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Well… that explains a few things!

PurpleHippo

Member
Messages
19
Hi all. Newbie here. I’ll try to keep this short, but I’ve kind of been through the mill lately and could do with venting, so this could be a long one, so you might want to grab a cuppa and go for a pee before you start...

So... Hi, I’m Kerry. I’m 43 and have just been diagnosed with Type 2. My dad is type 2, insulin managed, as are a couple of his brothers and his mum (my Nan). I think he was diagnosed around the same age I am now and then mismanaged it for years and is now blind (diabetic retinopathy that he ignored) and had to have 3 toes removed due to cellulitis. Heart conditions are also prevalent in my family - the same Nan had a heart attack in her late 50’s and had to have a triple heart bypass, and my brother had a heart attack at the age of 42... and then died of heart failure 3 months ago. My other brother has high blood cholesterol and pre-diabetes. Diabetes, heart problems, big calf muscles and a short temper are the closest thing my family has to a ‘family heirloom’!

Me? I’ve been unwell for quite a while. Last march I suddenly felt ill whilst at home; I suddenly felt sick, hot and incredibly sweaty, dashed to the bathroom then woke up to paramedics putting me back onto the bed and vomiting violently. In hindsight, I should have gone to the hospital, but I insisted that I was ok - turns out I had a pretty severe concussion that took me about 5 months to recover from. And then the real problems started...

In October I went back to work (I work in education) but I had developed anxiety and depression and had a complete mental breakdown in December due to the pressure (and almighty poo-storm at work). My GP diagnosed me with an Anxiety Disorder and put me on Sertraline to try to tackle the panic attacks and assorted other miseries plaguing me. I worked through the extensive list of rubbish side-effects: relentless diarrhoea, head aches, restless leg syndrome, insomnia, dry mouth, light-headedness... any of these symptoms sound familiar to you, fellow diabetes sufferers?? At the time I put it down to side effects, but now I’m not so sure. I spoke to my GP again, who then added Propranalol to the mix, to try to counteract some of these ‘side effects’, but after a couple of months on those, I’m convinced they made me feel worse, so I slowly took myself off them.

I have to be honest, I thought I was going mad and have been getting really depressed at the ridiculous myriad of physical and mental issues. I spoke to my GP regularly and told him several times that I thought that there was something more to all of this. Now, to be fair, I was going through some other things too - We lost my Thai sister-in-law in October to Covid, then in March my brother suddenly became uncontactable and, after a search by his friends in Thailand and having to involve the authorities, he was found, a week later, in his apartment, where he had passed from heart failure - although I say that he died of a broken heart at the loss of his lovely wife. Needless to say, as a close family, this was absolutely devastating and shocked us to the core (I still haven’t fully dealt with it, to be honest and I know it’s soon going to hit me like a **** train sooner or later). A month later, being the Clumsy Susan I am, I fell on the flipping stairs (yeah, it was a full on, slapstick, banana skin slip, both legs in the air, would be funny if it weren’t so painful, fall), landed on the edge of a step and broke my coccyx! So... with all this going on, my head has been completely battered, but I insisted, several times that there was something else going on. I suggested to my GP that maybe I had a thyroid issue or maybe early menopause, but he fobbed me off and gave me some **** analogy about me being “built like an expensive racing car” *roll eyes* (basically calling me a neurotic hypochondriac).

A couple of weeks ago, I had to call to get my sick note renewed and was called back by a different GP, who was very sympathetic and agreed that with all the physical problems, there could indeed be something wrong, so sent me off for bloods. A day later, she called me back after hours to tell me that I had diabetes, with a “count of 75, raised cholesterol and there may be a problem with my liver”. She then signed me over to the diabetic clinic, which I went to on Monday, where they gave me another blood test to confirm it. Now, I’m pretty annoyed that it’s now Friday and I still haven’t been given any results, as I feel absolutely awful, but I’m very annoyed that my own GP, who I’ve known for over 20 years and knew I had gestational diabetes with my now 13 year old and had also talked me through being ‘pre-diabetic’. I realise that nobody is infallible, but I have been through hell and back, have been off work for 6 months, and at one point, had some very dark thoughts and I’m as mad as a wet cat that he ignored my concerns.

Anyway... moving on... I called the medical practice yesterday and have a telephone appointment on Monday to discuss my results (obviously the first test wasn’t wrong) and another appointment with the diabetes nurse to ‘get started’. They mentioned Metformin and dietary changes, so I’ve already gone back to eating low carb/high fat (I lost over 3 and a half stone on it in 2019, unfortunately I found it all again (turns out it was in the bottom of a Nutella jar!). I have been told that I probably won’t get a glucometer, which seems ridiculous to me, as I won’t be able to keep track or figure out when my highs and lows are, or how certain foods or eating times effect my levels. It seems crazy that I have to wait for a month/3 months to see how I’m managing. Is this standard? How will I know whether my sugar levels are high or low when I feel like **** or if it’s my sugar levels being out of whack when I’m freaking out for no reason? Should I invest in one myself? If so, which one? Can you get them so that they sync with an app to keep track? My brain is basically made of cotton wool at this point; I’d forget my own name if it weren’t written in my knickers (George, Asda... ;) ) so I need something to help me keep track.

So, yeah. That’s me. Congratulations if you’ve made it this far, you must have the patience of a saint!

I’m absolutely made of questions at this point, so I’m sure you’ll see me around here, cluttering up the place with stupid questions and accidentally highjacking people’s threads. I’ll try to be less long winded and more succinct in future posts. Promise.
 
Welcome. You’ve landed in the right place.you’ve had an awful time but this is where it starts to get better. You can vent and ask as many questions as you like. Someone in here somewhere will usually have something helpful to say. And your diabetes destiny doesn’t have to be as sad as some of your family’s.

First steps. Well you’ve got that sussed. You’re here and low carb already. Just in case have a read of the links in my signature below but I believe you have got a pretty good idea already of much of the contents.

Glucometers. Very few type 2 manage to convince their hcp to provide one or more importantly the strips. NICE guidelines say to not routinely provide them to type 2 unless on certain meds that cause hypos. That doesn’t actually mean never though. Personalised care, self monitoring , diet management are all words worth dropping to make a bid for it. @Rachox has information about affordable to run meters and hopefully will be along soon.

You should get appointments set up for eye monitoring and feet checks (you obviously realise how important these are). They might try and talk you into statins. Personally I refused (and am hugely glad I did now I know more about them). I asked for some time to get to grips with type 2 and diet and weight loss, then would reassess. Low carb sorted out the ratios and improved the entire picture. No longer pushed on me even though totals are a little high it’s largely because of good parts. And they raise bgl too!
 
Hi @PurpleHippo and welcome to the forum and thanks for the tag @HSSS

Here’s some info on UK meters, and to be clear I have no commercial connections with any of the companies mentioned.


Home Health have recently bought out the Gluco Navii, but I haven’t heard any reviews yet, links to strips and the meter:

https://homehealth-uk.com/all-produ...ose-meter-test-strips-choose-mmol-l-or-mg-dl/

There are also discount codes for when you come to buy more strips - "navii5" and "navii10" will give you 20% off purchases of 5 packs of strips and 25% off 10 packs of strips respectively.


Disclaimer, I haven’t used the discount codes that I have quoted recently so I don’t know if they are still current.





Spirit Healthcare have a meter called the Tee2 + found here:



https://shop.spirit-health.co.uk/co...e2-blood-glucose-meter?variant=19264017268793

with the strips found here:



https://shop.spirit-health.co.uk/co...py-of-tee2-test-strips?variant=19264017367097

Some members have got a free Tee2+ by phoning up to order, with a large order of strips they often throw the meter in for free:

Phone number 0800 8815423


With more expensive strips is their Caresens Dual which I currently use, this one has the advantage of glucose and ketone testing in one machine, it’s to be found here:

https://shop.spirit-health.co.uk/collections/caresens-dual



If there is a choice of units of measurement then ‘mmol/L’ are the standard units in the UK, ‘mg/dl’ in the US, other countries may vary.


Don’t forget to check the box if you have pre diabetes or diabetes so you can buy VAT free. (for all meters and strips)
 
You have a fine sense of humour, which will keep you in good stead while you navigate the choppy waters pf T2D. There are no stoopid questions here.

I was lucky to get a meter and strips supplied to me by my GP. It helps to be a driver (DVLA rules) and to be on certain medications that can cause hypoglycemia. That H word is the one that has most GP's quaking in their shoes aince it seems to be their number one NONO. When my HbA1c dropped below the 42 mark, my GP urged me to increase my carb intake to raise it to near 50 again, and he was very concerned that I reported getting hypo's even though none were requiring intervention. I have kept a low dose of Gliclazide going since this gives my GP the excuse to support me by feeding me test strips in my prescription.

What I did to get his support was to get my own private meter and keep a comprehensive food log and readings, and I produced printed graphs showing how my sugar levels were dropping consistently. I also adjusted my medication as I went, and kept him informed. This was another box that needs ticking - using the results to adjust medicinal needs, and showing I took note of my diet changes too - in other words, I was actively proactive. You have to give them justification.

It is not the cost of the meter itself that is the main expense. It is the ongoing cost of test strips, so it is important to go with a meter that has cheap strips. The CCG requires that strips given on prescription do not exceed £10 per box of 50 ex VAT and this is their upper limit. Depending on what diabetes medications you are on you should be able to apply for VAT exemption when buying test strips and meters. You should also get your prescriptions without charge.
 
Just to clarify a point. If you are on any diabetic medication you are entitled to a prescription exemption form that you then use to get free prescriptions. You must have the certificate. If you are controlled by diet alone you don’t get it.

vat exemption is for anyone diagnosed diabetic and doesn’t require the certificate (though some chemists do ask for it in ignorance as they assume every diabetic is on medication). There are declarations forms on the .gov website that can be used instead if they insist. Many don’t ask for anything at all.
 
Remember this diabetes lark is for life. Its been building up over years and won't get reversed or solved in just a day or two, so don't panic, don't rush. There's a lot to learn, and just when you think you've got it sussed, something will change.

On here lots of people are very anti statin, but with your family history you might want to do own research and come to an answer that is right for you. Ditto with the diabetes meds.

The one thing that is common seems to low carbing in all its glorious forms. Again it needs to be sustainable for life for you, its not just there for quick weight loss then back to old habits.

This forum is superb. All the answers are here, so breathe, thank heavens you've been given the weekend to read and learn and know that you already know more than the average GP or nurse
 
Hi all. Newbie here. I’ll try to keep this short, but I’ve kind of been through the mill lately and could do with venting, so this could be a long one, so you might want to grab a cuppa and go for a pee before you start...

So... Hi, I’m Kerry. I’m 43 and have just been diagnosed with Type 2. My dad is type 2, insulin managed, as are a couple of his brothers and his mum (my Nan). I think he was diagnosed around the same age I am now and then mismanaged it for years and is now blind (diabetic retinopathy that he ignored) and had to have 3 toes removed due to cellulitis. Heart conditions are also prevalent in my family - the same Nan had a heart attack in her late 50’s and had to have a triple heart bypass, and my brother had a heart attack at the age of 42... and then died of heart failure 3 months ago. My other brother has high blood cholesterol and pre-diabetes. Diabetes, heart problems, big calf muscles and a short temper are the closest thing my family has to a ‘family heirloom’!

Me? I’ve been unwell for quite a while. Last march I suddenly felt ill whilst at home; I suddenly felt sick, hot and incredibly sweaty, dashed to the bathroom then woke up to paramedics putting me back onto the bed and vomiting violently. In hindsight, I should have gone to the hospital, but I insisted that I was ok - turns out I had a pretty severe concussion that took me about 5 months to recover from. And then the real problems started...

In October I went back to work (I work in education) but I had developed anxiety and depression and had a complete mental breakdown in December due to the pressure (and almighty poo-storm at work). My GP diagnosed me with an Anxiety Disorder and put me on Sertraline to try to tackle the panic attacks and assorted other miseries plaguing me. I worked through the extensive list of rubbish side-effects: relentless diarrhoea, head aches, restless leg syndrome, insomnia, dry mouth, light-headedness... any of these symptoms sound familiar to you, fellow diabetes sufferers?? At the time I put it down to side effects, but now I’m not so sure. I spoke to my GP again, who then added Propranalol to the mix, to try to counteract some of these ‘side effects’, but after a couple of months on those, I’m convinced they made me feel worse, so I slowly took myself off them.

I have to be honest, I thought I was going mad and have been getting really depressed at the ridiculous myriad of physical and mental issues. I spoke to my GP regularly and told him several times that I thought that there was something more to all of this. Now, to be fair, I was going through some other things too - We lost my Thai sister-in-law in October to Covid, then in March my brother suddenly became uncontactable and, after a search by his friends in Thailand and having to involve the authorities, he was found, a week later, in his apartment, where he had passed from heart failure - although I say that he died of a broken heart at the loss of his lovely wife. Needless to say, as a close family, this was absolutely devastating and shocked us to the core (I still haven’t fully dealt with it, to be honest and I know it’s soon going to hit me like a **** train sooner or later). A month later, being the Clumsy Susan I am, I fell on the flipping stairs (yeah, it was a full on, slapstick, banana skin slip, both legs in the air, would be funny if it weren’t so painful, fall), landed on the edge of a step and broke my coccyx! So... with all this going on, my head has been completely battered, but I insisted, several times that there was something else going on. I suggested to my GP that maybe I had a thyroid issue or maybe early menopause, but he fobbed me off and gave me some **** analogy about me being “built like an expensive racing car” *roll eyes* (basically calling me a neurotic hypochondriac).

A couple of weeks ago, I had to call to get my sick note renewed and was called back by a different GP, who was very sympathetic and agreed that with all the physical problems, there could indeed be something wrong, so sent me off for bloods. A day later, she called me back after hours to tell me that I had diabetes, with a “count of 75, raised cholesterol and there may be a problem with my liver”. She then signed me over to the diabetic clinic, which I went to on Monday, where they gave me another blood test to confirm it. Now, I’m pretty annoyed that it’s now Friday and I still haven’t been given any results, as I feel absolutely awful, but I’m very annoyed that my own GP, who I’ve known for over 20 years and knew I had gestational diabetes with my now 13 year old and had also talked me through being ‘pre-diabetic’. I realise that nobody is infallible, but I have been through hell and back, have been off work for 6 months, and at one point, had some very dark thoughts and I’m as mad as a wet cat that he ignored my concerns.

Anyway... moving on... I called the medical practice yesterday and have a telephone appointment on Monday to discuss my results (obviously the first test wasn’t wrong) and another appointment with the diabetes nurse to ‘get started’. They mentioned Metformin and dietary changes, so I’ve already gone back to eating low carb/high fat (I lost over 3 and a half stone on it in 2019, unfortunately I found it all again (turns out it was in the bottom of a Nutella jar!). I have been told that I probably won’t get a glucometer, which seems ridiculous to me, as I won’t be able to keep track or figure out when my highs and lows are, or how certain foods or eating times effect my levels. It seems crazy that I have to wait for a month/3 months to see how I’m managing. Is this standard? How will I know whether my sugar levels are high or low when I feel like **** or if it’s my sugar levels being out of whack when I’m freaking out for no reason? Should I invest in one myself? If so, which one? Can you get them so that they sync with an app to keep track? My brain is basically made of cotton wool at this point; I’d forget my own name if it weren’t written in my knickers (George, Asda... ;) ) so I need something to help me keep track.

So, yeah. That’s me. Congratulations if you’ve made it this far, you must have the patience of a saint!

I’m absolutely made of questions at this point, so I’m sure you’ll see me around here, cluttering up the place with stupid questions and accidentally highjacking people’s threads. I’ll try to be less long winded and more succinct in future posts. Promise.

Have to echo @Oldvatr

that sense of humour is going to be invaluable
(hence my FUNNY rating )

serious stuff indeed, but if we don't have that 'out' that humour gives us, its a much darker world.

as said, there are no stupid questions IF you don't know the answer.
and venting, i thinks its the pressure valve release we ALL need now and again.

breathe deep, read up, and ask away.

you got this.
 
I use the Home Health Navvii and the discount code is still available .I have found it simple to use and only needs a small drop of blood It is worth checking out to see if it fills your needs .The customer service is very good too
Carol
 
Hi. You are right to follow the low-carb/higher-fat route. Metformin is a commonly prescribed drug for many/most of us and helps reduce blood sugar just a little. Yes, it's normal to wait 3 months after the initial review for the next one and you will need to get hold of your own meter and strips. Do get yourself added to your surgery's online system so you can track as your test results; ask for this level of access to which you are entitled.
 
Hi @PurpleHippo, it's all been said above but I just wanted to say hi! You are clearly a lovely lady who knows a lot about diabetes and has the strength of mind to incorporate humour into it, your 13 year old is lucky! You are doing the exact right thing by getting a glucometer because that way you will know on an ongoing basis how your glucose levels are doing and how they react to what you eat. Once you know that you can adjust accordingly right away instead of waiting 3 months to see how you are doing. You will get lots of great advice on here!
 
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What a lovely welcome! Thank you all so much. It’s going to be a long road but with you lot, at least it doesn’t have to be a lonely one.

I do feel relieved to know what exactly is wrong with me and that I’m not going bonkers, so this is the first time I’ve seen a light in the tunnel in the last 6 months. I’ve hidden away from family and friends throughout, as I just didn’t have the energy to pretend to be ok. I always try to keep a sense of humour (it’s the familial coping mechanism) and now it’s starting to come back to me a little.

Anyway… the doctor is supposed to call me tomorrow with the results from my last blood test and no doubt confirm the big ‘D’ and I have the clinic on Tuesday. Do I speak to the doctor about whether to go on medication or the nurse?
 
What a lovely welcome! Thank you all so much. It’s going to be a long road but with you lot, at least it doesn’t have to be a lonely one.

I do feel relieved to know what exactly is wrong with me and that I’m not going bonkers, so this is the first time I’ve seen a light in the tunnel in the last 6 months. I’ve hidden away from family and friends throughout, as I just didn’t have the energy to pretend to be ok. I always try to keep a sense of humour (it’s the familial coping mechanism) and now it’s starting to come back to me a little.

Anyway… the doctor is supposed to call me tomorrow with the results from my last blood test and no doubt confirm the big ‘D’ and I have the clinic on Tuesday. Do I speak to the doctor about whether to go on medication or the nurse?
The GP, since he (she) will have your medical history and should cross-check against that for any allergies or other medical conditions. The nurse usually only deals with dose changes to already prescribed medication
 
The GP, since he (she) will have your medical history and should cross-check against that for any allergies or other medical conditions. The nurse usually only deals with dose changes to already prescribed medication

Brilliant. Thank you so much for getting back to me :)
 
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