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Newly Diagnosed and on long term steroids, need help!

DavidsMummaJo

Newbie
Messages
2
Location
Surrey
Type of diabetes
Treatment type
Tablets (oral)
Dislikes
Injustice of any kind!
Hello Everyone, I am newly diagnosed type 2 and on metafornim 500mg morning and evening. I also have Rheumatoid Arthritis and have been on steroids (Prednisolone 15mg daily, higher when having a flare) for 23 years. Are there any other patients here on steroids? I have known in the past that when raised they have affected my bs,but after a bad bout of pneumonia in September I have had several blood tests and told I am now officially type 2 and need tablets. I am worried about control as I get very hungry and have followed a well known diet plan which has free foods for years when I have my hungry days, but gather now I cant do this. I am due to go on a Desmond Course but not for 8 weeks and meanwhile am struggling and panicking.... would so appreciate any ideas or advice. Thank you
 
Hi. I'm afraid steroids virtually always cause raised blood sugar and it's a well-known problem. The right low-carb diet will help to some extent and that means keeping all carbs right down and having enough proteins, fats, veg and non-tropical fruits to make you feel full. With a low-carb diet, your hunger should reduce as carbs tend to cause a vicious circle.
 
Hello Everyone, I am newly diagnosed type 2 and on metafornim 500mg morning and evening. I also have Rheumatoid Arthritis and have been on steroids (Prednisolone 15mg daily, higher when having a flare) for 23 years. Are there any other patients here on steroids? I have known in the past that when raised they have affected my bs,but after a bad bout of pneumonia in September I have had several blood tests and told I am now officially type 2 and need tablets. I am worried about control as I get very hungry and have followed a well known diet plan which has free foods for years when I have my hungry days, but gather now I cant do this. I am due to go on a Desmond Course but not for 8 weeks and meanwhile am struggling and panicking.... would so appreciate any ideas or advice. Thank you
Hello,I too am on long term steroids,ranging from 40mg(flare up) down to daily control dosage of 20mg. I know the hunger it can cause,and as diabell states you have to control your carbs. I too went on Desmond course and yes, helpful but I also found it conflicting with advice regarding carbs......when I am on my higher dosage my blood glucose soars irrespective of what I eat. When on my maintenance dosage I curb the carbs but it is higher than I would like. For myself because my diabetes was caused by the years of steroids I was put straight onto insulin,I am type two. Perhaps you can ask to be refered to a dietics dept ??? I was and found after speaking to them I was not quite as scared of food as I originally was.....wishing you well.
 
Hello Everyone, I am newly diagnosed type 2 and on metafornim 500mg morning and evening. I also have Rheumatoid Arthritis and have been on steroids (Prednisolone 15mg daily, higher when having a flare) for 23 years. Are there any other patients here on steroids? I have known in the past that when raised they have affected my bs,but after a bad bout of pneumonia in September I have had several blood tests and told I am now officially type 2 and need tablets. I am worried about control as I get very hungry and have followed a well known diet plan which has free foods for years when I have my hungry days, but gather now I cant do this. I am due to go on a Desmond Course but not for 8 weeks and meanwhile am struggling and panicking.... would so appreciate any ideas or advice. Thank you
Sorry forgot to add,don't be scared of your food choices,it's a huge area and steroids do give you an enormous appetite.....just try to avoid high carbs,as you've been following a diet for years you may find that you might only need to moderate it a bit......good luck...
 
You don't need to go hungry and you can keep the carbs low by learning about foods. Preparing your own meals, if you have the time, can ensure that you eat the right stuff but also, the simple act of preparing it in the first place, eases those hunger pangs.

This lamb and barley stew was the first thing I cooked after my diagnosis:

Lamb-stew-with-pearl-barl-006.jpg



With a GI of around 25, pearly barley is very low and, as you don't eat much of it, the recipe only requires 30g for 2 people, it won't even cause your Bg levels to quivver.

If you get either a soup maker or a slow cooker, you'll be surprised what low carb but tasty meals can be cooked up. If you eat carbs, just make sure that they are low GI to begin with or, if you have to have something which is medium GI, just reduce the portion size.
 
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You don't need to go hungry and you can keep the carbs low by learning about foods. Preparing your own meals, if you have the time, can ensure that you eat the right stuff but also, the simple act of preparing it in the first place, eases those hunger pangs.

This lamb and barley stew was the first thing I cooked after my diagnosis:

Lamb-stew-with-pearl-barl-006.jpg



With a GI of around 25, pearly barley is very low and, as you don't eat much of it, the recipe only requires 30g for 2 people, it won't even cause your Bg levels to quivver.

If you get either a soup maker or a slow cooker, you'll be surprised what low carb buy tasty meals can be cooked up. If you eat carbs, just make sure that they are low GI to begin with or, if you have to have something which is medium GI, just reduce the portion size.
Slo- cooker has been my saviour. Good advice from Yorksman.....
 
Hello,I too am on long term steroids,ranging from 40mg(flare up) down to daily control dosage of 20mg. I know the hunger it can cause,and as diabell states you have to control your carbs. I too went on Desmond course and yes, helpful but I also found it conflicting with advice regarding carbs......when I am on my higher dosage my blood glucose soars irrespective of what I eat. When on my maintenance dosage I curb the carbs but it is higher than I would like. For myself because my diabetes was caused by the years of steroids I was put straight onto insulin,I am type two. Perhaps you can ask to be refered to a dietics dept ??? I was and found after speaking to them I was not quite as scared of food as I originally was.....wishing you well.
Thank you for reply. It is good to know I am not alone in trying to control this whilst on steroids. I am now down to my maintenance dosage of 15mg daily, and yesterday felt quite poorly in the evening, (I had gone to a friends for supper) her daughter is atype 1 diabetic from childhood. Whilst there she tested my blood sugar which registered as 3 and said I must eat... it was rather odd as I thought all mysymprtoms were due to my bloods being too high in sugar? I do sometimes wake in the morning feeling groggy and with a tingly upper lip (weird I know) which improves after my cup of tea and further after breakfast. I think I will ask to be referred to a dietician and wonder about self testing though my gp was not keen on this, as I am anxious not knowing what foods are having an effect on me. Thank you again.
 
Welcome
I can't help with steroids but you already have contact with a few people who can.
I will tag @daisy1 who gives some general helpful information.
Do ask questions and as you have already seen people are only too happy to respond.
 
@DavidsMummaJo

Hello Jo and welcome to the forum :) Here is the information we give to new members, as mentioned above, and I hope this will help you with your levels. To find out what effect foods have on you, test before eating then 2 hours after. Ask as many questions as you like and someone will be able to help.


BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find over 150,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates

Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes-and-whole-grains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to bloodglucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 
Thank you for reply. It is good to know I am not alone in trying to control this whilst on steroids. I am now down to my maintenance dosage of 15mg daily, and yesterday felt quite poorly in the evening, (I had gone to a friends for supper) her daughter is atype 1 diabetic from childhood. Whilst there she tested my blood sugar which registered as 3 and said I must eat... it was rather odd as I thought all mysymprtoms were due to my bloods being too high in sugar? I do sometimes wake in the morning feeling groggy and with a tingly upper lip (weird I know) which improves after my cup of tea and further after breakfast. I think I will ask to be referred to a dietician and wonder about self testing though my gp was not keen on this, as I am anxious not knowing what foods are having an effect on me. Thank you again.
Glad I was of some help,I know you get told don't test but how can you tell if you go low or what foods spike you if you don't.......hopefully dietician will say get one(or give you one)....good luck.....by the way tingly lips I get when I go low!!!
 
Hello Everyone, I am newly diagnosed type 2 and on metafornim 500mg morning and evening. I also have Rheumatoid Arthritis and have been on steroids (Prednisolone 15mg daily, higher when having a flare) for 23 years. Are there any other patients here on steroids? I have known in the past that when raised they have affected my bs,but after a bad bout of pneumonia in September I have had several blood tests and told I am now officially type 2 and need tablets. I am worried about control as I get very hungry and have followed a well known diet plan which has free foods for years when I have my hungry days, but gather now I cant do this. I am due to go on a Desmond Course but not for 8 weeks and meanwhile am struggling and panicking.... would so appreciate any ideas or advice. Thank you

Hi. I am on Prednisolone too. This was following a kidney transplant in February along with anti-rejection meds. Initially, I was on 20mg per day. This caused or, according to most doctors, triggered what they called a predisposition to... type 2 diabetes...whatever...Gradually, as is common with transplant patients, my dosage was cut. It's not down to 5mg...but it still causes spikes in my levels. I was put on Gliclazide to lower blood sugars (probably the pills you will be placed on (or one very like it) and that was then doubled. My levels varied from about 7.5-14.5, but once or twice I had a reading of below 4, and it has once or twice been as high as 18. Now the better news....I have managed to really change my levels by doing three things, and as it was clear that the Gliclazide was doing nothing...I informed my doctors that I was stopping it to try control by diet instead. 1] I make sure I drink at least 2 litres of fluid a day (usually more)...diluted orange or diluted berry juice. I avoid all sugar drinks and pure fruit juices. 2] I do a little bit of anaerobic exercise for about 10 mins several times throughout the afternoon/early evening (sit ups/stretching stuff..nothing too crazy) 3] I avoid all high carb foods. It's the last of these that has really made the difference. If I stick to this, my levels are inside the normal range (with the one wee spike...8.5-9.5)...once a day after I take my Prednisolone (you will find that that is when your readings are highest if you are avoiding high carbs). If I take my Prednisolone at 8am (when my level is maybe 6.5-7.5) my level goes up to maybe 9.5 by midday and then has fallen again by about 2pm. But at all other time sits less than 7.5 and can be as low as 4.5 by bedtime. I do NOT starve! Slices of smoked cheese, dried bacon strips, eggs, low carb wafers....all make nice little snacks. there are lots of nice things still ok to eat...fish, chicken, steak, and lots of low card veggies (broccoli, cauliflower, salad). Avacado is great and asparagus can help lower levels. I drink a nice bottle of beer with my dinner. I AVOID - bread, cereal, potatoes, pasta, crisps and, of course, sweets, biscuits and cakes...and I have very quickly got used to it. You could, however, get away with a wee treat now and then....there is ONLY one way to figure out how to best eat and when, and what you can get away with..and that's by testing your blood sugar levels at key times. I keep a wee notebook...recording what I eat and when, and I note the levels before and two hours after food. generally, I test 6-8 times a day. the reason doctors don't advise this, is that they don't have diabetes! It's only by doing this you can be IN CONTROL. Now, I have been off my Gliclazide for about 6 weeks and doubt I'll be going back on it. I fully expect my levels to drop further the longer I am doing what I do as the body responds to this. And, as a result the spike from my Prednisolone is coming down. Seriously...a low carb diet and a food diary puts you in control. We all differ, and you should always make sure your doctors are aware of what you are doing. I know I have yattered on a bit here, but I hope you get something out of it. Don't panic...I was doing that...turns out..I didn't need to. I'm type 2, but it's definitely more manageable than you fear. Good luck - and start checking labels on food...you'll soon figure out what's bad and what's not...and there's tons of great info on this site.
 
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