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Proximal neuropathy

Discussion in 'Diabetes Complications' started by HpprKM, Sep 26, 2010.

  1. HpprKM

    HpprKM · Well-Known Member

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    I was diagnosed T2 almost 3 years ago. I had been experiencing tingling, burning in my feet for some considerable time and really did not pay much heed to it (fool). My father used to complain about his feet troubling him, and he was never diagnosed diabetic (though I sometimes wonder if he was). I went to GP to see why I felt so tired, thinking it might just be age - I was then 57. My feet trouble me most when I have been working, as a College Lecturer I spend much time on my feet and although I go for comfortable shoes it does not stop the burning and tingling. I also have tingling in my hands, put down to carpal tunnel due to overuse of computer and keyboard over many years.

    However, my question is this, 'What exactly are the symptoms of proximal neuropathy? A few months ago, and again more recently I have been experiencing pain around buttocks, hip and thigh/leg area, it varies in intensity and according to what I am doing and is much improved when I am at rest. I thought it was some kind of sciatica but have now learned that these symptoms could be due to proximal neuropathy which is more common in older T2s. I am 60, not what I would call old but not sure what it means by 'older', next month, and have very demanding work that necessitates being on my feet a lot (as a College Lecturer). I am going to book appointment with GP.

    Sadly, my husband who is almost a year younger than me has just, this week, been diagnosed with suspected Parkinsons, my work is so demanding that with one thing and another I am feeling I cannot cope right now and I am thinking of (kind of reluctantly) giving up my job (which due to various factors outside of my control is quite horrendous at the moment, inspections coming up, new subjects and I have to complete final part of Teaching Accrediation which includes in depth assignments. It is just all too much really, also have ear problems which I had surgery for last November, recently had an infection and suffering from tinnitus, now I feel my husband is depending on me to cope and I feel I must, but at the same time I feel I cannot.

    There are so many people who are far worse off!
    In the face of all this I do try to keep positive, even I don't sound it :)
     
  2. donnellysdogs

    donnellysdogs Type 1 · Master

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    Hi

    I am now 47 and the pain areas you describe are the same as mine, but I don't get any relief, the pain is there in my top legs and right hip day in day out, night in night out.

    Mine has been put down to fibromyalgia. (I had put it down to taking statins). I am also seeing neurologist tomorrow.

    To be quite honest, I don't know what the heck is causing the pains, but I just wish something would take the pain away.

    I just hope that in the future generations that they will find out what drugs are giving us all these pains.....I would love to see a poll on:
    pain-where:
    drugs-which ones:

    and for someone to analyse the results to see what pain factors and drugs come out as most frequent, at least that would be a start to find out what is causing so many people the pain and brain problems.
     
  3. IanD

    IanD Type 2 · Well-Known Member

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    On a diabetes forum, the only answer is to get your glucose numbers down.

    2½ years ago I thought I was becoming disabled with peripheral neuropathy. Advice on this forum directed me to low carb as the best way forward. It all cleared within 3 months, & I haven't looked back. Previously I had had to give up statins because of much the same symptoms.

    That said, what was your last HbA1c? What readings do you get, & what is your diet?

    You could, of course, ask your Dr, as we can only speak from our own experience.
     
  4. jaykay

    jaykay · Well-Known Member

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    I'm going to take on the question of sciatica. Does the pain in your hip/upper leg go away if you take painkillers? If you google a diagram of the sciatic nerve, do you have pain anywhere along that line? Sciatica is very common and is an absolute pain! :( Not saying that your pain isn't linked to diabetes but if it is sciatica, none of the things that help diabetes will help that. If you really want to address it, I would advocate some kind of therapy, acupuncture, massage or Bowen. ( Bowen would be my favourite, it's the gentlest and I've certainly had some good results) Good luck!
     
  5. Ardbeg

    Ardbeg Type 2 · Well-Known Member

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    I was diagnosed T2 back in January of this year.

    Suffered terribly with pains in my feet and hands, particularly the left hand.

    Benfotamaine capsules have helped me enormously. The feet pains have disappeared and tingling/fizzing sensation in my left hand has reduced now to just a minor irritation.
     
  6. HpprKM

    HpprKM · Well-Known Member

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    Hi All,

    Sorry for not getting back to you, I forgot to tick the box to notify me when reply received = I thought no one had replied :oops:

    Pain in a kind of remission right now, definitely a sciatic pain, but surely sciatica not a stand alone thing, but caused by something else. This is the third time in some months pain has gone away, and may very well because my sugar levels are lower.

    Would be interested if the person who is seeing neurologist gets back with results, I do hope they find some relief. It is a very nagging ache rather than a sharp pain, I can only liken it to toothache in the leg, starting in my buttock - can actually pinpoint where it starts.

    If mine became bad enough I would ask to see neurologist, but going to neurologist with husband next Tuesday, they might think I am being neurotic (and not sure you see a neurologist for being neurotic :lol: Sorry, bad pun, but it is no joke, is really painful, then I am told sciatica is very painful. Ordinary paracetomol do not touch it by the way - on the bonus side, lying down ie sleeping seems to help, not so bad in bed most of the time!

    Hope some people get back to me, would be interested to see how you are all doing.
     
  7. cugila

    cugila · Master

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    HpprKM
    I get the same type of pain.....nothing at all to do with my diabetes. Mine is all caused by spinal injuries which have affected the nerves in my spine. The only relief I get is from rest, heat patches, Ibuprofen and last resort strong painkillers.......that sometimes includes a 'tot or two to deaden the pain. :shock: :D

    It comes and goes and moves from one side to the other at times. Good control of Bg numbers does absolutely nothing to tame it....it is due to mechanical injuries to my spine. Something I have lived with since 1987 when I was injured at work. I have had all sorts of treatments which basically did not a lot ! You sometimes just have to 'grin and bear it.' :(

    Got it right now after too much decorating and stuff.....it wears off eventually.
     
  8. HpprKM

    HpprKM · Well-Known Member

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    Cugila, so sorry to hear about your pain from spinal damage, however, as far as I know I have never suffered any spinal damage, or real back problems previously and thankfully.

    However, look through some of the replies to this message I felt that I never really introduced the subject of Proximal neuropathy, but feel sure it is mentioned on the site somewhere, though cannot locate right now. However, I am adding this link http://diabetes.niddk.nih.gov/dm/pubs/neuropathies/, if you select the 'types of neuropathy' link and scroll down to the heading 'neuropathy affects nerves of the body' you will see 'Proximal neuropathy affects':

    • thighs
      hips
      buttocks
      legs

    further descriptions match the symptoms I experience precisely. It is just that some of the posts are suggesting what other causes may be, whilst that is appreciated and taken into consideration, I get the feeling that they may not realise that it can be an actual diabetic side effect, particularly in T2s and I have the feeling that many people are unaware of this. So, yes, it can be a diabetic symptom caused by nerve damage.

    Must add, that I do not wish to detract from other people's knowledge, and certainly not implying that the members who responded are not in possession of this knowledge, as I know many members are far more knowledgeable than I on diabetic 'fall out', but just wanted to put the record straight from the point of view of my original post :wink:
     
  9. HpprKM

    HpprKM · Well-Known Member

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    Making this post a little more upbeat, on another neuropathy issue, I have just had my retinal eye scan results back, and they are normal :D
     
  10. HpprKM

    HpprKM · Well-Known Member

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    IanD - I meant to say that your advice sounds like excellent advice to me, sadly I have let my highly demanding job practically take over my life, whereby amongst many other important things, I am not really putting as much effort into my diabetic care as I should, somehow it seems so highly indulgent. I will refer to this in another post later, relating to playing the diabetic card. Meanwhile I want to thank you, this give me (and I hope) others with similar issues hope. I will keep you informed on progress once I get to grips with low carbing, which I am afraid to admit sounds very difficult to follow :roll:
     
  11. cugila

    cugila · Master

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    HpprKM
    I have seen and posted the link you gave many times before on here so I am fully aware of the 'opathies.' I wasn't telling you that yours is the same as mine....just adding to the discussion where Sciatica was mentioned. One of my injuries was put up with for a year before I finally got a second opinion and scans etc which showed I had unknowingly had this injury for all that time. Then I finally got the right treatment but it will never go away.......I'm stuck with it !

    You titled the Topic 'Proximal Neuropathy' but then the discussion turned to Sciatica so I just thought I would mention my own experience of this type of pain.......symptoms identical in almost all respects except that good Bg does nothing to improve it. Something to consider.

    I also recall that at the time youi posted this Topic there was another thread about Nerve Pain in general in which it was made very clear that some may be down to diabetes, I for one admit I missed it as I was concentrating on the other thread at the time and was on Holiday. This was the other thread in T2:

    viewtopic.php?f=25&t=17729#p160645

    You are perfectly correct that certain 'opathies' MAY be down to diabetes and I think that is made clear but not everything is down to diabetes and Members should really look at ALL avenues. We don't diagnose as you know, so the more information that gets out there and the more that people stop thinking everthing is down to Diabetes the better.

    The only people who will diagnose and give the correct information are of course the Specialists in such things.,.......that's why we always recommend Members get a second opinion, especially if their GP etc doesn't seem to know what is going on. That's another reason why looking at symptoms and matching them to your own is not the best way to diagnose anything.......it just gives you some leverage and info to confront those that are 'supposed' to know what is happening. :(
     
  12. sugarless sue

    sugarless sue · Master

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    I think we are all getting to the age where old injuries come back and bite us ! I had various injuries in my younger days which are now rearing their heads again in the form of aches and pains. My job was very heavy on my back and I often have trouble with that as well as other bits and pieces. I do not attribute them to my diabetes however.

    The only ones who can tell you exactly what is the cause are the experts with tests etc.

    HpprKM, you walk a lot in your job. What kind of shoes do you wear for instance ? This may have an effect on your back/spine etc which may have a bearing on your pains. However, as I said, only the experts can tell for sure.
     
  13. HpprKM

    HpprKM · Well-Known Member

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    Sugarless Sue,

    Thanks for reply, I agree that the only way we can be sure is to have tests. For now, I have so much going on my life that I am loathe to go down that route just yet, also pain has subsided so definitely a thought for the future.

    Yes, I am on my feet a lot in my job, however, I am also careful with my shoe choice as my feet do play me up a lot - thanks for suggestion though :)
     
  14. HpprKM

    HpprKM · Well-Known Member

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    Does anyone know if this can be reversed by low carbing, exercise etc?
     
  15. Keith from Bath

    Keith from Bath · Member

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    I have awful pain in my feet but nurse and doctor just smile sympathically!
    Balls of my feet seem swollen all the time and , at night, my feet are on fire and painful, It keeps me awake and I have to go and bath feet in cool water...or plaster on Ibuleve to ease pain.
    Very bad circulation in legs which are purple!
    Only diagnosed in August with classic symptoms after losing 2 half stone for no reason..raging thirst etc. All missed by GP! :roll:

    Really dont know what to do about my feet! :( :
     
  16. catherinecherub

    catherinecherub · Guest

    Hi Keith,
    It is obvious from your post that your GP and DN are not talking your concerns properly.
    You need to be firm with them and ask to be referred to a Specialist about the neuropathy in your feet. Take a look at this topic and it may help you with getting your blood sugars under control.viewtopic.php?f=20&t=17088 This should improve the neuropathy. Some members have said that whilst the blood sugars are lowering the pain seems to get worse but gradually gets better.

    You really do need a meter to see how foods affect you and as your team are not willing to supply it then you need to purchase it yourself as it is the only way to get control.
    I know that some think red wine is the answer to high blood sugars but if you have neuropathy please refrain as it will aggrevate the condition.
    Hope this will be of some help to you and if there is anything you don't understand then please ask, nothing is regarded as silly as we have all been where you are now.
     
  17. HpprKM

    HpprKM · Well-Known Member

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    Keith,

    I am not the most learned member, but I am wondering if you have seen a podiatrist, when I was first diagnosed I was given an appointment to see a podiatrist and I am wondering if you have been given one too, if not suggest you ask your GP to refer you, they can then advise you on the problem with your feet. This definitely sounds diabetes related, and although I do not know this for sure, perhaps once your glucose levels are under control you may see improvement in your condition. One of my own symptoms was burning feet, had that for many years because I had no idea it was a diabetes symptom and I never considered that I may get, or have diabetes as I did not really fit into the normal 'at risk' group and was not aware that it was on both sides of my family.

    I am sorry that I can not offer any immediate help, but it does seem to me that you need to get the diabetes under control.

    I do hope things improve for you, but I also feel you that you need more support from what should be your 'diabetic care team'.

    All the best.
     
  18. Keith from Bath

    Keith from Bath · Member

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    Thanks everyone
    My sugars are not too bad now
    Last two HbA1c checks were 7 and 7.1 which was great from the 14+ when diagnosed in August Not due until Feb for next.
    I have had problems with circulation and feet for years and this was probably the undiagnosed diabetes.
    I have not been referred to a podiatrist but am now going back to GP to gently push it to see if I can get referred.
    They want you to do it privately so they can save the money. If you are just ordinary guy you lose out these days to those the PC Brigade support!
    Will let you know how I get on
    Keith
     
  19. cugila

    cugila · Master

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    In most areas of the UK you can self refer to your local NHS Podiatrist team, you do NOT have to ask your GP. Check with your local PCT or Health Centre for details.
     
  20. jwilki

    jwilki Type 2 · Active Member

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    Hi All
    I am finally back on the forum after some time away, no excuse. :oops:
    I posted a long time ago about suffering with Proximal Neuropathy and how painful it can be. I have suffered from this for a very long time. My HbA1c is now 4% and bloods average 5.4 and I have very good control. But this was not always the case, and this is what caused the problem in the first place. :(
    Unfortunately I now have to use a frame to walk and hand controls in my car to drive as the muscles are very weak in my thighs / legs and hips, I also have loss of sensation in my lower limbs. Pain is manageable by taking Tremadol, prescribed, a very strong pain killer.
    I always look on the bright side of life and my cup is always half full. :D :D
    The neurologist here is doing more tests as my nerves were bad but now after the latest EMG have improved, but this has taken in excess of one year and he is looking at recovery over a period of three to five years.
    Once you have this it CAN take a long time to repair but the good is with correct control it seems it will.
     
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