Oh My Word! Feedback Received From My Dn

[Flora123]

The confusing thing is that my sister was t2d and had bariatric surgery. Her pancreas kicked straight back in and is now completely non diabetic as in no insulin resistance. Still trying to get my head around that.

Do you mean she can eat carbs without a problem?

 

[Debandez]

Do you mean she can eat carbs without a problem?

Carbs without any problems.

 

[lucylocket61]

I am not sure how to explain this, but the idea of bariatric surgery stopping any carb intake problems in its tracks worries me.

I mean, I understand and accept that it happens. But it feels, to me, that its like bypassing a safety valve to stop the RCD's from tripping. It may stop the lights going out, but it is also doing other hidden damage, or increasing the risk of damage elsewhere, which we cannot see. Safety switches are there for a reason.

I dont know if I am making sense, but we just dont know what other mechanisms of the body may be being harmed or overworked.

Do we have figures for the long term effects of bariatric surgery? and how long 'long term' is? Not just for type 2 diabetes, but other issues. i have tried to google to no avail.

 

[DCUKMod]

I am not sure how to explain this, but the idea of bariatric surgery stopping any carb intake problems in its tracks worries me.

I mean, I understand and accept that it happens. But it feels, to me, that its like bypassing a safety valve to stop the RCD's from tripping. It may stop the lights going out, but it is also doing other hidden damage, or increasing the risk of damage elsewhere, which we cannot see. Safety switches are there for a reason.

I dont know if I am making sense, but we just dont know what other mechanisms of the body may be being harmed or overworked.

Do we have figures for the long term effects of bariatric surgery? and how long 'long term' is? Not just for type 2 diabetes, but other issues. i have tried to google to no avail.

Lucylocket - I have often posted my views on bariatric surgery, having observed someone go full circle, from morbidly obese, to very slim indeed and all the way back. Along the way, they ended up tens of thousands of pounds (Sterling) lighter, having had their surgery in the US, then bought wardrobes to take them down these sizes, then back up.

However, leaving all that aside, if @Debandez 's sister lost some weight post op, she may have breached her personal fat threshold, and if she is also maintaining some weight loss, she could be in that golden zone.

Everyone's dietary choices are very personal, and we each have a different level of carb tolerance, but again for some people, post-surgery, just eating marked smaller portions could be enough to resolve matters.

It's all a big, mysterious puzzle.

 

[Goonergal]

I have copies of the recipe booklet and inspirational stories booklet ready for my nurse tomorrow. Not seeing her about diabetes, but a chance to see if there’s any interest. Will let you know how it goes.

@Debandez got call from surgery about an hour ago saying nurse is ill so appointment cancelled. Now arranged for next Thursday. Will let you know how I get on.

 

[pollensa]

Well the stats as I read it are zero diabetics have gone into remission apart from those who have had bariatric surgery. But I'm meeting with the DN to discuss further.

Oh goodness, I think the whole Diabetes system generally needs a shake up, a review on all areas, updated on vital important and correct facts that are current and old and outdated, it seems the people holding responsible positions to have jurisdiction to guide, inform, answer questions, other, have just that responsibility to get it right, know their facts inside out and this is simply not true to my understanding apart from bariatric surgery its only these diabetes that have gone into remission.

A retired lawyer I am particular about facts, and I can confirm real facts, I have not had bariatric surgery, and simply made four lifestyle changes

1.
Low Carb keto eating plan smaller portions of food
2.
More exercise daily, min 6klm walk up to 9 depending on time,
3.
no snacking inbetween meals
4.
Intermittent fasting 7 days a week, 4 days no snacking between meals, thats actually intermittent fasting, plus two days 18 hours fasting, and 1 day 24 hour fast.

Results normal normal normal and medical official records scrubbed off pre diabetes to non diabetic range.

I have reversed, and taken control so the person informing this is not correct on her facts unfortunately, and such situations should change and not exist.

Hoping another meeting with your DN will clarify sort it all out for you. Good luck you deserve it, considering the efforts and results you have. Its appalling, simply that.

 

[lucylocket61]

Lucylocket - I have often posted my views on bariatric surgery, having observed someone go full circle, from morbidly obese, to very slim indeed and all the way back. Along the way, they ended up tens of thousands of pounds (Sterling) lighter, having had their surgery in the US, then bought wardrobes to take them down these sizes, then back up.

However, leaving all that aside, if @Debandez 's sister lost some weight post op, she may have breached her personal fat threshold, and if she is also maintaining some weight loss, she could be in that golden zone.

Everyone's dietary choices are very personal, and we each have a different level of carb tolerance, but again for some people, post-surgery, just eating marked smaller portions could be enough to resolve matters.

It's all a big, mysterious puzzle.

I wasnt making a judgement call, I am puzzled about the research,, and lack of info on outcomes long term, and the full mechanisms of bodily changes involved.

 

[Debandez]

@Debandez got call from surgery about an hour ago saying nurse is ill so appointment cancelled. Now arranged for next Thursday. Will let you know how I get on.

Okey dokey.

 

[donnellysdogs]

So very sorry to hear about your husband @Donnellysdog. I hope you get some answers from the Clinical Director. It won't bring your husband back but it might help you understand a little more.

Dr Unwins Practice is indeed rare and excellent and we hope his influence rubs off on many other gp's in the not too distant future.

I joined the PPG to help. Whoever I can and whenever I can. I have my first webinar on the 17th Sept and I am looking forward to finding out just how it ticks. I've never done anything like this before so it's a learning curve. Thanks for the info too. I have read the PPG pdf. A key part of the criteria is to encourage patients to take control of their own and their families health which is exactly what I have done and am doing. And I will take the first opportunity to feedback to the practice my results (as I mentioned in my earlier post). Another criteria is organising health promotion events. Birmingham this last weekend was a start for me and again I'm looking forward to feeding details back (and hopefully arranging many more). I felt it was a very positive meeting of like minded individuals who came together to try and help nudge these Drs out from in between the rock and the hard place. It's a mammoth task as we know. Like changing the direction of the Titanic manually. It gives me hope that politicians were caught between a rock and a hard place before women got the vote. Thankfully things moved on but it wasn't an easy road for the Suffragets.

Another criteria, advising the practice of the patient perspective and providing an insight into the responsiveness and quality of services. I feel I can help here.

Regular communication with the patient population. Again I hope to help here, not just fellow diabetics either.

The practice managers email address was highlighted on their website so obviously its there so people can use it, which i did. I just signed my name and added ' member of the PPG' but the PPG addition wasn't necessary. I'm still entitled to get this info from my practice as any one else would be. Email for me is far easier than writing a letter and posting/delivering.

I wasn't complaining at all and hope it didn't come over that way, I was just asking for stats. And my next step would be a step I would take even if I wasn't in the PPG to be honest. I'm hoping my surgery will be responsive and at least listen to what I have to say.

Fingers crossed something good comes out of everyone's efforts so far. It's been amazing.

It's late and time for bed.

Night folks.

Well done...

Just as a sideline... this was at least 4 years ago now... but we did exhibitions in libraries and in shopping malls etc but our Practice Manager would not allow anything outside the official NHS guidelines to be communicated....
So long as your Practice Manager and Chair have agreed on material etc then it’s fine..

 

[Debandez]

Lucylocket - I have often posted my views on bariatric surgery, having observed someone go full circle, from morbidly obese, to very slim indeed and all the way back. Along the way, they ended up tens of thousands of pounds (Sterling) lighter, having had their surgery in the US, then bought wardrobes to take them down these sizes, then back up.

However, leaving all that aside, if @Debandez 's sister lost some weight post op, she may have breached her personal fat threshold, and if she is also maintaining some weight loss, she could be in that golden zone.

Everyone's dietary choices are very personal, and we each have a different level of carb tolerance, but again for some people, post-surgery, just eating marked smaller portions could be enough to resolve matters.

It's all a big, mysterious puzzle.

My sister was one of the lucky ones and had op on nhs, went from 20 stone pre op to 11 stone lost bery quickly. About 10 years ago. About 2/3 years ago weight started creeping up. Old eating habits creeping in. But she was able to put herself on a diet and got back down again. It's a constant battle with her but her BS are excellent.

 

[ickihun]

My sister was one of the lucky ones and had op on nhs, went from 20 stone pre op to 11 stone lost bery quickly. About 10 years ago. About 2/3 years ago weight started creeping up. Old eating habits creeping in. But she was able to put herself on a diet and got back down again. It's a constant battle with her but her BS are excellent.

And that's how it is suppose to be.
We are told we add weight after 1yr. It's how you manage that weight loss.
For me I will hopefully be on huge less insulin units. Which aids keeping weight off. Insulin is the gatekeeper, for me.
Luckily I know that. I know how to resolve carb cravings and how not to take things too far and more importantly how to manage my weight.
No one in my situation would lose weight. I should be heavier and in a worse state with my diabetes after all the unmanaged years of none diagnosis and the amount of insulin I have in my system is enough for an elephant or rhino. I'm still not getting great control. So seeing endo on 18th as thyroid not right either.
My complex system is very difficult to manage and lose weight. My endo helped me last time so I'm hoping he will consider changing something in metformin's absence to kick start loss again.