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Losing hope

D

Dippydolly

Well-Known Member
Messages
92
Type of diabetes
Type 2
so Been on insulin now 1 year and still my numbers are not coming down as soon as I put anything in my mouth my numbers shoot up I am eating very low carb and still no joy I am now getting very depressed with it all (I am seeing a diabetic specialist nurse next week) I really need help
 
Hello @Dippydolly

Sorry to hear that your numbers aren't coming down that's really frustrating.

Few things - what insulin regime are you on ? Have you done any educational courses to help you with your management ?
What sort of readings are you getting ? so before food and 2 hours afterwards ?
 
Prebolusing really helps me not to have my numbers go over 8 after I eat.

I just like to let people know, that if you are doing everything right and if things don't make sense, you could be a misdiagnosed type 1. I was and the latest stats say 40% of type 1's are misdiagnosed at first. It is sometimes hard to tell because at the beginning you still make some insulin until you don't, and the only way to know for sure is to be tested for antibodies and c-peptide.

So just keep it in mind, just in case.
 
Basically, we need to know what you eat, in an average day... Some things seem low carb, but aren't. If there aren't hidden sugars in anything, you really, really, really want to go in for a GAD and C-peptide test. @Marie 2 is right, could be you were misdiagnosed.
 
Being on insulin is really frustrating isn't it? You have my sympathies ; I need to inject because my pancreas has given up and eating anything but especially carbs will spike me for a long time unless I get my bolus doses well timed. It is simply hard to get right for both of us!
However if you were correctly diagnosed as type 2 and insulin resistant then being treated with insulin may make you become more insulin resistant and it isn't solving your high blood sugar symptoms and may also cause you to gain weight.
Have you been tested for fasting insulin levels or cpep/gatt?
Have you tried other options e.g. food?
 
welcome to my world i am writing this after having high level as for 2 weeks and have just been discharged from hospital as my levels were extremely high as nd i spent 3 days in hospital. I was on insulin and other medication towards the end of last year this year my community nurse has been weaning me of some of my meds and lowering my intake of insulin from 10 to 6 fine until now when it went all wrong. The diabetic nurse spoke to my community nurse and now I am back on some of the meds i was taken off and have increased my insulin intake
 

What are your numbers ? There seems to be a lot of confusion among the doctors and nurses of what are the good numbers. I suggest you seek advice from dietitian specialized in diabetic diet. I been told by my diabetic specialist nurse that the diet is more complex than one would think of. You might think you eat right, but you don't. Her words not mine. I have not yet been to dietitian but I only been diagnosed few months ago and actually got that advice month or two ago. It is on my list with so many other things.
I was adviced to aim for 5 for my morning Blood Glucose, which I gained in couple months. Now my new doctor tells it is too low that I should aim for 6-7 as I might be getting symptoms of complications in my feet from too rapidly dropping my blood sugar. Which I NOW! find is ever dangerous and toxic to nerves than long high blood sugar !
Also I found out (sinus) infection can raise Blood Glucose alsmot 2mmols. Last Thursday my morning BG was abuot my average 4.9mmol. Friday morning it jumped to 6.5mmol and I was "oh ****, I am getting sinus infection." And sure as **** that night I was sick as ****. Almost delirious form fever. It is now Thuesday night and I have not eaten more than one slice of bread in past 3 days and all the liquid just shoots past me. I lost feeling from soles of my feet. I had increased my insulin from 18 to 24 units and it still was 6.2.

So diet is complex, get advice from dietitian expert in diabetic diet. Get professional info FIRST and try it for a while to see how it works until you try fad diets from internet (even here). What works for someone else might not work for you. Stress and any infection/inflammation can raise BG a lot. Amount of sleep, and quality of it, eating schedules can effect blood levels. As can medication, not all meds work same way for everyone.


Edited by moderator for language
 
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We need to break down your diet piece by piece, so for example you should not be eating any sugar, sugar additives or sugar sweeteners. Next you should be label reading and limiting your processed foods by looking out for high carbs like grains and starches. Meaning no white bread or cereal. Also watch out for vegetable oils and trans fats like margarine.
Let's start by going over what you eat everyday.
 
Mike Sixx said:
So diet is complex, get advice from dietitian expert in diabetic diet. Get professional info FIRST and try it for a while to see how it works until you try fad diets from internet (even here). What works for someone else might not work for you.
Click to expand...

Hi @MikeSixx,

I agree everyone should choose the way to deal with diabetes that works for them and they feel most comfortable with.

However, if you meant to refer to the low carb way of eating as a fad diet, I would like to respectfully disagree. Low carb is an accepted way of controlling diabetes and has a lot of evidence befind it.

Specifically, in a consensus statement this year, the American Diabetes Association stated the following "Reducing overall carbohydrate intake for individuals with diabetes has demonstrated the most evidence for improving glycemia and may be applied in a variety of eating patterns that meet individual needs and requirements." If you want to read more on this, here's a link https://www.diabetes.co.uk/news/201...arb-diet-in-diabetes-management-91667065.html.

Health care professionals (and especially dietitians) are not always up to date with the latest research, you will find.


@Dippydolly -- Sorry for derailing your thread, just couldn't let this stand uncontradicted. Keeping my fingers crossed that you find a way to get better control of your blood sugar levels.
 
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My point was that eating right with diabetes is not just simple one thing like "Low carbs" if person is having problems they should first TALK (as opposed to reading an article on internet) with dietician specialicing on diabetes diet. It is not just being up to date with latest info. Not only do they know the good diet (that might not be be the latest best) but they also know the bad, the mistakes people commonly make. And you can tell you eating habits to them and they might know to suggest good solutions to improve. Thst is a good place to start to get the base knowledge. Armed with that info you are more prepared t go out there to explore even better diets.
Your advice is good for a person knowing enough and alredy eating good. But let's for an example say person falsily believes all fruits are healthy and eats kilo or papaya and whole pineapple every day.
 

I apologize, @Mike Sixx. The word "fad diet" probably set me off and apparently I have misunderstood what you meant to say.

Absolutely agree with you that it is a good idea to consult with HCPs and RDs in this case.
 

Hi Dippydolly,
My opinion - and that's all it is, an opinion. is as follows:
First it is important to check what it is that you are eating.
Many people think that only Sugar is bad for a T2D.
Others think that 'healthy whole grains ' are good for a T2D.
Both of those are generally wrong!
Have you seen the Sugar Equivalent Infographics (NICE endorsed) of Dr David Unwin?
They can be found here: https://phcuk.org/sugar/

Second. If your diet really is Low Carb, then you ned to see your Doctor regarding your diagnosis (as mentioned by the people posting above).

Third. You may want to see a dietitian, but so many of them still follow the orthodox guidelines (or they would be thrown out of their professional body), that I personally would avoid them unless you know they are prepared to take that risk.

Instead, I suggest you look in the Low Carb forum here and also the www.DietDoctor website.
Personally I didn't buy any books or pay for diet programs etc - just used the free resources, advice in these forums, a little common sense and a Blood Glucose Meter.
 
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