Any Type 1s tried Mounjaro/GLP-1 medications?

Messages
2
Type of diabetes
Type 1
Treatment type
Pump
Hi All
I’m sorry if this has already been posted about/I am repeating but just wanting to know if anyone has had any experience of GLP1 Meds while having type 1 diabetes. I know that it isn’t available or licensed on the NHS but I have read quite a number of studies which show promising results.

I am desperate to try it as a treatment for my type 1, weight loss and insulin resistance. But I am worried about potentially dangerous side effects much as increase in hypos but more worryingly DKA.

I have my NHS diabetic consultant, but she was unable to advise. I told her that I would be willing to pay for the medication privately but wanted to do this safely and wanted her advice and guidance, but she was unable to provide this.

I have since approached a few private endocrinologist and diabetologist and spoke to their secretaries, two of whom were deliberately vague and told me only that the Consultant sees type one diabetes patients and “ prescribes Mounjaro where a appropriate”. On questioning this further she told me that there would be no guarantee that the consultant would prescribe me this medication. I advised her that I didn’t want a guarantee of this but I needed to know if he was going to tell me that this medication was unsafe in type one Diabetics as there would be no point to a consultation. she was unable to do this and said that I would need to speak to the consultant at £300 a time. As you can imagine I’m not willing to do this without a guarantee that the Consultant is willing to work with me.

Would be really keen to hear from other type on Diabetics who have had success with this medication and for recommendations for Specialists.

Thanks in advance, Catherine
 
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Charalloyd

Member
Messages
7
Type of diabetes
Type 1
Treatment type
Insulin
Hi. Just wondering if you had update on this? I too want to go down the mounjaro route! But worried if there are any side effects for type1! X
 
Messages
2
Type of diabetes
Type 1
Treatment type
Pump
Hey x
Thanks for commenting. It’s funny you should message actually. I actually spoke to a private consultant about it on Friday. Basically he said it’s very risky for type 1s because of the risk of going into DKA because of lowering insulin levels. He said he has lost count of the diabetics that he has seen in hospital through this. He said this can come about even without high blood sugars and of course there is the risk of hypos also. He said it’s not a no but that he feels I should trial Metformin first. I was feeling really positive at first but I’m a bit disappointed after reading so many reviews online from people it didn’t really do anything for.

Has anyone had any positive results with Metformin, regarding weight loss and improving hba1c?

Cate x
 

Poodle99

Newbie
Messages
1
Type of diabetes
LADA
Treatment type
Tablets (oral)
Hi All
I’m sorry if this has already been posted about/I am repeating but just wanting to know if anyone has had any experience of GLP1 Meds while having type 1 diabetes. I know that it isn’t available or licensed on the NHS but I have read quite a number of studies which show promising results.

I am desperate to try it as a treatment for my type 1, weight loss and insulin resistance. But I am worried about potentially dangerous side effects much as increase in hypos but more worryingly DKA.

I have my NHS diabetic consultant, but she was unable to advise. I told her that I would be willing to pay for the medication privately but wanted to do this safely and wanted her advice and guidance, but she was unable to provide this.

I have since approached a few private endocrinologist and diabetologist and spoke to their secretaries, two of whom were deliberately vague and told me only that the Consultant sees type one diabetes patients and “ prescribes Mounjaro where a appropriate”. On questioning this further she told me that there would be no guarantee that the consultant would prescribe me this medication. I advised her that I didn’t want a guarantee of this but I needed to know if he was going to tell me that this medication was unsafe in type one Diabetics as there would be no point to a consultation. she was unable to do this and said that I would need to speak to the consultant at £300 a time. As you can imagine I’m not willing to do this without a guarantee that the Consultant is willing to work with me.

Would be really keen to hear from other type on Diabetics who have had success with this medication and for recommendations for Specialists.

Thanks in advance, Catherine
I was on mounjaro before being diagnosed with Lada it was working really well for my hba1c , but mounjaro isent licensed for type 1 diabetics so she stopped it for that reason .My diabetic nurse couldnt understand why as it was working so I know have loads of questions as to Why was it working >?
 

Robinrstar

Newbie
Messages
2
Hi im
Type 1 diabetic with insulin resistance and other health conditions, today my
Specialist endocrinologist has prescribed monjuro to help with my blood sugar levels and weight.
My blood sugar latest hba1c was 15.2 have been struggling with my levels for a while
Currently on 40 units of tresiba 2.1 ratio breakfast 1.1 lunch and 2.1 for evening meal novo rapid.
I’m also taking metformin have been for years because of my severe insulin resistance. Is anyone out there type 1 taking monjuro ? Need some advice and support
Many thanks
 
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