Take Your Own Responsibility,not Rely On Others

Australiadiabetic2

Well-Known Member
Messages
94
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Time and time again i read on this forum people becoming depressed and even disillusioned with their diabetes.

They feel no one is helping them , they feel like they’ re at times climbing a mountain.

Now this could be because of a number of reasons,they feel the nurse ,hospital or doctor doesnt care or they feel they are not receiving good treatment etc

But the point is ,no one really cares. Yes you heard it right ,no one but yourself gives a hoot about your health
You have to keep your own health recird,make sure you eat the right foods,make sure you exercise,make sure you check your feet ,make sure you take your medicatiins becUse sadly no one else will.....not unless your married i guess which im not :couchpotato:

You have to do your own research ,do your own study thru this forum and youtube

I didnt know we get discounts in my State of NSW on diabetes equipment thru the Govt both State and Federal ,i had to research this ,i had to ring the NSW STate diabetes association etc and ask

I had to ask questions on this forum and im slowly learnt more about diabetes in one week than i did in a lifetime,im no expert but im getting there and yes sure i have put others things on the backburner for my health.

I no longer work a lot of overtime consuming energy drinks etc ,some things have suffered but i prefer my health than money
And i know some of you get sick of having this disease and the lengths sometimes u have to go to.

Now i felt the same way earlier, but i took responsibility with my own treatment and health .

As soon as i was disgnosed type 2 i rang around many specialists, diabetes organisations and clinics,some didnt even to return my call ,some said they are too busy etc

Ironically my GP when referring me to a Diabetes specialist (endocrinologist) asked me if i wanted one who i could pay or wait on the public hospital system.

Now i thought even though the Public hospital system is free ,with the stories I hear I could be waiting months with all the stories i have heard about with the Public hospital system,AND i pay $220 a month in private health insurance anyway
so i said to my GP, yes refer me to a private practice Endocrinologist,so he wrote the letter and then faxed ny blood results to Professir blah blah’s office.

I rang the number of the good professor and the receptionist told me yes Professor blah blah can see me at a cost of $480 !:greedy:
And they dont accept private health insurance rebates but can claim back $120 on the Federal Govt medicare.

Thinking of my health and its urgency i said yes to the receptionist to give professor Blah blah half my weekly pay packet for the 20 or so minutes he will see me before he pushes me out the door and rubs his hands in glee thinking of his new Porsche.

She kept repeating you have the cash right? I said yes im willing to give Professor blah blah my $480 to save my life, i begged
She said ok,can you give me your Credit Card details as we like you to pay a 50% deposit first and you must cancel 14 days beforehand to get a full refund

Of course !!!! i said anxiously,thinking of my health and the fact i could go blind and have no feet if i dont give Professor blah blah half my weekly wage of $480 for his miracle 20 minutes of time

“ but when can i see the good Professor I asked before I gave the receptionist my CC details

Well, she started looking ..””..ummmmm i have to give the distinguished Professor your referral letter and he reads it first ...and he will then tell me “ she says
“ well ok but i would like a date first before i give you my CC details, i said to her

Well she wasnt happy before slamming down the phone so i didnt think i would hear from her again so i felt geez what have i done ! Now im going to die without the good professor ,i need to ring back even offer him double the money , apologise ,beg to her,im sorry ,im sorry ,im sorry ,i will be nice and give you my Cc details immediately

But ....lo and behold the nasty receptionist rang back, its Professor blah blah’s office she said on me answering the phone.
I thought the moment they came to their senses and will give me a urgent appointment because im paying.

“ well Sir , she started, “ Professor blah blah can see you on 28th August at 1pm “
“28 August !!!! I said back gobsmacked ,thats 2 months away !!!

“ yes the Professor is very busy so if we could have your CC details please”

Now i decided in that split second to say nope,i will find someone else, she said back to me “well goodluck with that !,before she again slammed the phone down in my ear.

Now i dont know about you but if im paying $480 and getting only about $120 back from the Federal Governments Medicare program i expect to see a specialist quickly if im paying , not waiting 2 months away!

Now im not sure why the good professor couldnt see me earlier,maybe playing golf or holidaying in the Bahamas perhaps or whatever so i took my own responsibility,and yes i got depressed because i was newly diagnosed AND back to square one !!
So i thought i would call my GP and make a appointment for him to refer me to another specialist.
But he is sick for a few days says his young receptionist , I thought of going to another GP but they all charged a hefty fee but my GP bulk bills free using the Govt medicare program and i didnt want to ask another GP who didnt know about my case.

So... this is getting tough i thought , so i rang the State diabetes association,the call looks as though its referred to the Phillipines call centre
I rang again another person same accent before , so anyway , i told them i wanted to speak to a diabetes specialist,she said this is the call centre and will pass my message onto the Nurse

We will get Diabetes Nurse to call you back said the lady on the other end probaly answering from Manila city on the other side of the World

Yeah sure you will i thought ,not expecting a immediate phone call.:rolleyes: In fact not expecting a call back.

Well 5 minutes later.....the phone rang from the State Diabetes Association

The lady on the other end had a Irish accent and i didnt have the nerve to ask her if she was calling from the UK but anyway she turned out to be a lovely lady telling me to fax my Professor blah blah referral into my local public hospitals diabetes clinic and it didnt matter it was addressed to him just put down I changed my mind about going to him and want to change to them,no need for the GP to confirm or approve it.

I did find it a bit hard in understanding her but she was very informative but for some reason she did dodge my question twice when i asked her if she was in Australia,i dont know if my State Diabetes Organisation use overseas nursing services to answer diabetes questions , not that i cared because she was more than helpful and knew the State health system well.

I told her of my concern about the long waiting list for public hospitals,and she said that wasnt in every case and to try to fax my referral immediately to my local public hospital diabetes clinic and wait their phone call

So.... not having a fax i trotted down to a internet cafe and paid them to fax it to the public hospital.....well lo and behold 30 minutes later i get a call from the public hospital diabetes clinic

She was a nursing triage there and she asked me a ton questions even though it was all written in the refferal letter, Whats your weight? Experiencing any diziness? Medications? Etc etc
,she didnt sound the nicest but she seemed firm and then she said your appointment at the public hospital health clinic is next Thursday and you will be there all day and you will arrive 10am and see a foot specialist,a diabetic nurse, a dietician and a Professor doctor .....and its all free under the public hospital system !!!!!!!!:)

Now i didnt ask if the Professor I was seeing on the day was Professor blah blah ,but i will laugh if it is saving myself $480:woot:

Now it goes to show you that sometimes you have to push yourself because others wont do it for you!!

It also goes to show that sometimes private treatment isnt any faster than the public hospital system and who kniws their Public hospital Professor maybe even better than Professor blah blah !:D And lo and behold it even could be the good Professor himself !!!!!:eek:
 
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rab5

Well-Known Member
Messages
842
Type of diabetes
Type 2
Treatment type
Diet only
Dislikes
My Diabetic nurse
I think your wrong. Certainly people in this site care for others. Yes we have our disagreements and arguments but I know that people do care and give their honest assessment, case by case.
 
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Lally123

Well-Known Member
Messages
231
Type of diabetes
LADA
Treatment type
Tablets (oral)
I think your wrong. Certainly people in this site care for others. Yes we have our disagreements and arguments but I know that people do care and give their honest assessment, case by case.

I don't think the OP was talking about the forum I think they meant the healthcare system doesn't care too much. I'm not sure I would totally agree with that sentiment having worked in the 'industry' for many years, but I absolutely agree with the sentiment that people need to take personal responsibility for their own health. When you work day in day out with patients with long term conditions you quickly realise that a huge majority of patients absolve their personal responsibility for their health direct to the healthcare professionals and I don't doubt diabetes is the same. HCPs do care but in the end we can only advise and prescribe, and if people don't take that responsibility it is only themselves who will suffer.
 
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Indy51

Expert
Messages
5,540
Type of diabetes
Type 2
Treatment type
Diet only
When it comes to the health system, I'd agree - absolutely nobody will care about your health as much as you care about it yourself. Unfortunately with health systems stretched to the max, we need to be our own health specialist and advocate. Scary but true and really bad news for vulnerable people.
 

lovinglife

Moderator
Staff Member
Messages
4,578
Type of diabetes
Type 2
Treatment type
Diet only
Love your enthusiasm and it's great that you are being so proactive and you are able to do all this for yourself - more power to you! :)

But for some - possibly many - life has a habit of getting in the way, not everyone is capable or indeed motivated to do everything for themselves, there is also a diabetic burn out - a genuine condition that can be very debilitating to those dealing with it.

I agree we are responsible for our own health but no man is an island- it takes a village and all that :)
 

Alison54321

Well-Known Member
Messages
1,221
Type of diabetes
Type 1
Treatment type
Insulin
Very pleased to hear you got an appointment with the public hospital system so quickly.

Wanting your credit card details but not giving you an appointment date is such a rip off.
 

Rachox

Oracle
Retired Moderator
Messages
15,898
Type of diabetes
I reversed my Type 2
Treatment type
Tablets (oral)
I have had a very different experience to the OP but maybe I’m lucky. My NHS GP is very supportive and very often spends more time with me than the allocated 10 min appt time. He encourages me and celebrates with me. All the nurses in my practice, who I’ve seen for other non diabetic reasons have noticed my weight loss and have been receptive to my enthusiasm talking about low carb eating and how it’s worked for me. Yes I had to find out a lot of stuff myself but it’s my health I don’t mind taking a large part of the responsibility for it. As for family and friends, they’ve all been wonderful, hubby eats what I cook, my kids have bought me thoughtful presents for birthdays and Xmas now chocolates are off the gift list. Friends are fantastic, one even orders the same food as me when we do lunch! My MIL and FIL have just been round to wish my daughter happy birthday and we were talking about my forthcoming BIL’s wedding and they have offered to check the menu at the reception for me to make sure there are some things I can eat.
I’m sorry for your very different experiences @Australiadiabetic2 , but I wanted to put the opposite experience so Newbies didn’t think your experience was the norm.
 

KK123

Well-Known Member
Messages
3,967
Type of diabetes
Type 1
Treatment type
Insulin
I actually agree with Australia, I don't think he is saying that nobody cares about you at all on a human level, I am sure that the medical personnel I see are happy enough to see me and chit chat, BUT they would do the same even if I dragged myself in half dead, they don't care about your health generally and why would they?, what's it to them? I think Australia is saying that YOU are the only one who cares that much and so only you can do something about it. For example, if you don't moisturise your feet, does your DN care?, nope, she'll give advice and then she's on to the next person in the cattle queue.
 
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rab5

Well-Known Member
Messages
842
Type of diabetes
Type 2
Treatment type
Diet only
Dislikes
My Diabetic nurse
I picked him up wrong. Apologies! I for one totally ignored the NHS advice offered. I valued my feet, eyes and kidneys too much. I have since found out I didn’t even see a DN. The surgery doesn’t have one!
 
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Norman Stanley

Active Member
Messages
25
I think the OP does a disservice to the medical profession. To say they 'don't give a hoot' is simply wrong. Most people who go into health care, and I count myself amongst them, went into it because they genuinely want to help people and don't like to see them suffer. The times I spent talking to unconscious and often dying patients in the middle of the night, hoping in some small way that a part of them knew they were not alone, was not because I was being paid to do it or because it was easy but because I sincerely wanted to do the best I could for them - even if that best was simply holding their hand while they died.

Of course there is often a degree of professional detachment in health care professionals but that serves two purposes - it helps that person make the best, logical and reasonable decision about the way to treat a patient and it also protects the health professional from suffering too much and too often from the inevitable emotional pain they feel after day after day, week after week and year after year of seeing people suffer and die.
 

ally1

Expert
Messages
5,402
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
liver
I have mixed feeling re gps and nurses at my surgery.
It's taken me months to get anywhere through nagging.
Yes our diabetes will be bad if we eat the wrong things etc. So 8 agree we have to change.
I have been referred to the neurologist, won,t be seen at least until the end of October. Far enough because our nhs just can,t cope.
 

ally1

Expert
Messages
5,402
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
liver
If I had the money, I would pay to go private
 

donnellysdogs

Master
Messages
13,233
Type of diabetes
Type 1
Treatment type
Pump
Dislikes
People that can't listen to other people's opinions.
People that can't say sorry.
I totally agree that health is our responsibility 100%.

My experiences of our UK NHS are up and down.

I take full responsibilty 100% for looking after me, as during the years I have had to regularly pay privately to get seen quicker and to get on track quicker with other health issues, not diabetes.

Diabetes wise, my consultant has admitted he has nothing else to offer to help me and CGM funding in our CCG has been blocked for exceptional cases... so diabetes wise I do feel totally let down... but I have always tried to find my own way through and look after myself so it looks like this will continue. Consultant has known for months now that funding has been stopped and I want to go before the Panel,,but no acknowledgement at all. Nothing...

I have had one dire consultant that did an awful mastectomy and fought and fought three hospitals to get a "supposed healthy"boob removed. A superb Professor that I wrote to (without knowing him) at the 3rd hospital agreed to do it. And thank god he did otherwise I would be facing all the cancer treatment all over again. It wasnt healthy at all...this superb Professor also gave my disabled friend superb advice about what she should do regarding checking her breasts and asking her GP for gene testing, and MRI scans as she cannot check herself and mammograms are not fully able to be done on her. Thank goodness for one fantadtic, superb Professor.
Diabetes teams during both ops did not do well though for sliding scale levels and ward staff were dire. This Professor also called me "the Perfect Patient" as although it seems as if I have been tough, and a fighter against the NHS, I atuck by my guns for my health, I dont take cancer tablets as they were so awful but I do the best for me... and he knows it.

My husband died at 51 from being taken to a secondary local care hospital, instead of a centre of excellence fir hearts which is on our doorstep. He was dimped with any assessment and died 8 hours later. They should have done a "serious incident" report on his death which should have been available from today. They said they would contact me. Nothing. 50% (the worst record in our CCG hospitals of patients through A&E die from aortic dissection at this hospital. Pretty dire and the cant even fufil the duty of candour notification on a timely basis or their "serious incident" report.

In the meantime I have paid privately for a severely disabled friend to see a liver soecialist as it was going to take 7 months for her to be seen as urgent.she got appt within a week. Specialist suggested what the cause was..and two weeks later her blood results have normalised again. I am now begging her to see a different specialist privately for gynae, as it was the hormone tablets that were killing her liver..

Ups and downs with my thoughts, there are some superb fantastic medics around.

Diabetes wise, hospitals, staff, CCGs and NICE.. i think they deal with everybody as being average... and they havent got a clue if you arent average... my CCG is in dire straights but if they truly recognised cost savings they would allow women prophlatic breast flatness without pushing for the expensive reconstruction options, they would allow exceptional cases to have CGMS, not blank everybody. The top people managing havent got a clue..

However I see today the Doctors are suggesting 50 operations that could be done better or not at all... will be interesting to know what cones of these suggestions.. ie do both cataracts together... not make people have 2 separate ops...etc.

Undecided about NHS and private, as they are effectively the same surgeons etc.... the CCGs are organised by management that havent got a clue... as for A&E well, I think too many people go there for non emergencies or because they cant see their own GPs... and some hospital A&E are appalling...

At end of day.. it is every persons responsibilities for our own health... I do personally feel let down by tge vast majority of medics in general...
 

Alison54321

Well-Known Member
Messages
1,221
Type of diabetes
Type 1
Treatment type
Insulin
I'm very impressed by how @Australiadiabetic2 has gone from being a 12 banana a day person to a health evangelist. Keep up the good work.

I haven't had particularly good experience with doctors. My current GP practice is quite good, they are well organised, and seem to take respond appropriately to requests, and the hospital does it's best. But I've seen some bad ones.

I think @donnellysdogs is right that the problem is that they only really know how to deal with the average patient, who never exists, and so people whose needs don't quite fit the average can often confuse them. So we do have to be aware that they are doing this,
 

Lamont D

Oracle
Messages
15,936
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
The bad, having to wait for quite a number of years (12!) Before I actually had the chance to see someone who had a clue.
Being misdiagnosed T2!
The constant advice about dieting and trying every diet out there, none worked until....
The total lack of understanding how my blood results still was my drinking and overeating. Though I wasn't!
Being told again and again to loose weight, when I was doing calorie restriction diets, working, exercising and still putting on weight and a specialist dismissing my symptoms as T2.
The number of foul ups with prescriptions, the lack of GPs, the lack of appointments,
The way our health system is being deprived of resources because of political dogma.
The actual disgrace, the way the government treats our front line staff, pay, conditions, hours!
The system were bed blocking occurs because of social care funding reductions caused by local authorities cuts, but the underlying problem is government cutting back on council spending.
Not enough doctors and nurses!
Private hospitals! (Need I say it, especially for the super rich!)

The best.
Meeting my endocrinologist, who saved my life!
Diagnosis.
Appointments with my endocrinologist.
Cancer scare, was treated within a week.
The doctors and nurses, who have done so much, through my family's problems.
The midwives who caught the problem with my grandsons birth.
Many more!
Despite the obvious problems within the NHS, I have been fortunate to get some really good medical care providers that have been exceptional.
I can still talk to my endocrinologist, and I write a blog for him, I will be eternally grateful to him.


They do care, but the problem is similar throughout our society.
The country is going to the dogs! Politics is ruining the social infrastructure and its their internal politics and ignorance of what our lives are really like.
There is no social justice, no regard for those who are less fortunate enough to be important enough to care.
Austerity is throttling the life out of the majority for the benefit of the minority.
I believe that it is only gonna get worse.

So, I have had the worst and the best of both from our great NHS!
 

kitedoc

Well-Known Member
Messages
4,783
Type of diabetes
Type 1
Treatment type
Pump
Dislikes
black jelly beans
I'm very impressed by how @Australiadiabetic2 has gone from being a 12 banana a day person to a health evangelist. Keep up the good work.

I haven't had particularly good experience with doctors. My current GP practice is quite good, they are well organised, and seem to take respond appropriately to requests, and the hospital does it's best. But I've seen some bad ones.

I think @donnellysdogs is right that the problem is that they only really know how to deal with the average patient, who never exists, and so people whose needs don't quite fit the average can often confuse them. So we do have to be aware that they are doing this,
Hi @ Alison54321,
I had to laugh about the reference to bananas ! In the past one of our distinguished Aussie politicians said that our economy was heading towards that of a banana republic. In these days we could have said that applies elsewhere. However please keep up the banana remarks !!
 

ickihun

Master
Messages
13,698
Type of diabetes
Type 2
Treatment type
Insulin
Dislikes
Bullies
Because type2 is seen as a lifestyle disease then these health care supporters cannot change that.
My endo told my dn that my type2 and underactive thyroid problem is diet related and that was how I improved my diabetes status and weight loss.
He is right. The right amount of insulin and low carb eating.... Did it.
 

ickihun

Master
Messages
13,698
Type of diabetes
Type 2
Treatment type
Insulin
Dislikes
Bullies
I need to keep a clearer look at how I'm doing, blood tests wise.
So i think I need to take full control of my results but my GP's are very cloak and dagger. I'll work on them thou. Mine not on-line. Very little on-line about any tests or anything of any use. I'll have a chat with them one day I'm not ill or in pain.
 

Grant_Vicat

Well-Known Member
Messages
1,178
Type of diabetes
Don't have diabetes
Treatment type
I do not have diabetes
Dislikes
Intolerance, selfishness, rice pudding
If I had the money, I would pay to go private
My father went private for years. At the time he needed them most, he was badly let down. I have never gone private - couldn't afford to! - but the NHS has done me proud for nearly 60 years. In the end, everything is run by human beings and not all are of the same standard.
 
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