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Type 1 diabetes rant :). ( revised title ). DIABETES RANT.

Discussion in 'Diabetes Discussions' started by Anaelena, May 29, 2015.

  1. donnellysdogs

    donnellysdogs Type 1 · Master

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    Ver sorry @satindoll
    It was .@andbreathe that mentioned "self pitying". Please accept my apologies for thinking and using your name with this comment. On iphone I can't scroll back and dit it from a lousy memory and brain.

    I was hurt by the branding of "self pitying" as in real life I am one person that never does this.....-although it must have come over in this posting that I was....

    Sorry @satindoll...
     
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  2. satindoll

    satindoll Type 2 · Well-Known Member

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    Apology accepted in the spirit it was offered.
     
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  3. Jaylee

    Jaylee Type 1 · Expert
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    I knew I shouldn't have said anything when I saw the word "rant" in the title.. In spite of the buoyant mood I felt rolling in from a a gig last night.
    That said. I took the power back in my childhood. Around the age of 12 I broke into a lodging student nurses room while she was out clubbing. My mission? Because I chose to accept it. Was to feast my eyes on her medical books because I was fed up with being fobbed off with the "Janet & John literature on Diabetes they handed out to kids at the time.

    Knowledge is power & when accosted by the stupid misconception of the non D I reply on behalf of all types with the zeal & speed of a cattle auctioneer. A bit like the voice over "terms & conditions apply" at the end of any TV ad involving a financial arrangement.

    So I took the power back a long time ago. & offer fair play to others.!

    I don't do smaltzy hugs.. But I do offer virtual peace.. I sincerely hope you accept?!
     
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  4. Anaelena

    Anaelena Type 1 · Well-Known Member

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    You know diabetes is interesting . I have seen both types with people who live with no complications no major issues . I have also seen diabetics with severe difficulties. Here is my stance on this .. And I ask you to take YOURSELF out of this equation . Listen as you would a friend. When I was diagnosed as a little one , I was in the hospital , out of a coma , confused seeing my father next to my bed kneeling and crying . I had never seen my father cry and never have since . I am a mother and cannot imagine what he was going through. Keeping in mind that 36 years ago things were different. He cried because his baby was sick, he knew the obstacles I would face, because he had guilt and he had no idea what would happen . My first few honeymoon years were okay , but I am not a lucky one and soon complications set in . Starting with diabetic hand syndrome , I have had many surgeries to release my contractures, constant foot issues including breaking of toes unknowingly, ulnar nerve release , carpal tunnel release both hands , dialectic neuropathy, diabetic retinopathy I had a victrectomy because I lost my vision, I have had neck surgery , my joints are sticky because of build up of old insulin, I have heart failure , shoulder surgeries . I also have gastropaesis . I can no longer eat solids and so am on a liquid diet. My point ??? This did not start at age 40, 50, 60 this started at age 7. I maybe selfish or maybe just a plain bad person but at times it is hard for me to once again listen to a older person complain about their neuropathy. When I have had it on and off for 36 years and when I was a child had to work through it. Nobody cared if I had neuropathy. Yes we all have issues and feelings and whatever else comes with this disease. Yes it can be worse but I cannot apologize for feeling bad for myself because I do . When I discuss my health issues in a Drs office it is with 60 and 70 year olds not 30 year olds because I relate to them . I feel bad I did not have at least 20 years to screw myself on my own my body did it for me . They say this ... Type 2 diabetics are constantly being blamed for their disease ... While type 1s are constantly being ignored for theirs. I won't blame you , if you don't ignore AND compete with me .
     
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    #44 Anaelena, May 30, 2015 at 10:02 PM
    Last edited by a moderator: May 30, 2015
  5. Anaelena

    Anaelena Type 1 · Well-Known Member

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    Absolutely my friend.
     
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  6. Anaelena

    Anaelena Type 1 · Well-Known Member

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    Well in this instance she is hypothetical and applies to my hypothetical rant :p So only I can hypothetically determine that !
     
    #46 Anaelena, May 30, 2015 at 10:22 PM
    Last edited by a moderator: May 30, 2015
  7. Anaelena

    Anaelena Type 1 · Well-Known Member

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    I was forced to learn lol
     
  8. Anaelena

    Anaelena Type 1 · Well-Known Member

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    You are right . I wish I had the luxury of eating . I no longer can eat solids . So enjoy your seven meals a day . :) be thankful . Liquids aren't that fun :)
     
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  9. Pipp

    Pipp Type 2 · Expert
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    @Anaelena I acknowledge you have had a tough time with your diabetes. It is so sad that your childhood was marred by such bad health experiences. Also that you still suffer. I certainly do not want to compete with you or anyone else as to who has had the toughest time. I do not want pity from anyone, so will not list the medical complications I have had since childhood, or the awful damage from some of the treatments I have had. Instead I would congratulate anyone who, like you, and myself, has overcome many obstacles to have had a career, successful marriage or partnership with someone who has also had a successful career, and despite all odds has given birth to, and raised children, who have in turn become successful in their chosen careers and become really decent caring people. We taught our children that empathy for others means that you have to consider that your own opinions and beliefs may differ from others but everyones opinions and beliefs have validity. If they expect others to understand their beliefs and have empathy then it has to be a reciprocal arrangement.

    Your original post was a rant by your own admission. That and later posts suggested you have anger and hurt that is unresolved. I am so sorry for you that you still have pain. You are not alone. My first response to your post was my way of trying to agree you had it tough. I was trying to support what you were expressing and to be more inclusive. It would appear that some have misinterpreted that and tried to make this a devisive argument. That was never my intention.

    I hope you can find peace and be well.
     
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  10. Pipp

    Pipp Type 2 · Expert
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    @nosher does not and has not had an easy time. Yet he does not complain. (Well not much). Read his blog. Very informative..
     
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  11. MarkE

    MarkE Type 2 · Well-Known Member

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    Speaking as an Aspie- be careful with this tactic. It can get you in major trouble!

    Like the idea in principle, mind...
     
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  12. Anaelena

    Anaelena Type 1 · Well-Known Member

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    In no way am I implying that @nosher has not. What I believe he said was be thankful because others have it worse. I said that he was correct. My point being that yes eating seven small meals a day is a hassle & time consuming. So are feeding tubes and liquid diets. Trying to eat when you want to vomit . Does everyone here know what diabetic gastroparesis is ? This maybe surprising to some but we in America don't have as many options as they do in Europe. Medications that help gastropaesis were taken off the market because some people complained of diarrhea. The other option is a gastric pacemaker which is given on a "compassionate" basis and only allowed at a certain rate , basically impossible to get . I also am not sure if you are implying that I am complaining or not but yes , I do complain. ALOT. I suppose that would be the purpose of a rant . The other side of that on a diabetes forum I assume we share health conditions which is not necessarily complaining . Just facts as I said previously. I am not angry , I am just passionate :)

    I will definitely read his blog .
     
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    #52 Anaelena, May 31, 2015 at 5:37 PM
    Last edited by a moderator: May 31, 2015
  13. Lamont D

    Lamont D Reactive hypoglycemia · Master

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    My wife has T2 and she has not been diagnosed with gastropaesis. But she does have very slow digestion and vomits food quite often, the drugs she takes for her back pain and subsequent disabilities and symptoms, that I do have sympathy and empathy. I have to do the cleaning up afterwards. She has to wait for me, so that she can go somewhere. Life's a struggle in more ways than you would want.
    I like a rant, it helps, as long as you don't intentionally hurt someone, then rant away.
    There are so many people I'm angry at,through my battles and the wife's.So rant away. I will join in!:);)
     
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  14. Anaelena

    Anaelena Type 1 · Well-Known Member

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    Thank you so much Nosher. I am very sorry to hear about your wife. It is not easy and as I said on my original post .. diabetes it hard not only for us but for those who love and support us. I do hope I have not said anything to hurt anyone as I said , I am just passionate. :)) I am glad you understood my point .
     
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  15. Lamont D

    Lamont D Reactive hypoglycemia · Master

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    I hope you have read my first blog. It should have been titled, 'My Struggle'. But someone infamous beat me to it!:);)
     
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  16. Anaelena

    Anaelena Type 1 · Well-Known Member

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    @nosher8355. I am still learning the app and am not sure how to find the blog ? Is there a link ?
     
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  17. catherinecherub

    catherinecherub · Guest

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  18. Anaelena

    Anaelena Type 1 · Well-Known Member

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  19. Lamont D

    Lamont D Reactive hypoglycemia · Master

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  20. RuthW

    RuthW Type 1 · Well-Known Member

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    Best rant ever! But the good news is that you eventually reach the point where you laugh when people say that stuff!
     
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