Type 1'stars R Us

himtoo said:

Hi Sue.... consider yourself invited !!!!!! next meet 12th october -- manchester -- venue TBC -- i will be posting on forum about it once we have a venue

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Morning, @himtoo did I say to put me down as a provisional for M/CR a bit too far in the future for a definite answer. I might be roaming.

helensaramay said:

It has taken me some time to trust the Libre. The main things that help me are
- test against finger pricks at least twice a day
- test against finger pricks if Libre says above 8
- test against finger pricks if Libre says below 4
- test with finger pricks if I am doing something (like exercise) which will make my BG change quickly
- use an app (Glimp, in my case) which allows calibration against finger pricks
- realise there is so much approximation going on (carb values in food is an approximation, BG is an approximation, insulin to carb ratio is an approximation) that an in accurate Libre reading (within the range I mentioned above) is not a huge thing.
- I use the short term trends to work out whether to do more or less of a correction. If the graph (not the arrows because they seems to only be based on the last two values) is going up, I assume my BG will be going up so add 0.3 to my current BG. Likewise, if the graph is going down, I subtract 0.3.

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This is really helpful. It will save some finger prick pain. My Libre said I was 7.1 after my run but my finger prick said 5.5. I probably shouldn't have tested it (you are right as it was below 8 on the Libre), and I probably need to chill some more. The Libre has some crazy averaging going-on that I've been trying to get to the bottom of.

WuTwo said:

The DSN at my surgery said I'm the best controlled they've got! Once I'd picked myself up off the floor (from rolling around laughing) she told me she was being serious,

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I'm not as well control as some on here (Mel to name but one!) and I think at every clinic appointment it is mentioned that I am better than most other patients.....by a long way, or when discussing hba1cs they say I'm doing ok considering they regularly see results in the teens! We on here are not normal T1s!

Just a normal 5.4 for me this morning

I'm up for the Cotswold meet up - and as I say happy to 'taxi' the Oxford contingent (@SueJB @ert and anyone else)

slip said:

I'm not as well control as some on here (Mel to name but one!) and I think at every clinic appointment it is mentioned that I am better than most other patients.....by a long way, or when discussing hba1cs they say I'm doing ok considering they regularly see results in the teens! We on here are not normal T1s!

Just a normal 5.4 for me this morning

I'm up for the Cotswold meet up - and as I say happy to 'taxi' the Oxford contingent (@SueJB @ert and anyone else)

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Thanks @slip, I'd love to take you up on the offer if I'm here. Lovely BG I want to be a 5
I might even buy myself a birthday card with a badge on to encourage me to get there. I could wear it on the good days

therower said:

Ok lovely people.
Favourite crisps past or present??????????? ( let’s include wheat, savoury, corn snacks )

1. Hula hoops.
2. Cool Doritos.
3. Walkers ready salted.
Notable mentions. Mc Coys cheddar and onion. Mini Cheddars.

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1. Chipmunk Oxo
2. Monster Munch (any flavour)
3. Walkers Salt & Shake

helensaramay said:

I want to be between 4 and 7 and my Libre target is between 4 and 10.
Whilst my bolus calculator is set with an absolute target, I know I will only reach it in passing.
Our bodies do not work that way.
Even people without diabetes do not work that way. I keep coming back to the student who published his Libre graphs online who had a BG in the 9s. And my boyfriend has seen a BG below 4. These guys have a working pancreas but even after millions of years of evolution, a healthy pancreas cannot stick at 5.
I see no way someone with a year or so of experience can do it.

As you keep suggesting, I think you need to chill and be happy if your BG is within a wider range and not stress if it is slightly outside.

Sue, I may be sounding a bit harsh (especially as I am suggesting you chill) but this extra pressure you are putting yourself under will make diabetes management harder.
Sure, I wouldn't suggest you ignore diabetes and I wouldn't suggest you are happy with a BG in the teens but it is about balance: how much of your life do you want to spend perfecting your BG and how much of your life doing you want to spend living with an ok BG?

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Thanks for your thoughts @helensaramay.
I want to have a garden without bindweed, I want to have a bigger kitchen, I could do with some more money, I want my stiff shoulder to get better. I want to be able to cook a brilliant yorkshire pud. I want to have world peace and no famine.

I believe in better for the world and myself so I do what I can for the world. Reducing my plastic waste, recycling, giving to charity. Yes, I do freak occasionally and talk about it on here. Buying a badge would be a fun thing to do and wouldn't stress me nor put me under pressure, it would make me laugh.

Most of the time I AM chilled about having T1, but you know, there are times when a little rant about out of range BG is OK. I've got a lot of useful support and advice from people. I don't think there's anything wrong with wanting to be a 5 but I am intelligent enough to realise that after 2 years T1D that it's not always achievable. My mum used to say "I want, doesn't get" and I've always accepted that.

As @slip said because my pancreas failed late, I've got more chance of dying of old age than diabetes. With that in mind, I have spent the last year in travelling. Riga, Manchester, Bournemouth, driving to France, driving to Spain then Portugal and back to France. Flown to Gdansk and done a load more stuff. I loved every minute and ate with joy and controlled my BG as best I could and did not stress or put myself under any pressure. If I wanted a sorbet or a baguette or some crisps I had them.

I feel you mistake my intention in writing today or in fact how I deal with my T1. Of course I want to learn more and the best place is here.
I'm happy and off to Paperchase to buy my badge

Good morning all
Well BGs being a right swine today. Woke to a Lo, probably over corrected an 11 last night, had breakfast with a smaller dose on Fiasp, currently sat on a 13.4 with a North heading arrow.....AAAARGH!!!

My target range is 4 - 10 BUT my DSN wants me to aim for 8s to get my hypo awareness back!

Cotswold meet, am defo up for....Manchester maybe not

I think Time in Range is being recognised now as a useful addition to HBA1c, for assessing control.

I saw recently on twitter a recommendation that being 70% in range where the range is 4 -10.0 is recommended, and seen as good. You should be able to calculate TIR using finger prick testing, presumably there's something out there can help, and someone knows what it is. @SueJB

You have to make the assumption, obviously, that between fingerprick testing your blood sugar isn't doing any really crazy things, but I think that's a good target to set yourself, that isn't too stressful.

I tried to find the original tweet I saw, by an HCP, but they're all too busy talking about pensions and there was too much to wade through to find it.

SueJB said:

As @slip said because my pancreas failed late, I've got more chance of dying of old age than diabetes.

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Wasn't me! it was @Scott-C - if you had read it properly you would have noticed the Scottish accent.....

WuTwo said:

I'm like Mel - if I get brekkie munched within an hour or so of getting up, all is well. If not - just watch that blood go up!

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I don’t eat breakfast....

Alison54321 said:

I think Time in Range is being recognised now as a useful addition to HBA1c, for assessing control.

I saw recently on twitter a recommendation that being 70% in range where the range is 4 -10.0 is recommended, and seen as good. You should be able to calculate TIR using finger prick testing, presumably there's something out there can help, and someone knows what it is. @SueJB

You have to make the assumption, obviously, that between fingerprick testing your blood sugar isn't doing any really crazy things, but I think that's a good target to set yourself, that isn't too stressful.

I tried to find the original tweet I saw, by an HCP, but they're all too busy talking about pensions and there was too much to wade through to find it.

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I’d agree on that. I still log whenever I blood test or dose/eat in MySugr, and that gives a good idea.

Morning chaps, knee still seriously gammy so have made a self referral to the physio at my GP surgery - so that’s tomorrow afternoon. On call today with a new CFR so I can get him to carry the heavy kitbag. I’ll swan (limp) in with the defibrillator. Great acoustic gig last night with one of the founder members of my favourite ever band, he’d heard about my career change through the grapevine and asked me to look at a finger he’d slightly injured...

This sensor is flaky - so a phone call to Abbott when I’ve finished my coffee is in order.

Good afternoon friends
Have been in the garden doing some weeding

Mel dCP said:

I don’t eat breakfast....

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Must be someone else. Sorry about that! I do - it's a long old morning until lunch otherwise and I gets very very hungry!

Alison54321 said:

I think Time in Range is being recognised now as a useful addition to HBA1c, for assessing control.

I saw recently on twitter a recommendation that being 70% in range where the range is 4 -10.0 is recommended, and seen as good. You should be able to calculate TIR using finger prick testing, presumably there's something out there can help, and someone knows what it is. @SueJB

You have to make the assumption, obviously, that between fingerprick testing your blood sugar isn't doing any really crazy things, but I think that's a good target to set yourself, that isn't too stressful.

I tried to find the original tweet I saw, by an HCP, but they're all too busy talking about pensions and there was too much to wade through to find it.

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The tweet probably was about this: https://www.medscape.com/viewarticle/914551#vp_2

Personally I think time in range is quite useful but I don't like to show HCP's the time in range graph from my libre. Libres always read somewhere between 0.5 and 1.5 mmol lower than a fingerstick for me, which means the thing thinks I'm hypo when I'm in the 4's and even 5's. So current TIR says 32% low, where it's probably closer to 2%.
I wouldn't want HCP's making decisions or aiming stern lectures at me based on those non-existent lows.
Thankfully, my internist believes me and is very happy with my management, but I've still to meet my DN for the first time and I think I'll skip the showing my graphs part when I meet her.

Henlo frens, I was 5.6 at 6:30am and I did go back to sleep. I feel much better after a much needed rest. Breakfast made me low today but yesterday was perfecto, so I’ll go chuck some coke down my throat.

I just had an orange ice lolly! I haven't had one of those for so long. We got them the other day and husband had had a couple but I hadn't got round to it.

The weather is supposed to break here later today - in a huge way. I'm hoping for thunder, lightning and stair rod rain

SueJB said:

Morning, @himtoo did I say to put me down as a provisional for M/CR a bit too far in the future for a definite answer. I might be roaming.

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done !!--- details to follow as soon as we can

Little update on Owie, Suus and the guinea pigs

slip said:

Wasn't me! it was @Scott-C - if you had read it properly you would have noticed the Scottish accent.....

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Whoops, sorry, old eyes!! Ha