Diabetes has ruined my life

[JRW]

@JRW . Had to chuckle at your list.
Is that a random list or a list in order of importance?

LOL it's random, was just listing things out, and snowboarding is probably the most complex in terms of the insulin regime. Definitely sex the most important though!

 

[Bluey1]

@justbe . Valuable input I have to say.
Sadly I couldn't disagree more with you .
Diabetes is a condition not a disability.
s.

Does that mean I can't compete in the Parra olympics because I have D? I was about to apply for a disabled car parking sticker as well. **** now I have to go and chop off a foot...

I really think this thread has run it's course.
ExtremelyWorried in a number of her posts indicate that this a mental health issue not a Diabetic issue (although D may have started it), I would suggest another forum specialising in Depression (I assume there is one) would be far more beneficial for the OP. Keto Diet wars appear to be starting to break out, I was sort of looking forward to that as there hasn't been a good old fashioned brawl here for a very long time (Fists, Beer bottles, half full beer glasses and chairs at the ready).

This thread could be very destructive to someone whom is newly diagnosed. Can a Mod please close this thread.

 

[ScottyD]

perhaps have a read of some of @ScottyD posts on the forum - he is type 1 and a commercial airline pilot.

More than happy to help where I can!

 

[Humma]

Ditch the pump mate what a waste of time they are Ive been 50 years injecting many times a day with so far no complications at all if its a special occation or something then extra insulin I wouldn`t use a pump even if i got paid to ues it

 

[SueJB]

Remember. Always carry a back-up pen with you when you are out. I take one with me even when I go shopping.

why?

 

[donnellysdogs]

why?

Because sets fail and you can rise very quickly... saves taking cannulas, tubes, reservoirs, insulin etc.....

 

[Deleted Account]

Because sets fail and you can rise very quickly... saves taking cannulas, tubes, reservoirs, insulin etc.....

Alternatively, carry a small syringe in case your pump fails.
It’s smaller than a pen and you can get the insulin out of the pump so don’t need to order extra cartridges which, in my case, have gone out of date.
Ok, so I have some spare pen cartridges in case my pump massively fails but only take these out if I am away for a few days and don’t have a loaner pump.
Day to day, I have syringes in every bag as my back up.

 

[ickihun]

So the pump worked well at first but no longer??? @ExtremelyW0rried . Do you think your team would listen if you wanted to change back to pens?

Mind your bgs are fantastic. They maybe reluctant as no medical grounds to change back.

Pester your gp for metal health support. Tell him how many times your asked your diabetic team. Tel him/her your desperate for mental health care.
Our region you can self refer. Yours?

 

[Kinsley01]

Hello, I am a grandmother of a 11 year old boy who I am really worried because my son and his wife are so very good about his diabetes 1 but we are now finding he is really getting tired of it all and is now cheating on foods, sneaking snacks, or hiding what he is doing and just giving himself corrections, My question to anyone out there the parents use discipline like taking some things away from him, for cheating I don't agree but am just grandma need some help how to say my piece with out being the nosey grandma, please help

 

[Juicyj]

Hello, I am a grandmother of a 11 year old boy who I am really worried because my son and his wife are so very good about his diabetes 1 but we are now finding he is really getting tired of it all and is now cheating on foods, sneaking snacks, or hiding what he is doing and just giving himself corrections, My question to anyone out there the parents use discipline like taking some things away from him, for cheating I don't agree but am just grandma need some help how to say my piece with out being the nosey grandma, please help

Hello Kinsley - as long as he is correcting for going high then he is managing this - so I wouldn't consider this cheating. He is a young boy and needs support not punishment otherwise you will encourage him to hide things from you and this will escalate, encourage him to talk and to eat a snack if he wishes, as long as he boluses for the snack and corrects if his blood glucose levels go high then he is doing a great job of managing his condition, children need praise and encouragement not discipline when they have to live with and manage their type 1.

 

[Picci]

Hello, I am a grandmother of a 11 year old boy who I am really worried because my son and his wife are so very good about his diabetes 1 but we are now finding he is really getting tired of it all and is now cheating on foods, sneaking snacks, or hiding what he is doing and just giving himself corrections, My question to anyone out there the parents use discipline like taking some things away from him, for cheating I don't agree but am just grandma need some help how to say my piece with out being the nosey grandma, please help

Oh, I remember doing what your grandchild is doing. I was diagnosed in 1979 aged 10. I had a glass syringe initially until the freedom of the pen and MDI. I really abused the freedom and learnt quickly how to cover all the carbs I was eating in secret. I recall feeling ill because my BGs were super high after indulging in the corner shop with my peers. Mum and Dad never punished me, they were supportive. I would have resented diabetes and them if they'd punished me. Good luck, I'm sure this behaviour will be short lived. Xx

 

[NoKindOfSusie]

I think her point was that this way, you don't have to (and shouldn't) resent the condition, but instead you are empowered to live life with it... a bit like a whale having to swim everywhere with barnacles hanging on, they just seem so chilled about the whole thing. Hope this helps x

I don't get this at all.

OK lots of people are better at this than me and I am not arguing with them for a heartbeat.

But how can you possibly not resent it. I didn't do anything. I looked after myself. I went running, I ate right, I was in decent shape. It isn't in my family. I was happy, I was living my life, I had a job I was good at and now I am at the very least, far less good at it, I am turning down work I would desperately love to do because I just can't handle it. It is slowly wrecking everything and I did not ask for this in any way.

How can you possibly not resent it. It's hateful.

 

[Leeannea]

I don't get this at all.

OK lots of people are better at this than me and I am not arguing with them for a heartbeat.

But how can you possibly not resent it. I didn't do anything. I looked after myself. I went running, I ate right, I was in decent shape. It isn't in my family. I was happy, I was living my life, I had a job I was good at and now I am at the very least, far less good at it, I am turning down work I would desperately love to do because I just can't handle it. It is slowly wrecking everything and I did not ask for this in any way.

How can you possibly not resent it. It's hateful.

It’s good that you vent your feelings about diabetes. You are going through a grieving process for the loss of the life you once had. However the time for that has passed. Now you have to decide if you want to accept the cards you’ve been dealt and be the best and happiest you can be or remain unhappy and bitter, wallowing in memories of the past. It’s your choice and your life. Why don’t you try for 1 week to have a life doing things that you’d like to do and that make you happy, while still keeping your blood glucose within boundaries you can set. What have you got to lose? Your toes won’t drop off in 1 week. Then go from there. You just need to get some momentum to look at diabetes as a challenge. At the moment you aren’t a victim of diabetes but of your own mindset You CAN do this if you want to - and do it well.
Just 1 week. Please try
The very best of wishes.
Leeanne

 

[ickihun]

I don't get this at all.

OK lots of people are better at this than me and I am not arguing with them for a heartbeat.

But how can you possibly not resent it. I didn't do anything. I looked after myself. I went running, I ate right, I was in decent shape. It isn't in my family. I was happy, I was living my life, I had a job I was good at and now I am at the very least, far less good at it, I am turning down work I would desperately love to do because I just can't handle it. It is slowly wrecking everything and I did not ask for this in any way.

How can you possibly not resent it. It's hateful.

I feel same way about not being able to walk without pain. I've never had a mobility problem. I won't be happy til its resolved. This isn't me, I love swimming and walking, always have. I've been heavier than this and never had a problem with mobility. I cannot wait for bariatric surgery.

 

[Nidge247]

I don't get this at all.

OK lots of people are better at this than me and I am not arguing with them for a heartbeat.

But how can you possibly not resent it. I didn't do anything. I looked after myself. I went running, I ate right, I was in decent shape. It isn't in my family. I was happy, I was living my life, I had a job I was good at and now I am at the very least, far less good at it, I am turning down work I would desperately love to do because I just can't handle it. It is slowly wrecking everything and I did not ask for this in any way.

How can you possibly not resent it. It's hateful.

I don't resent being diagnosed with D at all. I was so ill at diagnosis I was sure it was the big C (again), and that I might not have the strength to beat it this time. Being D meant lifestyle alterations, yes limiting at first, but as you turn your life around and get back to better health, you can again pick up those parts of your life you had to sideline, and I find there is very little I cannot do now that I could not do before.

For me going low carb has been my lifesaver - but it doesn't work for everyone. For me it's been great and this Christmas just gone was my third since diagnosis and was able to join in fully with mince pies, pudding, and cake; using the knowledge that LCHF has endowed me with to ensure I didn't spike unduly, and was back into my normal range within 2 hours (without use of insulin or other meds).

My first Christmas was a dark place having been diagnosed mid-November, and being so ill that every day was a chore.
My second Christmas was testing as I had gone low carb and done well, but trying out some mince pies made me so ill, I vowed at the time 'never again', and indeed found it difficult and upsetting to do the shopping back then, looking at 'forbidden fruits' which I thought I had previously enjoyed.
I started prepping for my third Christmas early, and had experimented with high fat foods taken alongside higher carb foods with great success. Hence this Christmas went great, and we're into the New Year with no after-effects.

D does go hand in hand with depression; nearly everyone I've met/spoken to with D has suffered at some time/degree with it, but it can be beaten and come out the other side with a more positive mental attitude. If you are finding it particularly difficult just now, then badger your Team for help - it IS there but you may need to ASK for it. Also if you have a pre-existing mental health issue, then D on top can cause such stress that your BGs are difficult to control at first. Again, something to work at with your Team, and please DO ask for help on this score.

There are no hopeless situations - only situations that people have become hopeless about.

Above all, look after your body and mind, and it will look after you. We are all different, and D is such a varied condition that we each need to find out what works best for us.

 

[NoKindOfSusie]

I feel same way about not being able to walk without pain. I've never had a mobility problem. I won't be happy til its resolved. This isn't me, I love swimming and walking, always have. I've been heavier than this and never had a problem with mobility. I cannot wait for bariatric surgery.

I think that's exactly it, I don't feel like me any longer. I feel like a ghost. And then people sit around going "oh, don't resent it." Oh yes it's great, it's destroying every part of my life, everything I do for a living, making it impossible to do any of the things I used to do for fun. I love it. It's great.

Yes I would love to spend a week doing everything I want, but I would not enjoy it as I would know how much damage it is doing. I am not able to exercise anyway which is one of the things I most want to do. I would be lying in the gutter after ten minutes. Normally I wouldn't even BE here typing this on a sunday morning, I'd be miles away running. Then you get told "oh it's a good idea to stay in shape. I WOULD LOVE TO. It's absolutely horrible, being told to do it and desperately wanting to do it but knowing you'll just fall over. Sitting here slowly gaining weight, desperate to go run it off, being TOLD to go and do that, and it is totally impossible.

So yes it is wonderful I don't resent it and I am completely psychologically healthy. What am I supposed to say. How am I supposed to feel.

 

[ickihun]

I think that's exactly it, I don't feel like me any longer. I feel like a ghost. And then people sit around going "oh, don't resent it." Oh yes it's great, it's destroying every part of my life, everything I do for a living, making it impossible to do any of the things I used to do for fun. I love it. It's great.

Yes I would love to spend a week doing everything I want, but I would not enjoy it as I would know how much damage it is doing. I am not able to exercise anyway which is one of the things I most want to do. I would be lying in the gutter after ten minutes. Normally I wouldn't even BE here typing this on a sunday morning, I'd be miles away running. Then you get told "oh it's a good idea to stay in shape. I WOULD LOVE TO. It's absolutely horrible, being told to do it and desperately wanting to do it but knowing you'll just fall over. Sitting here slowly gaining weight, desperate to go run it off, being TOLD to go and do that, and it is totally impossible.

So yes it is wonderful I don't resent it and I am completely psychologically healthy. What am I supposed to say. How am I supposed to feel.

So is it the severe fluctuation of high and low bgs which are making you ill? Hypo and hypers?
I know @Snapsy has just managed to turn her control around to be able to exercise and what huge effort she's had to make and a few pit falls too.
Of course control has to be mostly good to be able to try that thou.

 

[NoKindOfSusie]

No it's the drugs. Well it could be the fluctuations, I have been told so many different things that I have no idea if I am even doing this right. Going by the timing of peak crappiness it's lantus, though.

 

[becca59]

@NoKindOfSusie As a matter of interest, which health authority are you under?

 

[NoKindOfSusie]

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