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Type 1'stars R Us

helensaramay said:
Good morning,
Last night I had one of my rare "I have had enough of diabetes, it is someone else's turn to have a go" moments.
I am currently blaming Fiasp for not working, not working, not working, not working, not working, making me change my pump set, not working, not working, making me go to a new vial of insulin, working, feeling fine, feeling fine feeling fine, working overtime.
Or to put it another way, my day was one of >15mmol/l readings followed by pump change, insulin change, non carb dinner, no bolus and a night of massive hypos. That's the type of hypos which results in hot sweats, cold sweats and a change of bedding in the morning.
I have my annual review this afternoon. I find them horrendously judgemental ("I see you had a reading of 12.0 3 weeks ago, you know you should try to avoid these") but perhaps this one is well timed.
I am torn with Fiasp; when it works it is great but it seems to suddenly stop working which is not acceptable. But I don't want to go back to 45 minute pre-bolusing with NovoSluggish. At least, I assume the problem is with Fiasp because I didn't experience these highs as often with NovoSluggish. I was hoping the problem was time out of the fridge but the latest vial was only out of the fridge for 5 days.
Let's see what the "experts" have to say.

Apart from that I have to work out how to cancel a non-refundable flight because my managers said "book your trip and book it as cheap as possible" and then four days later said "hold on, we might not want you to travel then ... but we don't know when we do you want you traveling".

Hope y'all have a great day and enjoy the sun.
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Hi @helensaramay, I added a new post the the "Ideas for the Lean Pumper' yesterday. Could variable absorption of the Fiasp be the problem.? (something the annual review doctor should have been helping you work through (amongst other possibilities), rather than the old school master routine which went out with the Ark, (supposedly). Next time maybe consider taking along an old pair-of shoes and ask him to put them on before speaking.
I certainly had trouble late last year which seemed to settle once I varied the sites more and used slightly longer cannulas of steel rather than plastic to miss the supposedly fibrosed sites of the past (may be DSN and doctors in this area need to study archeology, well, definitely in my case)!!
My Nurse and endo doctor both mentioned to me recently that many of their pump patients (in Oz) were changing to steel cannula infusion sets because of continual problems with variable absorption, kinks, bends etc with the plastic cannulas. They also pointed out that Medtronic make a lot of the infusion sets on the market, even for other brands of pump. And the word, for whatever reliability that may carry or not, is that said company is having quality control issues.
Just to note I change my steel cannulas every 2 to 2 1/2 days rather than 3, firstly because my nurse said that the steel tends to be rejected by the body sooner than the polyethylene cannulas and secondly I found a slight fall off in control if I left the steel cannula change below 2 1/2 days and certainly after 3 days!!
I am planning a 6 mm 90 degree cannula set use for the next experiment (with the 1 to 2 mm thick dressing patch). However I will not be wall climbing or cycling so it will not be fully tested under 'field conditions' so to speak !! "Commando course anyone '!!??)
The steel cannulas infusion sets have the neat advantage over plastic ones because the connection point in the former is situated on a separate white 'sticky' pad from the cannula itself,(see Ideas for Lean Pumper post) thus avoiding movement of the cannula when disconnecting and reconnecting the tubing. Best Wishes !!!
 
Morning all,
It's the last day of February and I'm already looking forward to March. The car's being delivered today but need to wait til Monday before all the paperwork's sorted and I can drive it. Really looking forward to taking it to France and filling the boot with goodies on the way home, wine, cheese, more wine and cheese. Not sure how to get there though, we're going to the Cotentin Pennisula and will probably stay in Arromanche so it might be Le Havre or Ouistreham. It'll be my first time driving abroad since T1D just worried about the number of stops we'll have to make.
Talking of which, madam's going bonkers. Woke at 4.30 BG11.3, corrected with 2 units and woke again at 6am BG 2.9. So so silly!
 
Good morning. As Sue said, it's the last day of February and I too am looking forward to March and hopeful opportunities especially with work and life :)
Have a good day, but the weather has changed, cloudy with rain today, was hoping to get out and do some gardening.
Take care
 
Hi @helensaramay, I noted an article - diabettech.com 2/1/2018 - Enough is enough. I can't go on - details of the EMA submission Fiasp CS11 study.
which mentions various problems including what you have experienced.
From another site i note that one person returned to Novorapid and used the Fiasp if she needed a more rapid action insulin to supplement the Novorapid. Of course that is not a long term solution.
I hope that the Humalog works. Is there any way to hurry its arrival along?
 
Morning all, glad to see you had a good day at last @karen8967.

Great that the op went well @Fairygodmother, how's recuperation going?

@smc4761 good luck now you're attached, hope the practice week goes well.

@helensaramay the Fiasp problem sounds like a nightmare. whichever insulin you take with you it sounds like you're going to have to make corrections, though I guess you definitely know that with Novosluggish whereas you might get lucky with the Fiasp? I'm not a pumper, but fwiw I've been using Humalog successfully for years. Depending on what I'm doing/have been doing I need to pre-bolus by 15 - 20ish minutes if that helps make the future seem brighter (though of course you probably wear differnt colour socks from me so it won't be the same for you)

Luckily for me, nothing to report here, all going along with just normal ups and downs. For now. ;)
 
Cumberland said:
Where’s the sun gone - please come back
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What we've just been through:

8EjKf5.jpg
 
I think diabetic reviews fall into 3 categories - 'Absolute ****, was a waste of every ones time', 'meh' or 'OMFG brilliant!' and they tend to go round in cycles..........except the 'OMFG brilliant!' ones, they're like super blue blood moons............

And how blinking stupid is it to stop prescription of Libres when moving to a pump - 'oh here's a shot gun see if you can hit that moving target..............blindfolded............'

[Moderator "creative" edit.]
 
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slip said:
I think diabetic reviews fall into 3 categories - 'Absolute ****, was a waste of every ones time', 'meh' or 'OMFG brilliant!' and they tend to go round in cycles..........except the 'OMFG brilliant!' ones, they're like super blue blood moons............
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I feel incredibly lucky to have a diabetes team which is probably relevantly small compared to some areas. Although they are quite stretched (like most healthcare services in most areas of the country) I do come away from most interactions feeling listened to and that we're working together.

slip said:
And how blinking stupid is it to stop prescription of Libres when moving to a pump - 'oh here's a shot gun see if you can hit that moving target..............blindfolded............'
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Funding. Long term outcomes aren't costed into the spreadsheets. :rolleyes:
Though I think it was Scott-C who has posted data showing how much Libre is assisting in area(s) of Scotland which is data that can be used.

[Mod tasteful quote edit.]
 
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karen8967 said:
Do you still have the libre with your pump porl69?
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Hi @karen8967 I got my pump yesterday and I am still on Libre. Think it must depend on the area you are in. I am lucky in that the diabetes centre in my area is excellent, with really good staff, who treat you like a person and not a patient. They seem to know everyone by their first name and show a real interest in them
 
smc4761 said:
Hi @karen8967 I got my pump yesterday and I am still on Libre. Think it must depend on the area you are in. I am lucky in that the diabetes centre in my area is excellent, with really good staff, who treat you like a person and not a patient. They seem to know everyone by their first name and show a real interest in them
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What pump did you get x
 
helensaramay said:
Oo @SueJB your France trip sounds fun.
I wouldn't worry about how many test strips to take - you have a car to fill with them :)
And if you run out, I expect you can buy more from a pharmacy.
But make sure you have enough insulin, pens, needles and lancets. And, a spare battery for your pump.

Sorry about that, I have kicked "Mum" out and told her you have travelled before so know what you are doing!
Thanks @helensaramay for the "mum" talk. I'm not on a pump but perhaps you meant a foot pump for the new car. Anyway it's arrived and it's a bit eye-blinkingly :cool:white!!!. My lovely old blue Skoda.... 19 years, has never had a wash once and is a very nice shabby chic:hilarious: I'm hoping that this new thing isn't expecting better treatment but white when dirty looks pants, blue's OK
@Knikki not really a booze cruise more of a sedate sail and plenty of slurps, burps and eating and back after a few days via some lovely big supermarkets while we can
@kitedoc I did think about the cannulas but discounted them - the problem started at the same time as I changed to Fiasp, it appears to be a common problem with Fiasp and, on Friday, I only changed the insulin in my pump (not the cannula) and it started working fine after that. Thanks for the thought, especially as the DSN did mention there have been a few dud batches around recently.

As well as being the last day in February, it is the day before my Finnish trip. I am getting excited and fear I am focusing too much on the social side and not putting enough effort into preparing the work part. My compromise is to work out what I am going to wear whilst I am over there - smart enough for business meetings but warm enough for negative temperatures.
And, of course, which insulin I am going to take. I will not have the Humalog in time for the trip so do I take Fiasp and hope it behaves or do I take my last vial of NovoRapid knowing I will definitely not have time to pre-bolus?
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Thanks @helensaramay for the "mum" talk. I'm not on a pump but perhaps you meant a foot pump for the new car. Anyway it's arrived and it's eye-blinkingly :cool:white!!!. My lovely old blue Skoda.... 19 years, has never had a wash once and is a very nice shabby chic:hilarious: I'm hoping that this new thing isn't expecting better treatment but white when dirty looks pants, blue's OK
@Knikki not really a booze cruise more of a sedate sail and plenty of slurps, burps and eating and coming home after a few days via some lovely big supermarkets and getting some stocks in while we can
 
Good afternoon. What a day! Drs surgery at first light, well 7.45am to be told to come back to see the nurse at 11.10....Then had my 4 week review with my DSN (well 2 DSNs and the Medtronic rep). They were really happy with what I had been doing. 65% in target over the last 2 weeks :) Thats with the chest infection I have as well. They were surprised that the square and dual wave were turned off! Until they seen my grin......Back up in 2 months now when they will check my A1c..... Anyways, back down my GPs to see the nurse and, yes, I have a chest infection!

@helensaramay what a rubbish review! When I first started Fiasp it worked as soon as I was thinking about injecting it! Now after 9odd months is is pretty much the same as NovoSluggish, well a wee bit quicker! Admittedly it seems to work quicker in the pump!

@smc4761 welcome to the pump club :). I didn't have the saline to start with, just the pump to play around with for 10 days and a few set changes to do. When I went "live" the DSN had got 3 moths supply in for me.....3ml resevoirs, I will only be needing the 1.8ml, and the super long. 80 cm tubing on the sets. They will be changed on my next order lol How did you manage sleeping last night?
 
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