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Type 1 in Infant and Insulin not working

Hahmed

Newbie
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2
Hello Everyone,

My daughter 13 month old, last month, diagnose with Type 1
We were given instruction of dosages on level range from 200-300 , Novo Rapid 1 dose , pre meal and 2 dose of Lantus before night sleep.
Sugar level was fluctuating around 150-250 and sometime spiking to 350 but would come under control..

For last 3 days in daytime , pre-meal lvl is mostly 300-350 and we have been giving 1 dose of NovoRapid and 2 dose of Lantus before night sleep, sugar level not coming down, and staying around 300-350.

Please advise..

Thanks in advance
 
Hello Everyone,

My daughter 13 month old, last month, diagnose with Type 1
We were given instruction of dosages on level range from 200-300 , Novo Rapid 1 dose , pre meal and 2 dose of Lantus before night sleep.
Sugar level was fluctuating around 150-250 and sometime spiking to 350 but would come under control..

For last 3 days in daytime , pre-meal lvl is mostly 300-350 and we have been giving 1 dose of NovoRapid and 2 dose of Lantus before night sleep, sugar level not coming down, and staying around 300-350.

Please advise..

Thanks in advance

Hi,

Welcome to the forum.

I am not a doctor. I would suggest you speak with your specialist team who treat your child.

But I am a T1 diabetic using Lantus & Novorapid.

How are you storing the insulin.? The 2u of Lantus day given to your child means that if you are not keeping it refrigerated during use. Unfortunatly, it could start to lose potency after the "28 day" use period?

Hope this helps.
 
For last 3 days in daytime , pre-meal lvl is mostly 300-350 and we have been giving 1 dose of NovoRapid and 2 dose of Lantus before night sleep, sugar level not coming down, and staying around 300-350.

Are you able to contact a medical team? Those levels would be concerning for an adult, and would probably require a review of dosage, but I have no idea what sort of levels your doctors would be recommending for such a young child.. Obviously, as she grows, her needs are likely to change rapidly. But overdosing is a big risk, so you really need advice form a medical professional on this one.

@Jaylee makes a good point about the longevity of your insulin cartridge - out of the fridge they really don't last longer than a month, you may want to change the cartridge before assuming that the issue is that your daughter needs more insulin.

I would be advising an adult with those levels to check their ketones, but again I don't know what levels are normal for children.

I am so sorry your daughter has got this illness so young, but there are quite a few T1s here who have had the illness from an extremely young age, so people do manage to get through it.

Good luck.
 
@Jaylee @EllieM

Thank you for your response.

Although, infant getting diagnose with T1 is real big challenge, as infant cannot explain regarding what happening to her.

I gone through 2 Pediatric Diabetic Specialist , one is new in this field and second specialist is experienced to whom we showed showed all history and test and treatment when our infant baby was hospitalized in ICU and her test suggested she is at high risk.

Now we're home, we are been asked to prepare logs for sugar lvl, which we are doing since day one. thing is what is normal range target as both specialist has given range ie 200-300 1 dose of NovoRapid and 2 if 300+ , pre-meal x3 times and no dose if below 200.

Things is baby lvl is fluctuating as we're getting different increase/decrease every time when we give same meal to our baby, further , we are asked to check after 2 hr of meal for lvl check, therefore if we give Oatmeal which tend to have carbohydrate increase lvl by upto 100 and next time when we give oatmeal sometime it goes up 150 + and sometime below 100, therefore, we 're confused . As infant is on mother feed as well, so baby cry for thirst and feed as well.

Should we maintain 2 hr fasting after each meal to get accurate result? as baby cry for water n feed after half n hr or hr.

With reference to my 1st Post, before posting I took risk of buy new pen of NovoRapid and Lantus thinking same as it has lost it effectiveness. It was already infant bed time, we gave lantus and after 3-4 hr we check lvl came down 20 and then later infant woke up for feed and then lvl went up and later checked again then 10 lvl came down. In morning her lvl was 320, we gave 1 dose of Novorapid and to our surprise , it started working in her body and brought lvl from 312 to 217, so believe effectiveness of pen has been lost and started refrigerated again.

As this fluctuation is happening from last 3 days, before that we were giving 3 x Novorapid single dose and 2 unit Lantus in night and week laters, range was around 150-200, premeal and post meal max 250 and it would again come around 150-200 on next pre-meal, therefore Novorapid wasn't required and we were only giving 2 dose Lantus in night. Same lvl stability was going and we were told by specialist abt Honeymoon period. and all of sudden out of blue since last 3 days lvl are so much fluctuating and confusing...

Further, if we can get in touch with other parent whose children, infant have T1 , so that we can learn from their experience.

Further, when we told specialist , we were advised to increase dose, we're afraid of dose increase might not cause our baby harm , as symptons might not be understandable by us...

Please I require your guidance in this regard.
 
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