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Newbie T2 where to start?

Discussion in 'Newly Diagnosed' started by waterfall2, Apr 12, 2018.

  1. waterfall2

    waterfall2 Type 2 · Member

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    Hi! (warning for long read ) ;)
    Great forum/site. Thank heavens for that.
    Diagnosed 3 weeks ago. Was shell shocked. Read that is normal. Went to Dr because I hadn't had a GP for 25 years living overseas - they don't have/use GPs there - just clinics. Moved back home again. Since not having had a GP mine decided to do some regular tests. SURPRISE. After that I can't remember numbers or anything he said. Nothing was written down for me and no dietician/nurse/team - anything, was offered or suggested.
    I "believe" he said my BG was 20? fasting. Here take these prescriptions, test your blood fasting and 30 min after supper everyday for a week and then after a week when you get your numbers under control you only need to test a couple of times a week. Oh yeah, cut out sugar, no bread, pasta, potatoes, rice, choose d"iet". Your blood pressure is high and so is your cholesterol - strange because I can't see it to look at you. ??? If I send you to a specialist they will put you on insulin right away.

    I THINK I am type 2. He just said diabetes. I am not on insulin, taking 1x metformin 500mg (morning) and 1 Mint Gliclazide 30mg (middag) and 1x metformin 500mg (bedtime)+ 1 ASA and 1 Rosuvastatin 20 mg.
    I'll admit - never taken meds before so I forget to time these. One day I broke out in hives all over. One evening my numbers nosed dived from 11 to 7 in a couple of hours .... was afraid something was wrong and I wouldn't wake up.

    Some of what I have read/learnt in 3 weeks....
    There is TONS of info here and out there. Many conflicting - as you all confirm. Also, what works for one doesn't work for all.
    There is no cure for diabetes - there is management. Carbs are bad, sugars are bad, don't believe the low fat hype.
    I def have liver dump - my numbers are highest in the mornings! Some ppl say same thing here and say they don't test in mornings because that just stresses their day out and they can't do anything about the liver dump - this is my situation too - glad to have read that post because it was stressing me WAY OUT. Some ppl said pickle juice helps - yeah, right, I thought. But hey, I love pickles so why not? This helps me too! Weird.
    Should test 2 hrs after not 30 min after.
    Metformin can be prescribed up to 2000mg a day so I am not on a high dosage.
    Some BG readings are not accurate - after reading this I have tested twice when I thought numbers were too high and found as much as 3.0 (YES 3.0) difference! what's up with that.
    Changing order of my meds could help - changed them now to glic in the morning and metformin at lunch and bedtime.
    I need to get my reports, he needs to show them to me and explain them, it isn't going to happen overnight.

    I have lead a life of extreme stress from a child and up to even now. I am a workaholic, worked 60-70 hr weeks in IT and was a single mom (gave up sleep - did not give up time with my son) and very engaged in my sons elite soccer training and volunteering etc. 6 yrs ago my step mom died from cancer, 2 yrs ago my sister (53) died of cancer less than 3 months after diagnoses - I left my job, home, life overseas and came home to be here for her and the family. Then after she passed I got shingles (TMI -yeast infection 2 years) went back and packed up and moved home permanently. BUT I still have had a great life - just saying because I am not writing this as a woe is me pity party. ;) I have a phobia of needles (I can prick my fingers because that always happenings when I am crafting anyway ;) )

    I'm 53 and HCP always ask if my data is correct because they think I look way younger. I LOVE veggies and fruit and salads. I do not need to lose weight. I am fairly active - Did a Mud Hero 6 km last July. Felt healthy. Don't smoke, don't do drugs, didn't take meds, stand 7 hrs a day at work- never sit, don't drink beer or coffee and maybe 4 teas a year and 1/2 a bottle of wine a year. Maybe 6 cans of pop a month - maybe. Maybe a chocolate bar a week. Otherwise I do not like chocolate. I don't eat "lite" food. Don't generally overeat. Love meat. I can have candy in the house for a year and not eat it. All this means a diabetic diet won't be toooo extreme for me. I don't do mornings well and was never a breakfast person.... I am a night owl.
    So I now am doing LCHF (50-70 carbs a day) and the numbers are going down but still bouncing throughout the day ... 7-14.

    • For you, when you were diagnosed... how high and how long did it take you to "normalize" your bg? Weeks, months, year?
    • If I am going from 20 to 11, is that good progress even if it is not good numbers? Get the impression my GP wants it stable within a month. ?? I realize I need to get around 6-7.
    • Can you drop too quickly... I mean in time, not in numbers? Dropping from 20 to avg of 11 in a week or 2 - can there be consequences of that (like withdrawl?)
    • I don't have excess weight to loose and the only thing that really seems to keep my numbers down is fasting (expect mornings) - I can't starve myself into good numbers. This is not a permanent solution. thoughts?
    • Extreme stress for a lifetime, workaholic, no sleep (still), bad work environment - trying to change all this and a 2 yr yeast infection - factors as to progessing to T2? Has changes in theses - has that affected your numbers?
    • Not producing enough insulin or not using my own insulin correctly - how do you know which it is? What numbers show/explain this?
    • I am afraid of needles, I am not a morning person, liver dumps, and drs visits stress me and now so will every visit - so not expecting BP or BG to be good in mornings. Should I request blood testing on fasting in afternoon instead?
    • Suggestions on how or if to tackle liver dumps? why/why not?
    • What other than diet has helped you?
    phheew! - that ought to keep us busy for a bit hahahha.:wacky:
    thanks for reading and any tips or comments would be greatly appreciated. (yes, I have read the newbie info)
     
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  2. CL_in_NZ

    CL_in_NZ I reversed my Type 2 · Well-Known Member

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    I have to run off but quick response on how long to see results. I saw a lot of variability over the first few months but trends kept getting better after a few months my BG got much more predictable and not much to see.

    As you will no doubt hear from others carbs are the key. Eat less and your BG will drop. Fruit has a lot!
     
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  3. SueJB

    SueJB Type 1 · Well-Known Member

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    Morning and welcome to the group. Initial diagnosis does leave you reeling doesn't it? You're right, there's info on here that does seem contradictory but it does all eventually slot into some kind of logic. Too many questions for this time in the morning, got to go travelling shortly but I'm sure everyone will be up and at you soon. Just to say we're all different..... I'm T1, my BGs have become more stable and that's after 8 months but there are still unexplainable weird ones. So that's my answer to your first question. I'll leave the rest for T2 experts.
     
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  4. JoKalsbeek

    JoKalsbeek Type 2 (in remission!) · Well-Known Member

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    Hi! That's a load of questions, and I don't know whether my answers are okay, but you'll get a bunch of replies, I'm sure... There'll be plenty to go on. ;) First thing's first: most likely you are indeed T2. If you were a 1, you wouldn't only be on pills. (And they wouldn't be doing anything for you.). So there's that. As for your other questions:

    • For you, when you were diagnosed... how high and how long did it take you to "normalize" your bg? Weeks, months, year?
    I needed some time between diagnosis and starting a new diet regime... So between then and normalisation, three months. Mostly because I didn't find this forum until much later, and I just had to read a whole lot to get the basics down, sort out my shoppinglist (so much food thrown out because I bought the wrong things!) etc etc.... It came down pretty fast once I got it right. I did have 2 dieticians, but they weren't really much help. Books, google, and later this place, were much more helpful.
    • If I am going from 20 to 11, is that good progress even if it is not good numbers? Get the impression my GP wants it stable within a month. ?? I realize I need to get around 6-7.
    Your GP can want whatever he wants, that's his problem, not yours. You can't tell a person next to nothing (and give wrong info. Test 30 minutes after eating. Riiiight.) and expect them to just magically have good numbers. Far as I know this is perfectly fine, but you might experience false hypo's. Because your body is so used to being high, a sudden drop may make you feel like you have a hypo: all the alarmbells going off and everything. But that's where your meter comes in handy. It can be quite the comfort to know you're not actually hitting hypo numbers.
    • Can you drop too quickly... I mean in time, not in numbers? Dropping from 20 to avg of 11 in a week or 2 - can there be consequences of that (like withdrawl?)
    Like I said, false hypo's may occur. And if you start into low carb/high fat, keto and other such diets, you might get what's known as carb/keto-flu. Basically it is a bit of a detox/withdrawal. Add a little extra salt to what you eat and it might alleviate the symptoms some. (especially the nausia, I've found) It'll last from a few days to a few weeks, as your body adjusts. But it does go away, and it is worth it.
    • I don't have excess weight to loose and the only thing that really seems to keep my numbers down is fasting (expect mornings) - I can't starve myself into good numbers. This is not a permanent solution. thoughts?
    You may be FISO, fat on the inside, skinny in the outside, if I have the term correctly. You may look slim, but there might be fatcells packed around your pancreas and liver. That doesn't show. Low carbing can help with that. You really need to let go of the morning thing.... Your liver is saturated with stored glucose. And it'll dump every morning. The longer you're low carbing, the less it'll be, and as your body gets used to lower numbers, the less your liver will dump to get you to what it percieves as the correct high numbers. That IS going to take a long time. I've been at it for a year and a half now and the liverdump's just letting up this week. (Was usually 6.6, now finally hitting 5.2 in the a.m.) So unless you want to get into intermittent fasting (I don't like it, I get too hungry), it isn't a permanent solution, no.
    • Extreme stress for a lifetime, workaholic, no sleep (still), bad work environment - trying to change all this and a 2 yr yeast infection - factors as to progessing to T2? Has changes in theses - has that affected your numbers?
    I was always going to be a diabetic. It's in my genes, I'm just lucky that way. But it would've taken a lot longer if it hadn't been for certain contributing factors (meds and conditions that made me obese, and dietary advice at the hospital that just made it worse. Eat more carbs, gee thanks...), but it might have been staved off for a while longer if i weren't so stressed all the time and slept well. That summer, the 3 months before diagnosis, especially. Stress messes with your numbers. (It's a cortisone thing.... Far as I understand it it is a hormone released when you're stressed, and that gives a signal to your liver to get ready for fight or flight... Which will make it dump glucose so you're ready for anything, energywise. And your pancreas can gallop to keep up with insulin procudtion only for so long until it's just exhausted. As I understood it all eh.).
    • Not producing enough insulin or not using my own insulin correctly - how do you know which it is? What numbers show/explain this?
    I'm not sure... I think it might be a c-peptide or another one... Someone else here will know.
    • I am afraid of needles, I am not a morning person, liver dumps, and drs visits stress me and now so will every visit - so not expecting BP or BG to be good in mornings. Should I request blood testing on fasting in afternoon instead?
    If you're going to be stressed, it's just going to be higher than usual. BUT... If you're going in for labs and they want a HbA1c, it's not going to make much of a difference. It's an average of bloodglucose in the previous two to three months, so a little blip thanks to white coat stress won't have that much of an impact. And I just test in the morning prior to the doc's visit and record those numbers. Sometimes I make a curve for her (testing a few times before and after eating throughout the day), so you can try that, in your own time, when your stresslevels are relatively low. Docters love numbers. Guess you could test your own bp for the same reasons too.
    • Suggestions on how or if to tackle liver dumps? why/why not?
    For me it just seems to solve itself as I low carb... Takes a while, but it'll get there. No rush.
    • What other than diet has helped you?

    Especially at the start? CBD oil! It stabilised the numbers, brought them down a little, and destressed me. Besides helping with the reumatism, which is why I began taking it in the first place, I finally started having a good night's sleep after having been an insomniac since early childhood. (Sleep is REALLY important for us. You need a rythm there. If you won't sacrifice time with your kid, lighten your workload, because somewhere, somehow, you need to sleep!!!! Think of it as trading it for a longer, healthier life you can spend with loved ones.). Anyway... CBD. It's a derivate of cannabis, but you don't get high off of it or anything... It's a supplement that's available from Holland & Barrett for instance. I don't take it half as often as I should anymore because it's expensive, but I'd be on an IV drip of the stuff if I could afford it. It is that good for you.


    I think that about covers most of it... Hope others will chime in on the blanks/mistakes I put in here. :) All in all you're off to a good start. I have a feeling you'll be fine.
    Good luck!
    Jo
     
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  5. Prem51

    Prem51 Type 2 · Expert

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    Hi @waterfall2 and welcome to the forum. You have grasped the basics of dealing with your condition quickly - well done!
    There is a lot to take in, and we are on a continuous learning curve. This forum is great for learning from each others' experiences.

    I was going to answer a couple of your questions, but @JoKalsbeek has answered them much better than I could.
    I expect others will be along to give you more advice too.
     
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  6. kokhongw

    kokhongw I reversed my Type 2 · Well-Known Member

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    20 to 11 is very good progress...there is no need to bring it down too fast. Sudden rapid changes are never healthy and may risk other complications. Give your body some time to adjust to the new normal...

    Early worsening of diabetic retinopathy after rapid improvement of blood glucose control in patients with diabetes
    https://www.sciencedirect.com/science/article/pii/S1262363617305700

     
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  7. shelley262

    shelley262 Type 2 · Well-Known Member

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    @waterfall2 welcome you’ve clearly come a long way on the learning curve already - and yes there’s a lot of information to take on board especially the fact that much of the info differs and in addition each of us is unique with different circumstances, body size, diets, likes and dislikes etc!
    You’ve had some good advice so far so I’ll just point out a couple of things from your post that are red flags in terms of things I believe you need to work on turning round to get your numbers down.
    Consumption of fruit is a big problem I used to drink fruit juice and eat fruit and now restrict to a few berries occasionally as a treat with double cream as I have major spikes with nature’s candy. Many vegetables too affect me check out www.dietdoctor.com for lists of the good fruit and veggies to aim for in your diet and importantly which ones to cut out.
    Stress and lack of sleep are also things that really don’t help diabetes and in my opinion contributed to my diabetic condition. As a carer I’ve had a lot of stress and sleepless nights over years which do raise cortisol in the body and notice even now that although I’m in good control of my bgs when a caring crisis happens my bgs go up to the higher level. Personally I’ve had to find a way of managing my stress and I gain a lot from doing just a few mins a day on the mindfulness app ‘headspace’ its Also got routines to help you sleep etc would really recommend it as it only takes a few mins a day but you do need to do it most days to get results. I also do Pilates with a weekly class and practice for a few mins a day too. Know time is difficult but would recommend you find some speedy stress busters like this as stress seems to be a big part of your regular life. You’ve had huge life changes, losing your sister, a major move etc and now to top it off a diagnosis of diabetes - a stressing thing in itself.
    You do need to be kind to yourself, take it gently, its a slow process bringing the numbers down but you’re doing a brilliant job to date and if you continue as you are you will get there I’m sure.
     
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  8. Rosiegough_

    Rosiegough_ Type 2 · Well-Known Member

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    I’ve never heard of CBD oil, can you tell me what it is please x
     
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  9. Rachox

    Rachox Type 2 (in remission!) · Moderator
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    Hi and welcome.waterfall, rather than answering your specific questions I’ll tell you my story, as you seem to have grasped the practical points of dealing with type 2, however your post struck accord with me when you said “Diagnosed 3 weeks ago. Was shell shocked”. “Shell Shocked” was the title of my first post here on the evening of my diagnosis. That was eleven months ago.
    Once I was over the initial shock, I saw it as the proverbial kick up the bum to get healthier. I was started on Metformin tablets and tolerate them well now after a bit of stomach upset in the early days. I wasn't advised to eat low carb by my GP or Diabetes education course, but stumbled on this forum by chance and took up a low carb life style with self monitoring. I started by eating less than 100g carbs/day to begin with and then after 6 weeks reduced it to 50-70g/day, nowadays I tend to keep under 60g. I still self test between 4 - 7 times per day.
    This has worked for me, to date I've lost 5 1/2stone (still more to go) and my HbA1c, originally at 70, has been down at non diabetic levels since last September, all due to the fantastic support and advise I got here. Read around the Forum and ask any questions that occur to you.
     
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  10. JoKalsbeek

    JoKalsbeek Type 2 (in remission!) · Well-Known Member

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    Cbd, short for cannabidiol, is a derivative of cannabis plants (weed). It is available in various percentages, the most common being 2,75%. A few (disgusting, but you get used to it) drops under the tongue helps as an anti-inflamatory, can reduce stress and anxiety, drop bs, aid in sleeplessness and a myread of other things. As cannabidiol is something which naturally is present in our body it is quite legally available as a supplement from nature shops. It's non-hallucenogenic as there is no THC in it. The stronger stuff with THC is perscribed in the Netherlands to oncology patients and people with MS, and not available over the counter without a doc's script. Sadly, the simple supplement is self-funded, but atckeast it's widely available. Holland & Barrett should have it on their website and their shops. Hope that helps!
     
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  11. waterfall2

    waterfall2 Type 2 · Member

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    THANK YOU THANK YOU THANK. For taking so much time to explain. What a relief! Day 4-7 I was sick as a dog with what I thought was the flu- now I know.
    I have insomnia but m working on it... I've upped my avg to 5 and 3/4 hrs sleep YEA! That's huuuge for me. Trying to get 7 most nights now and maybe some 8 or 9s.
    Most important is knowing this isn't gonna happen in a wink ... that is a load of stress off. Now I know this I can work on this with renewed I panicked energy. Gone thru 120 strips in 3 weeks trying to understand dips and spikes.
    Thank you again!
     
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  12. waterfall2

    waterfall2 Type 2 · Member

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    Rachox, Thank you! I appreciate your time and story/answers. :) If I were stranded on a desert (or even dessert island ;) ) and could only have one food it would be fruit -watermelon! I realize that fruit is high in sugar so I'm being diligent.
    Everyone here is so helpful and supportive. I've read many a post.
    The support brings tears to my eyes. I'll sleep better tonight.
     
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  13. waterfall2

    waterfall2 Type 2 · Member

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    shelley262,
    Thank you for your reponse and info. I will check that link out on the weekend.
    Took me a bit to get my iPhone to let me click like on your responses (new to forums also. Hahaha)
    I appreciate your kind and thoughtful words.
     
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  14. waterfall2

    waterfall2 Type 2 · Member

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    SueJB,
    Thank you Sue! Every answer is appreciated! Hope your day was great!
     
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  15. waterfall2

    waterfall2 Type 2 · Member

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    kokhongw,
    Thank you! :). This is such a relief to know. The encouragement means a lot! Going forward! But right now going to bed ...zzzzzz
     
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  16. waterfall2

    waterfall2 Type 2 · Member

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    Prem51,
    Thank yiu for taking the time to respond and thank you for the praise .. it means a lot. I have gotten many great answers and support to help me long my way. Hope to be a help to others soon. Gnight.
     
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  17. kokhongw

    kokhongw I reversed my Type 2 · Well-Known Member

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    Fasting is a very effective tool to normalize fasting glucose levels, among other things, especially when we have excess fats to lose. However if your goal is to maintain and gain lean muscle mass, then strength training may be a better option.

    I typically fast 24-48 hrs once a month to maintain my fasting glucose around 5.5 mmol. No medication, no exercise.
     
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  18. Rosiegough_

    Rosiegough_ Type 2 · Well-Known Member

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    Thankyou I’m going to try some xx
     
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  19. jasmindesylva

    jasmindesylva Type 2 · Well-Known Member

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    Wow. Thank you all for sharing. I was diagnosed 2 days ago. My GP scared the heck out of me, saying as an Asian your BG is very high, and then he checked my Bp and said my systolic was too high. 90/140 I think. I have been scared to eat anything and am so upset with my body. I feel like it’s letting me down. I am a strong person and I have been taking great comfort from all your advice and experience. Have ordered my SD code free kit and I know I’m going to get this under control. I once again thank you all for sharing your stories. I feel less alone. X
     
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