I'm determined to get my diabetes back on track

akindrat18

Well-Known Member
Messages
563
Type of diabetes
Type 2
Treatment type
Insulin
How are you feeling now @akindrat?
Must be good to work in an office rather than your previous jobs.
Coronavirus (COVID‑19
It does feel good. I've got set breaks and if I need to, I can take some time to test my blood sugars and take my medication.

I'd expect a 4.5 to feel like a full blown hypo for you, used as you are to higher numbers, so I'm not surprised by the sweating!
Can you get more teststrips shortly?

I can't till Monday.

Do you find it easier to keep fat lower instead of cutting carbs, perhaps?

I find it easier to have several small meals. But when it comes to family meals, it's just hard to plan out.
 
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akindrat18

Well-Known Member
Messages
563
Type of diabetes
Type 2
Treatment type
Insulin
Do you mean that from a weight-loss/dietary-compliance point-of-view?



Do you always eat with them?

From a dietary point of view and I don't always eat with them, only for when my mum is off work or is working an early. If I decide to cook for a night. I have to take into consideration what my parents want to have.
 
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Beating-My-Betes

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656
From a dietary point of view and I don't always eat with them, only for when my mum is off work or is working an early. If I decide to cook for a night. I have to take into consideration what my parents want to have.

From a diabetes perspective, small meals, eaten often seems counter-intuitive. The biggest reason is that it offers less time between meals for BS to return to normal.. Of course, the other perspective is that avoiding larger meals means potentially avoiding larger spikes. Also, eating larger meals can often leave people 'wiped-out', and less possessed of the energy to engage in exercise, for instance.

In this case (and bear in mind I'm not qualified to say), especially given your age, I'd be inclined to agree with your mother i.e that perhaps you should just concentrate on weight-loss.

That doesn't mean you can get away with really bad food choices. Rather, losing weight should not only bring with it a commensurate lowering of BS, but will also likely make you feel more inclined to bouts of exercise, which should compound the effect. More than that, it might make it easier to eat better at home, especially as your mum probably finds it easier to get her head around someone on a diet having special requirements when it comes to meal-times.

Lastly: Is there anything to stop you from preparing your own separate food, alongside what you're preparing for your family? That way, they feel no pressure to change what they want to do, and you still get to enjoy the company of the family dinner.
 

zand

Master
Messages
10,788
Type of diabetes
Type 2
Treatment type
Diet only
From a diabetes perspective, small meals, eaten often seems counter-intuitive. The biggest reason is that it offers less time between meals for BS to return to normal.. Of course, the other perspective is that avoiding larger meals means potentially avoiding larger spikes. Also, eating larger meals can often leave people 'wiped-out', and less possessed of the energy to engage in exercise, for instance.

In this case (and bear in mind I'm not qualified to say), especially given your age, I'd be inclined to agree with your mother i.e that perhaps you should just concentrate on weight-loss.

That doesn't mean you can get away with really bad food choices. Rather, losing weight should not only bring with it a commensurate lowering of BS, but will also likely make you feel more inclined to bouts of exercise, which should compound the effect. More than that, it might make it easier to eat better at home, especially as your mum probably finds it easier to get her head around someone on a diet having special requirements when it comes to meal-times.

Lastly: Is there anything to stop you from preparing your own separate food, alongside what you're preparing for your family? That way, they feel no pressure to change what they want to do, and you still get to enjoy the company of the family dinner.
NO! The first priority is for @akindrat18 to improve his BGs and to level out the peaks and troughs. Therefore he needs to do a DAFNE course and learn to carb count so that he can match his Novorapid doses with the carbs he consumes.

Weight loss whilst desirable is not the most important issue. Akindrat18 cannot afford to ignore the high BGs in the hope that weight loss will sort them out.
 
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lucylocket61

Expert
Messages
6,435
Type of diabetes
Type 2
Treatment type
Diet only
From a diabetes perspective, small meals, eaten often seems counter-intuitive. The biggest reason is that it offers less time between meals for BS to return to normal.. Of course, the other perspective is that avoiding larger meals means potentially avoiding larger spikes. Also, eating larger meals can often leave people 'wiped-out', and less possessed of the energy to engage in exercise, for instance.

In this case (and bear in mind I'm not qualified to say), especially given your age, I'd be inclined to agree with your mother i.e that perhaps you should just concentrate on weight-loss.

That doesn't mean you can get away with really bad food choices. Rather, losing weight should not only bring with it a commensurate lowering of BS, but will also likely make you feel more inclined to bouts of exercise, which should compound the effect. More than that, it might make it easier to eat better at home, especially as your mum probably finds it easier to get her head around someone on a diet having special requirements when it comes to meal-times.

Lastly: Is there anything to stop you from preparing your own separate food, alongside what you're preparing for your family? That way, they feel no pressure to change what they want to do, and you still get to enjoy the company of the family dinner.
This advice is not suitable, sorry. With the combination of very high blood glucose levels and finding his best insulin levels. Weight loss can come later. Avoiding the highs and lows as much as possible, working with the kitchen arrangements he has to deal with, is the priority for @akindrat18 for now.
 

lucylocket61

Expert
Messages
6,435
Type of diabetes
Type 2
Treatment type
Diet only
Coronavirus (COVID‑19
It does feel good. I've got set breaks and if I need to, I can take some time to test my blood sugars and take my medication.



I can't till Monday.



I find it easier to have several small meals. But when it comes to family meals, it's just hard to plan out.

Am I right that you have only 4 test strips until Monday sometime? Your medical people need to know, as an insulin dependent diabetic, that you need more. Being type 2 diabetic doesn't change your need to test.

Do you drive?
 

akindrat18

Well-Known Member
Messages
563
Type of diabetes
Type 2
Treatment type
Insulin
Well I did get sent home from work just now because of my high blood sugar. I was on the phone to the diabetes nurse as well and she suggested that I increase all of my Novorapid injections to 40 units and my Tresiba injection to 88 units.

I asked about carb counting and I've been put on a waiting list for a course, but she doesn't even know when or where the next one will be.

Also, I've managed to order a 2 week free trial for the Libre Sensor.

Am I right that you have only 4 test strips until Monday sometime? Your medical people need to know, as an insulin dependent diabetic, that you need more. Being type 2 diabetic doesn't change your need to test.

Do you drive?

They already know and they don't seem too fussed about it. I could get more tomorrow by 1pm as my testing strips are £18 from Amazon for a pack of 50.

I don't drive yet, but I've been taking lessons.
 
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zand

Master
Messages
10,788
Type of diabetes
Type 2
Treatment type
Diet only
Well I did get sent home from work just now because of my high blood sugar. I was on the phone to the diabetes nurse as well and she suggested that I increase all of my Novorapid injections to 40 units and my Tresiba injection to 88 units.

I asked about carb counting and I've been put on a waiting list for a course, but she doesn't even know when or where the next one will be.

Also, I've managed to order a 2 week free trial for the Libre Sensor.



They already know and they don't seem too fussed about it. I could get more tomorrow by 1pm as my testing strips are £18 from Amazon for a pack of 50.

I don't drive yet, but I've been taking lessons.
Well done for asking about DAFNE. I've just looked and the online one may be better for you as you wouldn't need to travel or have time off work. It's called Remote DAFNE and there shouldn't be a waiting list as it's online. Maybe your nurse hasn't heard of this one, so next time you speak to her you could ask about the online version.
 

lucylocket61

Expert
Messages
6,435
Type of diabetes
Type 2
Treatment type
Diet only
Well I did get sent home from work just now because of my high blood sugar. I was on the phone to the diabetes nurse as well and she suggested that I increase all of my Novorapid injections to 40 units and my Tresiba injection to 88 units.

I asked about carb counting and I've been put on a waiting list for a course, but she doesn't even know when or where the next one will be.

Also, I've managed to order a 2 week free trial for the Libre Sensor.



They already know and they don't seem too fussed about it. I could get more tomorrow by 1pm as my testing strips are £18 from Amazon for a pack of 50.

I don't drive yet, but I've been taking lessons.
How many test strips a month are you being prescribed? Do you test before your driving lessons?

I understand that insulin dependent diabetes, including type 2, requires certain testing before driving. Even on a provisional license.

Does your driving instructor know you are on meds which make hypos possible? All this may help support you getting enough test strips.
 

zand

Master
Messages
10,788
Type of diabetes
Type 2
Treatment type
Diet only
They already know and they don't seem too fussed about it. I could get more tomorrow by 1pm as my testing strips are £18 from Amazon for a pack of 50.

Well no, they wouldn't be too fussed about it. It's not their health at risk. Nevertheless you need them as you are on insulin and they should provide them.
 

Antje77

Oracle
Retired Moderator
Messages
19,392
Type of diabetes
LADA
Treatment type
Insulin
I asked about carb counting and I've been put on a waiting list for a course, but she doesn't even know when or where the next one will be.
You might want to have a look at the Bertie course. I haven't tried it (doesn't seem to work in my country, or at least it didn't a couple of years back when I tried) but some of our members seem to have good experiences with it, and as far as I know it's free and you can just sign up yourself. I think @ert has done it, she might be able to tell you more about it.
Here's the website, I'd just sign up and see what it's about if I were you. https://www.bertieonline.org.uk/
Also, I've managed to order a 2 week free trial for the Libre Sensor.
Great!
It can be a wonderful tool, both to see if your basal insulin is at about the right dose, and to see where you want to adjust your carbs or your insulin.
I'd suggest logging your food (amount of carbs) and insulin dose in the app, so you can start to find patterns.
They already know and they don't seem too fussed about it. I could get more tomorrow by 1pm as my testing strips are £18 from Amazon for a pack of 50.
If it happens regularly that you run out of strips and you have to buy them yourself, you might want to get another meter with cheaper strips. @Rachox knows all about more cost effective test strips.
Is this a GP nurse or a diabetes specialist nurse? Are you under GP care or are you being seen by a hospital diabetes team and an endocrinologist?
Does your driving instructor know you are on meds which make hypos possible? All this may help support you getting enough test strips.
Agree!
 
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Rachox

Oracle
Retired Moderator
Messages
15,873
Type of diabetes
I reversed my Type 2
Treatment type
Tablets (oral)
Thanks for the tag @Antje77 , here’s some info that you may find useful @akindrat18 , and to be clear I have no commercial connections with any of the companies mentioned.


HOME HEALTH have the Gluco Navii, which is a fairly new model and seems to be getting good reviews if you use this link and select the meter plus 5 packs of strips and then add the code dcuk (all lower case) at check-out, you’ll get the meter free. So total cost for meter + 5 x 50 strips will be £31.76.


https://homehealth-uk.com/all-produ...ose-meter-test-strips-choose-mmol-l-or-mg-dl/



Links to the strips and the meter for future orders:

https://homehealth-uk.com/all-produ...ose-meter-test-strips-choose-mmol-l-or-mg-dl/

There are also discount codes for when you come to buy more strips - "navii5" and "navii10" will give you 20% off purchases of 5 packs of strips and 25% off 10 packs of strips respectively.


Then they sell the older SD Code Free, details to be found here!

https://homehealth-uk.com/all-products/codefree-blood-glucose-monitoring-system-mmoll-or-mgdl/

Discount codes for the Code Free strips

5 packs 264086

10 packs 975833



SPIRIT HEALTHCARE have a meter called the Tee2 + found here:


https://shop.spirit-health.co.uk/co...e2-blood-glucose-meter?variant=19264017268793

with the strips found here:



https://shop.spirit-health.co.uk/co...py-of-tee2-test-strips?variant=19264017367097

Some members have got a free Tee2+ by phoning up to order, with a large order of strips they often throw the meter in for free:

Phone number 0800 8815423


With more expensive strips is their Caresens Dual, this one has the advantage of glucose and ketone testing in one machine, it’s to be found here:

https://shop.spirit-health.co.uk/collections/caresens-dual



If there is a choice of units of measurement then ‘mmol/L’ are the standard units in the UK, ‘mg/dl’ in the US, other countries may vary.


Don’t forget to check the box if you have pre diabetes or diabetes so you can buy VAT free. (for all meters and strips)
 
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akindrat18

Well-Known Member
Messages
563
Type of diabetes
Type 2
Treatment type
Insulin
Hey guys, I've been away for a few days and it's down to the fact that I got admitted into the hospital early Saturday morning. My blood sugar on Friday at 6pm was at 12.4 and I felt good. Then I had some minted lamb chops, cauliflower and broccoli (gave the roast potatoesto my dog). Tested again at 9pm, my blood sugar was at 8.6.

Next thing I remember after going bed was waking up at 3am on the floor covered in sweat. Eventually an ambulance came and sorted me out as my blood sugar was at 3.3.

I was in hospital all weekend and felt like ****. They told me that I should have consulted with my gp or diabetes nurse before going the gym and trying to start a new diet, just because I'm on such high dosage levels.

Anyways, my blood sugars the past two days have been between 8 and 20. I'm due to see a dietician tomorrow morning to discuss what to do next in terms of my diet, exercise and blood sugar.
 

Pipp

Moderator
Staff Member
Messages
10,633
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Was just wondering how you were doing, @akindrat.
Sorry you have been so ill. Hope you can get the dietician to arrange some info / training on carb counting and calculating correct amount of insulin to match. Also, pethaps, recommendation for continuous glocose monitoring and insulin pump?
stay strong. Keep posting .
 
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Antje77

Oracle
Retired Moderator
Messages
19,392
Type of diabetes
LADA
Treatment type
Insulin
I was in hospital all weekend and felt like ****. They told me that I should have consulted with my gp or diabetes nurse before going the gym and trying to start a new diet, just because I'm on such high dosage levels.
I'm so sorry it went so wrong!
Glad you'll get to see a dietitian though, this is why you need to learn how to adjust your insulin to your carbs.
Your evening meal had hardly any carbs, but your usual dose was meant to cover the high carb meal you usually have.

I hope you're starting to feel better now, have a big hug!
 

akindrat18

Well-Known Member
Messages
563
Type of diabetes
Type 2
Treatment type
Insulin
I'm so sorry it went so wrong!
Glad you'll get to see a dietitian though, this is why you need to learn how to adjust your insulin to your carbs.
Your evening meal had hardly any carbs, but your usual dose was meant to cover the high carb meal you usually have.

I hope you're starting to feel better now, have a big hug!

I'm feeling a bit better, but I've now had a dodgy stomach since Sunday.

Was just wondering how you were doing, @akindrat.
Sorry you have been so ill. Hope you can get the dietician to arrange some info / training on carb counting and calculating correct amount of insulin to match. Also, pethaps, recommendation for continuous glocose monitoring and insulin pump?
stay strong. Keep posting .

This is the problem that I have, I've always been on a fixed dosage of insulin, the doctors and my diabetes team are reluctant to try anything else. Plus, trying to get in touch with a diabetes nurse is hard enough as I have to ring them and leave a message everytime I do and with being at my new job, I can't always answer.
 

Antje77

Oracle
Retired Moderator
Messages
19,392
Type of diabetes
LADA
Treatment type
Insulin
This is the problem that I have, I've always been on a fixed dosage of insulin, the doctors and my diabetes team are reluctant to try anything else.
Is this an endocrinologist and a hospital diabetes nurse, or a GP and a GP diabetes nurse?
 

Ronancastled

Well-Known Member
Messages
1,235
Type of diabetes
Type 2
Treatment type
Diet only
@akindrat18
My first time to post here but honestly you'll end up getting better advice here than any state sponsored course.
I've read you've a CGM coming & that's going to be amazing
Your body is in a crazy flux right now between lifestyle, diet & dosage changes, hang in there.

There are T1s here who are masters of their craft who will help you every step of the way.
Keep in touch, let this thread be your legacy to others.
 

akindrat18

Well-Known Member
Messages
563
Type of diabetes
Type 2
Treatment type
Insulin
Is this an endocrinologist and a hospital diabetes nurse, or a GP and a GP diabetes nurse?

It's all of them, since I've been on insulin for the past 6 or 7 years now. All I've been on is a fixed dosage of insulin and nothing else.

I've only ever been on Novorapid and Tresiba, I got put on Victoza 3 years ago though. Now they're thinking of scrapping the Victoza for a once weekly injection.