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New and feeling isolated

Discussion in 'Newly Diagnosed' started by Cathiie, May 17, 2019.

  1. Cathiie

    Cathiie · Newbie

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    Hi everyone. I've been skirting around the 41 mark for several years as I'm very overweight, disabled so very sedate in activity and with a 1st blood line relative with type 2 diabetes (my dad). After a letter from my weight loss management team querying my marker and requesting another blood test and my gp receptionist getting hissy but finally letting me have another blood test, I recieved a text message at almost 8pm on Monday to ring them. Then Tuesday I get out of the receptionist that my marker is 49. I get upset but I'm told they have no appointments so I'll get a phone call Friday.
    So today I get a 6 minute call with 'yes it's type 2 diabetes but nothing to worry about' and the diabetic nurse can't see me until 24th June. I feel absolutely gobsmacked. Granted it's just into the range but it is there and I need support and help and I've got nothing. Added to the fact that I'm going on holiday in 10 days to the USA and the only advise was 'don't eat anything with sugar in it.' That was it!
    Fortunately my dad put me in touch with the makers of his blood glucose testing machine who are sending me a free machine as I've been having hypos for years and even more panicked going away and not being able to see anyone for over a month.
    Am I overreacting? I just feel I need help.
    • Hug Hug x 4
  2. Kittycat_7_

    Kittycat_7_ Type 2 · Well-Known Member

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    You really need to see a dr urgently if you've been having hypos for years, very unusual with type two unless your on medication.
    Tagging @daisy1 for her welcome pack.
    Many people find a low carb high fat diet helps improve blood sugar levels.
    Have you ever tested your blood glucose when having a hypo?
    What symptoms do you get?
    Welcome to the forum
    Take care
    • Like Like x 2
  3. xfieldok

    xfieldok Type 2 · Well-Known Member

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    You have come to the right place.

    Welcome to the forum. Tagging @daisy1 for the welcome pack for all newbies. You are definitely not alone.

    You are only just in the diabetic range. If you can take on board the dietary advice from this forum, the chances are you can be sorted.

    NHS dietary advice is appalling for diabetics. You are likely to be overwhelmed with information. Do not panic. Take a breath. Don't worry about your holiday. Read around the forum and ask questions.
    • Like Like x 3
  4. urbanracer

    urbanracer Type 1 · Moderator
    Staff Member

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    Of course you're overreacting. Thing is pretty much everyone of us here has done the same thing. Trust me, it gets easier and you will acquire the knowledge to deal with it.

    The sugar issue is misleading. Your body and everyone else's tries to turn all carbohydrates into glucose. Sugar is a carbohydrate but so is bread, rice, pasta and potato so try to reduce your portion sizes in the run up to your appointment.

    Let's ask @daisy1 to give you some information to get you going.

    Good luck.
    • Like Like x 2
  5. Resurgam

    Resurgam Type 2 (in remission!) · Expert

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    You are only just into the diabetic range.
    I suggest that you take a look at what you are eating at the moment and remove anything low fat. Replace it with a more natural sort of food, with natural fat. I eat chicken thighs rather than fillets, for instance.
    Then look at the total amount of carbohydrate you eat in a day and either eat half the amount of that food or replace it with a low carb food of a similar sort - I eat cauliflower rather than potato, for instance, and a very low carb protein bread rather than normal kinds.
    • Like Like x 3
  6. EllieM

    EllieM Type 1 · Well-Known Member

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    Unusual for T2s to have reactive hypoglycemia (RH), but apparently not unusual for RHers to develop T2.


    I'm tagging @Brunneria for you, also @Lamont D . Luckily the treatment for both T2 and RH is the same, watch those carbs (which is not just sugar, but bread, cereal, rice, potatoes, pasta....) Be aware that obesity is a symptom rather than a cause of T2, so if you go on a low carb regime there is a decent chance that your weight will reduce with it. I'm sure your dietitian will have been recommending low fat for years, the folk on here embrace the fats and reduce on the carbs (so porridge no, but bacon end egg, yes :)).

    You're still at the low end of T2, some of the folk here get diagnosed with an hba1c of 100, and get their figures down to normal just with diet (low carb). I bet you can get your figures down before you even see your doctor:). Good luck and enjoy your holiday.
    • Like Like x 2
  7. JoKalsbeek

    JoKalsbeek Type 2 (in remission!) · Well-Known Member

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    Believe it or not, the US tends to cater to people who cut carbs. Five Guys offers a hamburger wrapped in lettuce or served in a dish with loads of low carb goodies, and even Starbucks can be low carb. Because that's the problem: we don't process carbs well anymore. And if we eat less of those, meaning cutting out refined sugars, but also bread, pasta, rice, corn, fruit, your bloodsugars will go down. You're only just in the diabetic range, so getting back out should be doable! Check the dietdoctor.com website for meal ideas, it'll also give you an idea of what you can order. But as you'll be abroad and I assume not cooking yourself a whole lot, just ask your server to switch out potatoes and the like for a salad or greens. Skip the breadrolls, have coffee or tea for dessert. They'd rather you switch up the menu than having to toss out perfectly good food. https://www.diabetes.co.uk/forum/blog/jokalsbeek.401801/ migth help a little too, to wrap your head around it all. It's overwhelming, I know... But again, you're only JUST in the diabetic range. If you tackle this, you could be back into the normal range by the time your doc/nurse sees you. Wouldn't that be showing them, eh?

    You've got this.
    • Like Like x 5
  8. Prem51

    Prem51 Type 2 · Expert

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    Welcome to the forum @Cathiie. It is a shock when you get that diagnosis even if you were kind of expecting it.
    My mother was T2, and I had been told the year prior to diagnosis that I was pre-diabetic, though it seems I had been for at least three years but hadn't been informed. I knew I was overweight and might well become T2 at some point but thought I could take action before that. When I was diagnosed my HbA1c was 49, like you and it was a huge shock.
    The shock of diagnosis motivated me to lose weight, and by my 3 month retest I was down to 44, and at my 12 month retest I was down to 39. My weight and HbA1c has crept up since then but both are still lower than at diagnosis.
    I wasn't given any advice by my gp when she dropped the bombshell except to avoid sugar and grapes - I didn't eat grapes anyway!
    But you will get a lot of good advice and support on here. Have a read round the threads and ask any questions you want to.
    • Like Like x 1
  9. daisy1

    daisy1 Type 2 · Legend
    Retired Moderator

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    Hello and welcome to the Forum :) Here is the Basic Information we give to new members and I hope you will find it both interesting and helpful.


    Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

    A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 600,000 people who are demonstrating this.

    On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

    The role of carbohydrate

    Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

    If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

    The bad news

    Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

    The good news

    People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

    Controlling your carbs

    The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

    There are two approaches to controlling your carbs:

    • Reduce your carbohydrate intake
    • Choose ‘better’ carbohydrates
    Reduce your carbohydrates

    A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

    The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

    Choosing better carbohydrates

    The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

    Read more on carbohydrates and diabetes.

    Over 145,000 people have taken part in the Low Carb Program - a 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

    Eating what works for you

    Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

    To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

    The blood sugar ranges recommended by NICE are as follows:

    Blood glucose ranges for type 2 diabetes
    • Before meals: 4 to 7 mmol/l
    • 2 hours after meals: under 8.5 mmol/l
    Blood glucose ranges for type 1 diabetes (adults)
    • Before meals: 4 to 7 mmol/l
    • 2 hours after meals: under 9 mmol/l
    Blood glucose ranges for type 1 diabetes (children)
    • Before meals: 4 to 8 mmol/l
    • 2 hours after meals: under 10 mmol/l
    However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

    Access to blood glucose test strips

    The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

    • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
    • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

    Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

    You may also be interested to read questions to ask at a diabetic clinic.

    Note: This post has been edited from Sue/Ken's post to include up to date information.
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