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Absolutely tired and hopeless

  • Thread starter Thread starter Deleted member 208503
  • Start Date Start Date
Believe me I've been in the system since I was a teen. This is where it leads.
In my community 16000! People lost their primary Dr's. At least 3 walk ins closed. And our er has a wait time of 12 hours minimum.
I don't anticipate much help.
 
An example. To do something about my digestive issues.
Its going to be 2 weeks wait to make an appt. For the following week to see an np. Then she decides to either give meds or send me for tests or refer me to a specialist? Or any other number of things. Tests can take a few months to get a time to go. A specialist takes 1 year wait time minimum. Many people drive the 4 hours away to see one faster. Then you have their tests to go do.
It can take 2 plus years idk if its this way everywhere.
For a diabetes foot check the wait time is 1.5 years.
Eyes is 1 year.
Simple basic foot care is not even insured.
I don't really like being blamed that I'm not getting health care.
 
It's very similar in the uk for a lot of these things @cdpm Very long waiting times at A&E, or to speak to/see most health care professionals, get tests/referrals etc, and often drives of well over an hour if you have to see a specialust/have operations etc. I've just had an appointment that I had to wait over 2 years for, for example.
 
Hopeful34 said:
It's very similar in the uk for a lot of these things @cdpm Very long waiting times at A&E, or to speak to/see most health care professionals, get tests/referrals etc, and often drives of well over an hour if you have to see a specialust/have operations etc. I've just had an appointment that I had to wait over 2 years for, for example.
Click to expand...
I agree with @Hopeful34 - very much like the UK, yesterday my hubby had a 4.5 hour round trip to see a specialist and his first appointment with this specialist he waited 8 months
 
Well I'm very near my edge with the high bg and insulin caused hunger and weight gain and leg pain and leg/foot cramps.
So if I must continue on insulin and keep increasing to reach the goal, I will have to take other measures.
I must be able to dress myself, and get up my stairs, and bathe myself.
I have asked for medical help, medical supports. They are non existent or have very little time in the appointments.
So to address my leg issues I have no ideas for the pain but for the stairs maybe do a few minutes a day to a few fav. songs marching on the spot. With only the expectation of keeping my legs moving.
To address the ravenous hunger I have 1 idea to increase protein somehow.
To address the weight gain I can only come up with eating 500 calories a day.
To address the high bg that isn't responding to the insulin all I can think of is requesting metformin.
It has bothered me extremely in the past (runs) but I'm mostly housebound from the same issue (runs) from nearly every food I eat so how much worse can it be? But maybe help me?
Did i miss any?
Today I call the dr- He's a phone endo. Dr I have-- to request metformin.
I will try to remember to come back to post what happens with that.
 
cdpm said:
The best way I can explain it is that my insurance cut out Lantus.
So my dr put me on the replacement automatically without asking me. Then it turned out that I just can't push the basaglar plunger (the replacement). So I asked if there was anything else covered and they said toujeo still was. I then said I was on 160.
But they didn't listen so began me at 25! So since then I've been increasing now at 82. Still no response.
Click to expand...
110 units now
Still no response
 
Serious question.
Why is this right for people? The taking of medicine that causes such side effects you can't eat?
Side effects causing several times getting up during your sleep? Side effects making weight increase in a disorder greatly affected by weight?
Why?
(Please don't say I need to tell my dr these things. I have a few times.)
Just Why are these things OK.
 
It's so so hard to be reasonable, to eat reasonably when somethings wrong with your body. When it's just hungry.
No matter the amounts eaten.
And to get the Ed help . WelI i just can't see the end of the tunnel.
They will likely counsel to eat more than omad. But likely not hear my words--- I have very little food funds to do so. So I can't see Ed help helping. Unless there's more than just a food focus.
Sorry to stretch out this thread so long.
Thanks for reading and all those who responded.
 
Hi @cdpm. I'm very pleased you got/have gotten/have been getting the ED help, even so. I have always hoped too, that you were able to get dentures or at least the dentristy help that would hugely help what kind of food you can eat too.

i really feel for you having a metabolic disease where food and drink is such a huge part of any treatment. It just adds to the complexity of your situaiton enormously.

Because of the ED I don't want to focus on your weight, or even talk about it at all unless you want to? But I am hoping, absolutely, that you are being medically monitored with your eating plan. Which would be crucial if your plan to eat once a day, and only 500 calories, has been proceeding? Because I believe you would have to be nutritionally supplemented on such a plan, to ensure you are not or don't get nutritionally deficient. But as you have a fair bit of energy stored on your body already? That's right isn't it? I am assuming that is how you are keeping on keeping on, which such a tiny amount of food every day. (Excuse me if I am being too blunt? Tell me if I am and I will rein it in!) When I did some research into long term fasting diets, they were closely monitored, but of course, they have gone way out of favour for some time. We humans can live off fat stores for quite a long time, but my understanding is it is far from good for longetivity.

Anyway - I said I wouldn't talk about fat stores, and I started to talk about fat stores - hoping you are doing OK?
 
There is financial help for getting teeth. It covers one third of the cost. So I've let go of that goal.
I'm not able to get the ed help as that requires finances too.
I'm not really further ahead by seeking medical help. which is why I rarely do so.
I'm happy when I hear of people who do get help because I want them to feel better.
 
AloeSvea said:
Hi @cdpm. I'm very pleased you got/have gotten/have been getting the ED help, even so. I have always hoped too, that you were able to get dentures or at least the dentristy help that would hugely help what kind of food you can eat too.

i really feel for you having a metabolic disease where food and drink is such a huge part of any treatment. It just adds to the complexity of your situaiton enormously.

Because of the ED I don't want to focus on your weight, or even talk about it at all unless you want to? But I am hoping, absolutely, that you are being medically monitored with your eating plan. Which would be crucial if your plan to eat once a day, and only 500 calories, has been proceeding? Because I believe you would have to be nutritionally supplemented on such a plan, to ensure you are not or don't get nutritionally deficient. But as you have a fair bit of energy stored on your body already? That's right isn't it? I am assuming that is how you are keeping on keeping on, which such a tiny amount of food every day. (Excuse me if I am being too blunt? Tell me if I am and I will rein it in!) When I did some research into long term fasting diets, they were closely monitored, but of course, they have gone way out of favour for some time. We humans can live off fat stores for quite a long time, but my understanding is it is far from good for longetivity.

Anyway - I said I wouldn't talk about fat stores, and I started to talk about fat stores - hoping you are doing OK?
Click to expand...
Yes I have lots of fat stores on my body. Lol.
 
AloeSvea said:
Hi @cdpm. I'm very pleased you got/have gotten/have been getting the ED help, even so. I have always hoped too, that you were able to get dentures or at least the dentristy help that would hugely help what kind of food you can eat too.

i really feel for you having a metabolic disease where food and drink is such a huge part of any treatment. It just adds to the complexity of your situaiton enormously.

Because of the ED I don't want to focus on your weight, or even talk about it at all unless you want to? But I am hoping, absolutely, that you are being medically monitored with your eating plan. Which would be crucial if your plan to eat once a day, and only 500 calories, has been proceeding? Because I believe you would have to be nutritionally supplemented on such a plan, to ensure you are not or don't get nutritionally deficient. But as you have a fair bit of energy stored on your body already? That's right isn't it? I am assuming that is how you are keeping on keeping on, which such a tiny amount of food every day. (Excuse me if I am being too blunt? Tell me if I am and I will rein it in!) When I did some research into long term fasting diets, they were closely monitored, but of course, they have gone way out of favour for some time. We humans can live off fat stores for quite a long time, but my understanding is it is far from good for longetivity.

Anyway - I said I wouldn't talk about fat stores, and I started to talk about fat stores - hoping you are doing OK?
Click to expand...
Yes I'm doing OK. Thanks for asking.
 
cdpm said:
Well I'm very near my edge with the high bg and insulin caused hunger and weight gain and leg pain and leg/foot cramps.
So if I must continue on insulin and keep increasing to reach the goal, I will have to take other measures.
I must be able to dress myself, and get up my stairs, and bathe myself.
I have asked for medical help, medical supports. They are non existent or have very little time in the appointments.
So to address my leg issues I have no ideas for the pain but for the stairs maybe do a few minutes a day to a few fav. songs marching on the spot. With only the expectation of keeping my legs moving.
To address the ravenous hunger I have 1 idea to increase protein somehow.
To address the weight gain I can only come up with eating 500 calories a day.
To address the high bg that isn't responding to the insulin all I can think of is requesting metformin.
It has bothered me extremely in the past (runs) but I'm mostly housebound from the same issue (runs) from nearly every food I eat so how much worse can it be? But maybe help me?
Did i miss any?
Today I call the dr- He's a phone endo. Dr I have-- to request metformin.
I will try to remember to come back to post what happens with that.
Click to expand...
So I requested metformin. Idk anything yet about the dose or anything else. Just waiting for to be able to get it to the pharmacy. Their (drs) fax wouldn't work. It was mailed to me. But at least I have a little hope now. That something may lower my bg.
 
I had some tests done with my food money. And the meds. are out of my reach. ($) So it was a waste of time. I just have to accept that eating will remain a daily hell.
 
Hopeful34 said:
I don't a lot about how your healthcare system works. Do you not get any help with medication costs if you're not working?
Click to expand...
Yes but only certain ones just like most insurance plans.
Like I get my insulin and a few test strips and my BP meds and a few sensors.
Alot of the meds. that specialists prescribe are not covered.
Such as 1 I'm supposed to be using for my ears so I just go around partially deaf. I obtained hearing aids but need the medicine to use them.
Ya don't believe what you might read about Canada. It's not what they claim.
 
cdpm said:
Yes but only certain ones just like most insurance plans.
Like I get my insulin and a few test strips and my BP meds and a few sensors.
Alot of the meds. that specialists prescribe are not covered.
Such as 1 I'm supposed to be using for my ears so I just go around partially deaf. I obtained hearing aids but need the medicine to use them.
Ya don't believe what you might read about Canada. It's not what they claim.
Click to expand...
Have you looked into coverage under the new Canadian Dental Care Plan? According to the website dentures are one of the 100% covered procedures if your income is less than $75,000 per year. If income is more than that then they cover a percentage.
I hope you are able to get some help with these problems.
 
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