Pump Supplies Stopped

I have been a pump user for 6 years now.

I did all the training and learned to carb count properly, I am really good at it now and proud of that.

Before I was put on the insulin pump, my levels were horrendous. I spent 24 years of my life in and out of hospital with DKA and felt like death warmed up 80% of the time. I have about 40% vision left and have almost lost use of my legs from neuropathy.

Thing is, I moved away from the city centre 18 months ago and live in a small village. I can't drive, I can't get out and about alone but live alone. I don't know anybody near by. I suffer from depression and severe anxiety so will not travel with anyone I don't know.

There is a member of my diabetic care team that visits a surgery nearby frequently and after repeatedly explaining that I couldn't get to where the team I used to visit are based, they did let me see her on one of her visits.

Now they will not do this again and demand that I see them in the city centre. After many phone calls and missed appointments they have now told me that they will not allow me to order any more supplies for my pump. No batteries, no infusion sets, nothing.

I still have the pump and a few supplies left but they are also trying to get my GP to switch me to pens instead of the vials.

They are giving me a death sentence because I cannot get to them.

Should they not come to me???
That's what a diabetic nurse told me they should do at the hospital.

I have run out of professional contacts to discuss this with.

My control is now becoming worse.

I was told I'd benefit from CGM before they cut me off but that is not something I can get from my GP is it?

I am so confused.
I worked years paying my taxes and National Insurance and now because I live in a nicer part of the country instead of breathing the polluted city air, I have been left to rot.

I have even written to my local MP several times and been completely ignored.

I will not let my daughter (now 5) watch as I become more and more sick and live my life in a care home and hospitals in agony as my health deteriorates. I'm ashamed to say l will end it well before then but she shouldn't have to remember her daddy that way

 

Thank you Juicyj,
When you say to find the right person and there position at the hospital, do you have any tips on how to do that please? I don't mind having to do the research, just asking as they often make it hard to figure out who the right person is.
To be honest, I had hoped that the local MP would have given me that kind of information or some other contact but the pure ignorance towards me and my situation is shameful.

 

Thank you,
Yes I used to use the non emergency transport service but often ended up having to give my whole day to an appointment which given the benefits was fine until they stopped anybody travelling with me unless they needed to help me administer meds during the journey. This became a big problem as my panic attacks became worse.
I often feel I am asking a lot but when I think about the cost to the NHS when I am spending a lot of time hospitalised, I feel that it isnt much to ask.

One of the diabetic nurses is frequently visiting a surgery just down the road to me and she saw me there once but they now refuse to even consider letting me see her there regularly.

I have given nothing but praise to the team over recent years and now I feel the way I am treated by them is despicable.
They even offer home visits to people that live within the city but I feel they see me as an inconvenient outsider now I don't live there

 

Thank you, I really appreciate the help as things like this do make daily life stressful and hard to get through

 

Okay brilliant, I called the hospital yesterday and was given a physical address and an email address and was advised to send the complaint to both just in case it slips through the net somehow.
Your help is very much appreciated so I'd like to say a massive thank you for taking your time to help this guy that was very close to giving up

 

I can see your point but I have checked and I am within there catchment area at the surgery I saw a member of the diabetic team at before and it is actually part of a group of surgeries who I'm registered as a patient with anyway.
Often when there are no appointments left at the surgery in my village they will send me there, it is literally the next village only a couple of miles away.

I can appreciate that there are a lot of patients to see on one day by the visiting diabetic nurse but they could actually do everything from the main clinic as I can upload all my pump info online and follow there advice. The pump is not a new thing for me by a long shot so I can follow a few instructions and contact them should I have any troubles but they are not interested.

I know I sound like I'm just complaining about the same things over and over but without stable control through use of the pump, I will be dead within a couple of years and they told me that themselves.

Thanks for your comments Seacrow. I do appreciate your input, even the more negative part as it does show me whether I have more expectations than most.

 

Thank you DCUKmod.

I don't know why I haven't thought of contacting them myself already.

I will be certain to try and contact them next week and see how they can help.

Seriously though, everybody, you are being so helpful and I never even realised there was such a large community of diabetics and health advisers etc that could give so much valuable information.
I really do believe that diabetic nurses and consultants should tell people about this service and app. It could take a considerable amount of strain off there shoulders.