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Type 1'stars R Us

Mel dCP said:
I’m thrilled! I do feel very lucky, but there’s been a lot of work behind the scenes on my part - logging absolutely every dose and carb on my Libre scanner, up to 18 injections a day when I’ve needed a lot of corrections all through the day and night, so I could upload it to Diasend for my team to see, for half a year now. Comprehensive data has been the key to getting this - I take my temperature every morning to try and track my cycle because of the monthly hormone induced insulin resistance; I measure my intake of not just carbs but protein as well, as I need to bolus for that an hour or two after the meal. I’ve also had to work out a set of ratios for the different times I get dawn phenomenon, it’s different doses when it hits at 3am to when it hits at 7... I am more than happy to help anyone who want to collect data to strengthen their case for a pump.

Initially they just looked at the Libreview graphs and said I was doing fine, as it rarely went over 10mmol - for some reason all the meticulous logging on the scanner hadn’t uploaded because the data from when I used my phone to scan overrode it with no data (I hadn’t recorded it on both). It was only when I uploaded my scanner remotely into their own Diasend system that they could see the gazillions of injections I’ve been having to do to get even that much control. Six months might seem quick, but it’s been very intensive! My whining on here about how frustrated I’ve been getting with my issues have only been the top of the iceberg...

So in a way it’s happenned very quickly in the same way that a band who have been playing grotty gigs for ages get “overnight success” :)
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Yes, you have been doing some serious record keeping, but I remember you saying not that long ago you wouldn't want one. So the period between your deciding you needed one, and getting one is pretty good.

It's interesting that that all that data turned out to be so useful.
 
Alison54321 said:
Yes, you have been doing some serious record keeping, but I remember you saying not that long ago you wouldn't want one. So the period between your deciding you needed one, and getting one is pretty good.

It's interesting that that all that data turned out to be so useful.
Click to expand...
True! I guess the timespan seemed so much longer to me than to an observer, because I’ve been living the tedium of it. I’d been keeping the data anyway, to try and manage things better. I’d never heard of a tubeless option until joining the forum, it’s always been the idea of tubes that’s put me off. But the data has been so useful, I’m so grateful the technology we have now has helped me to do that, I was terrible for years when it was making notes in a little book.
 
Excellent news Mel, hope it all goes well.

I spoke with my DSN last month and she was going to recommend that I get one. TBH not sure if I really fancy it. Think it was Medtronic 640.

They look a bit bulky, think you still have to change canula every few days and looks like it takes a bit of work to programme it. Also how do you sleep with a pump attached, I am fairly restless sleeper

Anyone have experience of using a pump?, good or bad
 
Mel dCP said:
True! I guess the timespan seemed so much longer to me than to an observer, because I’ve been living the tedium of it. I’d been keeping the data anyway, to try and manage things better. I’d never heard of a tubeless option until joining the forum, it’s always been the idea of tubes that’s put me off. But the data has been so useful, I’m so grateful the technology we have now has helped me to do that, I was terrible for years when it was making notes in a little book.
Click to expand...

You might also have also unintentionally stumbled across a good method to get a decision on a pump reasonably quickly. Your experience might be very useful for others.
 
smc4761 said:
Excellent news Mel, hope it all goes well.

I spoke with my DSN last month and she was going to recommend that I get one. TBH not sure if I really fancy it. Think it was Medtronic 640.

They look a bit bulky, think you still have to change canula every few days and looks like it takes a bit of work to programme it. Also how do you sleep with a pump attached, I am fairly restless sleeper

Anyone have experience of using a pump?, good or bad
Click to expand...
That was the other thing that put me off, the sleeping aspect with a tubed jobbie! I’m quite restless, so is the husband, and we have three cats who might get overly interested in it! Think I can handle a little pod though, they seem really small.

CD18D8B1-8D82-4D5F-91DC-15E24B7BE6E8.jpeg

Alison54321 said:
You might also have also unintentionally stumbled across a good method to get a decision on a pump reasonably quickly. Your experience might be very useful for others.
Click to expand...
I’ll certainly help in any way I can :)
 
@Mel dCP good news on the omni :borg: you have worked hard to get one, and be interesting to see how things work out :)

Bit of an odd day for me, started off in butt monkey territory in the high 11's but instead of doing my usual, half litre of Nova Sluggish, I only did two one at 2 units the other at 3took 4 hours to get it down to below 10 in to the high 9's and then it has been OK in the green band on the Etch A Sketch, for the rest of the day.

Now running 4's after gym and Tesco Pizza (where is angry pizza man :hilarious::hilarious::hilarious::hilarious:) so at the moment all is good.

@therower Ended up getting more Jelly Babies so see how long they last till the JBT (Jelly Baby Thief) strikes again :jimlad: not long I suspect :hilarious:
 
@Knikki . I have two JBT’s. 6yr and 3yr old respectively. High shelves almost work, but the ability to climb up kitchen cupboards doesn’t make my stash totally safe:)
Usually buy the 400g boxes when I find them on offer. B and M are usually a reliable supplier.
Just recovering from a 3.2. **** weather puts paid to one of my go to symptoms. Was sweating, but hey what’s new there just recently, it was only the empty hole feeling in my mid section that made me check. Dexcom wasn’t far behind at 4.3 ( alarm set at 4.1 ) so I wasn’t far off getting a “ mechanical “ warning.:banghead:.
Probably wake upto something silly like 23.7 in the morning:):).
 
@therower Oh man don't wake up with a 23.7 it sounds like a cricket score. :chicken:

I did a 19.5 the other day and paid for it for a fair few hours, people seem to fear hypo's I fear and hate Hyper's really throws me off.

Anyway hopefully you'll wake up with a mild 12.5 :D

Unfortunately the are no shelves high enough in our house to ward off the JBT :hilarious:
 
@Knikki . Have to agree. A hypo, generally can be sorted in a short time period. A hyper on the other hand can take the best part of a day to get under control.
Sorry can’t help with the JBT.:):):).
I like to be 10 or under first thing in the morning. Fingers crossed for tomorrow.
 
Mel dCP said:
I’m thrilled! I do feel very lucky, but there’s been a lot of work behind the scenes on my part - logging absolutely every dose and carb on my Libre scanner, up to 18 injections a day when I’ve needed a lot of corrections all through the day and night, so I could upload it to Diasend for my team to see, for half a year now. Comprehensive data has been the key to getting this - I take my temperature every morning to try and track my cycle because of the monthly hormone induced insulin resistance; I measure my intake of not just carbs but protein as well, as I need to bolus for that an hour or two after the meal. I’ve also had to work out a set of ratios for the different times I get dawn phenomenon, it’s different doses when it hits at 3am to when it hits at 7... I am more than happy to help anyone who want to collect data to strengthen their case for a pump.

Initially they just looked at the Libreview graphs and said I was doing fine, as it rarely went over 10mmol - for some reason all the meticulous logging on the scanner hadn’t uploaded because the data from when I used my phone to scan overrode it with no data (I hadn’t recorded it on both). It was only when I uploaded my scanner remotely into their own Diasend system that they could see the gazillions of injections I’ve been having to do to get even that much control. Six months might seem quick, but it’s been very intensive! My whining on here about how frustrated I’ve been getting with my issues have only been the top of the iceberg...

So in a way it’s happenned very quickly in the same way that a band who have been playing grotty gigs for ages get “overnight success” :)
Click to expand...
Wow. A lot of work. Totally deserve the pump. I toff my hat to you
 
therower said:
@Knikki . Have to agree. A hypo, generally can be sorted in a short time period. A hyper on the other hand can take the best part of a day to get under control.
Sorry can’t help with the JBT.:):):).
I like to be 10 or under first thing in the morning. Fingers crossed for tomorrow.
Click to expand...
I think the worst is the hypo followed by the hyper. One's suffers twice !
 
kev-w said:
Good morning y'all, yesterday had a few hypos, one down to 3 before I caught it, swimming 1300m in 31 minutes at lunch didn't help but didn't hypo at the pool, and today I've woke at 11 :) I've removed 1u from the Tresiba as the 2 days before I saw a slope down through the night.

But anyway :) I had my little un and her friend sleep last night and they were up late keeping me awake with their music and giggles, I think I need a back garden tent for their next time.

Slow start and windows to clean when child goes back...
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Nah. Let them have the garden tent !!
 
porl69 said:
She said I am like a petulant 5 year old when I refuse to do as I am told when hypo. I hide my fingers and go VERY tight lipped lol. BUT she can now scan my arm....I am scanning very regular today expecting a roller coaster day. I hate when I know what an idiot I have been when recalling mistakes I have made when split bolusing
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You are not the only one who gets petulant @porl69. I remember getting a detention or two at school because of my behaviour during hypos. Back then teachers did not understand.
 
Mel dCP said:
True! I guess the timespan seemed so much longer to me than to an observer, because I’ve been living the tedium of it. I’d been keeping the data anyway, to try and manage things better. I’d never heard of a tubeless option until joining the forum, it’s always been the idea of tubes that’s put me off. But the data has been so useful, I’m so grateful the technology we have now has helped me to do that, I was terrible for years when it was making notes in a little book.
Click to expand...
Congratulations on entering the Hallowed Hall of the Pumpers ! Well done, and your integumen will be less prickled by injections. Sleep will improve, worry will be halved and more. Of course the next challenge is to persuade the pump company get your favourite tunes as alarms. I shall watch the story your pump ventures with interest. Best Wishes !!
 
I am always heartened by today's youth.
Yesterday on talk-back radio in Adelaide, there is a programme where they give money to a cause suggested by the caller.
They had a 13 year old girl with diabetes on talking about her initiative to help the homeless.
She was making up small packages of things with her own savings at AUD30 per package.
The Radio station awarded her cause AUD 900.
For someone with her own challenges in life, her cause and dedication does her and youth of today proud.
 
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