What was your fasting blood glucose? (full on chat)

[SaskiaKC]

Rage against the machine - it’s good for you.
Glad to read that the car vs the brick wall incident was not, as you say, taking place on the highway.
Class action???

Class action sounds like a very good idea. And maybe write to the papers, let them publish the problem.

 

[SaskiaKC]

@gennepher I am sorry about the Apple problems and I am feeling very ferocious on your behalf. I am thinking, along with @dunelm, about class action suits and other ways of bringing this to the attention of the world.

At the same time, reading your news, and responses here, I am feeling inspired to get back to the front lines in my own battle to try and get something done about my horrible neighbors here before Christmas. It is exhausting.

Why is it so hard to just have a peaceful life? They say that is all most people want ... it should follow that we should have it ... makes no sense to me.

My friend here who has a cochlear implant does not have any app on her iPhone for it, that I know of. I am going to send her an e-mail this morning to ask about it. Hugs to you.

I think you are right about the feline enteritis. I had forgotten the name of that disease, but I think it is what killed my kitten Angie 40-odd years ago, @HarryBeau . I hope you can find some kittens at another shelter who have been vaccinated. I think it is the same disease that in my childhood was called feline distemper, and now is part of the FVRCP vaccination given every year here.

 

[geefull]

good evening all

was 4.6 this morning

It was my day to help out in the charity shop today. I originally started out intending to help just a couple of hours a week short term because the shop was short of volunteers and I've been there 18 months doing a full day a week

Sadly economics have got the better of the shop and the charity 'powers that be' are closing it down later this month (when the lease ends). It's possible I suppose that at some future point they may find more economic premises, they've had a presence in the town for about 20 years and the charity still has quite a few other shops in the area.

mr gee and I will go on doing our weekly day in the 'big shed' volunteering though.

It's a bit warmer here today thank goodness, it barely got above freezing with thick fog all day yesterday. It did make the carved pumpkins look appropriately spooky though

Hope your day is treating you well

 

[jjraak]

Apple are upgrading their services/technology (although my problem with the Cochlear stuff is separate to this issue),
and this means that older iPhones (with SIM cards) will not be able to work or connect to any Apple services and therefore will be useless.
All this I think is part and parcel of developing technologies.
But it exposes a consumer vulnerability that we need these services,
and it feels like they can hold us to ransom because we have to buy the latest (inflated price) phone. We don’t have a choice.

Sorry for your pain over this @gennepher

But that IS apple's business model, others just follow suit because of the market apple commands.

i'd suggest android, personally.
but i'd imagine the effects could be as bad, the amount of times io have heard others moaning about an app upgrade that was anything but.

I would have thought that the operators of the Implant..( correct terminology ? ) should have some liability
after all they just use, apples technology..if apple upgrades it isn't it down to THEM to ensure the possible effects are broadcast to THEIR client list ?..and then it's their duty as providers to find thew work arouind or upgrade route necessary.
you at the end of the day are just their customer, surely.
you have rights as a consumer and with regard to vehicular safety ..i'd be pretty sure if they altered a radio on caar that suddenly BLARED and THAT caused an accident then the radio operators would be liable as NO warning was given.

but it might just be that the laws don't apply to the bigger businesses...after who wants to pay tax..

bets wishes, gen

see ya soon, good luck with the on-line fray.

 

[Cumberland]

9.4 that’s ok

Early to bed for me as having cataract operation 8am in the morning

Goodnight

 

[alf_Josiah]

9.4 that’s ok

Early to bed for me as having cataract operation 8am in the morning

Goodnight

Good luck

 

[SaskiaKC]

9.4 that’s ok

Early to bed for me as having cataract operation 8am in the morning

Goodnight

Big hug, and best wishes.

 

[SaskiaKC]

I went out for a short walk with a neighbor that turned into an hour's walk-and-talk. We barely covered a mile in the time, so maybe it was more of a stroll. But I love the fact that, at 67 and in no better shape than I am, I feel better after such exercise than before, even when I had spent the previous hour walking around the grocery store. Great to know that joints and bones and muscles and lungs and heart still work. The agoraphobia kicked in a couple of times but I persevered. We both had our walking sticks, but by the last stretch I realized I didn't really need mine except for moral support.

My neighbor was telling me about the problems Apple has been giving her with her phone and the upgrade she has had to make, and the stress and expense of it. I read not long ago that Apple is considered a luxury brand, apparently like a Jaguar or Mercedes. I guess they think all their customers can afford upgrades like the rest of humanity can afford bread and butter. Today was the first time I have ever heard Apple users complain about their products.

I Googled Apple and cochlear implants earlier today, expecting to find the airwaves humming with complaints, but I saw absolutely nothing negative. It seems like the problem should be broadcast for the world to read, not just the people affected by it. I am glad you posted about it, @gennepher , you and the others have my full support.

 

[UserABC2021]

I Googled Apple and cochlear implants earlier today, expecting to find the airwaves humming with complaints, but I saw absolutely nothing negative. It seems like the problem should be broadcast for the world to read, not just the people affected by it. I am glad you posted about it, @gennepher , you and the others have my full support.

I did find an article regarding the iOS13 update, might be useful for @gennepher, especially the last bit on phone sounds

https://cochlearimplanthelp.com/201...ng-with-cochlear-nucleus-7-processors-update/

 

[UserABC2021]

if apple upgrades it isn't it down to THEM to ensure the possible effects are broadcast to THEIR client list ?..and then it's their duty as providers to find thew work arouind or upgrade route necessary.

Generally, it is this, Apple announces to app developers in advance what the update will entail. Apps are then updated by the relevant 'owners' to utilise the iOS update. Apps can take time to generate updates, however, with something as important as this there should be no wait.

 

[Debandez]

About the meeting in warrington with a room full of GPs!!

If you are on twitter:

I'm feeling very honoured at getting a personal mention from one of my ultimate heroes Dr David Unwin who is moving mountains for diabetes, obesity and so much more. Feeling the need to share. #proud He is working so hard to make change happen.

#lchf
@Diabetescouk
@LowCarbProgram

https://twitter.com/lowcarbGP/status/1189969963781644289?s=19

 

[Debandez]

About my talk last night in liverpool:

Who would have thought I would be giving talks on losing weight and controlling blood sugars, nutrition and healthy eating! Not me. Not ever.

Wow, blown away by the welcome from The Low Carb Group run by the ultra amazing Yvonne Milton at Tower Hill Primary Care Centre, Liverpool. Lovely people. All eager to learn. Listening to my journey. Sharing theirs. Learning from each other. And the icing on the cake, low carb buffet. Not just any old buffet. So well thought out and put together. Genius. Quiche. Salad. Home made coleslaw. Chocolate brownie. Cookies. Rum truffles with nuts without, with rum, without. And so much more. My blood sugars are loving it too. Massive thanks to my amazing hubby for all his help. Couldn't do this without you.

 

[SaskiaKC]

good evening all

was 4.6 this morning

It was my day to help out in the charity shop today. I originally started out intending to help just a couple of hours a week short term because the shop was short of volunteers and I've been there 18 months doing a full day a week

Sadly economics have got the better of the shop and the charity 'powers that be' are closing it down later this month (when the lease ends). It's possible I suppose that at some future point they may find more economic premises, they've had a presence in the town for about 20 years and the charity still has quite a few other shops in the area.

mr gee and I will go on doing our weekly day in the 'big shed' volunteering though.

It's a bit warmer here today thank goodness, it barely got above freezing with thick fog all day yesterday. It did make the carved pumpkins look appropriately spooky though

Hope your day is treating you well

I'm sorry to hear about the shop closing, especially so close to Christmas. I hope they can find some other premises. I admire you a lot for working there.

 

[Debandez]

4.7 yesterday
4.4 today

Well this morning I had an omelette, splash of cream, wensledale cheese (yes its burnt around the edges). For dessert I had coconut macaroons and rum truffles with double cream.

This afto I had afternoon coffee with a nutty biscuit AND piece of chocolate brownie.

Tonight after my naked kebab & glass of red i had a coconut macaroon and several rum truffles.

I've had an amazing day of delicious delights. A day I've not had since my diagnosis actually. Basically because I dont bake!

My blood sugars have not been rocked one bit.

This was all.thanks to the amazing lady who runs the low carb group in Liverpool where I did a talk last night. Sent away with goodie bag. And my God it was so good!!!

I got quite emotional.at one point. There are some very lovely people out there.

Anyway this has made me even more determined to find the oven!!!!

#low carb

 

[Debandez]

Plans for November (another busy month spreading the word)

COMPLAINT TEMPLATE TO BE PREPARED FOR ALL VOLUNTEERS TO COMPLETE AND SEND TO CCGs

Fylde coast womens aid meeting 7th

David and Jen unwin in southport 11th!!!

My surgery pt support session 13th

Uclan wokingham question time to be televised 14th world diabetes day

Local Tesco meet up (giving some sort of talk/update) 20th

Health and wellbeing event in tower ballroom Blackpool 25th

 

[SaskiaKC]

 

[gennepher]

I did find an article regarding the iOS13 update, might be useful for @gennepher, especially the last bit on phone sounds

https://cochlearimplanthelp.com/201...ng-with-cochlear-nucleus-7-processors-update/

Thank you @OldButBold
I had found some earlier stuff on this site. And all they said then on this site was direct all complaints and problems to Apple via email.

This is some additional information they have put up more recently, thanks.

It is very much understating the problems and implications.
I did initially attempt this.
And set the ringer/mute switch on the iPhone to silent. It was silent to my friends, the phone did not ring externally. But it still rang directly into my Processor at a very loud level and into my neural pathways. And bypassing Bluetooth being turned off, and so I was still getting alerts.

There has apparently been another update the last few days to resolve all this. Although I have updated the iPhone to this new update, I have not actually tried it out as regards other alerts to test it. I don't have a Sim card for it now as I have moved over to the Android, so obviously I won't be getting any more phone ringing from the iPhone. But it should never have happened initially.

I am preparing something to take this further, because as a safety issue, an update doing something of this magnitude (to me) without prior informing me of of the changes, and letting me (and others) 'discover' them unexpectedly is very much not on. It is scary.


Thanks for looking. I appreciate it.

 

[gennepher]

I went out for a short walk with a neighbor that turned into an hour's walk-and-talk. We barely covered a mile in the time, so maybe it was more of a stroll. But I love the fact that, at 67 and in no better shape than I am, I feel better after such exercise than before, even when I had spent the previous hour walking around the grocery store. Great to know that joints and bones and muscles and lungs and heart still work. The agoraphobia kicked in a couple of times but I persevered. We both had our walking sticks, but by the last stretch I realized I didn't really need mine except for moral support.

My neighbor was telling me about the problems Apple has been giving her with her phone and the upgrade she has had to make, and the stress and expense of it. I read not long ago that Apple is considered a luxury brand, apparently like a Jaguar or Mercedes. I guess they think all their customers can afford upgrades like the rest of humanity can afford bread and butter. Today was the first time I have ever heard Apple users complain about their products.

I Googled Apple and cochlear implants earlier today, expecting to find the airwaves humming with complaints, but I saw absolutely nothing negative. It seems like the problem should be broadcast for the world to read, not just the people affected by it. I am glad you posted about it, @gennepher , you and the others have my full support.

Hi @SaskiaKC

There is very little on it in the main Google search. It does look like there is almost no problem there at all. This initially shocked me. But at the end of the day I am a niche user. I am only a small/tiny/miniscule proportion of Apple users. This is why even cochlear implantees who didn't update immediately (so that any bugs were dealt with before they updated) got caught out.

You need to find the hearing/deaf forums to find that there are issues and the nature of those issues.

From a personal point of view this is not good enough.

There needs to be something set in place for advance information to be sent out on this, or at the very least an opt out switch (which there was not) in the Apple update.

I am preparing something to go further with this.

 

[gennepher]

Sorry for your pain over this @gennepher

But that IS apple's business model, others just follow suit because of the market apple commands.

i'd suggest android, personally.
but i'd imagine the effects could be as bad, the amount of times io have heard others moaning about an app upgrade that was anything but.

I would have thought that the operators of the Implant..( correct terminology ? ) should have some liability
after all they just use, apples technology..if apple upgrades it isn't it down to THEM to ensure the possible effects are broadcast to THEIR client list ?..and then it's their duty as providers to find thew work arouind or upgrade route necessary.
you at the end of the day are just their customer, surely.
you have rights as a consumer and with regard to vehicular safety ..i'd be pretty sure if they altered a radio on caar that suddenly BLARED and THAT caused an accident then the radio operators would be liable as NO warning was given.

but it might just be that the laws don't apply to the bigger businesses...after who wants to pay tax..

bets wishes, gen

see ya soon, good luck with the on-line fray.

Hi @jjraak

I agree with what you say.

And I appreciate all the feedback on here.

This feedback helps me clarify in my mind how to explain/put over effectively what I need to put over next week.

What Apple did not take into account with this 'blanket' upgrade for all the different hearing aid users, and the cochlear implant users (and there are many different types), was that hearing aid users and cochlear implant users are different.

Hearing aid users all have a working cochlear or else they wouldn’t be hearing aid users. So alerts for them even direct to their hearing aids are pretty much similar to alerts hearing people hear from their phones.

But cochlear implant users are different, I do not have a normal cochlear. I have wires in my head which convey sounds and noise directly to my neural pathways. And these noises and sounds are carefully regulated by the mapping I receive. So I am talking now about normal sounds (although I don’t hear them anything like hearing people), but these alerts and phone ringing directly into my skull as a result of the Apple update were not regulated by my mapping and were at dangerous sound levels, causing my brain to freeze on whatever I was doing at the time because it had no idea what was happening.

Apple use a system called MFi, which they invented as far as I know. It’s Made For iPhones. So in this way they corner a tremendous market of hearing aid users (as well as the different Cochlear devices, Med-El devices, Baha users etc) so the technology is compatible with the technology built within all these other devices but you need an iPhone to use them at their full potential etc. I don’t think MFi is open source, although at the moment Apple hasn’t restricted MFi just for the iPhone but it seems it will be soon. And they are and will corner the market in this. Hearing aids, many countless different types and models are made specifically with Apple compatability in mind.


As you know I have an Android now. It doesn’t have MFi, but Google have been building their own hearing aid assisted program for Android phones called ASHA. And this is open source to allow developers come up with stuff.

I downloaded an app to use my speech processor with the Android. And paired it with it and everything. I did research first, and came up with the pixel series as the only ones that had any compatability with my Processor at this present moment of time. There was a lot of Pixel bashing on the web and the hearing forums, as regards compatibility. However, it was all misinformation, and my pixel 3a is compatible in every way, and has some added bonuses.

There is no excuse not to inform, like you said above, all users of whatever hearing devices they have of the details of any update because as I said I downloaded a Cochlear app on the iPhone (and I have a similar app for the Android) so I can control my device and get full compatability with my device.

What I am trying to explain here is that each of us, whatever hearing device we have, we have to register that device through the app (which is device specific), and the usage of that device is collected by whatever hearing provider it is. So in my case Cochlear collect information on how much I listen to speech each day, how much I listen to music, how many times a day I take my processor off etc. All that is collected and sent back to Cochlear. I find that scary actually...

So therefore my point is, like you said above, each of us could have been informed by an alert on the app, because each app is for a specific hearing device.

How simple could that be?

Sorry, I have written a book again...but thank you for giving me feedback, and feedback allows me to come up with (to me) ideas how to present this and obvious easy solutions that could and should have been done.

 

[HarryBeau]

Morning...up at 06:30 coffee prepared going to have a peep at the rugby...so much paperwork to do I have to get down to that today I must stop avoiding it...heavy rain expected nothing new there...woke to a flat 6.0