Sad

[cdpm]

It's way too much. We all lose in the end anyway. We aren't fixing anything. Blood sugar is only a symptom. Fixing it doesn't do anything. Diabetes damage still rages on inside underneath all the things we can do for it and blood sugar levels.
They get us to do these things as a distraction and in most cases it makes someone money.
Just so we think we have control but we don't.
It's useless.
Sorry for such negativity.

 

[TriciaWs]

It's way too much. We all lose in the end anyway. We aren't fixing anything. Blood sugar is only a symptom. Fixing it doesn't do anything. Diabetes damage still rages on inside underneath all the things we can do for it and blood sugar levels.
They get us to do these things as a distraction and in most cases it makes someone money.
Just so we think we have control but we don't.
It's useless.
Sorry for such negativity.

You do seem very low, are you getting any support? Do you have someone to talk with?

I'm not sure why you think fixing our blood sugar doesn't fix anything? My experience is very different.
Although I am T2 I do manage my carbs carefully. At first, I found carb counting took a lot of time but now I don't need to carb count every meal as I know how many carbs are in my regular meals.
I try very hard not to just keep my HbA1c low but also to avoid any damaging spikes. I've been in remission for nearly five years now, and all my tests show my eyes are fine and my feet haven't got any worse (I already had some nerve damage from a long-standing folate deficiency).

 

[JoKalsbeek]

It's way too much. We all lose in the end anyway. We aren't fixing anything. Blood sugar is only a symptom. Fixing it doesn't do anything. Diabetes damage still rages on inside underneath all the things we can do for it and blood sugar levels.
They get us to do these things as a distraction and in most cases it makes someone money.
Just so we think we have control but we don't.
It's useless.
Sorry for such negativity.

Don't apologise for how you feel. Way back when I used to keep things bottled up, it resulted in suicide attempts. (That should have been succesful as I am a thorough lass, but weren't by sheer luck). Just because I kept feeding into a negative spiral of thoughts that no-one pulled me out of, as they didn't know I had them. So better out than in, I say. I know things look pretty d*amned glum, but please, try to hang in there. I know it's hard to even try to process suggestions made, as everything seems equally useless across the board, but adding cream or cheese to pureed veg isn't a bad idea at all. Sure would help the taste and texture, aside from being more filling and giving you something to go on, without spiking blood sugars. I know it feels like there's no point to it all anyway, but give it a shot. You've got nothing to lose, right? Only way being up and all.

Stupid idea probably, but could you have developed scurvy with the way you've been -out of necessity- eating? I know it affects the gums negatively... Just throwing it out there.

Anyway... Hugs to you. And lots of love.
Jo

 

[cdpm]

You do seem very low, are you getting any support? Do you have someone to talk with?

I'm not sure why you think fixing our blood sugar doesn't fix anything? My experience is very different.
Although I am T2 I do manage my carbs carefully. At first, I found carb counting took a lot of time but now I don't need to carb count every meal as I know how many carbs are in my regular meals.
I try very hard not to just keep my HbA1c low but also to avoid any damaging spikes. I've been in remission for nearly five years now, and all my tests show my eyes are fine and my feet haven't got any worse (I already had some nerve damage from a long-standing folate deficiency).

Nope this is where I go to talk.
My family didn't at first believe in diabetes type 2. Then when they did now they believe you can still eat anything/everything "healthy". That it will not raise your blood sugar. Such as fruit or rice or pasta. It hasn't mattered that I've actually shown them my
numbers from these "healthy" foods.
So no food or numbers support there . They are supportive in other ways but not with diabetes.

 

[cdpm]

Don't apologise for how you feel. Way back when I used to keep things bottled up, it resulted in suicide attempts. (That should have been succesful as I am a thorough lass, but weren't by sheer luck). Just because I kept feeding into a negative spiral of thoughts that no-one pulled me out of, as they didn't know I had them. So better out than in, I say. I know things look pretty d*amned glum, but please, try to hang in there. I know it's hard to even try to process suggestions made, as everything seems equally useless across the board, but adding cream or cheese to pureed veg isn't a bad idea at all. Sure would help the taste and texture, aside from being more filling and giving you something to go on, without spiking blood sugars. I know it feels like there's no point to it all anyway, but give it a shot. You've got nothing to lose, right? Only way being up and all.

Stupid idea probably, but could you have developed scurvy with the way you've been -out of necessity- eating? I know it affects the gums negatively... Just throwing it out there.

Anyway... Hugs to you. And lots of love.
Jo

Everything's difficult with a little food funds. But yet they hand me/ offer me pretty near all and nearly any medications free.
Doesn't make sense.

 

[cdpm]

A few foods I ate recently while waiting for a front tooth to be fixed - lots of eggs, scrambled or hard-boiled and mashed with butter, cheese melted over soft veg, chicken soup, greek yogurt with a few mashed raspberries, peanut butter, low carb custard made with eggs and a little sweetener (old-fashioned custard), or soft-cooked cauliflower with cheese.
I also make low carb cake using keto recipes based on ground almonds.

I understand why you are reluctant to see your diabetic team, but it concerns me if you aren't getting your medication checked.

I just had a consult on the 11th I think, and that Dr is very adamant on the newest insulins despite the side effects I get.

 

[Oldvatr]

As far as doctors et al are concerned, side effects in general do not kill, and patients can learn to live with them and adapt as necessary. For instance my doctor knows about the risk of SGLT-2 med for possible DKA, but was not interested in my ketone reading of 8 mmol/l since I did not need a blue light taxi on that occasion, so I adapted, it seems. He refuses to take me off that drug, and wants to increase the dose.

I control what goes into my tummy, so I have the last say in that respect. Got boxes of the stuff in the cupboard.

But its a bit different with insulin. That is one med that should be tweaked as necessary to get the best fit - it will never be perfect given today's technology, but it can get pretty good if the doctor would work with the patient properly. Now I can see why you are Sad if that aspect of care is not happening for you.

Your dental work being recent, your gums will be sensitive for a while, but they should harden up and although not able to bite or chew, it should allow you to eat soft foods again. As my father-in-law used to say - you learn to gum things to death coz he only had one single tooth in his head.

It would suggest that you need to sort out the insulin problem asap. My understanding of insulin is that the dose should match the food, not the other way round. So your currrent liquid diet is not IMO a long term solution and you do need to consider upping the carbs (for soft eating) and adjusting the insulin to cover that increase, Maybe only puree the meat then?

 

[cdpm]

I found some cottage cheese on sale so maybe see some better nubers. Then when that's gone hope for mot

 

[cdpm]

More to be on sale.

 

[cdpm]

As far as doctors et al are concerned, side effects in general do not kill, and patients can learn to live with them and adapt as necessary. For instance my doctor knows about the risk of SGLT-2 med for possible DKA, but was not interested in my ketone reading of 8 mmol/l since I did not need a blue light taxi on that occasion, so I adapted, it seems. He refuses to take me off that drug, and wants to increase the dose.

I control what goes into my tummy, so I have the last say in that respect. Got boxes of the stuff in the cupboard.

But its a bit different with insulin. That is one med that should be tweaked as necessary to get the best fit - it will never be perfect given today's technology, but it can get pretty good if the doctor would work with the patient properly. Now I can see why you are Sad if that aspect of care is not happening for you.

Your dental work being recent, your gums will be sensitive for a while, but they should harden up and although not able to bite or chew, it should allow you to eat soft foods again. As my father-in-law used to say - you learn to gum things to death coz he only had one single tooth in his head.

It would suggest that you need to sort out the insulin problem asap. My understanding of insulin is that the dose should match the food, not the other way round. So your currrent liquid diet is not IMO a long term solution and you do need to consider upping the carbs (for soft eating) and adjusting the insulin to cover that increase, Maybe only puree the meat then?

Unable to tolerate meat. And most dairies.
Yes it would be nice if my Dr would work with me but he doesn't. It took me many years to find him as there is a major shortage/crisis here in the health care system. So I don't have an option of another Dr.

 

[cdpm]

Well there is maybe 1 option. But it may make things even worse.
So before I found this specialist I had to struggle thru many many walk in Dr's in every city I lived in . And that's alot of cities and alot of Dr's. Then I finally got this specialist.
But I can go back to the way it was before him. Going to walk ins (clinics where u can see a dr mostly if u dont have one or its taking too long to see your own if u have one)and seeing whoevers working that day. But some were reluctant to work with insulin as they couldn't "follow you". Because they knew you would be seeing a different dr next time most likely. The clinics usually won't tell you who's on. So its hard to get to see the same one again.
So I can keep this specialist or go back to the way it was and hope I get to see a Dr (it's only on camera too) who might help better?

 

[cdpm]

I found some cottage cheese on sale so maybe see some better nubers. Then when that's gone hope for mot

Well the cottage cheese set off my alarm for high numbers.
I guess I was right. It is hopeless.

 

[Lakeslover]

What was your level before you ate it and how much did it rise?

 

[cdpm]

What was your level before you ate it and how much did it rise?

6.7 to 9.2
Less than an hour later.

 

[Lakeslover]

That’s only a little over a rise of 2. So although it’s higher than I would expect for a 0 carb meal it’s not a disaster. How quickly did it come down?

 

[cdpm]

That’s only a little over a rise of 2. So although it’s higher than I would expect for a 0 carb meal it’s not a disaster. How quickly did it come down?

8.6

What's distressing is that I have very few food options and if none put me in range
Idk what else to do.

 

[W&D's Nana]

I think I remember reading that you are in Canada but not what province.
I moved back to Canada (Ontario) abut a year and a half ago and needed to find a family doctor especially after my diabetes diagnosis.
You can contact Health Care Connect, a service provided by the Ministry of Health to help you locate another new family physician. Their phone number is 1-800-445-1822.

 

[cdpm]

I think I remember reading that you are in Canada but not what province.
I moved back to Canada (Ontario) abut a year and a half ago and needed to find a family doctor especially after my diabetes diagnosis.
You can contact Health Care Connect, a service provided by the Ministry of Health to help you locate another new family physician. Their phone number is 1-800-445-1822.

Sad to say it.
But been on that list for at least 10 years.
And I know a much younger completely healthy woman who got one from that list but she is the type of person who will never see a Dr unless it's in an emergency room. And she called her Dr to ask if he will take me too. Nope.

 

[Lakeslover]

Not sure what the system is in Canada but professional medical staff here usually think up to 10 is in range. What are you aiming for? What time in range does your libre show?

 

[Oldvatr]

My T1D guitar buddy uses a pump, and he has been advised to only take intervention if his levels exceed 21 mmol/l or drop below 8 mmol/l. These are his in range values for his control and he has followed them for at least the last 15 years that we have been gigging together,

I am a T2D and not an insulin user, but whenever I was in hospital for repair, I too was subject to the same regime and was expected to only control between 8 and 15mmol/l anything outside this range was cause for concern by nursing staff. I am used to control between 4 and 8 outside of NHS land.so it was a shock for me. My current doctor wants me to be controlling to meet an HbA1c of 56 or above so again I differ in opinion as to what my control regime should be, It seems that the HCP's use a different set of values than us mere mortals.

So you may be expecting an unrealistic control regime of yourself and it may help your peace of mind if you can alter your personal goals to ones that are realisticsally achievable. Starving yourself is not going to help you in the longer term. and is not giving peace of mind and tranquility either.

There are several studies that show that insulin users using tight control of bgl levels actually had a shorter lifespan and or a lessened quality of life and it seems we can reduce bgl too low for natural bodily function. I am no expert, but there is evidence that you might benefit from a less tight control regime.