it is an imbalance in one or the other!Hi! Thanks, sorry one more question:
With postprandial, though, there isn't actually a lack of glucose or too much insulin right? It's like an over-reaction?
I was pre maybe diabetic now . I fall asleep , just zonk out if eaten biscuits or high g.i (yes i know...no sugar no carbs) or im standing and can hardly keep eyes open . I dread to think what sugars are and they taking longer to come down. Can be 6.7 ging to bed and 6.3 waking .i had problems off a med which made me high if ate carbs sugars fruit up till 1 2 am .then take my night med and wake weak arms legs so tired and have to doze and wait till strength in arms back. Its like sugars arent doing something..i dont est carbs and im not weak!!! But losing weight despite eating them and constantly hungry. It started off this med and i never twigged just couldnt figure. But i was having to force. myself up weak or not , if say plumber coming. Then i was brain dead until i ate and gradually perked up. I have gastitis ao food so restrictive i.e dairy nuts spices fatty foods hard to digest foods raw foods and now histamine food intolerence thats spinsch advocados nuts tuna prawns fermented foods pulses i cant .. eggs ..i have no gallbladder and always had issues. I was falling adleep before xmas and was still pre. I guess diabetis can make us fall adleep if high g.i food? Hypoglycemia. I told my gp and she didnt know..i never drink juice but had a fancy to some .i drank most before bed .i woke 2 hrs later starving hungry and had to drink the rest and felt better. I know juice must spike quick now. Can you fall asleep or sooo sleepy long before full blown... i am an idiot i know but the med started me off with issues it caused and no chsnge sfter a year. I am losing weight muscle mass and hurts to sit on bottom and people have commented thats another reason i started to eat bread morr and bad food to try put weight on but im losing weight..If you wish to ask questions or are interested in asking anything pertaining to hypoglycaemia, diabetic or non diabetic. Ask here.
Not exactly at the point of the drop but straight after and when the feelings are lasting long my heart rate jumps up to about 90-93 (resting is 72-80) with a normal beat (I have a Kardia device to measure) my blood pressure shows slight elevation.May I ask, have you been able to measure your blood pressure and heart rate when you have the sudden drop feeling? I realise this might be a bit difficult, but, if you sometimes feel unwell when your blood sugars are normal, it’s worth checking your vital signs to see whether something abnormal is going on there.
Hi and so glad you found us.Hiya, just stumbled on this forum whilst searching my symptoms for months not having a clue what is up with me, a lot of my symptoms point to RH and I have noticed less and less episodes with a controlled diet however one day I am fine with a carrot and the next day not. I have a few questions if anyone could please try to answer them
1. How did you get a definitive diagnosis ?
2. (In the UK) would the endocrinologist give you a perscription for the test strips and/or a glucose monitor ? I’m finding it very expensive
3. Sometimes I feel a sudden drop, like I am having a stroke, I cannot move my fingers very well, I have confusion, clammy, fast heart rate, jelly legs and most of all I feel like my whole body is being pulled to the ground like a force of gravity. Has anyone had these symptoms?
4. When I have a really bad drop sometimes my sugars are showing normal, why?
5. Sometimes it can take me an hour or more (sometimes it’s as many as 4 hours!) to feel normal with 15g of carbs every 15 mins anyone had this?
6. Since I have been experiencing these episodes about a year now I have had blurry vision and when a bad drop happens it’s even worse. Anyone had this ?
7. One time I had a rapid drop from drinking Diet Coke, is that something that can happen?
8. Rice is my biggest trigger I’m finding I can’t even handle a spoonful, but pasta I am ok with, is it not always about the carb content?
9. I’ve read here that RH is usually when blood sugar goes high but I have never seen mine above a 7.3 after a meal, do people with RH usually have hypers? Because I am not technically getting hypers, just hypos from a normal blood glucose level.
10. I have recently had a blood test that showed a raised prolactin level (I’m not pregnant) and I was wondering if anyone has had this? Is raised prolactin a cause of RH or is RH the reason why it is raised? If anyone could shed some light I’d be greatful.
Sorry for the long post but I have been sick so long I’m trying everything to get some answers, I’ve had CT, MRI, Echo, ECG,EEG, chest xray, more bloods than you can imagine, at first they said it was anxiety, then it was vertigo, then ectopic beat panic attacks,then seizures, then silent migraines, took me about 8 months to figure it out on my own that it is usually food related and I am now trying to figure it all out.
Endocrinologist appointment in a few days although she didn’t believe me when I told her I think I have RH.
Trying to find the joy in life again. A bit scared to leave the house without a packet of skittles.
Thanks.
Sam.
Glad I could help.Thank you so much for the very helpful information, I have now ordered a navii monitor and strips as they are more than half the price of my current ones! (Microdot)
Can I also ask what help you received after you got your diagnosis? I’m wondering if it’s worth doing at this point.
hi Sam, it is an lot to understand. Also which foods in food groups are ok.I do think I need some help in regards to complex carbs and things like that, I saw an endocrinologist last week and told her when I seem to be having these rapid drops in blood sugar, sometimes fruit is the worst like bananas and strawberries and grapes, this was the first time she told me about food pairing so I have been looking into that although it is difficult because I don’t eat nuts. So snacking is a bit difficult, usually chicken or cheese. Are oats okay in the morning? Getting a bit tired of eggs. Haha.
She is hesitant to diagnose me with RH as it would prove detrimental to my career (I am a driver) and as it seems to be controlled at the moment I am just trying to widen my food spectrum bit by bit with trial and error. I still cannot always manage rice so going with alternatives for that.
She even mentioned about false hypos and she thinks that I could be having some sort of cardiac cut out when these happen or when my blood sugar drops too quickly, giving me the feeling of impending doom and stroke like symptoms.
I do not hypo all the time. For instance if I am good with my eating for a week I can manage one high carb meal or the likes but if I’ve had a week where I’ve hypoed a lot then I am up and down for a day. It is a lot less than this time last year when I didn’t realise it was the food that was causing it (I was having several hypos a day and left them untreated as I didn’t know what was happening ) this caused mild Vision loss sadly.
Just trying to get used to the idea of this being my new body and adapting. My friends are very supportive when we go out especially when drinking alcohol they always check on me so that’s great.
Any tips you have picked up along the way?
Suppose this is the result of years of binge eating and large portions.
C’est la vie.
Sam.
The reason why is probably because there isno doctors with RH.Thank you for that, I’m finding this website and forum more helpful than the professionals! A few more questions if you could please assist with.
Do you know where I can find information on the different types of reactive Hypoglycaemia so I can try and work out which mine is likely to be and how best to manage.
I seem to be having a lot of false hypos at them moment. Super annoying, especially at events like the theatre or concert. I try not to treat these but the symptoms get worse if I do not give in and have some sugar. I think my brain is working against me.
Does your blood pressure drop whilst having a hypo then? That could be a symptom I am having but I’m always too confused at the time to go and measure mine.
Also do you know where I could find information on driving with RH? All I can seem to find is rules for diabeties which I don’t have.
Thanks again.
Sam.
Good morning to all,
I have recently been diagnosed with reactive hypoglycaemia. The diagnosis was after a fasting glucose test my blood sugars dropped to a low of 1.8. That was back in February, after many months of symptoms. Before the hypoglycaemic event i suffered and was told that i had vertigo. I'm also menopausal. The symptoms all tend to overlap one another and it's very hard to work out what is what. Initially the hypos would start with blurred vision and dizziness. then came the shakiness. sweating, and trembling. Now i'm getting the headaches and major brain fog along with the feeling of spaciness ( like no oxygen is going to the brain for lack of a better description) I'm getting conflicting information from the Dr and dietitian. The dietician is telling me to eat 6 meals a day and ingest glucose when my blood sugars drop. All this does is makes me go into a hypo three hours later. The doctor wants me to go on to the ozempic pen. This drug too has side effects. (gastroparesis and hair loss as well as other side effects) They have also given me the glucagon pen in case i comatose. I've been told not to drive in case i black out. I live alone and want to be able to control my condition. No medical person seems to know what to offer in a way of remedy. I am now waiting to see an endocrinologist to see what other possible causes for the hypos like pancreatic cancer, hypothyroidism, etc.
Just like everyone here has experienced. Rh is like living in hell till it's controlled and kept at bay.
Here I am reading and learning.
Hi, and welcome to the forum.Good morning to all,
I have recently been diagnosed with reactive hypoglycaemia. The diagnosis was after a fasting glucose test my blood sugars dropped to a low of 1.8. That was back in February, after many months of symptoms. Before the hypoglycaemic event i suffered and was told that i had vertigo. I'm also menopausal. The symptoms all tend to overlap one another and it's very hard to work out what is what. Initially the hypos would start with blurred vision and dizziness. then came the shakiness. sweating, and trembling. Now i'm getting the headaches and major brain fog along with the feeling of spaciness ( like no oxygen is going to the brain for lack of a better description) I'm getting conflicting information from the Dr and dietitian. The dietician is telling me to eat 6 meals a day and ingest glucose when my blood sugars drop. All this does is makes me go into a hypo three hours later. The doctor wants me to go on to the ozempic pen. This drug too has side effects. (gastroparesis and hair loss as well as other side effects) They have also given me the glucagon pen in case i comatose. I've been told not to drive in case i black out. I live alone and want to be able to control my condition. No medical person seems to know what to offer in a way of remedy. I am now waiting to see an endocrinologist to see what other possible causes for the hypos like pancreatic cancer, hypothyroidism, etc.
Just like everyone here has experienced. Rh is like living in hell till it's controlled and kept at bay.
Here I am reading and learning.
Hi, and welcome to the forum.
I was diagnosed over a decade now and you are right, not many professional health care doctors, specialist, know what RH is all about, the medical blood all follow the same advice.
Other than the fasting test was it an extended oral glucose tolerance test?
And with the hypo, you will require other tests to eliminate other conditions as you say!
What I can tell you for definite, is that RH has no cure as such and no magic pill to stop the reactive part of it!
There is, like a lot of endocrine or metabolic or hormonal imbalance, the only treatment is control.
You do seem to have a quick grasp of your symptoms and the advice given.
The six meals won't stop the reactive part, it will halt the downward drop to hypos, which is from the T1 experience, not the RH science!
And meds such as insulin and such whichever guide they are in are just exacerbating the amount of insulin already in abundance if you have insulin resistance which is possible, even hyperinsulinimia, or hyperglycaemia. I had all three and the symptoms with the hypos on top was awful.
And you are quite correct about having glucose for hypos, that is called the rebound effect. Where you are in hypo range and after taking quick glucose, your BG levels will be back towards double figures and the rollercoaster ride of going up and down, the symptoms is again awful.
There is many ways to go about sorting your symptoms! It all depends on your food.
It is food and drink that causes the reaction. And depending on your intolerance to carbs and sugars, any carbs! Will give you the control you need.
What you need is a continuous glucose monitor or a glucometer to monitor your BG levels and a food diary to record the results, information of what you eat and your portion size, anything else such as symptoms etc.
I have no doubt you are reading a lot of the information here, in my experience, with mine a very low carb diet is essential and avoid the carbs that are the trigger.
You will see that having little carbs will ease the symptoms and stop the hypos.
But you will have to find your own tailored dietary regime, and find ways to stay in and around normal BG levels as I do, as much as possible. (Normal BG levels is 3.5-6mmols)
Ask away, if you need more.
Again welcome to our forum.
I'm in Australia.This is why I say the doctors don't understand RH.
For a glucose tolerance test, you need is the extended five hour test, then the test will show every part of the reaction, the spike, the first phase insulin response, the second phase called the overshoot of insulin, which drives the BG levels into hypo, as your liver can't cope with so much insulin! That doesn't happen in two hours, you are lucky to see the spike, if like me it happens between 45 minutes and an hour, if like me the hypo starts around three to three and a half hours. You should have had a c-peptide test and a GAD test. Also your venous blood is sent to a special lab for something to find it that shouldn't be there.
And then a fructosamine test, a possible fasting test, but also a scan on your pancreas and liver to see if you have other reasons for the hypoglycaemia. You might even get a mixed meal test!
But you may have to battle to get this, but having a specialist endocrinologist, will be a step in the right direction. Unless like my first one, he didn't have a clue!
Make a start on the diet changes!
Keep asking.
Are you in UK?
Great to hear from you !I'm in Australia.
We use cookies and similar technologies for the following purposes:
Do you accept cookies and these technologies?
We use cookies and similar technologies for the following purposes:
Do you accept cookies and these technologies?