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Type 1'stars R Us

Discussion in 'Type 1 Diabetes' started by Robinredbreast, Jun 10, 2018.

  1. porl69

    porl69 Type 1 · Well-Known Member

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    Hope the lurky doesn't get any worst for you Helen. And am keeping my mouth tightly shut to any suggestioins :)

    And @Diakat hope you are feeling better soon
     
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  2. becca59

    becca59 Type 1 · Well-Known Member

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    @porl69 I too ate 3 jelly babies during the night. Not altogether, but at 2 hourly intervals. Would have probably been better to down them all at once to enable a better nights sleep.
     
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  3. champ200581

    champ200581 Type 1 · Member

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    @slip thanks for info, sorry to sound a little thick but by a basal test do you mean to fast? In which case Yes, I had done 48hrs up till last night.... partly as I struggled at bit with the Polish food being more carb heavy and also to try and settle things down and start a fresh things have sat at a steady 10-6 on my due to waking high on Monday I'll check out the sugar surfing book too

    @helensaramay sorry you poorly, I'm just shaking mine since last week I tend to do a little crafting and baking yo help me relax, I make some Christmas decs for some family and friends I love doing that with the log burner on or rest with your feet up and a book maybe?
    Much appreciate the help
     
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  4. Cumberland

    Cumberland Type 1 · Master

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    Good afternoon friends
    Hugs galore to those who’d like some
     
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  5. PeterHud

    PeterHud Type 2 · Active Member

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    Hello all ...never commented on this thread so decided to join in.

    Tomorrow is my monthly DN appointment and March was a busy month for me... 301k steps and walked 115+ miles spent 8 days visiting towns/cities ... Had a few drinks ... Never hypo'd once ..

    Today woke up with a 5.6 and out walking as I type and still at 5.6 and done 6k steps ... You watch me hypo in the morning before meeting them lol.
     
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  6. becca59

    becca59 Type 1 · Well-Known Member

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    Welcome @PeterHud weekly DN appointment, I am intrigued. I get a 10-15 minute appointment with consultant, once a year.
     
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  7. WuTwo

    WuTwo Type 1 · Well-Known Member

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  8. Robinredbreast

    Robinredbreast Type 1 · Oracle

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    Hi guys, I have been out for hours, unfortunately it was due to my purse, probably stolen. I was on my way home from town and I met a former work colleague she said 'come in town, as I am meeting up with L' so we in had a Starbucks coffee ( never been in there before !) I was given a small pink friendship Llama/unicorn key ring that they had been saving for me, I put it on my purse, we ere sitting outside Starbucks and had a great time, a catch up and a laugh. They wanted to look round a couple of shops after that, it was then I noticed my purse was missing. Reported it missing and went to Barclays to cancelled debit cards and luckily my cards weren't used. It was still a lovely day with A and L, so trying not to put a dampener on it, but I had photo's of all my grandchildren as babies, my daughter and my dear dad in the purse, transferred from purse to purse, now gone.
    Anyhow, on a brighter note, I am being taken out for dinner tonight, so that will be nice:)
    Hope your Wednesday has been a good one :)
     
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  9. WuTwo

    WuTwo Type 1 · Well-Known Member

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    @Robinredbreast Sorry about your purse - much loved items that we use all the time and suddenly lose are much missed.

    I've not had a bad day at all. Spent longer than I should cuddling old dog, but we're both happier for it.

    Spent some time in the kitchen cooking with my husband - fun, because it's usually he who cooks, but we like working together when we can.

    Aside from that, and this sounds so twee - we just like being at home together.
     
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  10. Fairygodmother

    Fairygodmother Type 1 · Well-Known Member

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    Sorry about your purse @Robinredbreast, it’s horrible when we come in contact with people too unkind to consider those whose property they take. I’m hoping, though, that it and the previous photos are found. Keep your eye on local social media.
     
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  11. therower

    therower Type 1 · Well-Known Member

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    Good evening all.
    @Robinredbreast . What a PITA. Hopefully some good person will find your purse and get it back to you. If a thief is happy with their work then let’s hope they catch T1 diabetes from handling stolen goods.
    @Diakat @Mel dCP . Hope you ladies are feeling better, if not then get well soon.
    Welcome to the forum @PeterHud .
    @champ200581 . Welcome to the forum. Some great advice as is normal from the lovely people on this thread.
    Can’t really add much more other than my thoughts on living day to day with diabetes. Personally I feel that you have to embrace the condition, why fight a fight you can’t win? It will always be there the next day so make it your friend not your enemy. It doesn’t want to be friends but you call the shots.
    Positivity is the best medicine. Diabetes control 80% mental/ emotional 15% medication/ diet and 5% just winging it.
    Hopefully you’ll keep posting, it’s guaranteed that you will bring a wealth of experience to the team.
     
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  12. LooperCat

    LooperCat Type 1 · Expert

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    Hi, welcome, and thanks to everyone for all the tags, my notifications blew up :D

    In a nutshell, I have a MiaoMiao on my Libre and follow (mostly) Bernstein’s methods for T1 management combined with Sugar Surfing. My rig is Libre+MiaoMiao with an iPhone 8 running an unofficial app called Spike, and my readings are displayed on my Fitbit Ionic watch. I also use an Omnipod insulin pump, meaning I can take tiny doses.

    I’ll run through how I do things bit by bit, but I’ll start by stressing that as a scientist, I’m happy with lots of numbers coming way, and cool with experimenting on myself and interpreting the results to give me a better outcome. A Libre with or without a MiaoMiao won’t just give you better control because you have one - you need to know how to interpret what it’s telling you, and then know how to act appropriately. But it’s like watching a series of 24 compared to eight still photos from the entire thing.

    Let’s start with food - Bernstein recommends limiting yourself to 30g carbs a day, and those from vegetables. So no grains, grasses like rice, root veg, legumes or starchy stuff in general. He suggests dividing this allowance 6/12/12 across your three meals. His principle, that he calls “the law of small numbers” (scientifically not a law at all, more of a hypothesis, but I digress) says that small amounts of carbs = small doses of insulin which means small errors in dosing and therefore smaller glycemic excursions. In other words, less and smaller spikes and hypos - these are my traces for the last two days, the black one is Spike, and the other is the standard Libre app which you’re probably familiar with.

    C5CE852D-3622-45FE-AE86-B724F4453DE7.jpeg 35149F4F-0403-4885-95A5-A173B6C1333F.jpeg

    I’ve certainly found this “law” to be true for me since I started it some 15 months ago, and in two decades of T1 it’s the only approach I’ve found that works. Your mileage may vary! Now, I don’t follow his 6/12/12 distribution of carbs throughout the day. I don’t eat breakfast, as I’m just not hungry in the mornings. I’m quite insulin resistant until around noon, and get an impressive “foot on the floor” rise as my liver decides to join the party for the day, so I don’t really want to add food into the mix. I generally have a 3-5g carb lunch, so again lower than he suggests - it means I can get on with my afternoon’s work without having to even think about how the carbs or insulin in my system might be affecting my levels. I can pretty much ignore diabetes for my working day; I know I’ll be running steady. I tend to have up to 15-20g carbs in my evening meal, but often less. So at most I’ll have 2u of insulin as a bolus (using my standard 1u:10g ratio in the evening) for any carbs and maybe an extended bolus over four hours depending on my protein source. When low carbing to this extent, after a couple of months you begin to need to bolus for protein as well, typically at half the ratio you would for carbs. I have to dose for every g of carb from my veg (if you’re eating pasta etc, the carbs in your veg are soaked up by the much larger dose you’re taking for the pasta) when I sit down to eat, and the protein over a longer period. For example, last might I made prawn and avocado mayonnaise. 4g carbs and 15g protein - so 0.4u as I sat down to eat plus 0.75u over 4 hours for the prawns. So that’s food - a bit trickier for me because I don’t eat meat or dairy, but the positive effects have been well worth the sacrifice. Steady sugars and feeling well for the first time in 20 years.

    Sugar Surfing is a technique for management that I started doing when I first had the Libre, and have found so much easier now that I have MiaoMiao, because I have alarms set to tell me BEFORE I go out of range. The idea is that you regularly glance at your level, and take action before things get out of hand. If you’re pre-bolusing for a meal you inject, then watch for your levels to begin to drop before you start to eat. Combined with low carb (for me) it’s a winner of a combination. I keep a tight target range of 4-7mmol - basically I aim for non diabetic levels. So I’ve set my Fitbit to gently buzz my wrist when I hit 6.6 for a high and 4.4 for a low - and that gives me plenty of time to either take a microdose of insulin to nudge them back down a bit or a couple of dextrose tabs to nudge them back up. You’ll see on the Spike trace above where I’ve done this. The fluffy turquoise line is the extended prawn bolus.

    The last element is my Omnipod pump - which means I can take doses in 1/20 of a unit increments. It allows for much tighter control but does require more effort - although having said that, when I was on MDI, I was taking up to 18 0.5u Novorapid shots a day to nudge my levels down. You need to be very accurate in your carb (and protein) counting, but again, I find it worth the work.

    I’ve only had all this knowledge and tech in the last 15 months, since January last year. But the improvement in my HbA1c has been remarkable:

    Dec 2017 on MDI, typical high carb/low fat diet & fingerprick - 94
    March 2018 on MDI & Libre alone plus low carb - 50
    April 2018 on MDI, Libre+MiaoMiao & low carb - 43
    August 2018 ditto - 40 - got pump 2nd August
    December 2018 with all the toys and low carb - 37 - started a very stressful job, plus volunteer stuff
    March 2019 ditto. - back up to 40, due to erratic working hours, I think.

    I should add that I have minimal hypos, rarely below 3.6 if they do happen - and they come on very slowly indeed, so I can deal with them with little more than 6g dextrose and turning the pump off for half an hour.

    So, as a method of T1 management, mine is pretty full on, but once I’d fine tuned it to suit my life, it doesn’t really require much work at all. I still go out to eat, I don’t feel like I’m missing out. For years I was literally disabled by swinging blood sugars, as I just could not get my doses and timings right to match my food - many here can; I couldn’t. It wasn’t for want of trying! I was almost diagnosed with chronic fatigue or fibromyalgia, I was so bad. But now I’m teaching full time plus volunteering with the ambulance service as a community first responder and really enjoying life.

    And you apologised for _your_ essay :D I hope this is of some use!
     
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  13. Japes

    Japes LADA · Well-Known Member

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    Thanks, @Mel dCP it's certainly of use to me! I'll read it carefully later, though, as I'm about to go and do some emergency cake baking.

    Apparently, April 4th is International Carrot Day. I had to do something creative as a major distraction tactic today, and was presented with the results of the research - 4 carrot cake recipes. There was a vote and I've bought two home to try out. Then, of course, we've got to test them out tomorrow... But, I forgot to buy carrots when I was getting the other ingredients I didn't already have so I'm just about to go and get some!
     
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  14. DCUKMod

    DCUKMod I reversed my Type 2 · Master
    Staff Member Administrator

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    Oh dear @Robinredbreast - that's a shocker. Glad you discovered it quickly and managed to limit any damage, albeit what's ;eft os the emotional hurt.

    I'm not a Barclays customer, so unsure if they do it, but a few of the big banks now allow us to pause and/orr cancel out cards from our mobile banking app. Of course, it's reassuring to see the whites of the bankf staff's eyes when they've dealt with it, yet good it can be done in an instant.
     
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  15. Robinredbreast

    Robinredbreast Type 1 · Oracle

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  16. Robinredbreast

    Robinredbreast Type 1 · Oracle

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    Thank you, The Barclays adviser asked if I had the app, but I haven't. She was very helpful and friendly,it's just one of those things that happen.:(:rolleyes:
     
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  17. Robinredbreast

    Robinredbreast Type 1 · Oracle

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    Thanks FG, I will keep my ears and eyes on full alert.
     
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  18. karen8967

    karen8967 Type 1 · Expert

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    Sending big hugs robs its happened to me and its not the money or cards its the personel items that cant be replaced which have prob been discarded xx
     
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  19. Robinredbreast

    Robinredbreast Type 1 · Oracle

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    Thanks @WuTwo. If the above is 'twee' then everyone should have a bit of 'twee' time x
     
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  20. Robinredbreast

    Robinredbreast Type 1 · Oracle

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    Thanks Karen :) x
     
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