1. Get the Diabetes Forum App for your phone - available on iOS and Android.
    Dismiss Notice
  2. Guest, we'd love to know what you think about the forum! Take the Diabetes Forum Survey 2020 »
    Dismiss Notice
  3. Diabetes Forum should not be used in an emergency and does not replace your healthcare professional relationship. Posts can be seen by the public.
    Dismiss Notice
  4. Guest, stay home, stay safe, save the NHS. Stay up to date with information about keeping yourself and people around you safe here and GOV.UK: Coronavirus (COVID-19). Think you have symptoms? NHS 111 service is available here.
    Dismiss Notice
Dismiss Notice
Find support, ask questions and share your experiences. Join the community »

Type 1 at 6 months old

Discussion in 'Parents' started by Craftyjack123, Apr 27, 2016.

  1. Craftyjack123

    Craftyjack123 Type 1 · Member

    Messages:
    10
    Likes Received:
    8
    Trophy Points:
    23
    :dummy:Hi everyone
    Just wondered if there were any parents of diabetic babies out there, our son has just been diagnosed type 1 at only 6 months old and even our lovely nurses only have parents of children over 1 to talk to us about and there's such a big difference in a 6 month old and a 1 year old. He's just got a pump fitted after a few weeks of injecting, but testing is still so upsetting for all if us having to do it every couple if hours and not being able to explain why to him, weaning has gone to pot after our long hospital stay too and now I'm scared and not sure where to start with moving forward, :dummy:
     
    • Hug Hug x 6
  2. lovinglife

    lovinglife Type 2 · Well-Known Member

    Messages:
    2,856
    Likes Received:
    2,459
    Trophy Points:
    198
    I'm sorry I can't really help as I have no knowledge of what you are going through it must be really tough - hopefully someone who can help will see your post - welcome to the forum perhaps put a post in the T1 section as well maybe someone there can help
     
  3. Mrsass

    Mrsass Type 1 · Well-Known Member

    Messages:
    1,188
    Likes Received:
    1,981
    Trophy Points:
    178
    Hi, I'm sorry about your son's diagnosis :( I got type 1 aged 3 but can't remember any of it, I can't think of anyone on here with a type 1 'baby' I've only seen toddlers etc but hopefully I am wrong and someone posts soon and can relate.. You do sound like your doing really well though :)
     
  4. azure

    azure Type 1 · Expert

    Messages:
    9,782
    Likes Received:
    7,404
    Trophy Points:
    178
    Sorry to hear that @Craftyjack123 It must have been a huge shock.

    I hope the pump is making things easier. I don't know any babies that young with diabetes, but when I was researching having my pump I read about a baby a similar age to your son who had a pump and he was doing well.

    I'm going to tag @1Sarah1 as she has a toddler with Type 1 and a pump.

    I hope you're getting good support from your son's team. I have a young baby and I can't imagine how,difficult it must be coping with diabetes on top of all the normal care babies need. You sound very calm in the circumstances.

    Sending you and your son best wishes.
     
  5. Totto

    Totto Type 2 · Well-Known Member

    Messages:
    2,831
    Likes Received:
    4,130
    Trophy Points:
    178
    • Like Like x 2
  6. Craftyjack123

    Craftyjack123 Type 1 · Member

    Messages:
    10
    Likes Received:
    8
    Trophy Points:
    23
    Thankyou xx
     
  7. Craftyjack123

    Craftyjack123 Type 1 · Member

    Messages:
    10
    Likes Received:
    8
    Trophy Points:
    23
  8. Craftyjack123

    Craftyjack123 Type 1 · Member

    Messages:
    10
    Likes Received:
    8
    Trophy Points:
    23
    It has been confirmed by the consultant, after the severe DKA which hospitalised him, we were told he is on the boarder for neonatal but Exeter are actually coming up to our first clinic as they've requested his blood for their studies, we of course agreed as any research is important to helping others as well as for our case.
     
    • Like Like x 6
  9. Craftyjack123

    Craftyjack123 Type 1 · Member

    Messages:
    10
    Likes Received:
    8
    Trophy Points:
    23
    Tha
    thank you xxx
     
  10. Craftyjack123

    Craftyjack123 Type 1 · Member

    Messages:
    10
    Likes Received:
    8
    Trophy Points:
    23
    Thank you xxx
     
    • Like Like x 2
  11. kingo46

    kingo46 · Member

    Messages:
    6
    Likes Received:
    0
    Trophy Points:
    21
    Hi Crafyjack my son was diagnosis at 22months old he turns 16 next week, he went on the pump last year
     
  12. Hollieandethan

    Hollieandethan Type 1 · Member

    Messages:
    19
    Likes Received:
    18
    Trophy Points:
    23
    Hey,

    Wasn't sure how to word my starting sentance to you because diabetes has made me the person who I am today. Strong, open minded and can adjust easily, after all you have too.

    I've been diabetic from I was 2.5 years old. I'm now 21. I've struggled with it at times but I got a insulin pump 4 years ago.

    From that I've had my wonderful boy, Ethan who's two next month and on Halloween night aged 16 months. He was close to DKA as I took him to hospital with high sugars a month before and they told me I was being an over protective mother and to stop worrying the chances he would get it off me were 2-5%. And long behold my baby was cursed with this chronic illness. He's adjusted so so well gives you his hand to do sugars, tries to tell me when he's low and acts up when he's high.

    On December 9th he was given the same insulin pump as me accu chek spirit combo. I worried he would pull it, hate getting canulas in etc. But nope my little solider doesn't blink an eyelid. He gets on with normal toddler life. He doesn't let it affect him.

    I'm sure your struggling but it gets easier, well as easy as it can. ( there's always a struggle). But I've never known Any different and now your baby has the pump he doesn't have to be because you just count his carbs. Weigh everything. Carbs and kal book are my bible lol.

    Not sure if I've helped but thought I'd share our story.

    You should get a pump bag made. We got PawPatrol

    Best wishes xx
     

    Attached Files:

    • Like Like x 2
    • Winner Winner x 1
    • Friendly Friendly x 1
  13. Robinredbreast

    Robinredbreast Type 1 · Oracle

    Messages:
    18,156
    Likes Received:
    27,266
    Trophy Points:
    298
    Hi @Craftyjack123 , I am so sorry to hear of your little babies diagnosis, your head must be all over the place, so an anxious and a scary time, I'm sure.
    I hope you get all the help with much needed support at this difficult time, but, in time, things will get easier and more manageable.
    Sending best wishes to you and your little one, take care.
     
  14. Cathn61may

    Cathn61may Type 1 · Well-Known Member

    Messages:
    68
    Likes Received:
    127
    Trophy Points:
    73
    I can't imagine what you are going through with your little baby. I was diagnosed when I was 6 that was hard enough. I have had Type 1 for 49 years. My thoughts are with you.
     
  15. 1Sarah1

    1Sarah1 Type 1 · Well-Known Member

    Messages:
    304
    Likes Received:
    308
    Trophy Points:
    103
    Hi @Craftyjack123 ive been type1 since I was 2 any my 2yr old is currently on a pump. I have baby twins (6m) so understand how hard it must be. My daughter wouldn't wean so understand how hard it must be with insulin etc. Are you carb counting? Assume milk? Have you been told to administer glucogel by syringe? Life feels very unfair sometimes. I hate having to test my daughter. Have you got funding for cgm as that's another option? I haven't put my daughter on it yet as feel like she has enough. We have just come out of hospital after a few days stay due to her having a seizure so apols for the delay. Things will get easier in time. I keep telling that to myself too.
     
    • Hug Hug x 1
  16. Craftyjack123

    Craftyjack123 Type 1 · Member

    Messages:
    10
    Likes Received:
    8
    Trophy Points:
    23
    Bless you sounds like you're going through it too! Were carb counting just milk ATM as jacks only having finger bits and most ends up on the floor. We are looking at getting a continuous monitor now as were struggling to balance his BG And they seen to have to pattern at all were hoping this helps but obviously it will be ongoing and will still need to manually test regularly too. I did my first canula change with my partner rather than nurse this weekend which was scary but also helped me I think. We have tubes of glucogel been told to rub it into his cheek as it's quicker than swallowing but he's running high rather than low as they're adjusting insulin so slowly with him being so small, usually late teens early twenties. I hope your little girl is ok after hospitL and that things will settle bk for your family soon. Thankyou for your kind words xxx
     
  17. Craftyjack123

    Craftyjack123 Type 1 · Member

    Messages:
    10
    Likes Received:
    8
    Trophy Points:
    23
    Thankyou xxx
     
  18. Craftyjack123

    Craftyjack123 Type 1 · Member

    Messages:
    10
    Likes Received:
    8
    Trophy Points:
    23
    Thankyou xxx
     
  19. Craftyjack123

    Craftyjack123 Type 1 · Member

    Messages:
    10
    Likes Received:
    8
    Trophy Points:
    23
    Thankyou for your reply , it does all help and makes me feel I'm not the only one as it does sometimes, I've ordered a minion pump pouch for him too xxx sending love xxx
     
  20. Ejayhk

    Ejayhk · Newbie

    Messages:
    2
    Likes Received:
    0
    Trophy Points:
    21
    Hi @Craftyjack123

    Our daughter has just been diagnosed with type 1 at the age of 8 months. We are currently working out her insulin regime and so forth. We are doing injections, using a CGM and are hearing conflicting views on the use of an insulin pump at such a young age. I gather from your post that you are using one, and I was wondering how you are getting on with it. We would appreciate any information. Not easy to find people with experience of type-1 at such a young age.

    Best wishes

    Ejayhk
     
  • Meet the Community

    Find support, connect with others, ask questions and share your experiences with people with diabetes, their carers and family.

    Did you know: 7 out of 10 people improve their understanding of diabetes within 6 months of being a Diabetes Forum member. Get the Diabetes Forum App and stay connected on iOS and Android

    Grab the app!
  • Tweet with us

  • Like us on Facebook