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Newly diagnosed type 2

Sar91

Newbie
Messages
3
Hi all,

Just looking for reassurance and advice.
I’ve only been diagnosed for three days but I’ve had symptoms for around a month or so.
(Unbelievable thirst and constant trips to the bathroom and lost 5kg in a matter of weeks.)
Attended The gp on Monday who said I had a blood glucose reading of 18 and sent directly to a+e.
At the hospital I received fluids and blood glucose still refused to come down. One shot of insulin and it came down to 10 which I read was still pretty high.
Kept in overnight and next day discharged with metformin 500grams 2x per day and a brief chat with the diabetic nurse.
I feel like I’ve just been thrown into the deep end and no idea what to do.
Blood glucose is still reading between 12-15 however I was told this was to be expected for a week or so?
Could I be type 1 instead as I’m not responding to metformin ( family history with type 1)
I’ve drastically changed my diet and just feel very overwhemled with the lack of information.
Any insights or information would be gratefully received.
 
It takes the body a few weeks to adjust to the metformin it takes a while before you will see the results if you've started cutting down on the carbs then you might just see improvements in a few days. Don't panic I'm sure our resident experts will respond soon with some starting advice.
A reading of 10mmol is not to bad they like us to between 4-7
Took me a little over a month before seeing some results unfortunately my bloods stayed in the 20's so I went to insulin .
I agree they don't give you enough info luckily we have the net for great resource's stay tuned to this forum, read some of the posts you will find just about everything you need on diabetes here.
Good luck and don't let it beat you up
Tagging @daisy1 for your starter info
 
Hi and welcome to the forum,

Metformin is a mild drug. It doesn't do a great deal to bring blood glucose levels down, although it helps a little bit, and it certainly won't work in such a short time. If you are Type 2, diet is the key. That means reducing carbohydrates by a lot (not just sugary stuff)

Have you any idea which tests you had in hospital? Did they test you for Type 1? You really need to know which tests you had, and what the results were, so you know where you stand and what you need to do to help yourself. If you have no idea, I suggest you contact your GP or nurse and ask. Meanwhile, I';m tagging @daisy1 who will come along with her very useful information pack for newly diagnosed.
 
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@Sar91

Hello Sar91 and welcome to the Forum :) Here is the Basic Information we give to new members and I hope you will find it useful. Ask as many questions as you need to and someone will be able to help.

BASIC INFORMATION FOR NEW MEMBERS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 235,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:
  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.
Take part in Diabetes.co.uk digital education programs and improve your understanding. Most of these are free.

  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why

  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
 
Hello and thank you for the information and responses!!!

The internet is great but at the same time really giving me anxiety! Just checked after dinner and level was 15! Not sure what I’ve done wrong. I had an avocado and tomatoe salad. A beef patty wrapped in salad as the “bread”

I have a horrible fear I’m a type 1 ( terrified of needles and watched my grandfather slip into comas through bad diabetic management)

Also the thirst ! Is there anything that would help aside from continuing to cuzzle liters !
 
Hello and thank you for the information and responses!!!

The internet is great but at the same time really giving me anxiety! Just checked after dinner and level was 15! Not sure what I’ve done wrong. I had an avocado and tomatoe salad. A beef patty wrapped in salad as the “bread”

I have a horrible fear I’m a type 1 ( terrified of needles and watched my grandfather slip into comas through bad diabetic management)

Also the thirst ! Is there anything that would help aside from continuing to cuzzle liters !

Have you made any attempt to find out which tests you had and what the results are? Without this knowledge you are blind to what is happening.

That 15 was clearly high, but what were you before you ate, and how long after first bite did you test?
 
Have you made any attempt to find out which tests you had and what the results are? Without this knowledge you are blind to what is happening.

That 15 was clearly high, but what were you before you ate, and how long after first bite did you test?

I didn’t think to test prior to eating but I’ve been consistant between 12-15 when checking. I check straight after eating and again just now roughly two hours and it’s gone down to 13.


I asked numerous times in the hospital which type of diabetes I had they said due to my age it’s most probably type 2. The discharge report says bloods clear but this could be tests not related to the diabeties.
 
I didn’t think to test prior to eating but I’ve been consistant between 12-15 when checking. I check straight after eating and again just now roughly two hours and it’s gone down to 13.


I asked numerous times in the hospital which type of diabetes I had they said due to my age it’s most probably type 2. The discharge report says bloods clear but this could be tests not related to the diabeties.

You must check before eating and 2 hours after first bite. That is the recommended timing. Everyone spikes after eating, it is the amount of rise from before to the 2 hour mark that counts.

Asking which type several times is a bit meaningless. You need to ask which tests you had and what the results were.
 
A lucky type two like me could expect to see BG levels dropping after only a few days on low carb, I tried to keep my 2 hour after starting to eat level at 8 or less - but I went a couple of days without any carbs at all to try to wring out the reserves.
Once I got to 8 I stayed at that level of 50 gm of carbs as I knew that was the amount I was eating to keep my weight steady - but the numbers gradually dropped down, bounced about a bit and then went even lower. Hopefully that is what you will see - though Metformin prevents the liver releasing its glucose stores so it might not go as smoothly for you, but it ought to happen in the end. If you don't see improvements then your doctor might need to reconsider the diagnosis.
 
Hi. The right diagnosis can be difficult but the two tests GAD and c-peptide can help. I would carry on with the Metformin but it won't make much difference and the low-carb diet. If the BS remains too high then there are tablets such as Gliclazide which may help but be suspicious of T1 if the low-carb doesn't help much and you are slim. Age doesn't matter and I don't agree with the hospital on that as they are proffering a dated view of types and age. Don't worry about insulin and needles. They are now 4mm long and very thin; most times the injections are painless particularly as the injection points get a bit deadened over time.
 
It's a worrying time for you but you have come to the right place whether you have type 1 or type 2. The help and advice on here will be so beneficial for you and guide you along. Once you know then the path can be paved. The road to much better health.
 
@Sar91 You've come to a good place that has given me a wealth of invaluable assistance when I was in the dark too. Firstly, don't worry too much just yet. Mostly it takes several weeks for these high reading to come down and that will only occur with strict dietary observance. Read through Daisy's notes about what foods are unsuitable for diabetics.

Without dietary control the Metformin will do zip. Metformin works by moderating the release of glucose by our livers and a mild increase in insulin sensitivity. It cannot compensate for what you put in your belly. Seriously cut down on carbohydrate based foods. Really, really seriously. For instance, I have only 20 to 30g of carbs per meal and even that is higher than some people here but lower than some too.

One last but very important thing. Are you overweight ? If so, lose it. It really does have an impact. Sometimes not enough attention is given to this aspect.

Good luck,
Glenn
 
Please insist on more tests if they have not been done. The weight loss and thirst are of concern. It is a myth that older people do not get type 1. I was 54 and a Facebook thread on the type 1 site started today already has 57 people stating their age. All over 35 and many in their 50s.
 
Hi all,

Just looking for reassurance and advice.
I’ve only been diagnosed for three days but I’ve had symptoms for around a month or so.
(Unbelievable thirst and constant trips to the bathroom and lost 5kg in a matter of weeks.)
Attended The gp on Monday who said I had a blood glucose reading of 18 and sent directly to a+e.
At the hospital I received fluids and blood glucose still refused to come down. One shot of insulin and it came down to 10 which I read was still pretty high.
Kept in overnight and next day discharged with metformin 500grams 2x per day and a brief chat with the diabetic nurse.
I feel like I’ve just been thrown into the deep end and no idea what to do.
Blood glucose is still reading between 12-15 however I was told this was to be expected for a week or so?
Could I be type 1 instead as I’m not responding to metformin ( family history with type 1)
I’ve drastically changed my diet and just feel very overwhemled with the lack of information.
Any insights or information would be gratefully received.


You've only been diagnosed for a few days; it'll take a while for your liver to stop trying to compensate for the lowering numbers due to diet, (it thinks it's helping by dumping glusoce into the bloodstream), so don't give up just yet! Do try to find out what tests were done, and if you're missing C-Peptides and GAD, ask for them if no-one can give you a straight answer about type.

Test before a meal and 2 hours after. If your bs doesn't rise more than 2 mmol/l, you're good. That meal was fine and can be repeated . It'll go down gradually if you're a T2, but going low carb/high fat will make an impact. A bigger one, I dare say, than Metformin or Gliclazide.

I hit 18 (I had a tester already because our cat is a T3c), and didn't go to A&E, wasn't put on insulin or anything, while the 18 was after a, for me, rather low carb lunch. Normally there would've been more sugars in there. I've never seen the meter hit 24 or something, but that's because I was too scared to have my usual 5 scoops of sugar in my latte, or have milk chocolate spinkles on my bun (a common dutch meal) after hitting 18 after a mere 2 buns with cheese. I was high. Now I'm low. Took a while, but it's not a sprint, it's a marathon.

You don't just feel like you've been thrown in the deep end of the pool: you have been! Like so many of us. It's daunting, it's scary, and it's something we have to learn to live with. After little over 2 years with T2, I can tell you that it's quite do-able. I struggled a lot at the start, with little guidance (and what guidance I did get tried to steer me wrong.). If I'd found this place sooner, I would've been med-free and in the non-diabetic range a lot quicker than 3 months in. You're in a good place. Ask questions when/if you have them, keep your head up, and know you're not alone. Diabetes is managable. We're all doing it. So can you.

Good luck!
Jo
 
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