Reactive Hypoglycaemia

Lamont D

Oracle
Messages
15,943
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
Hi! Thanks, sorry one more question:

With postprandial, though, there isn't actually a lack of glucose or too much insulin right? It's like an over-reaction?
it is an imbalance in one or the other!
Because in my case, my first phase insulin response is poor, the glucose derived from carbs or sugars, increase my BG levels quickly, similar to a glucose dump. This is the trigger that insulin is required to bring the imbalance of too much glucose. The insulin is too much, an overshoot of insulin, My BG levels drop quickly because of the over production of insulin. It is an imbalance in first glucose, then insulin. And if you follow that it means, low insulin initially, then low glucose,. An episode of hypoglycaemia occurs.
And yes, it is an over reaction, but by any other name, it is an intolerance to carbs!

Good questions, keep asking, I'm trying not to confuse you.
 

basten60

Member
Messages
14
Type of diabetes
Prediabetes
Treatment type
Diet only
If you wish to ask questions or are interested in asking anything pertaining to hypoglycaemia, diabetic or non diabetic. Ask here.
I was pre maybe diabetic now . I fall asleep , just zonk out if eaten biscuits or high g.i (yes i know...no sugar no carbs) or im standing and can hardly keep eyes open . I dread to think what sugars are and they taking longer to come down. Can be 6.7 ging to bed and 6.3 waking .i had problems off a med which made me high if ate carbs sugars fruit up till 1 2 am .then take my night med and wake weak arms legs so tired and have to doze and wait till strength in arms back. Its like sugars arent doing something..i dont est carbs and im not weak!!! But losing weight despite eating them and constantly hungry. It started off this med and i never twigged just couldnt figure. But i was having to force. myself up weak or not , if say plumber coming. Then i was brain dead until i ate and gradually perked up. I have gastitis ao food so restrictive i.e dairy nuts spices fatty foods hard to digest foods raw foods and now histamine food intolerence thats spinsch advocados nuts tuna prawns fermented foods pulses i cant .. eggs ..i have no gallbladder and always had issues. I was falling adleep before xmas and was still pre. I guess diabetis can make us fall adleep if high g.i food? Hypoglycemia. I told my gp and she didnt know..i never drink juice but had a fancy to some .i drank most before bed .i woke 2 hrs later starving hungry and had to drink the rest and felt better. I know juice must spike quick now. Can you fall asleep or sooo sleepy long before full blown... i am an idiot i know but the med started me off with issues it caused and no chsnge sfter a year. I am losing weight muscle mass and hurts to sit on bottom and people have commented thats another reason i started to eat bread morr and bad food to try put weight on but im losing weight..
 

Lamont D

Oracle
Messages
15,943
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
Hi @basten60
I have tried to untangle your post.
most medical professionals will not know anything about hypoglycaemia or its types.
What meds do you refer to?
Because with everything going on and the symptoms you are getting, ask your GP to refer you to a specialist endocrinologist.
I don't believe that you are getting any better with your treatment wether dietary or meds(?)

Keep safe
 

SwishRadish

Member
Messages
5
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
Hiya, just stumbled on this forum whilst searching my symptoms for months not having a clue what is up with me, a lot of my symptoms point to RH and I have noticed less and less episodes with a controlled diet however one day I am fine with a carrot and the next day not. I have a few questions if anyone could please try to answer them
1. How did you get a definitive diagnosis ?
2. (In the UK) would the endocrinologist give you a perscription for the test strips and/or a glucose monitor ? I’m finding it very expensive
3. Sometimes I feel a sudden drop, like I am having a stroke, I cannot move my fingers very well, I have confusion, clammy, fast heart rate, jelly legs and most of all I feel like my whole body is being pulled to the ground like a force of gravity. Has anyone had these symptoms?
4. When I have a really bad drop sometimes my sugars are showing normal, why?
5. Sometimes it can take me an hour or more (sometimes it’s as many as 4 hours!) to feel normal with 15g of carbs every 15 mins anyone had this?
6. Since I have been experiencing these episodes about a year now I have had blurry vision and when a bad drop happens it’s even worse. Anyone had this ?
7. One time I had a rapid drop from drinking Diet Coke, is that something that can happen?
8. Rice is my biggest trigger I’m finding I can’t even handle a spoonful, but pasta I am ok with, is it not always about the carb content?
9. I’ve read here that RH is usually when blood sugar goes high but I have never seen mine above a 7.3 after a meal, do people with RH usually have hypers? Because I am not technically getting hypers, just hypos from a normal blood glucose level.
10. I have recently had a blood test that showed a raised prolactin level (I’m not pregnant) and I was wondering if anyone has had this? Is raised prolactin a cause of RH or is RH the reason why it is raised? If anyone could shed some light I’d be greatful.

Sorry for the long post but I have been sick so long I’m trying everything to get some answers, I’ve had CT, MRI, Echo, ECG,EEG, chest xray, more bloods than you can imagine, at first they said it was anxiety, then it was vertigo, then ectopic beat panic attacks,then seizures, then silent migraines, took me about 8 months to figure it out on my own that it is usually food related and I am now trying to figure it all out.

Endocrinologist appointment in a few days although she didn’t believe me when I told her I think I have RH.

Trying to find the joy in life again. A bit scared to leave the house without a packet of skittles.

Thanks.
Sam.
 

SarahTee

Active Member
Messages
35
May I ask, have you been able to measure your blood pressure and heart rate when you have the sudden drop feeling? I realise this might be a bit difficult, but, if you sometimes feel unwell when your blood sugars are normal, it’s worth checking your vital signs to see whether something abnormal is going on there.
 

SwishRadish

Member
Messages
5
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
May I ask, have you been able to measure your blood pressure and heart rate when you have the sudden drop feeling? I realise this might be a bit difficult, but, if you sometimes feel unwell when your blood sugars are normal, it’s worth checking your vital signs to see whether something abnormal is going on there.
Not exactly at the point of the drop but straight after and when the feelings are lasting long my heart rate jumps up to about 90-93 (resting is 72-80) with a normal beat (I have a Kardia device to measure) my blood pressure shows slight elevation.
When these episodes started happening I was over the a&e every day for two weeks and they said they didn’t know what was happening but I was losing the control in my arms really bad, I couldn’t hold a pen, this was around Christmas last year. Then the stroke team put me on a tiny does of bisoprolol to slow my heart down and I feel like all that has done has masked the first sign of RH. The cardiologists have ruled out an arrhythmia with various holster monitors.
The weirdest thing I am finding is if I have a bad drop sometimes I can feel the gravity pulling and confusion for hours after, it’s like waves of up down up down. Although I have been considering asking for a loop recorder to be fitted in my chest. Before I suspected RH I thought it was my heart pausing but when I had the monitors on I had episodes as I didn’t then know it was food related so I didn’t adjust my diet and they didn’t show any events. I have noticed that sometimes my BG will drop from a 7.3 to a 5.2 within the space of 10-15mins sometimes. Does that seem sudden? I feel as if I am on a rollercoaster when that happens. Sugar definitely helps whatever is going on but I have to micro dose it right or i yo yo. Yet sometimes I feel a yo yo effect when I am within the normal range. Could I be noticing a rapid drop for 7 to 5 maybe. And then it keeps going back up to a 6 and down to a 5 quick?
I’ve just turned 30. Female. No other health conditions.
 

Lamont D

Oracle
Messages
15,943
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
Hiya, just stumbled on this forum whilst searching my symptoms for months not having a clue what is up with me, a lot of my symptoms point to RH and I have noticed less and less episodes with a controlled diet however one day I am fine with a carrot and the next day not. I have a few questions if anyone could please try to answer them
1. How did you get a definitive diagnosis ?
2. (In the UK) would the endocrinologist give you a perscription for the test strips and/or a glucose monitor ? I’m finding it very expensive
3. Sometimes I feel a sudden drop, like I am having a stroke, I cannot move my fingers very well, I have confusion, clammy, fast heart rate, jelly legs and most of all I feel like my whole body is being pulled to the ground like a force of gravity. Has anyone had these symptoms?
4. When I have a really bad drop sometimes my sugars are showing normal, why?
5. Sometimes it can take me an hour or more (sometimes it’s as many as 4 hours!) to feel normal with 15g of carbs every 15 mins anyone had this?
6. Since I have been experiencing these episodes about a year now I have had blurry vision and when a bad drop happens it’s even worse. Anyone had this ?
7. One time I had a rapid drop from drinking Diet Coke, is that something that can happen?
8. Rice is my biggest trigger I’m finding I can’t even handle a spoonful, but pasta I am ok with, is it not always about the carb content?
9. I’ve read here that RH is usually when blood sugar goes high but I have never seen mine above a 7.3 after a meal, do people with RH usually have hypers? Because I am not technically getting hypers, just hypos from a normal blood glucose level.
10. I have recently had a blood test that showed a raised prolactin level (I’m not pregnant) and I was wondering if anyone has had this? Is raised prolactin a cause of RH or is RH the reason why it is raised? If anyone could shed some light I’d be greatful.

Sorry for the long post but I have been sick so long I’m trying everything to get some answers, I’ve had CT, MRI, Echo, ECG,EEG, chest xray, more bloods than you can imagine, at first they said it was anxiety, then it was vertigo, then ectopic beat panic attacks,then seizures, then silent migraines, took me about 8 months to figure it out on my own that it is usually food related and I am now trying to figure it all out.

Endocrinologist appointment in a few days although she didn’t believe me when I told her I think I have RH.

Trying to find the joy in life again. A bit scared to leave the house without a packet of skittles.

Thanks.
Sam.
Hi and so glad you found us.
1. In the U.K.you get a referral from your GP to a specialist endocrinologist. Or you find one on the private list. Or a mix, your GP can find a specialist in hypoglycaemia and you do the rest.
2. If you need the test strips, if you have a hypoglycaemic condition, your GP should put you on the register for free prescriptions. And like me my specialist insistedon my go prescribed them. However, @Rachox can help you with cheaper strips.
3. Yes, but the symptoms are alike across endocrinology, no one has the same symptoms, and that is why tests are necessary.
4. I'm not sure, there could be many reasons, for instance, the symptoms maybe delayed, or the dip has bounced back up by the time of testing. Or in most cases of T2, the drop feels like a hypo, but because it is sudden crash, the cause of symptoms, but doesn't go into Hypoglycaemia. What is known as a false hypo.
5. Yes. Many times. Wether it be hypoglycaemia off diabetes.
6. Yes. It is a symptom of Hypoglycaemia and diabetes. It is your ocular blood vessels expanding and distortion of your vision.
7. There may be something in the diet coke that you are intolerant to. Such as asparteme.
8. My worst is potatoes, but I'm intolerant to most carbs, limited to around between 3 & 7% carbs, depending on which food. That is the reason why you need to test and keep a good diary.
9. You are correct to a point, it is the intolerance levels. That is why a 75g glucose load is used in diagnostic tests. There are different types of Hypoglycaemia. Mine is called 'Late Reactive Hypoglycaemia' There are a few others. And yes, you can still go hypo even though your blood don't spike that high.
Have you ever seen a reading of under 3.5mmols?
10. I don't know, but I will look into it.
I have seen and read reports and test papers proposing that with gestational diabetes can have the real symptoms of reactive hypoglycaemia. But don't quite me!
Phew!
I know how you feel, it was over a decade before I got a true diagnosis. And I think I was lucky in getting my specialist. I hope yours is just as thorough as mine. And is learned in the diagnostic tests necessary to sort you out. Make sure you ask questions relevant to your symptoms and if you have been testing, take those readings to him.
Until, you go to the appointment, (against my usual advice) eat the foods that causes the symptoms, record pre meal, two hours, three hours. And if you record as in a food diary, this will help with understanding your symptoms. I have been keeping mine now for over a decade.

Keep asking, let us know how you get on.

Best wishes.
 

Rachox

Oracle
Retired Moderator
Messages
15,906
Type of diabetes
I reversed my Type 2
Treatment type
Tablets (oral)
Thanks for the tag @Lamont D

Here’s some info on UK meters, and to be clear I have no commercial connections with any of the companies mentioned.


HOME HEALTH have the Gluco Navii, which is a fairly new model and seems to be getting good reviews if you use this link and select the meter plus 5 packs of strips, and then add the code dcuk (all lower case) at check out you may get money off, I’m not sure if this code is still valid.


https://homehealth-uk.com/all-produ...ose-meter-test-strips-choose-mmol-l-or-mg-dl/


Links to the strips for future orders:


https://homehealth-uk.com/all-products/glucose-navii-blood-glucose-test-strips-50-strip-pack/


There are also discount codes for when you come to buy more strips - "navii5" and "navii10" will give you 20% off purchases of 5 packs of strips and 25% off 10 packs of strips respectively. Again I’m not sure if these codes are still valid.


Then they sell the older SD Code Free, details to be found here!


https://homehealth-uk.com/all-products/codefree-blood-glucose-monitoring-system-mmoll-or-mgdl/


Discount codes for the Code Free strips, again I haven’t used them in a while.


5 packs 264086

10 packs 975833





SPIRIT HEALTHCARE have a meter called the Tee2 + which is quite popular however I haven’t been able to find it on their website lately.


(Old link which doesn’t work for me now but maybe works for you, if it doesn’t try the phone number below

https://shop.spirit-health.co.uk/co...e2-blood-glucose-meter?variant=19264017268793 ) or Google it and you’ll find it’s available from other outlets.


The strips are to be found here:


https://shop.spirit-health.co.uk/co...py-of-tee2-test-strips?variant=19264017367097


Some members have got a free Tee2+ by phoning up to order, with a large order of strips they often throw the meter in for free:


Phone number 0800 8815423


If there is a choice of units of measurement then ‘mmol/L’ are the standard units in the UK, ‘mg/dl’ in the US, other countries may vary.


Don’t forget to check the box if you have pre diabetes or diabetes so you can buy VAT free. (for all meters and strips)
 
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SwishRadish

Member
Messages
5
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
Thank you so much for the very helpful information, I have now ordered a navii monitor and strips as they are more than half the price of my current ones! (Microdot)

Can I also ask what help you received after you got your diagnosis? I’m wondering if it’s worth doing at this point.
 
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Lamont D

Oracle
Messages
15,943
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
Thank you so much for the very helpful information, I have now ordered a navii monitor and strips as they are more than half the price of my current ones! (Microdot)

Can I also ask what help you received after you got your diagnosis? I’m wondering if it’s worth doing at this point.
Glad I could help.
it was this forum mainly one person, took me through the whole dietary and keto lifestyle, made me realise how the experience she had with her condition could really help me. Also several other members who advised me about intermittent fasting, exercise and other important information.
My endocrinologist, who got me the tests, did the diagnostics, steered me through the science and asked my help with a drug trial. He looked after me, he realised that, because of my food diary results stoped asking me about having some complex carbs with every meal and after a discussion, he eventually agreed with me.
He did save my life. And I will always be grateful.
My surgery, help with free prescriptions, being on the diabetics lists for foot and eye review.
Help with my recent conditions and advice on them. Referrals to other specialists. And more.
My close family and my colleagues at work (now retired) for being interested and being there for me!
And for not too often, having the fun taken out of me and my weirdness
Family gatherings are mainly low carb now. (Sort of!)

You need help with understanding your condition. They may not agree with everything and may not have been taught the difference between hypoglycaemia and diabetes. But the help is there, so use it,

Best wishes
 
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SwishRadish

Member
Messages
5
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
I do think I need some help in regards to complex carbs and things like that, I saw an endocrinologist last week and told her when I seem to be having these rapid drops in blood sugar, sometimes fruit is the worst like bananas and strawberries and grapes, this was the first time she told me about food pairing so I have been looking into that although it is difficult because I don’t eat nuts. So snacking is a bit difficult, usually chicken or cheese. Are oats okay in the morning? Getting a bit tired of eggs. Haha.

She is hesitant to diagnose me with RH as it would prove detrimental to my career (I am a driver) and as it seems to be controlled at the moment I am just trying to widen my food spectrum bit by bit with trial and error. I still cannot always manage rice so going with alternatives for that.
She even mentioned about false hypos and she thinks that I could be having some sort of cardiac cut out when these happen or when my blood sugar drops too quickly, giving me the feeling of impending doom and stroke like symptoms.
I do not hypo all the time. For instance if I am good with my eating for a week I can manage one high carb meal or the likes but if I’ve had a week where I’ve hypoed a lot then I am up and down for a day. It is a lot less than this time last year when I didn’t realise it was the food that was causing it (I was having several hypos a day and left them untreated as I didn’t know what was happening ) this caused mild Vision loss sadly.

Just trying to get used to the idea of this being my new body and adapting. My friends are very supportive when we go out especially when drinking alcohol they always check on me so that’s great.

Any tips you have picked up along the way?
Suppose this is the result of years of binge eating and large portions.

C’est la vie.
Sam.
 

Lamont D

Oracle
Messages
15,943
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
I do think I need some help in regards to complex carbs and things like that, I saw an endocrinologist last week and told her when I seem to be having these rapid drops in blood sugar, sometimes fruit is the worst like bananas and strawberries and grapes, this was the first time she told me about food pairing so I have been looking into that although it is difficult because I don’t eat nuts. So snacking is a bit difficult, usually chicken or cheese. Are oats okay in the morning? Getting a bit tired of eggs. Haha.

She is hesitant to diagnose me with RH as it would prove detrimental to my career (I am a driver) and as it seems to be controlled at the moment I am just trying to widen my food spectrum bit by bit with trial and error. I still cannot always manage rice so going with alternatives for that.
She even mentioned about false hypos and she thinks that I could be having some sort of cardiac cut out when these happen or when my blood sugar drops too quickly, giving me the feeling of impending doom and stroke like symptoms.
I do not hypo all the time. For instance if I am good with my eating for a week I can manage one high carb meal or the likes but if I’ve had a week where I’ve hypoed a lot then I am up and down for a day. It is a lot less than this time last year when I didn’t realise it was the food that was causing it (I was having several hypos a day and left them untreated as I didn’t know what was happening ) this caused mild Vision loss sadly.

Just trying to get used to the idea of this being my new body and adapting. My friends are very supportive when we go out especially when drinking alcohol they always check on me so that’s great.

Any tips you have picked up along the way?
Suppose this is the result of years of binge eating and large portions.

C’est la vie.
Sam.
hi Sam, it is an lot to understand. Also which foods in food groups are ok.
Oats are not ok for me as is all grains, along with oats, wheat, corn are the worst, for me.
I had porridge for my breakfast the morning I had a hypo in my doctors surgery. So the only food I had that day was porridge. I also had a hypo (twice) on my first and second appointment with my endocrinologist because I had porridge for my breakfast. He advised me to avoid porridge and oats. I thought oats were a so called super food. Not for me! First tip done.
Second tip that I use. Fruit, I found out pretty quickly that too much fruit is not good. So basicly, I have small pieces of fruit through my eating window instead of a snack. Mainly apple, berries, a small banana after my window closes early evening. Frozen fresh fruit that you get in supermarkets are always a cash saver. I always have my frozen fruit with full fat greek yoghurt. It has to plain full fat, this is so beneficial cos of very low carb, natural yoghurt for your gut biotic. I can actually have a small portion of Greek yoghurt despite my lactose intolerance. Weird eh?
I had all the cheap tests like my blood pressure dropping, but unless you have the proper diagnostic tests you will never know and your endo whom I feel is grasping for understanding of what you are going through. Or your endo has not come across hypoglycaemic conditions before and is undecided what to do next. As I've mentioned before, there are many forms or types of Hypoglycaemia. I do not know which one you have, so I'm grasping a little bit with the information you have given me.
Last tip for now, walking fifteen minutes after eating for fifteen minutes helps with the control with the carbs you have eaten. Walking is so beneficial in many ways. Not only for physical health but also mental health.
I do believe you have to be mentally strong to get through the changes in your life with this. It is not easy, accepting that you have a problem with your health, food and there is not the really good advice from doctors that you would get with other conditions.
Driving is a huge problem, it is not recommended that you drive because of the chance you may or likely to go hypo and similar to type one diabetes, unless you prove to the DVLA, that you are totally in control and in normal or just above, you shouldn't drive. I'm surprised your endo hasn't told you to stop driving completely because o of the hypos, once again, your endo just doesn't know what is going on with you.
Nuts! Or, there is some nuts you do need to avoid, such as peanuts, which in biology are not just though! Confused? Like me! But there are plenty of other small meals you can have, eggs are a great source of protein. But it doesn't mean you have to eat them, there is alternatives.
Final, final tip. Dietdoctor.com is a great source of keto recipes and ideas. There is also the forums low carb forum.
The bestest tip I can give you is have a period of say two months, where you experiment with food. Your favourites, your budget, your essentials, your go to family meals. And record your results pre meal and two hours after, with the odd test, with one hour, three hours. And use your food diary to compare them. It is important that you have the same (ish) portion size. Note things down like illness, colds, flu, covid, vomitting, diahorea, women's troubles and so on as stress, anxiety will give you slightly different results. Some people have found that they can't eat without spiking in the morning with certain carbs but get away with it in the evening. Go figure.
Why do you go low sometimes and not in others? No idea. Unless you don't notice the symptoms, or your hypo awareness could be all over the place and don't notice it. I didn't have a clue until my endocrinologist told me.
I thought the symptoms were just part and parcel of the misdiagnosis of diabetes. My GP's blamed my symptoms on the T2, saying that it all tallies with the symptoms. So along with everything else, it just exacerbated my poor health at the time, hypos were so often that it just be and a part of everyday.
I think that is why, when I was adjusting to low carb and I got to the point when I became keto, my brain became so clear, that it was like a light bulb going on. And my energy levels soared up. And the best thing was, no hypos!
Best bestest tip. Don't become obsessed with everything, it will take time. It will be hard and difficult. Your brain won't stop trying to convince you to eat carbs, it will lie, cheat, and persuade you to keep eating, you may want to eat everything in the fridge, cupboards, freezer, pantry. . But you have to resist. It is important to your future health. It can be done.
Hope this helps.

Best wishes.
That is life!
 

SwishRadish

Member
Messages
5
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
Thank you for that, I’m finding this website and forum more helpful than the professionals! A few more questions if you could please assist with.
Do you know where I can find information on the different types of reactive Hypoglycaemia so I can try and work out which mine is likely to be and how best to manage.
I seem to be having a lot of false hypos at them moment. Super annoying, especially at events like the theatre or concert. I try not to treat these but the symptoms get worse if I do not give in and have some sugar. I think my brain is working against me.
Does your blood pressure drop whilst having a hypo then? That could be a symptom I am having but I’m always too confused at the time to go and measure mine.
Also do you know where I could find information on driving with RH? All I can seem to find is rules for diabeties which I don’t have.
Thanks again.
Sam.
 
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Lamont D

Oracle
Messages
15,943
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
Thank you for that, I’m finding this website and forum more helpful than the professionals! A few more questions if you could please assist with.
Do you know where I can find information on the different types of reactive Hypoglycaemia so I can try and work out which mine is likely to be and how best to manage.
I seem to be having a lot of false hypos at them moment. Super annoying, especially at events like the theatre or concert. I try not to treat these but the symptoms get worse if I do not give in and have some sugar. I think my brain is working against me.
Does your blood pressure drop whilst having a hypo then? That could be a symptom I am having but I’m always too confused at the time to go and measure mine.
Also do you know where I could find information on driving with RH? All I can seem to find is rules for diabeties which I don’t have.
Thanks again.
Sam.
The reason why is probably because there isno doctors with RH.
The lack of research into the many types of Hypoglycaemia is shameful.
And the medical advice is defined and entrenched with T1 and T2 on insulin.
Even though the condition is non diabetic.
For example, treat a hypo with quick glucose!
That will only cause what is known as the rebound effect. Which means the treatment will cause another spike and another overshoot of insulin.

I wish you luck with finding much about them at all. All that I have learned about them is the numerous posters that like yourself looking for answers. Obviously my main focus has been on my condition but as I have garnered information, I have tended to use that experience that food intolerance is a major problem for the health service and future funding. Because of the experience of the health service with the explosion of T2.
They are still reluctant to advisers carb and keto. So if T2 is misunderstood. (Mainly because of how much insulin measurement there is with insulin resistance) what chance has RH got? Most GP's have not got a clue because they haven't been trained in this type of food intolerance. Many but not all specialist endocrinologists, don't or won't know how to (due to the lack and cost of tests) use diagnostic tests to diagnose.

I will again repeat that the object of treatment is to avoid the hypos or the sudden drops in glucose levels that causes the symptoms. To prevent the spikes, no spikes, no hypos. Avoiding those foods should be a target, so you don't have the hypos.

No, my bp is fine, many checks, many times. Got better with keto diet as did my health.

I think that I have said that my endocrinologist advised against driving, mainly from the DVLA rules about hypo from T1s. Wether your GP will advise the same is up to them. The DVLA have no written information about Reactive Hypoglycaemia but they do lump it all together as Hypoglycaemia. More of less, you must test before driving and be in or around normal levels. But you must declare you are doing everything to control the hypoglycaemia and without hypos.
With everything, the getting caught while having a hypo driving is something you will have to go through yourself. Do have a look on the DVLA website.

Keep asking. Keep safe.
 

Glycemic

Active Member
Messages
30
Type of diabetes
Reactive hypoglycemia
Treatment type
Diet only
Good morning to all,

I have recently been diagnosed with reactive hypoglycaemia. The diagnosis was after a fasting glucose test my blood sugars dropped to a low of 1.8. That was back in February, after many months of symptoms. Before the hypoglycaemic event i suffered and was told that i had vertigo. I'm also menopausal. The symptoms all tend to overlap one another and it's very hard to work out what is what. Initially the hypos would start with blurred vision and dizziness. then came the shakiness. sweating, and trembling. Now i'm getting the headaches and major brain fog along with the feeling of spaciness ( like no oxygen is going to the brain for lack of a better description) I'm getting conflicting information from the Dr and dietitian. The dietician is telling me to eat 6 meals a day and ingest glucose when my blood sugars drop. All this does is makes me go into a hypo three hours later. The doctor wants me to go on to the ozempic pen. This drug too has side effects. (gastroparesis and hair loss as well as other side effects) They have also given me the glucagon pen in case i comatose. I've been told not to drive in case i black out. I live alone and want to be able to control my condition. No medical person seems to know what to offer in a way of remedy. I am now waiting to see an endocrinologist to see what other possible causes for the hypos like pancreatic cancer, hypothyroidism, etc.

Just like everyone here has experienced. Rh is like living in hell till it's controlled and kept at bay.
Here I am reading and learning.
 

Lamont D

Oracle
Messages
15,943
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
Good morning to all,

I have recently been diagnosed with reactive hypoglycaemia. The diagnosis was after a fasting glucose test my blood sugars dropped to a low of 1.8. That was back in February, after many months of symptoms. Before the hypoglycaemic event i suffered and was told that i had vertigo. I'm also menopausal. The symptoms all tend to overlap one another and it's very hard to work out what is what. Initially the hypos would start with blurred vision and dizziness. then came the shakiness. sweating, and trembling. Now i'm getting the headaches and major brain fog along with the feeling of spaciness ( like no oxygen is going to the brain for lack of a better description) I'm getting conflicting information from the Dr and dietitian. The dietician is telling me to eat 6 meals a day and ingest glucose when my blood sugars drop. All this does is makes me go into a hypo three hours later. The doctor wants me to go on to the ozempic pen. This drug too has side effects. (gastroparesis and hair loss as well as other side effects) They have also given me the glucagon pen in case i comatose. I've been told not to drive in case i black out. I live alone and want to be able to control my condition. No medical person seems to know what to offer in a way of remedy. I am now waiting to see an endocrinologist to see what other possible causes for the hypos like pancreatic cancer, hypothyroidism, etc.

Just like everyone here has experienced. Rh is like living in hell till it's controlled and kept at bay.
Here I am reading and learning.
Good morning to all,

I have recently been diagnosed with reactive hypoglycaemia. The diagnosis was after a fasting glucose test my blood sugars dropped to a low of 1.8. That was back in February, after many months of symptoms. Before the hypoglycaemic event i suffered and was told that i had vertigo. I'm also menopausal. The symptoms all tend to overlap one another and it's very hard to work out what is what. Initially the hypos would start with blurred vision and dizziness. then came the shakiness. sweating, and trembling. Now i'm getting the headaches and major brain fog along with the feeling of spaciness ( like no oxygen is going to the brain for lack of a better description) I'm getting conflicting information from the Dr and dietitian. The dietician is telling me to eat 6 meals a day and ingest glucose when my blood sugars drop. All this does is makes me go into a hypo three hours later. The doctor wants me to go on to the ozempic pen. This drug too has side effects. (gastroparesis and hair loss as well as other side effects) They have also given me the glucagon pen in case i comatose. I've been told not to drive in case i black out. I live alone and want to be able to control my condition. No medical person seems to know what to offer in a way of remedy. I am now waiting to see an endocrinologist to see what other possible causes for the hypos like pancreatic cancer, hypothyroidism, etc.

Just like everyone here has experienced. Rh is like living in hell till it's controlled and kept at bay.
Here I am reading and learning.
Hi, and welcome to the forum.
I was diagnosed over a decade now and you are right, not many professional health care doctors, specialist, know what RH is all about, the medical blood all follow the same advice.
Other than the fasting test was it an extended oral glucose tolerance test?
And with the hypo, you will require other tests to eliminate other conditions as you say!
What I can tell you for definite, is that RH has no cure as such and no magic pill to stop the reactive part of it!
There is, like a lot of endocrine or metabolic or hormonal imbalance, the only treatment is control.
You do seem to have a quick grasp of your symptoms and the advice given.
The six meals won't stop the reactive part, it will halt the downward drop to hypos, which is from the T1 experience, not the RH science!
And meds such as insulin and such whichever guide they are in are just exacerbating the amount of insulin already in abundance if you have insulin resistance which is possible, even hyperinsulinimia, or hyperglycaemia. I had all three and the symptoms with the hypos on top was awful.
And you are quite correct about having glucose for hypos, that is called the rebound effect. Where you are in hypo range and after taking quick glucose, your BG levels will be back towards double figures and the rollercoaster ride of going up and down, the symptoms is again awful.
There is many ways to go about sorting your symptoms! It all depends on your food.
It is food and drink that causes the reaction. And depending on your intolerance to carbs and sugars, any carbs! Will give you the control you need.
What you need is a continuous glucose monitor or a glucometer to monitor your BG levels and a food diary to record the results, information of what you eat and your portion size, anything else such as symptoms etc.

I have no doubt you are reading a lot of the information here, in my experience, with mine a very low carb diet is essential and avoid the carbs that are the trigger.
You will see that having little carbs will ease the symptoms and stop the hypos.
But you will have to find your own tailored dietary regime, and find ways to stay in and around normal BG levels as I do, as much as possible. (Normal BG levels is 3.5-6mmols)

Ask away, if you need more.
Again welcome to our forum.
 
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Reactions: Glycemic

Glycemic

Active Member
Messages
30
Type of diabetes
Reactive hypoglycemia
Treatment type
Diet only
Hi, and welcome to the forum.
I was diagnosed over a decade now and you are right, not many professional health care doctors, specialist, know what RH is all about, the medical blood all follow the same advice.
Other than the fasting test was it an extended oral glucose tolerance test?
And with the hypo, you will require other tests to eliminate other conditions as you say!
What I can tell you for definite, is that RH has no cure as such and no magic pill to stop the reactive part of it!
There is, like a lot of endocrine or metabolic or hormonal imbalance, the only treatment is control.
You do seem to have a quick grasp of your symptoms and the advice given.
The six meals won't stop the reactive part, it will halt the downward drop to hypos, which is from the T1 experience, not the RH science!
And meds such as insulin and such whichever guide they are in are just exacerbating the amount of insulin already in abundance if you have insulin resistance which is possible, even hyperinsulinimia, or hyperglycaemia. I had all three and the symptoms with the hypos on top was awful.
And you are quite correct about having glucose for hypos, that is called the rebound effect. Where you are in hypo range and after taking quick glucose, your BG levels will be back towards double figures and the rollercoaster ride of going up and down, the symptoms is again awful.
There is many ways to go about sorting your symptoms! It all depends on your food.
It is food and drink that causes the reaction. And depending on your intolerance to carbs and sugars, any carbs! Will give you the control you need.
What you need is a continuous glucose monitor or a glucometer to monitor your BG levels and a food diary to record the results, information of what you eat and your portion size, anything else such as symptoms etc.

I have no doubt you are reading a lot of the information here, in my experience, with mine a very low carb diet is essential and avoid the carbs that are the trigger.
You will see that having little carbs will ease the symptoms and stop the hypos.
But you will have to find your own tailored dietary regime, and find ways to stay in and around normal BG levels as I do, as much as possible. (Normal BG levels is 3.5-6mmols)

Ask away, if you need more.
Again welcome to our forum.

Lamont, Thank you for the welcome. The glucose tolerance test was a 2 hour test with a 75 gram glucose drink that not only made me sleepy after ingesting it but also gave me major symptoms three hours after ingesting the drink.

 
  • Informative
Reactions: Lamont D

Lamont D

Oracle
Messages
15,943
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
This is why I say the doctors don't understand RH.
For a glucose tolerance test, you need is the extended five hour test, then the test will show every part of the reaction, the spike, the first phase insulin response, the second phase called the overshoot of insulin, which drives the BG levels into hypo, as your liver can't cope with so much insulin! That doesn't happen in two hours, you are lucky to see the spike, if like me it happens between 45 minutes and an hour, if like me the hypo starts around three to three and a half hours. You should have had a c-peptide test and a GAD test. Also your venous blood is sent to a special lab for something to find it that shouldn't be there.
And then a fructosamine test, a possible fasting test, but also a scan on your pancreas and liver to see if you have other reasons for the hypoglycaemia. You might even get a mixed meal test!
But you may have to battle to get this, but having a specialist endocrinologist, will be a step in the right direction. Unless like my first one, he didn't have a clue!
Make a start on the diet changes!
Keep asking.
Are you in UK?
 
  • Like
Reactions: Glycemic

Glycemic

Active Member
Messages
30
Type of diabetes
Reactive hypoglycemia
Treatment type
Diet only
This is why I say the doctors don't understand RH.
For a glucose tolerance test, you need is the extended five hour test, then the test will show every part of the reaction, the spike, the first phase insulin response, the second phase called the overshoot of insulin, which drives the BG levels into hypo, as your liver can't cope with so much insulin! That doesn't happen in two hours, you are lucky to see the spike, if like me it happens between 45 minutes and an hour, if like me the hypo starts around three to three and a half hours. You should have had a c-peptide test and a GAD test. Also your venous blood is sent to a special lab for something to find it that shouldn't be there.
And then a fructosamine test, a possible fasting test, but also a scan on your pancreas and liver to see if you have other reasons for the hypoglycaemia. You might even get a mixed meal test!
But you may have to battle to get this, but having a specialist endocrinologist, will be a step in the right direction. Unless like my first one, he didn't have a clue!
Make a start on the diet changes!
Keep asking.
Are you in UK?
I'm in Australia.
 
  • Informative
Reactions: Lamont D