T1 or T2

[Lowcarb 2]

Moderator comment:
Hi All,
This post, and several following were a discussion that sprang up on another thread started by @EFMax.
Since this discussion meant that EF wasn’t getting many responses to his question, I have split the threads so that each topic can get the attention it deserves.

@Lowcarb 2 said:
My advice never do things without talking it through with your GP i started of as type 2 and over the years have developed into type 1, I am told that everybody over the age of 18 is classed as type 2 and then as long as there are not dramatic changes i the way your pancreas works you could eventually reverse it

ed by mod, to add the first comment.

 

[Chook]

My advice never do things without talking it through with your GP i started of as type 2 and over the years have developed into type 1, I am told that everybody over the age of 18 is classed as type 2 and then as long as there are not dramatic changes i the way your pancreas works you could eventually reverse it

Who told you this? I think you have been misled. One does not progress from Type 2 to Type 1, they are different conditions.

 

[Brunneria]

My advice never do things without talking it through with your GP i started of as type 2 and over the years have developed into type 1, I am told that everybody over the age of 18 is classed as type 2 and then as long as there are not dramatic changes i the way your pancreas works you could eventually reverse it

hi @Lowcarb 2
I wanted to step in to ensure that you have been given the information that you don’t start off type 2 and then develop type 1, ending up type 1.5 in the middle. This is because t1and t2 are two different conditions. T1 is an autoimmune condition. T2 is a metabolic condition. Taking insulin does not automatically turn someone into a t1 or a t1.5 (which is a slow onset form of t1).

A person can be t2 and move to insulin, Or they can be t1 who was misdiagnosed as t2, and later correctly diagnosed. You can be tested for the presence of antibodies to ensure an accurate diagnosis, if you are in doubt.

Also, I am delighted to inform you that being over 18 does not mean we automatically get classed as t2.
We need to have blood glucose levels above the diagnostic criteria to receive a diagnosis of diabetes.

edited to remove a confusing reference to the original thread.

 

[Lowcarb 2]

Diagnosed with diabetis in your junior and teenage years is type 1 after that it's classed as type 2 because that do not know for sure to begin with how much your pancreas is working i am in my fifties and was diagnosed as type 2 four years ago, a year later and a stay in hospital I was out on insulin and re-classed as type 1.5 recently I was out on fast reacting insulin as well a d now have been officially classed as type 1

 

[Dr Snoddy]

Hi Low carb 2. You may wish to do some further reading about T1, T1.5 and T2 as there are some misconceptions in your thinking. Increasingly very young, often obese people are being diagnosed as T2 and it is possible to develop T1 at any age.

 

[Brunneria]

Diagnosed with diabetis in your junior and teenage years is type 1 after that it's classed as type 2 because that do not know for sure to begin with how much your pancreas is working i am in my fifties and was diagnosed as type 2 four years ago, a year later and a stay in hospital I was out on insulin and re-classed as type 1.5 recently I was out on fast reacting insulin as well a d now have been officially classed as type 1

I am afraid someone has been giving you incorrect information.
We have T1 diabetics on this forum who were diagnosed at much older than 20, by antibody testing.
this link explains the differences between t1 and t2.

https://www.diabetes.co.uk/difference-between-type1-and-type2-diabetes.html

Edited to add the quote.

 

[urbanracer]

Diagnosed with diabetis in your junior and teenage years is type 1 after that it's classed as type 2 because that do not know for sure to begin with how much your pancreas is working i am in my fifties and was diagnosed as type 2 four years ago, a year later and a stay in hospital I was out on insulin and re-classed as type 1.5 recently I was out on fast reacting insulin as well a d now have been officially classed as type 1

After presenting with glucose levels of 31mmol, uncontrolled weight loss, frequent urination and unquenchable thirst, I was immediateley diagnosed T1 at the age of 54.

 

[Lowcarb 2]

Yes anyone can been diagnosed as type 1, I was told by the diabetic nurse and by the course I attended that o be you become classed as an adult it doesn't matter what size you are, what you eat etc they always class you as type 2 to begin with as they do not for sure how your pancreas is working and therefore as time passes nothing changes you remain a type 2, but like me if your body does not respond to the tablets alone and overtime things such as high sugar read and ketosis it means your body needs more help thus i insulin which then makes you type 1.5 a then when you suffer another setback and further insulin is added fast reacting your are officially classed type 1 having been through the whole process myself type 2 in 2016 type 1.5 in 2017 and recently type 1 i have been through the mill with my diabetis and was unaware that things could and would can be so rapidly, before lock down i was told my pancreas was a ticking time bomb and could stop altogether just like that, my case was brought up at a GMC meeting by my diabetic nurse who consulted a specialist who agreed with her that I add fast reacting g insulin to the mix

 

[Chook]

It sounds to me like you have been misled. Types 1 and 2 are different conditions. Type 1 can start at any age and Type 2 is generally diagnosed in adults although I believe there has been instances of it in younger people in recent years.

Type 1 needs insulin for the rest of their lives. Type 2 can often be controlled by diet but some people may need insulin. I myself was a Type 2 diabetic on two different types of insulin (for five years) but due to a change in my diet I no longer need the insulin. At no time have I ever been a Type 1.

 

[ert]

Moderator comment:
Hi All,
This post, and several following were a discussion that sprang up on another thread started by @EFMax.
Since this discussion meant that EF wasn’t getting many responses to his question, I have split the threads so that each topic can get the attention it deserves.

@Lowcarb 2 said:
My advice never do things without talking it through with your GP i started of as type 2 and over the years have developed into type 1, I am told that everybody over the age of 18 is classed as type 2 and then as long as there are not dramatic changes i the way your pancreas works you could eventually reverse it

ed by mod, to add the first comment.

I was diagnosed with type 1 by my GP and referred straight to a specialist, rather than type 2.

 

[Resurgam]

After some of the reported utterances - if a diabetes nurse came in looking damp and reported it was raining - I would still check rather than delving for my umbrella.
They really can be most unreliable..

 

[Jaylee]

Diagnosed with diabetis in your junior and teenage years is type 1 after that it's classed as type 2 because that do not know for sure to begin with how much your pancreas is working i am in my fifties and was diagnosed as type 2 four years ago, a year later and a stay in hospital I was out on insulin and re-classed as type 1.5 recently I was out on fast reacting insulin as well a d now have been officially classed as type 1

Hi,

To be fair there can be misdiagnosis.

Have you not had a cpep or GAD test?
Usually T1 don't creep up. Though there can be spasmodic pancreatic revivals with the "honeymoon."
It tends to be "wham bam, thankyou insulin.. I don't know that many that wait nearly 3 years to be prescribed fast acting.

What diet had you adopted in the early years of "T2.?" Where are you now??

Are you also prescribed any other diabetes medication other than the insulins..?

 

[DavidGrahamJones]

you could eventually reverse it

May I suggest that care is taken when discussing reversing diabetes. I think if any type II can eat the way they used to eat and more specifically, eat the same amount of carbohydrate that they used to eat, and have BG levels in what is considered to be the normal range, then that is reversal.

 

[Circuspony]

I was diagnosed type 1 aged 43. Hba1c of 147 and 2 lots of antibody tests came back positive.

Rapid weight loss, dodgy eye sight and I'd have drunk anything my thirst was so bad!

Still nurses out there who think T1 is a disease of the young

 

[LooperCat]

I think your DN needs retraining. Type one is an autoimmune disease where the insulin producing cells are killed by the immune system. Type two is a metabolic disorder where the cell membrane receptors become resistant to insulin, causing the pancreas to overproduce it (it can eventually burn out and become necessary to inject). One does not turn into the other, although a type one can develop insulin resistance - and rarely a type two could suffer an autoimmune attack which kills their beta cells, rendering them type one. Type 1.5 (LADA - Latent Autoimmune Diabetes in Adults) is basically slow onset type one and not worsening type two.

 

[Daibell]

hi @Lowcarb 2
I wanted to step in to ensure that you have been given the information that you don’t start off type 2 and then develop type 1, ending up type 1.5 in the middle. This is because t1and t2 are two different conditions. T1 is an autoimmune condition. T2 is a metabolic condition. Taking insulin does not automatically turn someone into a t1 or a t1.5 (which is a slow onset form of t1).

A person can be t2 and move to insulin, Or they can be t1 who was misdiagnosed as t2, and later correctly diagnosed. You can be tested for the presence of antibodies to ensure an accurate diagnosis, if you are in doubt.

Also, I am delighted to inform you that being over 18 does not mean we automatically get classed as t2.
We need to have blood glucose levels above the diagnostic criteria to receive a diagnosis of diabetes.

edited to remove a confusing reference to the original thread.

I would add that T1 is not just caused by auto-immunity so having a C-Peptide test as well as antibody tests will help show if your insulin is very low. My GAD was normal but my C-Peptide shows low insulin.

 

[Fairygodmother]

Hi @Lowcarb 2, are you in the UK? If you are then I’ve concerned that you’ve been given false information. In fact, I’m concerned that you’ve received false information wherever you are.
The nurse who led you to believe that T2 could progress to T1 could harm people. Maybe s/he was also poorly informed about Diabetes.