Mody and my 25mmol/L Advice?

[ModyKat]

Hi guys
I wanted to ask for any advice on tackling Mody, I was diagnosed with it back in 2010 and was put onto just glibenclamide.Nowadays I'm on 500mg Metformin and 80 mg of Gliclazide three times a day as well as 8 units of levemir insulin at night before bed: as of today Im now on 10 units of insulin. My blood sugars have barely been below 15mmol/L and at one point were 25mmlo/L, This morning I had a bowl of cereal (11am) and my sugars are at 17 I have yet to eat anything else. I'm extremely frustrated by this point as I'm constantly ill catching things and developing thrush, constantly lethargic and tired, lack of energy , constantly feeling queasy and I'm missing quite a bit of college due to illness and I do not want it to affect my grade.
All my doctor have done so far is put me on more meds, increase dosage but apart from that have given me no advice on managing it through diet or anything else and these people are meant to be my "Diabetic specialists" I really really feel I'm not getting the correct treatment and that My concerns are not being taken seriously.

I'm 19 years old and when I was diagnosed at 10 I was luck to have a head start unlike other family members like my mother who died of a heart attack when I was 8 (she was young and obviously had undiagnosed diabetes most likely mody) and recently my uncle (mother's side) passed away from complications such as liver and heart failure due to poorly kept diabetes. I dont want this to be me I don't want to die before 50 and I don't want to cause any more damage, I so far have no damage to my eyes feet or hands but that doesn't mean it will be like that forever.

Please Does anyone have any information tips advise of how to manage mody how to keep my bloods down, anything would be a lot of help as i'm struggling to get any advise from my docs?

thanks!

 

[andcol]

hello @ModyKat and welcome to the forum. As you have high BG levels whilst on medication and insulin at night I would suggest you consider reducing the amount of carbs you consume for a period and see what happens to your BG levels. Have a look at the low carb forum section for some food ideas.

 

[Brunneria]

I am no expert on insulin, but it sounds to me as you need some serious help from your diabetic team in sorting out your medication. I would be insisting on an appointment as soon as possible! If they continue to be unhelpful, you can ask for an urgent referral to a clinic where there are diabetes experts who should be able to help you.

No way should you be running with blood sugars that high.

Do you have a contact number for a nurse you can ring to discuss this? Have you been taught to carb count?

In the meantime, cutting back on your carbs seems like a good idea, but do it gradually, so you can see how the reductions affect your numbers.

Hope you get the help you need soon, and please come back and tell us how things go?

 

[azure]

@ModyKat I don't have MODY, but your blood sugars shouldn't be that high. I know different kinds of MODY require different treatments, and that some kinds need insulin to control the blood sugar.

I don't know if this is appropriate for you, but you could ask about taking fast acting insulin before your meals as this would help keep your blood sugar down after eating. It would also give you more flexibility.

If your team aren't helpful, could you change hospitals? Keep pushing to get the help you need.

Sending you my best wishes - high sugars are very unpleasant.