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Forum posts on facebook

Discussion in 'Diabetes Discussions' started by daniT1D, Jan 22, 2015.

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  1. smidge

    smidge LADA · Well-Known Member

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    Hi everyone!

    I have skim-read this thread and although I really do understand the concerns, I think the whole debate really comes down to one issue - that the Facebook (and Twitter) pages are under the banner of diabetes.co.uk, so have credibility and seem 'official' in some way that sets them apart and yet they are not managed appropriately for that status. Fix that and you will go a long way to fixing the problem.

    It is not realistic to expect that posts from this forum will not be quoted and discussed on FB and Twitter diabetes groups. As has been mentioned many times on the thread, there are many many diabetes forums and blogs on the internet that use and quote the content of this forum; it is the biggest diabetes forum on the internet, so it attracts both positive and negative interest. There is one blog in particular that likes to conduct a 'diabetes war' with other blogs and forums - largely, I suspect, to drum up interest in what is otherwise quite a boring subject! It quotes and ridicules forum members all the time - sometimes it's vindictive, sometimes it's hilarious, sometimes it's just plain stupid, but it has a lot of useful information and some very knowledgeable contributors. I know diabetes is all very interesting to us, but really, very few people are that interested!

    You have no control of anything being said about you on the internet; ignore it, laugh at it but don't let it get you down and consume vast amounts of your thoughts and energy.

    Smidge
     
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  2. Robinredbreast

    Robinredbreast Type 1 · Oracle

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    These type of 'posts' do need to be reported so it can be alerted and then dealt with if warranted.

    But any questions or need anawers to these related posts, should, IMO, be addressed to anna, senior moderator/ Giverny.or @admin .
    Best wishes RRB
     
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  3. AnnieC

    AnnieC · Guest



    Likewise Andy it does not bother me if my posts are reposted nothing in them I would not want anyone else to see because I know this happens all the time on the internet I suppose in an ideal world we should be able to have the choice if we don't want this to happen to any posts we make anywhere but I don't think that would be possible
     
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  4. Sancho panza

    Sancho panza Type 2 · Well-Known Member

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    An excellent post @AndBreathe very well put
    Without the constant footfall of new blood into this place we are nothing
    It's by nature a support forum it / you all supported me when I first arrived and that's what we do best.
    A closed forum serves no purpose in this respect and I for one don't think I would be happy in such a place.

    There's some interesting debate going on here and whilst that's good we should remember that this place has cost us nothing to join and for the majority of us helped us manage our condition far better than the drs or nurses we see.
    For that I would like to thank whoever ultimately owns this forums and admin and all the mods for what they do for us on the forum and behind the scenes.
     
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  5. AnnieC

    AnnieC · Guest

    Yes you are right we don't have any control and we all know that anything we say on the internet can end up anywhere, the social networks like Facebook are full of reposted stuff. As you say anything we say on here even if reposted somewhere else is only going to be of interest to the diabetic community. If we worried about stuff we say on forums and social networks being reposted we would never use them
     
  6. adrian207

    adrian207 Type 2 · Well-Known Member

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    Could this T&C's text be hidden and only accessed by clicking on a check box. Without clicking the check box (which will now open the T&C's) the post will not be posted. Now I know that some people would just skip reading the T&c's or statements but at least they can't say they didn't know about them. Perhaps it could be incorporated in the "Post Reply" button so that a scroll down text box with the T&C's came up including another "Post Reply" button. In theory you will have read or not the T&C's and by pressing the new "Post Reply" button accepted them and posted your post.
    Now I'm no technical whizz by any means, probably don't know what I'm talking about but it's a thought . post reply.JPG CLICK ..................... T&C's
    sdjdfglksdglkjfdgn;ska;elrkan,d.f.gl
    flksdfkglskjalskdflaskglkgslfg;aslgs;dg;al
    fhkfflkjgfglkjdsfgkjsdfghkjdhl

    post reply.JPG CLICK............... Post now posted
     
  7. AnnieC

    AnnieC · Guest

    No we are not protected just because we belong to a forum, how could they prevent anyone coming on here to copy and paste something and repost it somewhere else
     
  8. AndBreathe

    AndBreathe I reversed my Type 2 · Expert
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    I would bet a very large sum of money, they wouldn't be read, and would receive poor feedback. People are lazy!! Nothing personal to anyone on here, but folks, online, want to achieve their objective with the minimum of clicks.

    In reality, that's effectively what happens now when someone registers with the site. That is the time I would say they are most vigilant; although we are hearing others feel that's not the case.
     
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  9. adrian207

    adrian207 Type 2 · Well-Known Member

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    Yep, fair point ;)
     
  10. urbanracer

    urbanracer Type 1 · Expert
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    Sorry @Kat100 I don't know why my response above has appeared inside your quote. It wasn't intentional.
     
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  11. Kat100

    Kat100 · Guest

    That is ok ....kat
     
  12. Kat100

    Kat100 · Guest

    Sadly it is awful for anyone as a viewing guest to read ....not a blog I support ....I don't like seeing people being laughed about ....
    It remains sad that there is no answer yet , regarding the FB discussions with non members giving their point of view ....
     
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  13. AndBreathe

    AndBreathe I reversed my Type 2 · Expert
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    Kat - I completely agree with you about not liking to see anyone being laughed at (unless they are comedians. of course), but it's not like that doesn't happen offline too? Online, these days, is merely an extension of off-line life. Horrible things happen offline too.

    One could argue that at least online, there is a record of the abuse or nastyness, if anyone wants or needs to do anything about it. The face to face spoken word is just as damaging, but between two people is difficult to prove what actually said whet, when and in what context.

    As for nothing done yet? It's the weekend. In the bigger organisational picture, this will be something to be dealt with, not a crisis requiring weekend working.

    For all we know, the decision makers may be reading all of this.
     
  14. Kat100

    Kat100 · Guest

    they are , that has been said ....

    I will stop posting at weekend then ....
     
  15. tim2000s

    tim2000s Type 1 · Expert
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    I think what I find frustrating is that people are concerned that others who they do not know may be laughing/being nasty at content of the forum that they have posted, and taking it personally, after the others have followed a link on Facebook. As has been said elsewhere, Facebook isn't the only place this happens, and frankly, I don't understand why people care so much. I get it isn't very nice, and before you knew about it, it didn't matter.

    Just because comments are slipping through the net and occasional unmoderated ones crop up from people you don't know about people they don't know shouldn't be a reason for what is generally a helpful and useful resource both on Facebook and as a forum.

    On a day to day basis, people do not walk on eggshells around diabetics, and we will all receive face to face comments about shooting up, etc. The only difference is that you don't know these people on the other side of the Internet. Unfortunately it is part and parcel if the human condition and we should all learn that it really shouldn't make a difference to us.

    Work with what you can control, and don't worry about what you can't. It really isn't worth it.
     
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  16. AndBreathe

    AndBreathe I reversed my Type 2 · Expert
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    That wasn't what I meant. The moderators moderate posts I believe, although that could be different for Facebook and Twitter. But I thought I might have seen noblehead this morning, and Anna's online right now:

    upload_2015-1-25_12-59-18.png

    I thought you meant we hadn't had any feedback on the bigger question yet.
     
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  17. anna29

    anna29 Type 2 · Well-Known Member
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    Please remember this post from Administrator here ...
    States clearly that the Diabetes.co.uk Facebook page is moderated .
     
  18. anna29

    anna29 Type 2 · Well-Known Member
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    Reminder of what to do if you wish to ...
     
  19. JTL

    JTL Type 2 · Well-Known Member

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    I show as online when I'm not cos I don't log out.
     
  20. urbanracer

    urbanracer Type 1 · Expert
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    Dear Mikey, how are things in Aus', I trust it's considerably warmer than it is in the UK right now?

    In your response above, I hope that you are not questioning my principles, but let's leave that to one side for the moment.

    I fail to see how freedoms have been impinged, we can all carry on doing today exactly what we've been doing since we joined DCUK. The only thing that's changed is that some forum members now have more knowledge, which from my point of view is no bad thing if it helps them to protect their own privacy. Today '"THEY" (your words not mine) are now empowered to choose what they post with a better understanding of internet privacy and the fact that in reality there is very little.

    It wasn't my intention to 'disguise' the argument in any way and perhaps I've been overly blunt in citing the T's and C's whilst responding to some people. For that I apologise. However it is still firmly my belief that DCUK have done nothing illegal or immorral. To many organisations, the reposting of web / forum content on FB is accepted practice. ( I have just replied to KAT100 about this). It's just the way things are in the world today and something that may once have been viewed as immoral may no longer be viewed in the same light. The world changes and time moves on.

    Having re-read the posts this morning I cannot help feeling that for many respondents, fear and loathing of FB comes across much more strongly in their arguments than does any concerns about privacy (with notable exceptions.) FB is a tool and with my family and friends being widely dispersed (at a global level) I use it to keep in touch. Indeed, I used it to announce that I had been diagnosed as a T1 to those I couldn't speak to personally. Of course, I also announced it to friends of friends and whoever wants to repost or share it, but then again why would anyone bother. And if some person wants to take the P155 and feels that they can get away with it with relative impunity, let them. It's no different to what happens out here in the real world from time to time apart from the fact that you are more likely to know about it.

    If you have personal information and want to keep it private, whether it's your bank details or the number of units you inject each day then don't post it up on the web. Again I'm being blunt here but that's just me. I wouldn't expect the firewalls on this place to prevent any 16yr old starting out in the world of computer science from gaining access to any of my unpublished personal information if they had a mind to. But that's a risk I knowingly accept to participate in such a forum.

    Keep your revs up.
     
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