Type 2 Newly Diagnosed - Very Concerned Very Perplexed!

jml2409

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2
About two weeks ago I went to the doctor's because my feet and legs were very swollen. I do not have a thyroid and was taking 150 mcg Levothyroxine I also have parathyroidism for which I take calcium carbonate, Yes I am overweight and have been since I had my first partial thyroid operation at 15 years old; I since had to have a second total thyroidectomy operation about 7 years ago and my weight gain has increased, .
The doctor sent me for blood tests, when the results came back I was told to see the nurse; the earliest appoint being over 2 weeks away. I phoned back and said my initial concern were my feet which were getting gradually worse, so an appointment was made with the doctor instead. I was basically told my Levothyroxine needed increasing to 175 mcg and that he had not done a calcium test, even though my notes would show my previous history. The doctor then said "do you know you have diabetes" (type2) . My reply was that I never been tested before.. I was given 500 mg Metformin, told to take them for a week then increase the dose to 2 tablets. None of the results were discussed and I was told to discuss with the nurse in two weeks time.

The swelling in my feet in not getting better despite being prescribed Frusemide 40mg. the skin on my right foot feels as though it is fully stretched and numb. If I extend my feet my toes seem OK but from after my toes to just above my ankle goes white and it feels very sore.

I am concerned on many levels .
1.That I was just told I had diabetes and given a drug but nothing else was discussed. I know nothing about BS levels or anything and I never asked, never occurred to me, especially when put on spot re:the diagnosis.

2. My mum and uncle died from pancreatic cancer, when they were a couple of years older than me so know I am feeling very concerned to say the least, which explains the knee jerk reaction at the doctors (ignore it and it will go away)

3.My swollen feet.! Everything I read says go to your doctor , report changes to your doctor, swollen feet must be treated etc, Then I read that Metformin can cause feet to swell.!!!!!!! My feet have always swelled up - I put it down to the thyroid medication or the calcium. Seems it may not have been and that I may have had un-diagnosed diabetes. I have got visions of them being chopped off if they don't get better!! (Sorry but do have a tendency to to look at the worst aspects!)

Anyway sorry about the rambling just wondered if there was anyone out there in a similar position re: Thyroid/Diabetes/Swollen feet who can give me some advice,
 

Antje77

Oracle
Retired Moderator
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19,464
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LADA
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Welcome to the forum!
Can't help you with thyroid or swollen feet, but I'll tag @daisy1 for you who'll give you a very useful welcoming info sheet about your diabetes. I hope things will get better for you shortly, and keep nagging your gp about your complaints!
 

Resurgam

Expert
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9,868
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Diet only
In the months after diagnosis my feet shrank quite a lot - so that I needed to buy new footwear and get rid of quite a few pairs of shoes.
I too take 175 micro-grams of Thyroxine each day, and have needed to for quite a long time - I am 67 now.
I found that the low carb diet is enough to control my diabetes, it worked very quickly so that I was back to normal numbers in 6 months, and I do recommend it as it seems an easy option.
 

jml2409

Newbie
Messages
2
In the months after diagnosis my feet shrank quite a lot - so that I needed to buy new footwear and get rid of quite a few pairs of shoes.
I too take 175 micro-grams of Thyroxine each day, and have needed to for quite a long time - I am 67 now.
I found that the low carb diet is enough to control my diabetes, it worked very quickly so that I was back to normal numbers in 6 months, and I do recommend it as it seems an easy option.
Thanks that is heartening to read. My sister swears by a low carb diet and she is a size 8 wet thru' so I shall have to follow her example!
 
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Prem51

Expert
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Welcome to the forum @jml2409. Sorry to hear about your problems with your feet. I can only say that others on here have found that their neuropathy has got better as they reduced their blood glucose levels.
Do you know what your HbA1c (blood glucose) test results were? If not you should find out from your GP surgery. They should be available to view online, but you need to ask your surgery for online access. If not you should ask for a printout of the results, which you are entitled to. It helps to have this information to know where you are starting from.

It is likely that your bg levels are high if you are already experiencing neuropathy. But many of us on here have found we could reduce our bg levels by adopting a Low Carbohydrate High Fat (lchf) approach to eating - your sister is right about that!

Have a read round the threads to see how it works and ask any questions you want to. Your experience of not getting much advice from your gp is unfortunately fairly common. But you will get a lot of good advice and support from people on here who are also dealing with being diabetic.
 

daisy1

Legend
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26,457
Type of diabetes
Type 2
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Tablets (oral)
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Cruelty towards animals.
@jml2409

Hello and welcome to the Forum :) Here is the Basic Information we give to new members and I hope you will find it useful. Ask as many questions as you need to and someone will be able to help.

BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 235,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:
  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.
Take part in Diabetes.co.uk digital education programs and improve your understanding. Most of these are free.

  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why

  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
 

Rachox

Oracle
Retired Moderator
Messages
15,901
Type of diabetes
I reversed my Type 2
Treatment type
Tablets (oral)
Hi jml and welcome to the Forum. Sorry I can’t help you with your feet or thyroid problems, but for your diabetes loads of us here have had success with low carbing and self monitoring. With advice from here and your sister you can sort out your meals, however do you monitor your blood sugars at home. You will get valuable information about what your body can and can’t deal with. If you want to go down this route we can help you select a meter.

Edit for typo.
 
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