- Messages
- 5
- Type of diabetes
- Prediabetes
- Treatment type
- Non-insulin injectable medication (incretin mimetics)
I am writing this to find out what I can do; or if anyone out there might have the same issue. I have Type A insulin resistance syndrome. I was not diagnosed until I was in my late thirties after various trips to endourologist and doctors to find out why I was so tired; tired to the point I would black out. I finally found an endourologist that knew what to test for and found that my blood sugars were extremely high as well as the amount of insulin in my system. I was put on Victoza. This doctor unfortunately left private practice to go into research leaving me at the mercy of doctors that had no idea what was going on with me; however, my insurance company continued to pay for the victoza for 20 years. Now I have a different insurance company and they denied the prescription. My current endocrinologist who I have seen for 11 years thinking they were actually managing my insulin resistance did not fight the insurance company on the denial but suggested I take a different prescription. Currently I found there is Monjoro that is new and specifically designed for people with my condition as well as type 2 diabetes. It worked great. I feel great best I have felt in 30 years. After 9 months being on the medication the insurance is denying the use of it and the doctors sends a patient portal communication that I will have to pay for it myself if I want to stay on the medication since the insurance refuses to pay for weight control. WHAT???? I don't need weight management I need care for insulin resistance. I was under the impression that I was having my actual condition treated, but in reality they thought I was there for weight management. Since my A1C levels test normal when on medication for control of hyperglycemia/ insulin resistance the doctor insists that I go off the medication for 3 months and do the tests again so I can show I am hyperglycemic. She admits that I am insulin resistant, but that in order to stay on the medication I will have to do this. My sugar levels without medical control can get up to 300 and in three months I could actually be dead or in a coma. What do I do?? I find this to be patient abuse. I am in tears and scared to death that I will have to go back to living like I was 30 years ago. I already have reduced kidney function, neuropathy in hands and legs. I tried years of management by diet and exercise. Running 5 miles a day and eating very little. I am 60 now there is no way I can run 5 miles. I run 2 miles 3 times a week and yoga 4 times a week I still have high blood sugar. I am literally terrified of what is going to happen to me.
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