OK Rant, apologies in advance

filly said:

Just had the Diabetes nurse ring me. Said I had done very well and didn't need Metformin anymore. Blood results so good.
Yes I know.... it is taking a lot of hard work says I....
She said it isn't all diet and hoped I was exercising.... I said have you seen me lately!!!!!!
Explained I was still using my gutter frame and needed the car to get off the hill into town (up the hill) all one way down.
Then she asked me what I was eating and told me what I needed to eat.... at that point I lost it.
She was quite sweet and didn't lose her cool.
I have to see the Doctor tomorrow afternoon about something else..... am likely to still be fuming.
I have known for a long time what I can and can't eat, irrespective of what they want us to eat. Yes would love to eat three fruits a day but that is what partly put me in the zone to start off with.
Apologies and hoping you are not getting unwanted advice......

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I totally agree with everything you have ranted about.
Never mind, our diabetes are different.
How we got here is different.
Our dietary requirements are different.
Our tastes are different.
Our intolerance are different.
Our lifestyles are different.

Sometimes you wonder if it is the text book or the NICE recommendations that are the issues rather than treating the patient.
What works for me, might not work for you.
Even though we have the same diagnosis!
Aaaaaaggggghhhhh!

See what you have done now @filly

filly said:

Just had the Diabetes nurse ring me. Said I had done very well and didn't need Metformin anymore. Blood results so good.
Yes I know.... it is taking a lot of hard work says I....
She said it isn't all diet and hoped I was exercising.... I said have you seen me lately!!!!!!
Explained I was still using my gutter frame and needed the car to get off the hill into town (up the hill) all one way down.
Then she asked me what I was eating and told me what I needed to eat.... at that point I lost it.
She was quite sweet and didn't lose her cool.
I have to see the Doctor tomorrow afternoon about something else..... am likely to still be fuming.
I have known for a long time what I can and can't eat, irrespective of what they want us to eat. Yes would love to eat three fruits a day but that is what partly put me in the zone to start off with.
Apologies and hoping you are not getting unwanted advice......

Click to expand...

Nobody knows your condition, lifestyle, challenges better than you - least of all a practice nurse who has to take care of many people and only has a limited set of tools and knowledge.
I just take what seems useful to me and ignore the rest and if there is a real question I have, I go straight to the GP and if needed ask for a specialist/DSN/endo meeting. I've not met the practice nurse for over a year now and have good meetings with the GP/endo.

@filly You could always show off and have cucumber, courgette, aubergine, tomato, sweet pepper, avocado, as they are fruits but low carb.
Unfortunately most HCPs seem clueless about the care and feeding of Humans.
I trundle around on my mobility scooter these days as there is nowhere nice to walk in the immediate area around our house, but I can take myself off to the beach or one of several parks I could get to, but not back again unless it was a very good day. I would not want to be bored. If my feet or knees are bad, I can still get about. I seem to be either in the process of getting better or with some niggling pain that needs to be watched all the time these days - due to the AZ Covid jab rather than diabetes, but at least it is just a nuisance now, not a reason to make my will.

filly said:

Just had the Diabetes nurse ring me. Said I had done very well and didn't need Metformin anymore. Blood results so good.
Yes I know.... it is taking a lot of hard work says I....
She said it isn't all diet and hoped I was exercising.... I said have you seen me lately!!!!!!
Explained I was still using my gutter frame and needed the car to get off the hill into town (up the hill) all one way down.
Then she asked me what I was eating and told me what I needed to eat.... at that point I lost it.
She was quite sweet and didn't lose her cool.
I have to see the Doctor tomorrow afternoon about something else..... am likely to still be fuming.
I have known for a long time what I can and can't eat, irrespective of what they want us to eat. Yes would love to eat three fruits a day but that is what partly put me in the zone to start off with.

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Stand your ground, @filly! Give no quarter!

Well done for not being dictated to. It never ceases to amaze me as to the approach taken by some DN's, peddling their nonsense despite evidence to the contrary being right before their eyes.

filly said:

hoping you are not getting unwanted advice......

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Chance would be a fine thing! I had blood tests last week, 6 months on from my previous round of tests. Hba1c down to 29, puts me in remission, plus improved results across the board. Within normal ranges on every result now, which is a drastic change to 10 months ago.

So, you might wonder, what did my DN say about this? Nothing. Absolute silence. I still haven't heard from her 9 days later. It annoyed me for the first few days, then I had a mental breakthrough and the rage subsided instantly - their advice has been zero help so far, literally nothing they've said has been useful or shaped my approach. I've done it all off my own back, with the help of this forum, so why even bother giving them a second thought?

Anyway, keep up the great work and be proud of your achievements, Filly!

filly said:

Thanks you have just cheered me up. I agree wholeheartedly

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I aim to please.
Only occasionally miss.

when I tell off the wagon during covid, and found to be on the cusp of T2, I had my annual review, new dsn, no research on my other conditions, and ploughed on with the usual diabetes advice.
I then asked her to refer to my health information.
she wasn't even aware of RH.
or the implications.
And it wasn't the first time.
my surgery has changed so much in the thirty odd years we have been with it.
And the many doctors that have been indifferent to what it is all about.
One or two have been really intrigued. And discussed it.I
I just let them all, get on with it.

Lamont D said:

indifferent

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That's THE word.

Outdated methods
Cult like dogma
Don't see the individual

Like @Paul_

I stopped following what I was told was 'good' for me
(It wasn't)

Lost over 3 stone, lipids all moved into excellent or ideal, and went from 57 HBA1c to 40 HBA1c in just over 6 months

Surgery sent a " well done" via text at result.

And a total of '0' seconds asking how I did it..

Can only assume all type 2's at my surgery had similar results ..

Well done @filly ....
On Great results and ignoring the 'advice'.

Hug for the gutter frame .

Spend 3 months on a gutter crutch .
Hope it's not needed for long.

I had a medication review by a pharmacist at the drs practice last year. First of all they all seem to talk to you like your a child and as she’s going through each of my medications then she asks if I’ve ever had a hypo when I answered yes she then proceeded to ask if I know how to treat a hypo! I was gobsmacked it seems such a stupid question it’s not like I’ve been recently diagnosed, I think it’s maybe 30 years.

filly said:

Just had the Diabetes nurse ring me. Said I had done very well and didn't need Metformin anymore. Blood results so good.
Yes I know.... it is taking a lot of hard work says I....
She said it isn't all diet and hoped I was exercising.... I said have you seen me lately!!!!!!
Explained I was still using my gutter frame and needed the car to get off the hill into town (up the hill) all one way down.
Then she asked me what I was eating and told me what I needed to eat.... at that point I lost it.
She was quite sweet and didn't lose her cool.
I have to see the Doctor tomorrow afternoon about something else..... am likely to still be fuming.
I have known for a long time what I can and can't eat, irrespective of what they want us to eat. Yes would love to eat three fruits a day but that is what partly put me in the zone to start off with.
Apologies and hoping you are not getting unwanted advice......

Click to expand...

I have been diabetic for 15 years and had a diabetic nurse trying to lecture me and tell me I can’t have sugar in my tea the 2/3 cups I have I said listen who are you the food police I am well aware what I should and should not eat I don’t need you or anyone else to tell me I am not one for a lot of sweet stuff and cake and stuff but last week it was my granddaughter birthday and I had a piece of her cake I will eat the odd thing like that so don’t even try to say and can’t eat this and that she was very apologetic and said well I need to tell you I said no you don’t need to tell me you can suggest things and I appreciate it’s your job but don’t u realise I know what I am doing subject closed

We’ll done for coming off metfomin I’m on jardiance and I hope to do the same was diagnosed six months ago but I struggle with my food choices and need to be more controlled any advice would be welcomed the nurse just showed me a picture of a divided plate and how to diet mainly low carbs
Ang

filly said:

Just had the Diabetes nurse ring me. Said I had done very well and didn't need Metformin anymore. Blood results so good.
Yes I know.... it is taking a lot of hard work says I....
She said it isn't all diet and hoped I was exercising.... I said have you seen me lately!!!!!!
Explained I was still using my gutter frame and needed the car to get off the hill into town (up the hill) all one way down.
Then she asked me what I was eating and told me what I needed to eat.... at that point I lost it.
She was quite sweet and didn't lose her cool.
I have to see the Doctor tomorrow afternoon about something else..... am likely to still be fuming.
I have known for a long time what I can and can't eat, irrespective of what they want us to eat. Yes would love to eat three fruits a day but that is what partly put me in the zone to start off with.
Apologies and hoping you are not getting unwanted advice......

Click to expand...

How bad is it that I'm glad you at least weren't told, like I was, that you didn't have the spine for a diet?

We end up dealing with a lot of uninformed BS, some just well-meant but out-dated, some just vindictive and humiliating. At the end of the day though, they're not in your home and shoving fruit down your throat at every meal. You just go on making choices that are good for you. S***w 'em. And congratulations on your progress!!!! YAY, YOU!!!!

Resurgam said:

@filly You could always show off and have cucumber, courgette, aubergine, tomato, sweet pepper, avocado, as they are fruits but low carb.
Unfortunately most HCPs seem clueless about the care and feeding of Humans.
I trundle around on my mobility scooter these days as there is nowhere nice to walk in the immediate area around our house, but I can take myself off to the beach or one of several parks I could get to, but not back again unless it was a very good day. I would not want to be bored. If my feet or knees are bad, I can still get about. I seem to be either in the process of getting better or with some niggling pain that needs to be watched all the time these days - due to the AZ Covid jab rather than diabetes, but at least it is just a nuisance now, not a reason to make my will.

Click to expand...

AZ Covid left me feeling awful, a bit of pain, just problems functioning. I spent a few days in my Husband's specialist riser recliner chair while his carers did all the looking after him and got me drinks too. Sending sympathy for that problem.

I've had some interesting medical 'professional help' recently, although some of yours and other members sound even worse.

I've recently had a couple of presents from the surgery, 2 packs of metformin. Not asked for or offered, just arrived. Hb1Ac has been within range for months, only slight rise, with fasting glucose rise for a few days, when I had stomach pain following densosamb jab. I have low calcium and osteoporosis.
I phoned the surgery when the second pack of metformin arrived. I'd stopped it before due to side effects. Why was it restarted!
Also told by osteoporosis nurse specialist that with my calcium levels I should be on double the calcium supplement dose, not what has been dispensed.

So I have been told to email the dispensary requesting what we both need, and see if it arrives or a gp stops it. (My Husbands regular neurological medication was blocked by unknown gp last time.)
My diabetes has always been diet controlled and I had regular yearly checks with the Diabetic nurse.

I can speak to a gp in a fortnight, (booked soonest slot) and I'm not taking something for high blood sugar when it is around 6mmol/litre just because medication appears with no warning. Some people just do not realise we are humans, and we might just use our brains and check the internet for information. (with caution, ! always check where that information is from,)
I want evidence! At least to be told what is going on.
Do they just think or hope we are too stupid to think so won't have any questions, just obey. Sorry, I was brought up to ask questions.

As an extra, dietician is apparently going to explain to me what my Husband can eat. Emailed person who has booked them. He's had assessments from SALT in hospital and home visit (Speech and Language - he has a swallowing problem) Already meal replacements, leaflets from Hospital from when he had aspiration pneumonia, Lots of info from the Huntingtons Association. Mince and moist food, no hard bits, no skins, no nuts, and always thickened fluids, What do they think he lives on?
End of my rant,
Carol

Sorry for the problems you're having @carolm I'd have thought the osteoporosis nurse specialist should have written to your gp re change of calcium. My diabetes nurse always does if I have to contact her between seeing the consultant.
Many people just take what the dr gives them without question, and I think a lot of hcps now expect us all to do the same, but I'm like you and do question things.

Why?!! If I'd taken what the dr prescribed and not questioned it, I'd be dead!! Mistakes made on more than one occasion by different hcps. Any hcp worth their job should explain why they're prescribing you something.
MY body, I'VE got to live with the consequences, not a hcp, so will decide what goes or doesn't go in it, thank you very much.

I realise I may have read your post wrong @filly If that's the case my apologies. Maybe you could clarify if you meant we should question, or just blindly take what we're prescribed.

filly said:

Just had the Diabetes nurse ring me. Said I had done very well and didn't need Metformin anymore. Blood results so good.
Yes I know.... it is taking a lot of hard work says I....
She said it isn't all diet and hoped I was exercising.... I said have you seen me lately!!!!!!
Explained I was still using my gutter frame and needed the car to get off the hill into town (up the hill) all one way down.
Then she asked me what I was eating and told me what I needed to eat.... at that point I lost it.
She was quite sweet and didn't lose her cool.
I have to see the Doctor tomorrow afternoon about something else..... am likely to still be fuming.
I have known for a long time what I can and can't eat, irrespective of what they want us to eat. Yes would love to eat three fruits a day but that is what partly put me in the zone to start off with.
Apologies and hoping you are not getting unwanted advice......

Click to expand...

You have done brilliantly so pat yourself on the back for that. A friend of mine did no exercise whatso ever when she was diagnosed just low carb and her numbers improved. Everyone is different. The dn was probably reading from a script