That I can’t have a day off from thinking about it. Not even one.
I have the unfortunate knack of looking really well when I feel like hammered cr*p, so people assume there’s never a problem.
When people say I should just eat what everyone else does at a special occasion to “treat myself” and just medicate for it. I’ve got allergies to meat and dairy that give me breathing difficulties (my lung capacity halves) and I can deal with that by inhaling ventolin but feel terrible for several hours after. Obviously I can’t process carbs without insulin, but again, I feel sluggish and horrible for hours after eating them. And spike and possibly hypo. I don’t think they’d say to a kid with a nut allergy to eat a bowl of peanuts and just use their epipen after, would they? Not much of a treat, in my book.
When you’re out for a meal and people think you’re being difficult just for asking what’s in the food. Because I need to know this stuff. I have a local cafe who are absolutely wonderful, and just make me what I ask for even when it’s not on the menu. And always bring me a massive pot of mayo with my usual avocado salad because they know I do keto and want extra fat.
Having to carry a lunch bag when I go on a long drive just in case I can’t find suitable food when I’m away from home.
Having to teach my son how to do blood tests (he actually quite enjoys it, the little toad) just in case he comes in and finds me unconscious. He’s saved my life twice now by calling an ambulance when I had DKA, he was only eight at the time. He has to remind me to check my sugars when I’m being cranky too. It’s a lot of responsibility for a child. But he’s taken it in his stride and is utterly wonderful <3
People who say “get well soon” when I know I’ll never be well again. You just smile, knowing they mean well, but it’s another reminder of the permanence of T1.
Waking at half six to do some Novorapid for the impending liver dump and then at 8 for Tresiba. I might bring my Tresiba forward to the same time and do them both together - I’ve only just discovered dawn rise is happening thanks to the Libre so am fiddling with timings. I did do a foot on the floor at 8 with the Tresiba but have had to make it earlier to kick it in the nuts before it starts.
Being late for things because my BG is a little too low to legally drive and I need to bring it up. I do try to keep an eye on that an hour or so in advance, but don’t always get it right. More stuff to think about!
Going hypo when I’m working. I’m a jewellery silversmith, and I’ve stuffed a few things up by my sugars dropping quickly. One thing I’ve found that since eating very low carb is that hypos are much rarer and come on more slowly, which makes them easier to nip in the bud. But still.
People who think I should do blood tests and injections in public toilets when I’m out.
But apart from all that, it’s fine
