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Unbelievable!

Discussion in 'Insulin Pump Forum' started by cath67plum, Jun 1, 2017.

  1. cath67plum

    cath67plum Type 1 · Active Member

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    I'm having difficulty reordering pump supplies because CCG haven't been paying the bill!!

    It's the patients who suffer
     
    • Hug Hug x 2
    #1 cath67plum, Jun 1, 2017 at 2:50 PM
  2. novorapidboi26

    novorapidboi26 Type 1 · Well-Known Member

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    I am surprised that has happened.....

    is it just you do you think?
     
    • Friendly Friendly x 1
    #2 novorapidboi26, Jun 1, 2017 at 2:54 PM
  3. ce81ar

    ce81ar Type 1 · Member

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    No happened to me a few weeks ago. I was appalled because I put 2 orders through online which didn't go anywhere and I had no feedback to say that they weren't processing it. The first time I assumed I hadn't clicked the final stage on the order as I was in a hurry. The 2nd time I then called them and they explained that there was a funding issue. I was running pretty low by that point as it took me over a week to realise there was no order on the way, They over rode the system to get some supplies out to me. Am planning to raise it at my next review next week. Which PCT did you have an issue with?
     
    • Hug Hug x 1
    #3 ce81ar, Jun 1, 2017 at 6:49 PM
  4. Medusa41

    Medusa41 Type 1 · Well-Known Member

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    Hi @cath67plum - That's disgraceful. I hope the situation is soon rectified. @ce81ar - Hope yours is also rectified ASAP. Dreadful.
     
    • Like Like x 1
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    #4 Medusa41, Jun 2, 2017 at 10:59 AM
  5. Chris1957

    Chris1957 · Member

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    Haven't had trouble ordering the trouble is that i have to many sets.had to phone and cancel any more for the next 9months
     
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    #5 Chris1957, Jun 23, 2017 at 12:32 PM
  6. BeccyB

    BeccyB Type 1 · Well-Known Member

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    Disgraceful!
    Try contacting http://www.inputdiabetes.org.uk/ - they may have some advice. They would probably be interested in recording which CCG it is too in case they can advise any others in the future
     
    • Useful Useful x 1
    #6 BeccyB, Jun 23, 2017 at 1:32 PM
  7. ringi

    ringi Type 2 · Well-Known Member

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    Have you written to your MP pointing how much it will cost to keep you in hospital if they every arrive late due to the CCG not paying on time?
     
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    #7 ringi, Jun 23, 2017 at 7:38 PM
  8. cath67plum

    cath67plum Type 1 · Active Member

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    I've written to MPs

    I've written to CCG and made formal complaint.

    I've written to INPUT.

    Heard NOTHING from my DSN for 2 weeks. Sent her email this morning.

    Phoned Medtronic to find out if the issue has been resolved as heard nothing. Apparently the issue is still under review!!

    Doing my head in :arghh::banghead::bigtears::confused:
     
    • Hug Hug x 1
    #8 cath67plum, Jun 27, 2017 at 5:27 PM
  9. fletchweb

    fletchweb Prefer not to say · Well-Known Member

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    Yup, does it make you feel vulnerable?

    I had an issue a couple of years ago where my prescription ran out for my insulin (where I live if you get a prescription you get a government subsidy off the price) but here again - this is a process for a subsidy and one day as I went to get some insulin the person at the pharmacy said they couldn't sell me any insulin because my prescription ran out - stupid people.

    Looks like you're caught in an internal healthcare process followed by people who have no idea what it's like to have diabetes. I think we all get confronted by that from time to time. Sure hope your situation is remedied and you have enough to last you until you get it resolved. Can you go back to old fashioned injections if you don;t get it resolved soon enough? Hope so ....
     
    • Like Like x 1
    #9 fletchweb, Jun 27, 2017 at 5:39 PM
  10. BeccyB

    BeccyB Type 1 · Well-Known Member

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    I hate to say it but it may be time to give your local newspaper a call!
     
    #10 BeccyB, Jun 28, 2017 at 9:30 AM
  11. Juicyj

    Juicyj Type 1 · Moderator
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    Hi @cath67plum Not sure if this is much help but I have spare Medtronic supplies if you are running short ? Mios and reservoirs ?
     
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    #11 Juicyj, Jun 28, 2017 at 10:17 AM
  12. cath67plum

    cath67plum Type 1 · Active Member

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    Thanks so much. I got a message today from Medtronic - they have agreed to send me another box out while issue is being resolved. The saga continues but at least I will have necessary supplies for a couple more weeks.
     
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    • Optimistic Optimistic x 1
    #12 cath67plum, Jun 28, 2017 at 5:13 PM
  13. Juicyj

    Juicyj Type 1 · Moderator
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    That's good news, if you are running short I do have an unopened box of mios, I don't use them anymore so happy to post them out with some resevoirs.
     
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    #13 Juicyj, Jun 28, 2017 at 6:48 PM
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