- Messages
- 13,233
- Type of diabetes
- Type 1
- Treatment type
- Pump
- Dislikes
-
People that can't listen to other people's opinions.
People that can't say sorry.
Hi
Morbid thoughts perhaps to some, sorry.
I have terminal cancer, grade 4B in liver and lungs.
Has anybody previously had any experience of care in hospices, as an independent insulin diabetic?
I’m still to see the consultant that oversees my hospice (next Monday) but have had to fight to get any answers from anybody about my care before I get taken in, to be able to confirm 100% that is the where I will die.
NHS England guidelines for palliative care end of life is for last few days to have just one injection per day (either tresiba or lantus). One blood test per day.
I have spent 6 weeks and horrendous angst trying to get answers about my care being individual to me. I have minimum of 3 injections per day, to even just lie in bed (2 levemir and one fiasp). Plus corrections, eating.
I’m appalled at the actual guidelines from diabetes.co.U.K. And nhs England. It’s frightening. I know I will be unconscious but I don’t want unconscious from day 1 of hospice when if my admission is timed well, I should get 14 days of good care until the end comes.
One day in a hospice changing from levemir to tresiba would comatose me within 8 hours.
Does anybody know of any other insulin independent that has negotiated their care in a hospice? Have got rest of life sorted out and death but this is a huge juggle to me.
Morbid thoughts perhaps to some, sorry.
I have terminal cancer, grade 4B in liver and lungs.
Has anybody previously had any experience of care in hospices, as an independent insulin diabetic?
I’m still to see the consultant that oversees my hospice (next Monday) but have had to fight to get any answers from anybody about my care before I get taken in, to be able to confirm 100% that is the where I will die.
NHS England guidelines for palliative care end of life is for last few days to have just one injection per day (either tresiba or lantus). One blood test per day.
I have spent 6 weeks and horrendous angst trying to get answers about my care being individual to me. I have minimum of 3 injections per day, to even just lie in bed (2 levemir and one fiasp). Plus corrections, eating.
I’m appalled at the actual guidelines from diabetes.co.U.K. And nhs England. It’s frightening. I know I will be unconscious but I don’t want unconscious from day 1 of hospice when if my admission is timed well, I should get 14 days of good care until the end comes.
One day in a hospice changing from levemir to tresiba would comatose me within 8 hours.
Does anybody know of any other insulin independent that has negotiated their care in a hospice? Have got rest of life sorted out and death but this is a huge juggle to me.