Hi fellow diabetics
I’ve just had my latest hba1c result and while it’s good and much better it’s not as good as I thought it might’ve been yet I feel I don’t have any options to take with it next.
At this point last year my hba1c was the highest it had ever been 62/7.8%, this brought me to the attention my diabetes nurse attached to my GP surgery, over the past year she gave me the kick up the *** to bring the diabetes back into the focus it needs. My only excuse is that I allowed it to drop off my life priorities and assumed the odd test and the numbers I got were acceptable, they weren’t so I’ve worked hard to change it.
I’ve had T1 for 17y (I’m 35) but for the past 4 years have been managed on a yearly basis from my GP surgery, I’m MDI on NovoRapid & Lantus and am checking my bs 8-12 x a day, I’m pretty active, busy household, school runs everyday (walking) and a dog to walk and I carb count but it’s not always that effective for me. My latest results are now 50/6.7% so there is improvement but I wanted and had hoped for more. My GP is now saying no further action is required so I won’t get to see the nurse anymore but I really want to improve my control more to drop into the high 5s or low 6s region.
One of the benefits of an increased focus has been more of an awareness of the things that could work for me, for example I am aware I very insulin sensitive so small increments of insulin will help but I don’t have the pens to do that, as I think even the option of .5 would be too much. I want to be able to try the pump technology to see if this helps alongside my other improvements but now the GP doesn’t want to see me and the hospital aren’t interested as I’m not ill enough or at least don’t meet the criteria for type 1s. Where do I go from here?
Is it worth checking with the diabetes team at the hospital, are they likely to help, I went to a diabetes conference last year and the pump/cgm chat was promoting the benefits of the new tech to achieve better control and lead a healthier life for the future, I want to do that but currently feel I control the type 1 too well on mdi - but not enough to get really tight control- and I want something thats been proven to help reduce hba1c. Attempts by me through the diabetes nurse at the GP to get a cgm have proved fruitless even though it is more cost effective for them to have me on a cgm than regular bs meters, and I have asked at every opportunity but have been refused. I can’t seem to shake the feeling I’ve been lost in the hospital system because of my acceptable levels of control, for diabetes the chronic nature of this illness that surely cannot be the thinking.
Your thoughts and advice would be appreciated thanks for reading.
I’ve just had my latest hba1c result and while it’s good and much better it’s not as good as I thought it might’ve been yet I feel I don’t have any options to take with it next.
At this point last year my hba1c was the highest it had ever been 62/7.8%, this brought me to the attention my diabetes nurse attached to my GP surgery, over the past year she gave me the kick up the *** to bring the diabetes back into the focus it needs. My only excuse is that I allowed it to drop off my life priorities and assumed the odd test and the numbers I got were acceptable, they weren’t so I’ve worked hard to change it.
I’ve had T1 for 17y (I’m 35) but for the past 4 years have been managed on a yearly basis from my GP surgery, I’m MDI on NovoRapid & Lantus and am checking my bs 8-12 x a day, I’m pretty active, busy household, school runs everyday (walking) and a dog to walk and I carb count but it’s not always that effective for me. My latest results are now 50/6.7% so there is improvement but I wanted and had hoped for more. My GP is now saying no further action is required so I won’t get to see the nurse anymore but I really want to improve my control more to drop into the high 5s or low 6s region.
One of the benefits of an increased focus has been more of an awareness of the things that could work for me, for example I am aware I very insulin sensitive so small increments of insulin will help but I don’t have the pens to do that, as I think even the option of .5 would be too much. I want to be able to try the pump technology to see if this helps alongside my other improvements but now the GP doesn’t want to see me and the hospital aren’t interested as I’m not ill enough or at least don’t meet the criteria for type 1s. Where do I go from here?
Is it worth checking with the diabetes team at the hospital, are they likely to help, I went to a diabetes conference last year and the pump/cgm chat was promoting the benefits of the new tech to achieve better control and lead a healthier life for the future, I want to do that but currently feel I control the type 1 too well on mdi - but not enough to get really tight control- and I want something thats been proven to help reduce hba1c. Attempts by me through the diabetes nurse at the GP to get a cgm have proved fruitless even though it is more cost effective for them to have me on a cgm than regular bs meters, and I have asked at every opportunity but have been refused. I can’t seem to shake the feeling I’ve been lost in the hospital system because of my acceptable levels of control, for diabetes the chronic nature of this illness that surely cannot be the thinking.
Your thoughts and advice would be appreciated thanks for reading.