Type 2 Life

[ickihun]

How are you both? @tina_marie

 

[JohnnyBaker87]

How are @eldergarth, @tina_marie and @ickihun?

 

[JohnnyBaker87]

Happy Christmas and a very happy new year to all my friends and moderators.

 

[tina_marie]

How are @eldergarth, @tina_marie and @ickihun?

Hello @JohnnyBaker87 and @ickihun , sorry I’ve not replied but I’m not getting notifications when people tag me . Anyway hope you’ve all had a wonderful Christmas . It’s been quiet we were hoping to get a new rescue dog as we lost our Max 4 months ago but things didn’t work out as they should off. Anyway we maybe getting one in the new year , fingers crossed as Rons depression seems to of got worse when we lost our dog . His family are hoping that a new dog (rescue) will help him . Everything was fine Christmas Day, but today fatigue seems to of got the better of him. Also his pain has got worse . One minute the pills help then the next he’s in agony . I’m never quite sure how to help him for the best . I so miss having kids around at least there was no boredom . Plenty of games to play .

 

[ickihun]

Hello @JohnnyBaker87 and @ickihun , sorry I’ve not replied but I’m not getting notifications when people tag me . Anyway hope you’ve all had a wonderful Christmas . It’s been quiet we were hoping to get a new rescue dog as we lost our Max 4 months ago but things didn’t work out as they should off. Anyway we maybe getting one in the new year , fingers crossed as Rons depression seems to of got worse when we lost our dog . His family are hoping that a new dog (rescue) will help him . Everything was fine Christmas Day, but today fatigue seems to of got the better of him. Also his pain has got worse . One minute the pills help then the next he’s in agony . I’m never quite sure how to help him for the best . I so miss having kids around at least there was no boredom . Plenty of games to play .

Oh honey. Mine are a handful. Older boy keeps alot to himself but I know he uses his game console to have escapism from his dad's mental illness. 6yr old has alerted us to him being angry about his dad but says nothing. We are going to work on getting him to feel freer to express himself. My lot are all asleep, even the 2 finches. I'm awake and thanking God I've survived 2019. Other than impromptu asthma difficulties I've been ok. I've stopped forcing more walking in pain for more enjoyable adventures with my kids. Hoping it will blot out what I cannot do. I hv reconnected with some old friends who are trying to understand my difficulties. They are a godsend. I invite them to my home now I've prepared them for my new home living standards. They say they understand how much Mr Ickihun does for me and his kids after my mum's decimation of his good intentions. She has tried to make trouble but luckily we are a good unit and look after each other. I'm extremely proud of my 12yr old but 6yr old is doing marvellous considering his disability too. I'm very proud of all of my small family unit members. My grandfather when he met my grandmother blocked out trouble making siblings or bad influence members of his family and provided a hugely successful family unit til his death. They cannot be replaced. I miss them both terribly, especially at Xmas.

 

[JohnnyBaker87]

My Care Coordinator doesn't believe my misdiagnosis of Schizophrenia that was diagnosed in 1995 when I was 25 years old. She believes I have a full ICD-10 diagnosis of Asperger's syndrome which is an autism spectrum disorder. I also have a strong susceptibility to Adult ADHD and Clinical Depression. My fasting blood glucose level was 6.9 mmol this morning. My Care Coordinator is trying to get me 24 hour respite care in New Cross, London. The reason why the reassessment was called by Lambeth Social Services is because of funding issues and the lengthy gap in the referral procedure.

 

[JohnnyBaker87]

I've had a sharp, sore pain in my right hand side and lower back upon movement since Christmas. The pain was excruciating yesterday everytime I moved. The doctor gave me paracetamol tablets and advised me to apply a heat hot water bottle compress to the painful areas.

 

[ickihun]

I've had a sharp, sore pain in my right hand side and lower back upon movement since Christmas. The pain was excruciating yesterday everytime I moved. The doctor gave me paracetamol tablets and advised me to apply a heat hot water bottle compress to the painful areas.

How are you today @JohnnyBaker87?

 

[JohnnyBaker87]

I'm still in a lot of pain, @ickihun, my lovely friend. I think I've got a badly sprained transversus Abdominus muscle on my right hand side through helping my friend with a disability with a heavy solid glass item of furniture into her flat. The heat compress is helping a lot, though. I'm still praying for my move as well as praying for you, @eldergarth and @tina_marie.

 

[ickihun]

Hi everyone.
I've just had my C-peptide blood test... Well let's see if below 500.
I'm hoping to lose insulin but metformin alone isn't enough at mo. Lost 6st but.....

Anyway. 2wk wait or on 27th specialist appointment.
Thyroid still needs full levothyroxine too. No change with 6st loss.
Liver function is now good. Yipee. Although scan still shows fatty liver but enzyme levels are good.

Anyone else had some fresh results???
No fresh hba1c for now. Consistently 53.

 

[ickihun]

I'm still in a lot of pain, @ickihun, my lovely friend. I think I've got a badly sprained transversus Abdominus muscle on my right hand side through helping my friend with a disability with a heavy solid glass item of furniture into her flat. The heat compress is helping a lot, though. I'm still praying for my move as well as praying for you, @eldergarth and @tina_marie.

I swear by the ibuprofen rub from my GP for muscular sprains etc. I only use it when in total agony as my heart disease doesn't appreciate ibuprofen and after stomach op I cannot hv the tablet form. Ask GP or your chemist first @JohnnyBaker87. Let me know how you get on. I'm praying for your assisted living. This year I find out if on insulin for life or not. Scary but necessary. My new DN is very very friendly. Mr ickihun met her too. She is honoured.

 

[ickihun]

I'm still in a lot of pain, @ickihun, my lovely friend. I think I've got a badly sprained transversus Abdominus muscle on my right hand side through helping my friend with a disability with a heavy solid glass item of furniture into her flat. The heat compress is helping a lot, though. I'm still praying for my move as well as praying for you, @eldergarth and @tina_marie.

Any improvement with pain @JohnnyBaker87?

 

[JohnnyBaker87]

Yes, it's a lot better now. The Paracetamol tablets and heat compresses really helped plus persistent prayer. I enjoy praying. It bring me closer to my faithful Heavenly Father. I pray for you and your little autistic son and other members of your family. Jesus loves children but that goes without saying. He loves everybody. I'm praying for deliverance for you from all your health-orientated afflictions.

 

[ickihun]

Yes, it's a lot better now. The Paracetamol tablets and heat compresses really helped plus persistent prayer. I enjoy praying. It bring me closer to my faithful Heavenly Father. I pray for you and your little autistic son and other members of your family. Jesus loves children but that goes without saying. He loves everybody. I'm praying for deliverance for you from all your health-orientated afflictions.

Bless you too @JohnnyBaker87. I'm delighted your pain has gone. Little one seems to be getting worse. He's now nearly 7yrs old but acting like a 4yr old. He's very very intense but his dad is too. Both together it can be very very disruptive for no reason. I'm due a break soon. So going to look at a few days away. Once I've recharged my batteries I can manage far far easier. I can see very obviously from my bg meter readings how stress is accumulative. I'm not sure if my blood pressure tablets are as effective 16hrs after I've taken them. I'm still on so many tablets I hv to take them with my levothyroxine and a good time away from multivitamins etc. Otherwise I forget to take them and it's midnight by the time I take iron, calcium and multivitamins. Humf. What a life!

 

[tina_marie]

Gp came out to see Ron today , as he’s struggling to walk due to severe pain in legs . He’s increased the duloxetine yet again . He said if that didn’t work then they would look into seeing what else Ron could have . Over the weekend Ron has been in bed as the legs have been so painful plus worsening hip pain . His legs were so heavy I couldn’t even lift them . Every step he takes now it’s so painful for him that the air turns blue . Ron said if we ever get the move someone will have to carry him out .

 

[ickihun]

Gp came out to see Ron today , as he’s struggling to walk due to severe pain in legs . He’s increased the duloxetine yet again . He said if that didn’t work then they would look into seeing what else Ron could have . Over the weekend Ron has been in bed as the legs have been so painful plus worsening hip pain . His legs were so heavy I couldn’t even lift them . Every step he takes now it’s so painful for him that the air turns blue . Ron said if we ever get the move someone will have to carry him out .

Poor man. My heart goes out to you both. My C-peptide came back 700 so there's hope for me to lose more weight and see how that responds. I'm having bleeding in my oesophagus so next week I hv an emergency booked investigation at South Shields hospital. Our major hospital is unable to cope with my emergency. I will use my PIP money for transport as I need a chaperone to bring me home due to my anxiety with medical procedures. I bet at the cost of £30-£40. I'm hoping I can claim it back due to our low income. Luckily I've stashed an emergency fund incase of an emergency. If I hv to hv an emergency procedure/op then that cost will triple for us.
It is never just a simple winter time for our household. The weather has stopped me walking everyday which is frustrating. Poor Ron must really get frustrated with his body. The mind is often far stronger. Luckily mine keeps me plodding on.
I'm nervous about the bleeding (from my GERD maybe). I'll know more by the end of next week as to what happens next. It may not be due to my recent op.

What a life?
I'm always thinking of you both.

 

[tina_marie]

Since the gp increased his duloxetine Rons had no sweats . Either when eating or when he’s around people . He still has problems swallowing and probably always will . Another plus side is we now have another rescue dog . He is absolutely gorgeous . He’s not to keen on Rons crutches so Rons got to wait a bit longer for a cuddle but I’ve had loads and sloppy wet kisses . On Monday we’re off to view a new bungalow to see if it’s suitable for Rons needs .

 

[DCUKMod]

Since the gp increased his duloxetine Rons had no sweats . Either when eating or when he’s around people . He still has problems swallowing and probably always will . Another plus side is we now have another rescue dog . He is absolutely gorgeous . He’s not to keen on Rons crutches so Rons got to wait a bit longer for a cuddle but I’ve had loads and sloppy wet kisses . On Monday we’re off to view a new bungalow to see if it’s suitable for Rons needs .

Sounds like a few things have tipped your way for a change. I'm really pleased for you.

 

[ickihun]

Great news @tina_marie
Are you happy to post a pic of the new dog so we can enjoy him too?

I spent last night in hospital due to stomach pains. I got a shock when I was discharged how badly my catheter hole didn't clot to stop the bleeding. I was covered with blood instead of the clean goodbye to some lovely people i met on the ward. One alerted me to all the blood I was squirting out. It was frightening but luckily didn't prevent my discharge. I think it was due to my fast heartbeat so off to gp I go on Monday/Tuesday. On my discharge notes my GP was faxed their findings and all I was told was my CT scan was positive. Not a lot of info... Eh? I still get medical anxiety so to be honest I'm glad Im not told every moral thing as god knows what I'd image. They suspect a special ulser which can be a side effect from Roux-en-y but my gastroscopy will give them more info as to where the fresh blood is coming from that I'm processing. Nasty halitosis and smelly waste is my most embarrassing side affect which I'm disguising with strong copy purfumes and frequent mouth washes. It's not pleasant though. I'm very self conscious about it, in fact.
How's Ron's legs today hun?

 

[tina_marie]

our boy benji