1. Get the Diabetes Forum App for your phone - available on iOS and Android.
    Dismiss Notice
  2. Guest, we'd love to know what you think about the forum! Take the Diabetes Forum Survey 2021 »
    Dismiss Notice
  3. Diabetes Forum should not be used in an emergency and does not replace your healthcare professional relationship. Posts can be seen by the public.
    Dismiss Notice
  4. Guest, stay home, stay safe, save the NHS. Stay up to date with information about keeping yourself and people around you safe here and GOV.UK: Coronavirus (COVID-19). Think you have symptoms? NHS 111 service is available here.
    Dismiss Notice
Dismiss Notice
Find support, ask questions and share your experiences. Join the community »

Just had a text from my GP........Cholesterol Gurus please advise!

Discussion in 'Type 2 Diabetes' started by CondorX, Feb 6, 2020.

  1. CondorX

    CondorX Type 2 · Well-Known Member

    Messages:
    241
    Likes Received:
    460
    Trophy Points:
    103
    Not posted for a while although still popping in regularly........have stuck to LCHF consistently since diagnosis in April 2019 and have now lost approx 20kg........

    Used to test blood glucose very frequently and also used Freestyle Libres for some time, although not recently. My finger prick tests are all in the 4-5.9 bracket these days.

    I had a repeat HbA1c and Fasting Lipids this Monday.......no idea what the HbA1c is, will phone practice tomorrow, but got a desperate text from my GP this evening saying my "total cholesterol remains very high at 8.8 with LDL of 6. I think we need to consider a statin urgently, please let me know what you think. Happy to issue a script and recheck in 2 months".

    I will of course attempt to get the proper details tomorrow as we all know that quoting total cholesterol is not particularly helpful and I need the ratios, really..........just looking for some thoughts and opinions? I really don't want Statins............
     
  2. Jim Lahey

    Jim Lahey I reversed my Type 2 · Well-Known Member

    Messages:
    4,615
    Likes Received:
    3,458
    Trophy Points:
    198
    You could maybe ask for a CAC scan before moving forward. Then watch the virtual tumbleweed breeze by...
     
    • Funny Funny x 3
    • Agree Agree x 1
  3. CondorX

    CondorX Type 2 · Well-Known Member

    Messages:
    241
    Likes Received:
    460
    Trophy Points:
    103
    LOL Jim.........knowing my GP, and indeed anyone who quotes total cholesterol levels as if they are all important and doesn't give all the others, he is unlikely to even know what a CAC scan is, let alone refer me for one :)

    I should add, I am entirely asymptomatic as far as cardiac symptoms go and now that I have lost around 20kg am quite active and energetic again........
     
    • Winner Winner x 2
    • Like Like x 1
  4. ianf0ster

    ianf0ster Type 2 · Well-Known Member

    Messages:
    1,158
    Likes Received:
    518
    Trophy Points:
    173
    I don't want to alarm anybody, but I didn't think I had any Cardio symptoms. I'd been ignoring occasional numbness in my arms .when off piste skiing at high altitude, for several years. Only when I got the same symptoms when walking did I go yo my GP - it was Angina and I needed a 3x CAB later that year.

    I'm not a fan of Statins, especially the fat soluble ones which can cross the blood/brain barrier (includes Simvastatin and Atorvastatin). Some studies say these reduce chance of Alzheimers and Parkinsons , but other studies suggest that Statin make these worse/more likely.
     
    • Informative Informative x 1
  5. xfieldok

    xfieldok Type 2 · Well-Known Member

    Messages:
    4,011
    Likes Received:
    2,581
    Trophy Points:
    178
    You are in a better place to argue with your GP. I just tell them "no". Yes my LDL has gone up but I am on prednisolone which raises LDL. I also have myasthenia gravis so my cardiologist (don't have one) would have to talk to my neuro before I considered them.
     
  6. CondorX

    CondorX Type 2 · Well-Known Member

    Messages:
    241
    Likes Received:
    460
    Trophy Points:
    103
    I am not on any medication other than when I remember my asthma preventer (which I seem not to have really needed since losing a lot of weight). It is a steroid based inhaler - Serevent - but I honestly don't think my sporadic use of it has any effect on my cholesterol. I think I might fall into Dave Feldman's Hyper Responder Cohort. Not sure what I should do though, it is a bit of a puzzle. Maybe I should reduce my daily double cream and berries and replace with a lot more avocado!!
    I should add.....I want to lose a little more weight - about 4kg or so - and then maintain it there. Most of my excess weight was abdominal and there is still a bit there to lose despite getting down to 64kg at present.
     
  7. Listlad

    Listlad Prediabetes · BANNED

    Messages:
    3,971
    Likes Received:
    1,903
    Trophy Points:
    198
    I read this with interest. I have blood tests coming up. I eat a lot of “good” fats. It will be interesting to see my latest cholesterol readings and the interpretation of the results.
     
  8. HSSS

    HSSS Type 2 · Expert

    Messages:
    5,153
    Likes Received:
    2,522
    Trophy Points:
    198
    Minimum 12 hr fasting remember. Make sure they break down all elements and ratios.
     
    • Agree Agree x 1
  9. CondorX

    CondorX Type 2 · Well-Known Member

    Messages:
    241
    Likes Received:
    460
    Trophy Points:
    103
    Annoyingly, the GP only sent the total cholesterol and LDL levels as the reason to want me to instantly take statins.....Grrr. Will have to try to get through in the time they allow results to be given!! I can understand him being mildly hysterical about TC 8.8 and LDL 6 if he doesn't know much about ratios and keto diets or suchlike, but I would rather not take statins, nonetheless!
     
  10. Listlad

    Listlad Prediabetes · BANNED

    Messages:
    3,971
    Likes Received:
    1,903
    Trophy Points:
    198
    I was going to ask them that. Thanks.
     
  11. Listlad

    Listlad Prediabetes · BANNED

    Messages:
    3,971
    Likes Received:
    1,903
    Trophy Points:
    198
    Can you get your breakdown online?
     
  12. Bluetit1802

    Bluetit1802 Type 2 (in remission!) · Legend

    Messages:
    25,069
    Likes Received:
    30,557
    Trophy Points:
    298
    There is a thought that lipids can be raised during weight loss. It was never one of my problems so I didn't look into it, but some on this forum may be able to provide the links for it. It may be worth looking into. Once the weight loss stops and the weight is stabilised, the lipids drop back to where they should be.

    If you have the results of your previous fasting lipid tests you can compare to see how much they have increased. It sounds like you don't have access to blood test results on-line. If you are in England these should be available to you, but you have to register with your surgery for this service.
     
    • Agree Agree x 2
  13. HSSS

    HSSS Type 2 · Expert

    Messages:
    5,153
    Likes Received:
    2,522
    Trophy Points:
    198
    Have a look at these with your numbers
    https://cholesterolcode.com/new-report-tool-launched/
    https://www.hughcalc.org/chol-si.php
    Eating keto skews ldl as it’s calculated not measured and doesn’t take account of diet apparently.
     
    • Like Like x 1
  14. Resurgam

    Resurgam Type 2 (in remission!) · Expert

    Messages:
    8,421
    Likes Received:
    5,069
    Trophy Points:
    198
    Cholesterol is the way fat is moved around in the bloodstream, when losing weight or changing shape cholesterol levels are almost bound to rise.
    There doesn't seem to be evidence that lowering cholesterol is a good thing - after all the white tissue of our brains is cholesterol, and the protective covering of the nervous system is a lipid.
     
    • Like Like x 2
  15. CondorX

    CondorX Type 2 · Well-Known Member

    Messages:
    241
    Likes Received:
    460
    Trophy Points:
    103
    No, our surgery simply does not offer it despite being very much in England!! even making appointments online is such a clunky, dreadful process that I doubt many bother - so the surgery can say "see our patients don't want this service!"
     
    • Hug Hug x 1
  16. NicoleC1971

    NicoleC1971 Type 1 · Well-Known Member

    Messages:
    2,716
    Likes Received:
    1,678
    Trophy Points:
    198
    Please ask for your lipids in more detail e.g. what are your triglycerides and HDL. High LDL can contain lots of small low density lipo proteins which are linked to arterial disease. This could be for genetic reasons or because you eat a typical Western diet.
    I found this YouTube clip explaining it all quite useful and you should discuss with the GP when you are amed with some further knowledge:

    Hope that helps you make an informed choice about your risk and whether it is worth taking medication.
     
    • Agree Agree x 1
  17. CondorX

    CondorX Type 2 · Well-Known Member

    Messages:
    241
    Likes Received:
    460
    Trophy Points:
    103
    Nicole that video of Prof Sikaris is excellent - many thanks for posting it as it is reassuring.

    Getting my detailed results from the GP practice is proving a nightmare as receptionists are now no longer able to give them out and there is no online facility at this practice for patients to access results. I am persisting however and hopefully will get the HDL and Trig levels and my HbA1c!! they are even refusing to post them, saying the GP has to authorise disclosing any results at all. Sigh. Might just pay for private tests I think.
     
  18. HSSS

    HSSS Type 2 · Expert

    Messages:
    5,153
    Likes Received:
    2,522
    Trophy Points:
    198
    So why can’t they get it authorised? There should be a system in place. My surgery will not release results until a dr has approved it either! They even withhold them from online results so et8mes til this is done
     
  19. CondorX

    CondorX Type 2 · Well-Known Member

    Messages:
    241
    Likes Received:
    460
    Trophy Points:
    103
    Makes little sense, really - all a bit of an obstructive tactic!!

    Anyhow, to update this thread with more info........my GP phoned me back, fortunately after my own outpatient clinic and his morning surgery!

    He gave me the full blood results which I am very pleased to note place me reasonably firmly in a LOW RISK category and am most likely, as I thought, one of the Hyper Responders. I had a useful discussion with him about how Total Cholesterol is not a helpful number on its own, particularly in the context of considerable weight loss and keto diets.........and also discussed some of Prof Sikaris' presentations and how hyper responders can have TC levels of 15 or more sometimes...... I did manage to spark a hint of interest in him, I think.

    The numbers are as follows for those interested:

    Total Cholesterol 8.8
    LDL 6.02
    HDL 2.4
    Trigiserides 0.84 (YIPPEEE!!!)
    Non-HDL 6.4

    The ratios are all pretty ideal - he agreed - and the Trigs had come down from my initial levels when I was firmly in diabetic territory, of over 2.

    My HbA1c is now no longer pre-diabetic even - 5.4 % (39.9!)

    GP initially thought I was on metformin - he should know really!!!! I said I was on NOTHING but dietary control.......he was puzzled and surprised i had managed to lose approx 25% of my body weight in the past 9 months and said "it must have been very difficult, but that is great!" I pointed out that it was not difficult at all...............and i would look to losing another approx 4kg before stabilising at just under 60kg.

    He said he guessed I would pass on the statin and I said indeed I would - We agreed further HbA1C and lipids etc in 6 months.

    I was going to try to source privately, electrophoresis of the LDL and even possibly a CAC scan, but I don't think it is necessary - I think I am one of the Dave Feldman cohort of Hyper Responders and that my Lipids reflect my very low carb diet and weight loss. And, for now anyway, my diabetes is IN REMISSION !!
     
    • Winner Winner x 10
    • Like Like x 1
    #19 CondorX, Feb 7, 2020 at 3:30 PM
    Last edited: Feb 7, 2020
  20. Jim Lahey

    Jim Lahey I reversed my Type 2 · Well-Known Member

    Messages:
    4,615
    Likes Received:
    3,458
    Trophy Points:
    198
    Hero status unlocked. Well done, and congratulations. Taking back control of your health from the clutches of metabolic meltdown is a liberating and exhilarating experience.
     
    • Agree Agree x 2
    • Winner Winner x 1
  • Meet the Community

    Find support, connect with others, ask questions and share your experiences with people with diabetes, their carers and family.

    Did you know: 7 out of 10 people improve their understanding of diabetes within 6 months of being a Diabetes Forum member. Get the Diabetes Forum App and stay connected on iOS and Android

    Grab the app!
  • Tweet with us

  • Like us on Facebook