NoKindOfSusie
Well-Known Member
- Messages
- 427
- Type of diabetes
- Type 1
- Treatment type
- Insulin
I'm not rejecting any rules, I'd be terrified to think I hadn't followed the rules to the letter and doing that is pretty much my day to day life. What I was saying is that the last thing I need is a lecture on how scary the future is, I am under no illusions there.
The point I have been trying to make is that the information you're given is just utter junk. They tell you one thing, like be between 5 and 7, then you fail, because it is impossible, actually and fundamentally impossible, for anyone, and it is totally spirit crushing to realise that you cannot ever hope to do a good job n of this. Then you go in with your numbers and show them you can't do it, and that you have failed, and they go oh well done that's great keep it up. And it is killer, because now not only are you not getting it right, with all the scary stuff that goes with that, your total commitment and work towards getting it exactly right, all that effort and endlessly trying to figure out more and more ways of getting it better though you know it isn't really working, is a total waste because even though you have failed they just go, oh that's great carry on. It's like they're passive aggressively saying ha ha, that thing you thought mattered, it's all a sick horrible joke because guess what you pass anyway. It's like studying a billion years for an exam and then being told, oh, well, everyone passes anyway. Why do they do that? It's like they're used to talking to ten year olds.
Apart from all that you end up with no idea what the real targets are, how the risk of complications changes depending on how badly you are doing, no idea what to do and just dumped with a bunch of insulin and some vague instructions that contradict themselves and scared that everything you do from the second you wake up to the second you go to sleep is slowly killing you and even if you knew the limits there is nothing you can do about it anyway.
I am not really interested in a bunch of people saying oh I'm a hundred years old and nothing bad ever happened to me. Or I know someone who whatever. That is anecdotal evidence and I am not interested.
The point I have been trying to make is that the information you're given is just utter junk. They tell you one thing, like be between 5 and 7, then you fail, because it is impossible, actually and fundamentally impossible, for anyone, and it is totally spirit crushing to realise that you cannot ever hope to do a good job n of this. Then you go in with your numbers and show them you can't do it, and that you have failed, and they go oh well done that's great keep it up. And it is killer, because now not only are you not getting it right, with all the scary stuff that goes with that, your total commitment and work towards getting it exactly right, all that effort and endlessly trying to figure out more and more ways of getting it better though you know it isn't really working, is a total waste because even though you have failed they just go, oh that's great carry on. It's like they're passive aggressively saying ha ha, that thing you thought mattered, it's all a sick horrible joke because guess what you pass anyway. It's like studying a billion years for an exam and then being told, oh, well, everyone passes anyway. Why do they do that? It's like they're used to talking to ten year olds.
Apart from all that you end up with no idea what the real targets are, how the risk of complications changes depending on how badly you are doing, no idea what to do and just dumped with a bunch of insulin and some vague instructions that contradict themselves and scared that everything you do from the second you wake up to the second you go to sleep is slowly killing you and even if you knew the limits there is nothing you can do about it anyway.
I am not really interested in a bunch of people saying oh I'm a hundred years old and nothing bad ever happened to me. Or I know someone who whatever. That is anecdotal evidence and I am not interested.