
Staff Member
Messages
9,326
Type of diabetes
Type 1
Treatment type
Pump
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forum bugs
Excellent that you have now had the tests you need @geekesse ,just a shame that these tests can't be done by the piblic health system for everyone who might need them.
 
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