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Forum posts on facebook

Discussion in 'Diabetes Discussions' started by daniT1D, Jan 22, 2015.

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  1. Kat100

    Kat100 · Guest

    I I was responding to smidge , Anna has already asked us to wait for further feedback ...I am happy with that ...
     
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  2. catherinecherub

    catherinecherub · Guest

    Just in case anyone is still confused.

    The Moderators who moderate this forum do not moderate DCUK on Facebook or Twitter.
     
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  3. Kat100

    Kat100 · Guest

    Thank you Catherine ....
     
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  4. anna29

    anna29 Type 2 · Well-Known Member
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    True and honest a point and fact .
     
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  5. satindoll

    satindoll Type 2 · Well-Known Member

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    I feel I should explain, I have no personal experience of FB, and therefore no particular beef with it per say, I have been invited to join a number of groups both family and friends but having viewed their pages I have not been tempted, I just don't get it.
    On the other hand I have seen first hand the distress and pain caused by the Brat Pack assaults on people which I find appalling, yes I know it happens everywhere but that is not a valid reason to ignore it, if I turn a blind eye to it how can I then with honesty complain about other wrongs.
    Someone once said "If one person turns their back and pretends they do not see, evil will rule the world" it may be trite but it has proven true many many times.
     
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  6. daniT1D

    daniT1D Type 1 · Well-Known Member

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    Exactly the same situation as me Hooked


    Sent from the Diabetes Forum App
     
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  7. AnnieC

    AnnieC · Guest

    I just wonder if people are objecting because the posts have been reposted on DCUK because we know they have not got a good name on here If they were on a Diabetes.co.uk Facebook page would you still object to reposts I don't think anyone who is not suffering from diabetes would be remotely interested in our posts so reposted they will still have only have a small audience
     
  8. ))Denise((

    ))Denise(( Type 2 · Well-Known Member

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    I'm coming into this discussion quite late, but having read the posts, I think the major mistake in this case was to link directly to the individual forum posts (and choose the wrong topics). It would have been better to just have a general link to the forum.

    I'm sure that there are many people out there who don't realise exactly how Facebook works.
    Firstly, it is a way of keeping in touch with friends and family with photos and what you are doing - you can keep this pretty tight with who can see this.
    Secondly, it is a way of joining with people who have similar interests to you in 'Groups' - these are probably people you don't want as friends (some of them may be) but you can interact with them - there are open and closed groups.
    Thirdly there are 'Like' pages. DCUK is one of these. Companies, people in the Entertainment industry, charities etc have this type of page. They exist to create interest in the subject, and if they are selling something, to generate more sales. If your friend shares something on Facebook then they are doing the marketing for the company.

    On a 'LIke' page anyone can write anything, they don't even need to have liked the page. The page owner needs a good Admin to remove all the weird, wacky and inappropriate comments (I have experience of this as an Admin of a page on a different subject), According to a post from Admin earlier in the thread, this is done.

    I've seen posts on some topics on the DCUK Facebook page where people haven't got a clue how to manage their diabetes, so posts about the forum are a good thing, in my opinion the topics used to highlight the forum should be chosen very carefully and be ones that would be useful to the newly diagnosed.

    I'm not one for shouting from the rooftops that I have Type 2, but my username could be anyone of many thousands so it wouldn't bother me if it was quoted.
     
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  9. poshtotty

    poshtotty Type 2 · Well-Known Member

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    Well said, @))Denise((

    It is the lack of discretion in the posting of sensitive threads which most of us are objecting to, I think.

    When I originally became a member here, I "liked" the DCUK Facebook page, but very quickly unliked it again when I realised my friends could see the pages I liked, and I didn't want everyone to know about my condition.
     
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  10. Emmotha

    Emmotha Type 1 · Well-Known Member

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    Hi

    Skimmed through.

    I am an avid social networker who uses FB, Instagram and Twitter. I noticed the links and also have an issue with it.
    I choose to upload my successful days to Instagram & Twitter where only other diabetics would look for key words. I don't discuss it on FB at all, except in closed groups.

    I discuss things on this forum that I don't with anyone else, problems with diabetes etc. I'm not stupid, I know people COULD come and look, but I didn't think they would be directed straight to it. To link a forum like this onto Facebook to help people is one thing, to link threads about stuff like a newly diagnosed lad's first date going badly is just disrespectful. If he wanted that on FB he'd put it there. I like many others felt safe here, and seeing the above thread linked on Facebook made me very uncomfortable

    People "like" the diabetes page on FB on a whim, it's not just people seeking advice and info like this forum is.


    I have requested my name to be changed and until that happens you will not hear from me again.
     
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  11. Heathenlass

    Heathenlass Type 1 · Well-Known Member

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    Just to clarify - threads on here were not on DCUK. They were linked by the diabetes.co.uk ( this organisations) Facebook page . Without the original posters of the threads( on here ) knowing . This has allowed Facebook members who may not be members on here to follow the link, read the thread, then make their own comments about it on Facebook independently from the original thread .

    Presumably those who view the Facebook site do have an interest in diabetes , as the Facebook group is clearly diabetes.co.uk , but many for whatever reason, do not become members on here.

    I hope this clears up who is who and doing what :rolleyes:

    Signy
     
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  12. AnnieC

    AnnieC · Guest

    Thanks I thought they had been reposted onto the DCUK Facebook page
     
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  13. Heathenlass

    Heathenlass Type 1 · Well-Known Member

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    I've said it before, and will say it again, hopefully for the last time ;):rolleyes:

    I see no useful function in linking to ANY thread on here from Facebook .

    If people are interested in joining the members on here, then they will do so. There are ample links on the Facebook page to enable them to do so if they so wish . Then having done that, they can read and reply to posts directly and openly, so the OP or anyone who has replied to that post can read and reply in kind .

    Linking to threads posted on here is wholly unnecessary in fulfilling the objectives of this organisation that have been given by Admin earlier in this thread . If it is deemed to be necessary, I would be asking why those objectives isn't being achieved on the merit of the other contents of the Facebook page ?

    Signy
     
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  14. poshtotty

    poshtotty Type 2 · Well-Known Member

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    Thank you for clarifying, Signy :rolleyes:
     
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  15. zand

    zand Type 2 · Master

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    Obviously you have not been stalked. Sometimes what you don't know about is important.
     
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  16. tim2000s

    tim2000s Type 1 · Expert
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    With the greatest of respect Zand, if you have been or are being stalked, then surely you would take extreme measures to hide your identity online? Even in a forum like this, whether you knew it to be public or not? That would be something which you can control.
     
  17. dannyw

    dannyw Type 1 · BANNED

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    It would be nice if admin or Giverny could respond quickly so this can be sorted and the thread can stop going round in circles.
     
  18. zand

    zand Type 2 · Master

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    Yes of course, but as you interact with other forum members bits of information trickle out. I wouldn't expect anyone to trawl the forum looking for me or anyone else, but if they were on FB and saw a link to a thread.......maybe a music thread.....where favourite songs are listed..who knows? I suppose I (for example) could tell a whole load of lies and say I like Motown when I don't, but then that wouldn't be empowering would it? I would still be a victim. There's a fine line between being very careful and being still imprisoned by the past.
     
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    #298 zand, Jan 26, 2015 at 9:28 AM
    Last edited by a moderator: Jan 26, 2015
  19. DeejayR

    DeejayR Type 2 (in remission!) · Well-Known Member

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    Facebook thinks I live in Swindon. I take pleasure in seeing every attempt by its little algorithms to interest me in Swindonian activities.
     
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  20. satindoll

    satindoll Type 2 · Well-Known Member

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    I hate to say I can't see any changes being made any time soon, its just not important enough for some, we often see people saying non diabetics just don't get how diabetes affects us, its the same with this, until you have been the target of the ridicule and nastiness that infects every corner of your life, and it does, you have no idea how worthless and unworthy you feel, crawling out of that pit of self hate takes a long time, worse still is that its only one word away and it doesn't take much to push you back in.
     
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