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Local U3a Diabetes Talk Today.

lucylocket61

Expert
Messages
6,394
Location
Wrexham
Type of diabetes
Type 2
Treatment type
Diet only
Well, the presentation turned out to be by Diabetes UK, not a medical professional like i thought, and was completely awful. He read from a script, badly, got his words muddled up, couldnt pronounce some stuff, got insulin and glucose mixed up repeatedly and,in the end,proved to have said nothing useful or helpful. Diet was not mentioned except that "a good diet was a good idea" in passing.

He and his wife had been doing these presentations, according to him, for 4 years, had been on training days etc etc. He started by saying he was diagnosed type 2 in 2012 and was now on insulin. We were told nothing, literally nothing of any practical use.

He focused on the importance of annual foot and eye checks, but not why they were important, and said that eye check are no longer available on the NHS in England. He said a lot about complications and all sorts of garbled statistics were give, which didnt add up, or differentiate between type 1 or type 2. He clearly didnt understand what he was saying.

He stressed not going to the internet for advice, but to stick to what our GP, DN or Diabetes UK say and not go to any other website.

There was no mention of dietary advice except a passing mention of eating fruit and veg every day and getting lots of exercise. There was no presentation of how insulin, glucose or diabetes works and causes complication. It was a complete waste of time. It was all about how Diabetes UK is the only charity doing research for a cure, stressing the terrible complications awaiting us, and trying to get us to join or raise funds for Diabetes UK to do this life saving research.

At the end, he asked if there were any questions. I asked about the NHS adopting the new low carb recommendations. He said that had nothing to do with DiabetesUK, its up to the NHS in each country, and there are no plans for Diabetes UK to change their dietary recommendations.

Someone challenged him on fruit being sugars, so were the good for type 2 diabetics, and he said they were so slow acting they were not harmful to blood sugar levels.

Someone else asked about type 1 and low carbing and he said he didnt know anything about that, but dont believe everything you read on the internet (is that a stock phrase these days?)

Another person asked the difference between carbs and sugars and he said that sugars were sweet, and carbs were not, and thats why we should focus on good carbs.

someone else asked about the increased risk he mentioned for Asian and afrocarribean people, and he said it wasnt genetic, its due to the rice they eat. I am not sure about that reply, it could be right, but then, our huge western carb consumption should surely put us all at the same risk if there is one?

Blood pressure and cholesterol were not mentioned. In fact, very little except promotional stuff for the good work of Diabetes UK and how we can get involved and fund raise for them to find a cure from this dreadful illness was mentioned (I may have got a bit cynical at that point)

Bearing in mind that the audience was not diabetic specific. Its a group of about 100 retired people who meet once a month to discuss many things, or have talks.

The guy did say that his last presentation elsewhere for Diabetes UK, only 1 person turned up

I stood up. I raised my hand. I spoke my truth to these 100 strangers I had never met before in my life. I talked for a few mins about low carbing and the difference it has made to my life over the past 6 years. I mentioned this site as an example of good websites and forums. They were silent, listened to me, and I kept my words and tone respectful and factual. My voice shook, I shook. I went red in the face. But I couldnt let you guys down.

and they gave me a round of applause. I couldnt believe it.

Then another guy also stood up and said similar things to me, and about getting off insulin and feeling better. I wish I had had chance to speak to him at the end. It opened up a real discussion. Afterwards, several people came up and got this website off me, and thanked me for giving them a positive outlook on what they can do to help themselves.

The speaker sort of disappeared, with all his leaflets. The organisers thanks were focused on thanking them for coming, and the applause was sparse.

Oh, and he also said that 85% of type 2 diabetics are overweight at diagnosis, so putting on weight is a cause of type 2.

sorry for the essay. Off for a plate of bacon, eggs and a cuppa in the local cafe.
 
Gosh well done for speaking out @lucylocket61 not easy in a big room of people all in the grip of the speaker. It sounds like you helped many people to think outside what they were being told and that can only be a good thing. I wont be buying that charity’s calender or Christmas cards if thats how they waste their money. It does remind me of my Desmond course, another great waste of money but didnt have to be that way.
 
You haven't written an essay just a really good account of what so many of us are up against. Good on you for having the courage of your convictions and for being willing (or annoyed enough) to speak up!
 
Gosh well done for speaking out @lucylocket61 not easy in a big room of people all in the grip of the speaker. It sounds like you helped many people to think outside what they were being told and that can only be a good thing. I wont be buying that charity’s calender or Christmas cards if thats how they waste their money. It does remind me of my Desmond course, another great waste of money but didnt have to be that way.
I think I was so distressed and angry that these people were there to get helpful advice and it was just a selling/marketing exercise for Diabetes UK, to frighten them into giving their time and money by presenting the situation as hopeless and progressive without extra finding for research and cures. I see it as no different from tobacco companies sponsoring their products and promoting them. I can still remember how I felt when I was told, on here, who the sponsors of Diabetes UK are.
 
@lucylocket61 I just googled sponsors and got a long list of celebrities and sports people. I really dont understand how their research has missed low carb lifestyle or am I missing something? PS. Hope you enjoyed your lunch!
 
Am I surprised? No, as it was DUK. A few years ago I went to some regular local sessions setup by the local DUK group and they were dire. Perhaps we need to gather the DUK team together and give them some training about diabetes. I also remember a few years ago a DUK representative being interviewed on the BBC radio and they got confused between Ketosis and Ketoacidosis in addition to giving the usual diatribe on diet. I resigned as a member 2 years ago in disgust.
 
Oh very well done @lucylocket61 I am proud of you and proud to know you! :) You are an absolute star for standing up and speaking like that. That was so brave. I want to give you a great big Thank You Hug. (((((())))))
 
@lucylocket61 well done you you must feel proud that you managed to get a lot of useful information out there. When I’m annoyed I always worry I won’t get my point across but you clearly did so well done to you - a star. Great that you managed to get some balance back and give diabetics some hope. That sheer lack of hope that is pedalled by the charity and by many HCPs is what is so bad for our hope and our health. Since I realised I could take charge and turn things around my whole outlook has improved and you’ve helped people today to realise there is hope.
 
I also remember a few years ago a DUK representative being interviewed on the BBC radio and they got confused between Ketosis and Ketoacidosis in addition to giving the usual diatribe on diet. I resigned as a member 2 years ago in disgust.

this guy did as well. He couldnt pronounce ketoacidosis properly, but said it was caused by not eating enough carbs and ending up in intensive care. and that the pump knew how much and when to give the glucose. An audience member was wearing a Libra and explained what that was at the end of the questioning. He had been type 1 diabetic since the age of 60 and corrected the DUK guy when he said it was diagnosed in childhood and very rarely in people older than their teens. He also took this website address as he wants to try reducing his insulin requirements through diet. I told him that i couldnt help, but you people on here would know more about it and have tried it.
 
The “information” this chap,was giving out is downright dangerous - will you be copying this post to DUK? They seriously need to revisit their training.
 
The “information” this chap,was giving out is downright dangerous - will you be copying this post to DUK? They seriously need to revisit their training.
I think I will have to write a letter to DUK. I felt the misinformation and lack of understanding was dangerous, and the guy was clearly out of his depth. I will stress that he was doing his best and was committed to helping others, but that he needs some re-training and support.

However, I (and several others who commented after he had gone) did get the impression that it wasnt so much an information and education talk but was a raising funds and awareness of DUK talk. There was a table by him with many leaflets and booklets on, in English and Welsh.

I will compose it over the next couple of days and let you all know if I get any response.

I think the confusion over glucose and insulin was dangerous and may send a message to DUK just on that bit tonight.
 
Well done @lucylocket61 you did a brilliant job. Hopefully some of those at the meeting will find us on here. I'm really impressed because standing up and speaking up about low carb to an unenlightened presenter must have been very stressful and hard. Have a gold star. :)
 
@lucylocket61 I just googled sponsors and got a long list of celebrities and sports people. I really dont understand how their research has missed low carb lifestyle or am I missing something? PS. Hope you enjoyed your lunch!

I have to say, it'd be very flawed of me not to point out that Diabetes UK were and are very major financial supporters of Professor Taylor (of the Newcastle Diet and DiRECT Study) and his work.

Diabetes UK's research database for T2 is here: https://www.diabetes.org.uk/researc...search=&0=103&1=103&2=103&3=103&page=0#search You can filter down by requirements.

It sounds to me like your speaker was from a local DUK Group, or a DUK Volunteer. There are some keen people out there.

I am an officer of my local DUL Group, and it does good work, or I wouldn't be involved. By virtue of that I am also a member of DUK. Like many of us here I have some issues with their approach, but they have a (loud) voice and change rarely happens when we distance ourselves from the issue.

@lucylocket61 - Well done for saying your piece and expressing your alternative (to theirs) view.

The tide at DUK is turning, but it is slowly, slowly,............... slowly.
 
I have to say, it'd be very flawed of me not to point out that Diabetes UK were and are very major financial supporters of Professor Taylor (of the Newcastle Diet and DiRECT Study) and his work.

Diabetes UK's research database for T2 is here: https://www.diabetes.org.uk/researc...search=&0=103&1=103&2=103&3=103&page=0#search You can filter down by requirements.

It sounds to me like your speaker was from a local DUK Group, or a DUK Volunteer. There are some keen people out there.

I am an officer of my local DUL Group, and it does good work, or I wouldn't be involved. By virtue of that I am also a member of DUK. Like many of us here I have some issues with their approach, but they have a (loud) voice and change rarely happens when we distance ourselves from the issue.

@lucylocket61 - Well done for saying your piece and expressing your alternative (to theirs) view.

The tide at DUK is turning, but it is slowly, slowly,............... slowly.
unfortunately they are still not researching low carbing, just low calorie and cholesterol intake. Even Taylors work is not low carb focused.
 
unfortunately they are still not researching low carbing, just low calorie and cholesterol intake. Even Taylors work is not low carb focused.

By the usually accepted, less than 130gr a day, it's low carb, even though it's focus is on the low-cal aspects. To be honest the post-DiRECT stuff is going to be far, far more interesting, as they are looking at maintaining remission.
 
@lucylocket61
I'm appalled that a large charity would allow themselves to be represented by such a (poor) speaker, amazed at your courage in speaking up, and impressed that you had such enthusiastic support - well done!

Robbity
 
I have to say, it'd be very flawed of me not to point out that Diabetes UK were and are very major financial supporters of Professor Taylor (of the Newcastle Diet and DiRECT Study) and his work.

Diabetes UK's research database for T2 is here: https://www.diabetes.org.uk/researc...search=&0=103&1=103&2=103&3=103&page=0#search You can filter down by requirements.

It sounds to me like your speaker was from a local DUK Group, or a DUK Volunteer. There are some keen people out there.

I am an officer of my local DUL Group, and it does good work, or I wouldn't be involved. By virtue of that I am also a member of DUK. Like many of us here I have some issues with their approach, but they have a (loud) voice and change rarely happens when we distance ourselves from the issue.

@lucylocket61 - Well done for saying your piece and expressing your alternative (to theirs) view.

The tide at DUK is turning, but it is slowly, slowly,............... slowly.
Sadly I cannot agree with your comments DCUK Mod...I believe they (DUK) have missed the tide completely...while it's true DUK have now changed their dietary advice (the first since 2011) they advocate low carbs & low fat...that approach does not work for me & many other T2 diabetics...they do little to support self monitoring blood glucose for T2's...apart from quoting the NICE guidelines as negatively as they can & referring members to their advocacy pack...I applaud Lucylocket for saying it like it is...whether this 'educator' was a volunteer...paid or unpaid...vicariously it comes under the DUK heading...therefore they have a responsibility to ensure any information given out under their 'sponsorship' is factual...accurate & beneficial for those attending these talks...they certainly do have a loud voice but it is used sparingly & selectively.
 
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