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Neuropathy Garbage

Discussion in 'Type 2 Diabetes' started by Stephen Lewis, Dec 19, 2018.

  1. Ponchu

    Ponchu · Well-Known Member

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    I’ve had dramatic improvement in pain when I dropped to 20 carbs daily, at about the 30 day mark.

    Jordan Peterson said “I could try anything for 30 days.”

    I agree.

    I’ve had untreated Type 2 for years so I’ve done some damage including tingling feet.

    It’s almost not noticeable now -6 months in.

    I don’t know if neuropathy is really reversible or not —

    Yet I’ve read testimonies and have my own experience


    I’m open to trying most anything that is sensible for 30 days.

    After arthritis & torn rotator cuff, I had to give up playing guitar and was very limited in exercise.

    I’ve gained weight on “low fat heart healthy” Eating.

    How dramatic is the change?

    I’m down to about 15% body fat and this week I did 10 pull ups and...

    Played some Christmas fingerstyle tunes on the guitar.


    Maybe?

    Hang in there!
     
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  2. Stephen Lewis

    Stephen Lewis Type 2 · Well-Known Member

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    I did smoke for many years but rarely more than 10 a day and stopped 9 years ago. I have been taking ALA but my pharmacy has either stopped getting it or cannot fins a supplier. It looks like I will have to go online and make sure I get the R-ALA. Does anyone have the name of a reputable supplier - I am always wary of online shopping.
    Thanks Glenn for the carb suggestion. I will try to bring my amount down to 50 gms a day or less and try to get my BG down to the 5s.
    I also read the research paper suggested by Indy51 and it looks as if continuous monitoring is the way to go and make sure I eat low GI foods to monitor and reduce the spikes.
    I agree with NicoleC1971 that the nerve issue is more to do with the signalling which is why the pregabalin does help as it reduces the intensity of the signal in the brain which is interpreted as less pain.
    Thanks everybody at least I now have some treatment ideas and objectives to provide motivation.
     
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  3. ickihun

    ickihun Type 2 · Master

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    Try supplement R-ala up to 600mg daily but start on low dose first.
     
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  4. DCUKMod

    DCUKMod I reversed my Type 2 · Master
    Staff Member Administrator

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    Stephen, as I said earlier, I haven't ever used R-ALA, but our friend, @Bluetit1802 uses it. Hopefully she'll indicate her supplier.

    Well done on giving up pn smoking. You'll be hard pressed to do anything better for your overall health. It affects every part of us.
     
  5. DaveXF

    DaveXF · Well-Known Member

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    An interesting thread...
    My pennyworth,
    According to many sources, DN is not reversible...there are plenty of sites with no obvious links to big pharma which say this, so why would they spout this unless it is believed to be true?
    Tonight, my feet are fizzing...the first time since Sunday.
    However so is my back, my right elbow and left wrist.
    My circulation is excellent ( dopplerntests today) and my BP is ok...not great but OK.
    Each joint on each toe has hairs, so have a good blood supply and yet they still fizz.
     
  6. Bluetit1802

    Bluetit1802 Type 2 (in remission!) · Guru

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    @Stephen Lewis

    I buy Swansons R-ALA double strength. It is available on Amazon

    https://www.amazon.co.uk/Swanson-Do...+Double+Strength+R-Fraction+Alpha+Lipoic+Acid

    and also from
    https://www.healthmonthly.co.uk/swanson_ultra_double_strength_r-fraction_alpha_lipoic_acid?search_string=Swanson Ultra Double Strength R-Fraction Alpha Lipoic Acid

    I do know that Swansons products are available in most countries if you have a Google.

    I think it is Germany, or somewhere on the continent that it is used by the medical profession to treat more severe neuropathy. In those cases large doses are given by infusion.
     
  7. Antechinus

    Antechinus Don't have diabetes · Well-Known Member

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    Extreme sensitivity to even the slightest touch is a known symptom of PN.
     
  8. Antechinus

    Antechinus Don't have diabetes · Well-Known Member

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    This has been an interesting thread and an interesting read. But I cant help but think maybe there is an element of treatment induced neuropathy, which is different from regular diabetic PN. Maybe someone with more knowledge about it may shed some information. Not a diagnosis; but your symptoms appeared when your meds got messed up, is that right?
     
  9. DCUKMod

    DCUKMod I reversed my Type 2 · Master
    Staff Member Administrator

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    Antechinus - Not specifically on this thread, but I do agree there are likely to be those who experience symptoms of peripheral neuropathy, or other things, like disrupted vision, actually when their bodies are in a state of repair, which can be a little down the road from diagnosis.

    My take on the PN/extremities position is that there could, for some, have been a period of very slowly developing loss of sensation during what an off-line T2 friend of mine refers to as hos "damage years". During that time sensations diminish, and are not so likely to be noticed, on a day to day basis, whereas when tingling (which can be sign sensation is recovering) appears, it is definitely easier to notice.

    For some, the tingle/discomfort/pain is a transient phase and unfortunately, for some it remains.

    That is my purely personal take on it, from observations on this site, for some years.

    Having only ever once experienced post operative neuropathy where I had some ribs scraped to remove a (thankfully benign) tumour. It was the most wearing pain, in it's consistency and persistency. Thankfully, careful dressing and (some!) patience has seen it virtually resolve itself in a couple of years.

    For anyone stuck with that sort of pain; they have my absolute sympathy.
     
  10. Joy nz

    Joy nz · Member

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    I have Neuropathy in my feet. My doctor did not do any thing about my blood sugar levels for quite some time ,changed my doctor and he said that should never had happened,. on insulin and neuropathy is not pleasant when in bed .Have tried medication with no sucess but would love to try medical marajana oil but its not legal here.
     
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  11. Crocodile

    Crocodile Type 2 · Well-Known Member

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    How long has your blood sugar been back in control. It really makes a difference but takes time. My neuropathy hardly bothers me at all now. Sugar control, R-ALA and tens together have all helped.
     
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  12. Stephen Lewis

    Stephen Lewis Type 2 · Well-Known Member

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    I could even smoke marijuana in Canada but I suspect that will not help. I am continuing with my low carb diet that has really helped the glucose levels - A1c down to 6.9 from 9.5 last February. Earlier in this thread it was suggested using R-Alpha Lipoic Acid and my diabetic clinic said I could have up to 1800 mgs per day. This would have been very expensive at over $16 for 60 100 mg tablets. I am currently taking 3 x 400 mg per day that cost about $12 for 60. The increased dose is much more effective. The pain is less. I also try and keep my feet very warm as this helps to increase blood flow which hopefully will stop the nerves from reacting. The pregabalin seems to help but I may cut the quantity if the improvement from ALA continues.
    BTW - my neuropathy got worse on insulin that I no longer take.
     
  13. Crocodile

    Crocodile Type 2 · Well-Known Member

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    Do you think your A1c can come down further. I noticed much better improvement after a few months of A1c with a 5 in front of it. Hard work and vigilance but worth the effort.
     
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  14. Stephen Lewis

    Stephen Lewis Type 2 · Well-Known Member

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    That's what I am working on. I can use the Freestyle Libre on and off (because of the cost and no coverage) so I am trying to get my A1cs closer to 5 by keeping my bg below about 7.5 at all times. The CGM helps me see if spikes are occurring and I can figure out what was the cause. Hoping for A1c below 6.0 in May and counting down. I do not want lift off!:)
     
  15. Goonergal

    Goonergal Type 2 · Moderator
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