Anybody got any suggestions

[DEBBIESCOTT]

Have loads of energy before breakfast, can exercise for 1-2 hours easily and feel great, after breakfast things can go downhill some days I’m fine other days have spells of feeling sick and dizzy , it’s like the walls and floor are moving, blood sugar will be ok, blood pressure normal & heart rate normal, can last just a few minutes or most of the day

 

[DEBBIESCOTT]

Your c-peptide UCPRC supports substantial insulin secretion (> 0.6 nmol/mmol) which discounts type 1 (and Lada) after 3 to 5 years after diagnosis. However, with your BMI I suggest they need to check for MODY.
https://www.exeterlaboratory.com/test/c-peptide-plasma/
https://www.diabetesgenes.org/what-is-mody/
It may be worth reading Dr Jason Fung who writes about thin people and type 2 diabetes. Check out his Obesity Code.

 

[DEBBIESCOTT]

Your c-peptide UCPRC supports substantial insulin secretion (> 0.6 nmol/mmol) which discounts type 1 (and Lada) after 3 to 5 years after diagnosis. However, with your BMI I suggest they need to check for MODY.
https://www.exeterlaboratory.com/test/c-peptide-plasma/
https://www.diabetesgenes.org/what-is-mody/
It may be worth reading Dr Jason Fung who writes about thin people and type 2 diabetes. Check out his Obesity Code.

I’ve read his diabetes code, but not the obesity code, I was 31 when I was diagnosed with gestational diabetes (no diabetes in 1st pregnancy) no history of any form of diabetes on either side of the family could it still be MODY?, only other ailment I suffer from is psoriasis which I think may increase risk of type 2

 

[EllieM]

Weight only matters, when you are obese, (clearly not) or when you have an eating disorder when you eat and bring it back up later.(clearly not)
As long as your weight is stable and your health isn't effected.
Quite a few women pray for your weight!

Not sure I totally agree with that view. It's easy to stereotype eating disorders as teenage girls who want to look thin, but the reality is very different and they can be unintentionally triggered by weight loss and insufficient nutrition, often accompanied by restrictive diets (hello diabetics of all kinds). . And lack of appetite often goes with them. Not suggesting that @DEBBIESCOTT has an eating disorder, but I totally understand her not wanting to lose any additional weight.

I think she needs a good endo who can look at all the possibilities.

 

[ert]

I’ve read his diabetes code, but not the obesity code, I was 31 when I was diagnosed with gestational diabetes (no diabetes in 1st pregnancy) no history of any form of diabetes on either side of the family could it still be MODY?, only other ailment I suffer from is psoriasis which I think may increase risk of type 2

There certainly is a family history element in MODY. Psoriasis is an autoimmune condition There is a risk for patients with an organ-specific autoimmune disease to have increased risks of developing autoimmune responses against other organs or tissues. It's worth mentioning to your GP. Have you had antibody tests?
https://www.karger.com/Article/Fulltext/447777

 

[DEBBIESCOTT]

There certainly is a family history element in MODY. Psoriasis is an autoimmune condition There is a risk for patients with an organ-specific autoimmune disease to have increased risks of developing autoimmune responses against other organs or tissues. It's worth mentioning to your GP. Have you had antibody tests?
https://www.karger.com/Article/Fulltext/447777

Thank you for the link, actually think people on here know more than the doctors and dsn’s. I’ve read the whole article. My dad and his mum both apparently had psoriasis but only a small patch on their elbows(I never saw it). Been told I got it at 3 on my first day at nursery (absolutely hated it). Nobody in the family has ever been overweight and I’ve never been over 8 stone(apart from when pregnant) weirdly in my 1st precnancy the psoriasis cleared up completely. I had the antibodies test in June this year and it came back normal. Will try & download the results when the nhs app is working again

 

[DEBBIESCOTT]

There certainly is a family history element in MODY. Psoriasis is an autoimmune condition There is a risk for patients with an organ-specific autoimmune disease to have increased risks of developing autoimmune responses against other organs or tissues. It's worth mentioning to your GP. Have you had antibody tests?
https://www.karger.com/Article/Fulltext/447777

 

[DEBBIESCOTT]

There certainly is a family history element in MODY. Psoriasis is an autoimmune condition There is a risk for patients with an organ-specific autoimmune disease to have increased risks of developing autoimmune responses against other organs or tissues. It's worth mentioning to your GP. Have you had antibody tests?
https://www.karger.com/Article/Fulltext/447777

Says file too big to download
Diabetes antibodies (GAD/IA2 & Zn T8) assayed by: Viapath Analytics LLP
Zinc transporter 8 antibody 10.2 U/ml (<14.0)
Serum glutamic acid decarboxylase antibody concentration 4.5 U/ml (<5.0)
IA2 antibodies <0.8 U:ml (<7.5)
Result marked as normal no further action

 

[ert]

Says file too big to download
Diabetes antibodies (GAD/IA2 & Zn T8) assayed by: Viapath Analytics LLP
Zinc transporter 8 antibody 10.2 U/ml (<14.0)
Serum glutamic acid decarboxylase antibody concentration 4.5 U/ml (<5.0)
IA2 antibodies <0.8 U:ml (<7.5)
Result marked as normal no further action

There's quite a good summary on the main page of the link. But you're antibody negative to the main antibody types. Maybe you're a yet to be discovered diabetes type they just have to call type 2 at present. You certainly can't tolerate carbohydrates whatever the type.
There is a Dr Fung's blog I remember:
https://www.dietdoctor.com/thin-diabetic-reversed-type-2-diabetes

 

[DEBBIESCOTT]

There's quite a good summary on the main page of the link. But you're antibody negative to the main antibody types. Maybe you're a yet to be discovered diabetes type they just have to call type 2 at present. You certainly can't tolerate carbohydrates whatever the type.
There is a Dr Fung's blog I remember:
https://www.dietdoctor.com/thin-diabetic-reversed-type-2-diabetes

Thanks for the link, I can remember reading it quite a while ago, I fast from dinner at night (around 7pm) and don’t eat again until breakfast (usually around 10am or a little later) & always take black coffee & coconut oil to the gym with me, unfortunately it doesn’t work for running but I’ll go back to trying it again

 

[Lamont D]

Thanks for the link, I can remember reading it quite a while ago, I fast from dinner at night (around 7pm) and don’t eat again until breakfast (usually around 10am or a little later) & always take black coffee & coconut oil to the gym with me, unfortunately it doesn’t work for running but I’ll go back to trying it again

Since diagnosis, the ability to run for fitness has alluded me, because of weight problems, and age, I have since losing the weight and more importantly my health, I still can only run a few hundred yards, and I prefer to walk. Maybe because I have always walked, in my younger days, work and for recreational activities.
In fact, I don't need to run because I walk. This way I know I'm not going to get a liver dump. Our bodies are designed to walk, and maybe run, but you can't run all day. Walking helps with digestion and control of your BS levels. At my age, walking is enough exercise for me.
When sports people exercise, they carb up because they are not in Keto, and you will use your energy quicker, because you need energy, but because of whatever is happening with your hormonal response, your body can't cope, so you fast before exercise, but that ain't working, if you carb up, that doesn't work. You are running to be as fit as possible. You don't need to lose weight, but you will, that is natural if eat less than you use.
Because of adapting to low carb, the body takes time to start producing ketones for energy. But from everything I have read, is that you are persevering with having a few carbs, when if you cannot tolerate carbs, like me and quite a few T2s can't, those few carbs are for want of not swearing, is messing you up. I also reckon that the glic has a half life that is also having an effect.
Your next move is to adapt properly to ketosis, and dump the carbs and glic. And test and record all your meals, and see if you feel better not doing the strenuous exercise, because you never know it could be the hormones that you need when you exercise.

Keep safe

 

[DEBBIESCOTT]

Since diagnosis, the ability to run for fitness has alluded me, because of weight problems, and age, I have since losing the weight and more importantly my health, I still can only run a few hundred yards, and I prefer to walk. Maybe because I have always walked, in my younger days, work and for recreational activities.
In fact, I don't need to run because I walk. This way I know I'm not going to get a liver dump. Our bodies are designed to walk, and maybe run, but you can't run all day. Walking helps with digestion and control of your BS levels. At my age, walking is enough exercise for me.
When sports people exercise, they carb up because they are not in Keto, and you will use your energy quicker, because you need energy, but because of whatever is happening with your hormonal response, your body can't cope, so you fast before exercise, but that ain't working, if you carb up, that doesn't work. You are running to be as fit as possible. You don't need to lose weight, but you will, that is natural if eat less than you use.
Because of adapting to low carb, the body takes time to start producing ketones for energy. But from everything I have read, is that you are persevering with having a few carbs, when if you cannot tolerate carbs, like me and quite a few T2s can't, those few carbs are for want of not swearing, is messing you up. I also reckon that the glic has a half life that is also having an effect.
Your next move is to adapt properly to ketosis, and dump the carbs and glic. And test and record all your meals, and see if you feel better not doing the strenuous exercise, because you never know it could be the hormones that you need when you exercise.

Keep safe

Thanks, I only run fasted because we go at 6.30am before work, find it hard and always have (more a sprinter) lockdown didn’t help anyone, going to walk for the next couple of weeks and try & speak to my DSN tomorrow regarding the gliclazide, weight training (favourite exercise) doesn’t seen to make much different to b/s, peloton cycling (couple of hours after lunch lowers b/s quickly so will be my only cardio for a few weeks. No exercise today and haven’t got to go out so trying really low carb
Breakfast coffee, eggs, bacon, mushrooms & tomatoes all fried in olive oil
Lunch butternut squash, little bit of sweet potato, chilli & coconut soup, celery, peanut butter, cheese & Brazil nuts
Roast chicken & veg tonight (with no gravy)

 

[Lamont D]

Thanks, I only run fasted because we go at 6.30am before work, find it hard and always have (more a sprinter) lockdown didn’t help anyone, going to walk for the next couple of weeks and try & speak to my DSN tomorrow regarding the gliclazide, weight training (favourite exercise) doesn’t seen to make much different to b/s, peloton cycling (couple of hours after lunch lowers b/s quickly so will be my only cardio for a few weeks. No exercise today and haven’t got to go out so trying really low carb
Breakfast coffee, eggs, bacon, mushrooms & tomatoes all fried in olive oil
Lunch butternut squash, little bit of sweet potato, chilli & coconut soup, celery, peanut butter, cheese & Brazil nuts
Roast chicken & veg tonight (with no gravy)

Do let us know how you get on.

 

[ert]

Thanks, I only run fasted because we go at 6.30am before work, find it hard and always have (more a sprinter) lockdown didn’t help anyone, going to walk for the next couple of weeks and try & speak to my DSN tomorrow regarding the gliclazide, weight training (favourite exercise) doesn’t seen to make much different to b/s, peloton cycling (couple of hours after lunch lowers b/s quickly so will be my only cardio for a few weeks. No exercise today and haven’t got to go out so trying really low carb
Breakfast coffee, eggs, bacon, mushrooms & tomatoes all fried in olive oil
Lunch butternut squash, little bit of sweet potato, chilli & coconut soup, celery, peanut butter, cheese & Brazil nuts
Roast chicken & veg tonight (with no gravy)

From what Dr Fung is saying the weight training will make a difference to thin type 2's in the long run as you need a higher percentage of muscle (higher capacity to store glucose) to stop your blood sugars from spiking.

 

[DEBBIESCOTT]

Been ringing my DSN all day, no answer, rang the doctors surgery couldn’t even get through to a receptionist, husband had to pick me up from work and leave my car there as b/s 4.1, now home and it’s 3.7
I really wanted to speak to her before I stopped the gliclazide, but I’m not taking any more.
Im going to have to run up the stairs a few times to get b/s up, I’m eating any sugar or carbs

 

[HSSS]

Been ringing my DSN all day, no answer, rang the doctors surgery couldn’t even get through to a receptionist, husband had to pick me up from work and leave my car there as b/s 4.1, now home and it’s 3.7
I really wanted to speak to her before I stopped the gliclazide, but I’m not taking any more.
Im going to have to run up the stairs a few times to get b/s up, I’m eating any sugar or carbs

Try some protein instead for a slower more gentle rise. The stairs would take some people lower.

 

[Lamont D]

Been ringing my DSN all day, no answer, rang the doctors surgery couldn’t even get through to a receptionist, husband had to pick me up from work and leave my car there as b/s 4.1, now home and it’s 3.7
I really wanted to speak to her before I stopped the gliclazide, but I’m not taking any more.
Im going to have to run up the stairs a few times to get b/s up, I’m eating any sugar or carbs

If you haven't already, have some dairy, like a piece of cheese.
Just relax and eat low carb for your last bit of food before you retire.

I would, if your surgery won't answer, phone the hospital out of hours number and explain that you have been having episodes of hypoglycaemia. And more importantly, you have been going hypo on and off daily, despite stopping the meds.

(Edited by moderator to comply with forum rules).

 

[DEBBIESCOTT]

If you haven't already, have some dairy, like a piece of cheese.
Just relax and eat low carb for your last bit of food before you retire.

I would, if your surgery won't answer, phone the hospital out of hours number and explain that you have been having episodes of hypoglycaemia. And more importantly, you have been going hypo on and off daily, despite stopping the meds.

(Edited by moderator to comply with forum rules).

Thanks for the advice, I was stuck between 3.6 & 3.8 for 90 minutes tonight, (ate dinner of salmon, roasted broccoli & cauliflower cheese) in that time, fell asleep and just woken up to a 4.1.
Just had a nice big piece of cheese , I’ll keep trying to ring in tthe DSN in the morning but definitely no more gliclazide. No point in ringing 111 as rang them one Saturday in the summer when my blood sugar kept going up & up (5 weeks after I’d been taken off gliclazide because of the hypos) took them 10 hours to ring me back and all they said was as it was a complicated case they couldn’t do anything & to ring my own gp on the Monday, who the proceeded to tell me it was killing me and to just take another metformin, a personal friend who’s a retired chest consultant told me to go to urgent care for a ketone check (negative) that’s when the DSN gave me the libre

 

[DEBBIESCOTT]

Still can’t get hold of my DSN so I’ve emailed her. Haven’t had any gliclazide since Monday morning (still had a hypo every evening or night since). I haven’t heard of MODY before but have been Googling
Oral glucose test in February 1997 positive for g/d
Put on a stone in a week & son born 6 weeks later at 34 weeks weighing 8lb 51/2 oz. Don’t fit the profile for type 2, 2 kidney function tests (June & August) satisfactory. Read there’s about a fourfold greater response to gliclazide than a type 2.( I hypo on 20mg)
Probably totally wrong but just seems to add up.
On 26 May says my urine c-peptide & creatine level results were unknown & being forwarded to requesting specialist (don’t know what for) but I’ve heard nothing.
I’m now panicking.

 

[Antje77]

Haven’t had any gliclazide since Monday morning (still had a hypo every evening or night since).

How low are your hypos on a finger prick reading?