1. Get the Diabetes Forum App for your phone - available on iOS and Android.
    Dismiss Notice
  2. Guest, we'd love to know what you think about the forum! Take the Diabetes Forum Survey 2022 »
    Dismiss Notice
  3. Diabetes Forum should not be used in an emergency and does not replace your healthcare professional relationship. Posts can be seen by the public.
    Dismiss Notice
Dismiss Notice
Find support, ask questions and share your experiences. Join the community »

Confused! Newly Diagnosed Type 2

Discussion in 'Greetings and Introductions' started by Ladystarbar, Dec 28, 2021.

  1. Ladystarbar

    Ladystarbar · Newbie

    Messages:
    4
    Likes Received:
    3
    Trophy Points:
    3
    Hello, I was diagnosed with Type 2 diabetes 17/12/21 with a hba1c of 108. Doctor called and diagnosed over the phone and had an appointment day. Given Metformin to take 3 a day after 3 weeks with a photo copy of Diabetes type 2 blurb to read. Non the wiser in all honesty and have been told I've been referred to my local diabetes clinic. Does anyone know what will happen at the clinic, will I need to test my blood glucose levels, what diet changes should I be making before clinic appointment? I know nothing about diabetes as there's none in the family at all, even the GP was surprised there's no diabetes in the family.So confused.
     
    • Hug Hug x 7
    • Like Like x 1
  2. coby

    coby Type 2 · Well-Known Member

    Messages:
    917
    Likes Received:
    616
    Trophy Points:
    153
    Aww you sound just like I was on diagnosis six years ago, and no diabetes in my family either! Take a deep breath and read as much on the forum as you are able to take in for now. Your appt will be with diabetic nurse who will weigh you, take your blood pressure and ask about your health, lifestyle. Nothing sinister and hopefully she will be one who knows that a low carb diet works !!!
     
    • Like Like x 3
    • Agree Agree x 1
    • Optimistic Optimistic x 1
  3. KateS14

    KateS14 Type 2 · Well-Known Member

    Messages:
    45
    Likes Received:
    29
    Trophy Points:
    58
    Oh, I feel for you @Ladystarbar !

    It is bewildering to start off with.

    Don't worry about the appointment - it'll probably be routine tests and a chat as @coby has said.

    As for changes to diet, it is carbohydrates in all their forms that need to be addressed. Read as much as you can on here and ask as many questions as you need to. There is always a friendly ear available and no question is silly - many of us have started off exactly where you are. The only thing I would caution when changing your diet is to start slowly and gradually, so you can try to find something that will work for you long term.

    When I was diagnosed I was given a blood test meter by the hospital, and taught how to use it (as close as possible to the first bite of a meal and 2 hours after, aiming for a rise of no more than 2). However I understand that certainly isn't the case for all T2's. Personally, I have found it absolutely invaluable to understand what food works for me and what doesn't.

    And most importantly of all, be kind to yourself! There's a lot to learn, there'll be ups and downs and you'll make mistakes - we all do! - but there's a whole bunch of people here to support you along the way.
     
    • Agree Agree x 8
  4. Ladystarbar

    Ladystarbar · Newbie

    Messages:
    4
    Likes Received:
    3
    Trophy Points:
    3
    Thank you all so much for your replies. I'm having trouble signing in as well as everything else So I'm sorry for not getting in touch sooner. All very interesting the advice you've given me. I do drive and I'm worried about losing my driving licence. If I lose that then it will be devastating for me. I have an autistic son (15 years) who has no danger awareness. Anyway, I am overweight so that will definitely need to be addressed. My worry is I'll be looked at in disgust by the staff at the clinic or anyone else within the NHS.
     
    • Hug Hug x 6
  5. EllieM

    EllieM Type 1 · Moderator
    Staff Member

    Messages:
    6,387
    Likes Received:
    2,925
    Trophy Points:
    198
    Don't worry about driving: it's only an issue for people on certain glucose lowering meds (such as insulin ) if they get hypoglycemic (low blood sugar) and don't realise in time to give themselves sugar. It's much more of a T1 issue than a T2, though some T2s on some medications do have to worry about it. (And I've had a driving license since I was 17 and been on insulin all that time. :)). Metformin won't make you hypo so you really don't need to worry at the moment. (Your GP will warn you if you take medication that might do this.)

    AS far as the weight issue, undiagnosed T2 causes weight gain, so you'll find that most of the people visiting the clinic will have extra weight (as do many of the nurses). Please don't blame yourself for being overweight and having T2 - T2s are genetically predisposed to not cope well with the carbohydrate present in a modern so called healthy diet and gain weight as a result.

    Here's my favourite intro to T2 and low carb, jokalsbeek's excellent blog.
    JoKalsbeek's blog | Diabetes Forum • The Global Diabetes Community

    Good luck.
     
    • Agree Agree x 6
    • Like Like x 3
    • Winner Winner x 1
  6. Rachox

    Rachox Type 2 (in remission!) · Moderator
    Staff Member

    Messages:
    13,704
    Likes Received:
    17,959
    Trophy Points:
    298
    Just to add to @EllieM ’s comment, you don’t have to inform the DVLA at all in the UK that you have type 2 on Metformin only, but you do have to inform your car insurer, they just ask what meds you’re on and put it on your file, it won’t affect your premium.
     
    • Informative Informative x 3
  7. Ladystarbar

    Ladystarbar · Newbie

    Messages:
    4
    Likes Received:
    3
    Trophy Points:
    3
    Thank you @EllieM and @Rachox. I'd lost over a stone without trying before I was diagnosed but have probably another 4 to lose. I've not put any on over Christmas either so that's a bonus. I had all the symptoms but put them down to other things or dismissed them. I'm over the to hear about the driving side of it. I'm already on a 3 year renewal because of other medications and because I have recurring psychotic depression with psychosis. Great fun eh?! It's the meds for those that make me crave sweet food.

    I'll take a look at the intro you've suggested @EllieM.

    Thank you both of you for taking time to help this dazed and confused newbie xx
     
    • Friendly Friendly x 4
    • Hug Hug x 2
    • Like Like x 1
    • Optimistic Optimistic x 1
  8. Andydragon

    Andydragon Type 2 (in remission!) · Moderator
    Staff Member

    Messages:
    3,317
    Likes Received:
    4,106
    Trophy Points:
    198
    Hi there

    mid you’ve been running high bloods for a while then it’s not uncommon to lose weight without trying, it’s one of the side effects. It is known in type 2, I had the same symptoms. It is more common in type 1 but isn’t so unusual

    As I understand it, human body doesn’t like too much sugars in the blood and wants to get rid of it, so makes you want to urinate it out but it’s not good for you. With hba1c at your levels, it could easily be that I could imagine.

    lower carbs often helps people lose weight as well as lowering sugars so that’s a good option. It’s not an option perhaps all in the NHS have followed so they might not be onboard. Come speak to us on the forums, we can help!

    driving wise, as @Rachox and @EllieM said, you aren’t on drugs that are a major concern here and getting your control is a good way to keep you away from that

    stress won’t help, easier said than done but try to be as calm as you can. Many of us have decades of T2. It’s something to control but we can with knowledge, it doesn’t have to control us

    testing for us T2s outside of certain meds isn’t recommended by the NHS and so they don’t usually provide the way to. however it is a good way to help us understand how foods impact us. We usually have to self fund but there are cheaper ways. Lowering carbs and losing weight can help and if it’s only possible to use hba1c from the doctor then that’s a way also but that might only be every 6 months.

    if you want to share your diet, we can maybe offer suggestions or there are forums on here with good suggestions for food. It does change what we can eat but hopefully there are solutions that improve.

    Good luck
     
    • Like Like x 3
    • Agree Agree x 1
    #8 Andydragon, Dec 29, 2021 at 6:20 AM
    Last edited: Dec 29, 2021
  9. KateS14

    KateS14 Type 2 · Well-Known Member

    Messages:
    45
    Likes Received:
    29
    Trophy Points:
    58
    @Ladystarbar ,

    Please, please do try not to worry about this.

    Although this is MUCH easier said than done, I really do know. As someone who spent years and years hating my weight and body, avoiding some situations because of my own image of myself, I have to say that when I was diagnosed and suddenly came into contact with dozens of medical professionals, I have only been met with help, advice and support, and NO judgement.

    What is working for me is following a low carb diet and upping my excercise (still not enough, but I'll get there!) I have managed to lose weight and feel better about myself than I can ever remember feeling.

    Of course this approach won't work for everyone but I'm sure you will find your way.
     
    • Winner Winner x 3
  10. Ladystarbar

    Ladystarbar · Newbie

    Messages:
    4
    Likes Received:
    3
    Trophy Points:
    3
    Hello @KateS14 and @Andydragon, thank you for your advice and apologies again for my late reply. I'm getting stressed out trying to sign in and find the this thread. I've found out today that I'm on the Diabetic clinic waiting list but they can't say when appointment will be. I was told last week that it'll be this week. I'm pretty annoyed but not surprised.

    My diet has been all over the place in recent months, actually since the first lockdown but I love pasta and I'm going to find that hard to not have. I love fruit but unsure which are best or the ones to avoid. I have a treadmill that I bought on impulse last new year so I have made a new years resolution to use it! I don't want everyone in my village seeing me. I will invest in a blood testing thingamajig. I've been on Metformin for nearly 2 weeks but I'm still incredibly thirsty and urinating more but they both go together. Any idea when that will subside? I can't even tell you how many litres I'm drinking a day but it's a lot! I'll try not to worry and I'll join in and read the forums for sure. Just need to work out how to easily sign in on here ;)
     
    • Like Like x 1
  11. EllieM

    EllieM Type 1 · Moderator
    Staff Member

    Messages:
    6,387
    Likes Received:
    2,925
    Trophy Points:
    198
    Your starting hba1c corresponds to a 3 month average blood glucose of 16.5mmol/L. Once your blood sugar goes over 10, your kidneys start to get rid of sugar by excreting it in your urine, which is why you're so thirsty at the moment. As your blood sugar comes down to normal you should find the thirst decreases but it's hard to say when that will happen. If you get a meter (@Rachox has a list of affordable UK ones) then you'll be able to tell what is happening with your blood sugar.

    As for the signing in, are you doing this on a computer, on a tablet, on a phone or via the forum app? We may be able to make some suggestions to help. As regards finding your thread, if you click on your name at the top of a page, you should see a number of options, including "your content".

    Good luck.
     
    • Like Like x 3
    • Informative Informative x 1
  12. Andydragon

    Andydragon Type 2 (in remission!) · Moderator
    Staff Member

    Messages:
    3,317
    Likes Received:
    4,106
    Trophy Points:
    198
    Hi there,

    you have high blood levels and as @EllieM says, it’s hardly surprising you are still having the side effects of that. When those improve ideally the side effects will diminish. Hopefully you get the clinic soon

    Its a lot to take in, we know that, many of us have gone through the same thing, trying to understand how and why. My family has a history of T2 but I still am learning, but there is a path through

    blood testing will help but I’m afraid you mention one of the foods that is not so good and and that’s pasta. Fruit also tends not to be good, but there are some lower carb berries, so strawberries, raspberries are generally much better. Personally I have scales and try to keep track of the portion sizes but I have found from my own experience that carbs tend to be more moreish, I need more to feel satisfied so as others will mention, fats and protein will help even though it can seem against a lot of mainstream advice

    dietdoctor is a site I have seen recommended (https://www.dietdoctor.com/low-carb) and if you search for any keto foods that because they are low to no carbs should fit in too. It is a change, but you can have a highly varied and nutritious diet still.

    Lower carbs have helped a lot of us, and can take some adapting to as we are so used to being pushed towards “healthier carbs” which unfortunately aren’t much better. Everybody is different so one diet doesn’t fit all perfectly. I aim for below 150g of carbs a day, you will see some of the forums who are lower

    at the moment it might be that they advise more drugs and that’s your choice, getting those bloods down is important. There are options, and these forums can help
     
    • Like Like x 2
    • Winner Winner x 1
  13. Rachox

    Rachox Type 2 (in remission!) · Moderator
    Staff Member

    Messages:
    13,704
    Likes Received:
    17,959
    Trophy Points:
    298
    Thanks for the tag @EllieM and welcome to the forum @Ladystarbar

    Here’s some info on UK meters, and to be clear I have no commercial connections with any of the companies mentioned.


    HOME HEALTH have the Gluco Navii, which is a fairly new model and seems to be getting good reviews, links to the strips and the meter:

    https://homehealth-uk.com/all-produ...ose-meter-test-strips-choose-mmol-l-or-mg-dl/

    There are also discount codes for when you come to buy more strips - "navii5" and "navii10" will give you 20% off purchases of 5 packs of strips and 25% off 10 packs of strips respectively.


    Then they sell the older SD Code Free, details to be found here!

    https://homehealth-uk.com/all-products/codefree-blood-glucose-monitoring-system-mmoll-or-mgdl/

    Discount codes for the Code Free strips

    5 packs 264086

    10 packs 975833



    SPIRIT HEALTHCARE have a meter called the Tee2 + found here:

    https://shop.spirit-health.co.uk/co...e2-blood-glucose-meter?variant=19264017268793

    with the strips found here:


    https://shop.spirit-health.co.uk/co...py-of-tee2-test-strips?variant=19264017367097

    Some members have got a free Tee2+ by phoning up to order, with a large order of strips they often throw the meter in for free:

    Phone number 0800 8815423


    With more expensive strips is their Caresens Dual, this one has the advantage of glucose and ketone testing in one machine, it’s to be found here:

    https://shop.spirit-health.co.uk/collections/caresens-dual



    If there is a choice of units of measurement then ‘mmol/L’ are the standard units in the UK, ‘mg/dl’ in the US, other countries may vary.


    Don’t forget to check the box if you have pre diabetes or diabetes so you can buy VAT free. (for all meters and strips)
     
    • Like Like x 2
  14. Antje77

    Antje77 LADA · Moderator
    Staff Member

    Messages:
    13,955
    Likes Received:
    8,929
    Trophy Points:
    298
    Aside from your other questions, you can use the Watch Thread button so you'll get alerts when someone replies to that thread :)

    upload_2021-12-30_15-10-38.png
     
    • Useful Useful x 2
  15. catinahat

    catinahat Type 2 · Well-Known Member

    Messages:
    2,558
    Likes Received:
    14,966
    Trophy Points:
    198
    Got to admit I struggled with the thought that I could no longer have pasta, then someone asked if it was the pasta I was missing or the meals that I had pasta with. So I cooked some pasta drained it and ate some, no sauce, olive oil or cheese, It was tasteless and quite slimy. So now I still enjoy the meals, Bolognese, carbonara, lasagne etc,etc but now I leave out the tasteless high carb pasta.
     
    • Like Like x 2
    • Agree Agree x 2
  16. Chrisjr72

    Chrisjr72 Type 2 · Member

    Messages:
    21
    Likes Received:
    4
    Trophy Points:
    23
    A wise choice you could try wholemeal pasta, just a thought
     
  17. Antje77

    Antje77 LADA · Moderator
    Staff Member

    Messages:
    13,955
    Likes Received:
    8,929
    Trophy Points:
    298
    Which doesn't make much of a difference for most of us. The initial rise may be a bit slower, but numbers tend to stay higher a bit longer. In the end, it's about the same amount of carbs.
     
  18. jjraak

    jjraak Type 2 · Expert

    Messages:
    5,395
    Likes Received:
    10,191
    Trophy Points:
    198
    Nice idea.
    Like it.

    I think we found similar

    That it was the meal combo that needed changing to be more acceptable.

    To enjoy spaghetti bol I thought I needed some spaghetti substitute....so courghetti. (spiral of courgettes, for op )
    Which allowed me to annoy a pasta like spaghetti bol.

    And slightly differently with a curry the initial thoughts were replace rice, with cauliflower rice.

    A lot of faff,. Once I was advised to roast cauliflower, I stopped the rice simulation and just have the cauliflower as is, with curry piling alongside on plate .

    The same.?....no

    But like your experiment,
    a little mental juggling to accommodate a meal I enjoyed,

    that sadly T2D dictated I should avoid, that through the magic of an inventive mind is now firmly back on the menu list here.

    Many ways to eat better, if we look around

    Good luck @Ladystarbar

    Loads of advice on this forum.

    All ya gotta do is ask, if a search doesn't answer your question.

    Remember each of us has been somewhat in your shoes and we all progressed with a little help from forum members.

    Be surprised how many want to pass that "help" forward to someone else.
     
    • Agree Agree x 1
  • Meet the Community

    Find support, connect with others, ask questions and share your experiences with people with diabetes, their carers and family.

    Did you know: 7 out of 10 people improve their understanding of diabetes within 6 months of being a Diabetes Forum member. Get the Diabetes Forum App and stay connected on iOS and Android

    Grab the app!
  • Tweet with us

  • Like us on Facebook