Type 1'stars R Us

smc4761

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Messages
1,041
Type of diabetes
Type 1
Treatment type
Insulin
long-acting insulin gremlin ?

Hi kitedoc, thanks for the reply. I had a high BG this morning but now sitting here with a 5.4, still using the same bottle of Levemir, so unlikely it the insulin.

Think I will just put it down to one of these things. Its sooooooooo annoying. You would think, if we got ratio correct that it would all fall into place. It does work on paper however, we are living real lives :)
 
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smc4761

Well-Known Member
Messages
1,041
Type of diabetes
Type 1
Treatment type
Insulin
Can I just say, to those of you who are admitting daft moments after so many years in, it's really reassuring for me as a newbie of just 6 months and a week (but who's counting?!) on insulin! Helps me feel not so bad about my mishaps in this learning process, and about accepting it's going to be a life-long learning process as well!!


Every day is a school day with type 1, always learning. Stick with this forum as you will get some excellent advice and support. I have been diabetic for 37 years and yet going on ADAPT course and the help I get on here, I have learned more in past 4 months than I did in previous 37 years

We are all going to make mistakes with our type 1, that's just the way it is. Just a case of learning from mistakes, finding out what works what does not work
 

Tony337

Well-Known Member
Messages
878
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
Not being on holiday....
I am not surprised we make mistakes along the way.
And the more I find out about managing diabetes, the more amazed I am about how clever our bodies are: if they can make all these decisions just about insulin doses, what does it decide about breathing and digestion and ...?

The medulla oblongata is the part of the brain that takes care of breathing and the like...............o_O
 

LooperCat

Expert
Messages
5,222
Type of diabetes
Type 1
Treatment type
Other
Just got back from the Maxillofacial clinic at the hospital - all well with the trigeminal neuralgia for now, since I got my levels down to pretty much normal, I’m only getting the odd twinge, maybe a 5/10 on the pain scale once a week instead of the 23/10 I was getting every time I salivated before. She wants to feature my case in a presentation she’s giving at a conference, which is all good fun. While I’ve featured in published scientific conference proceedings as a speaker, I’ve never been the subject before :D

I also got her to print off the last few years of HbA1c results, that wasn’t pretty... hugest was 131 :meh:
 
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Alison54321

Well-Known Member
Messages
1,221
Type of diabetes
Type 1
Treatment type
Insulin
Just got back from the Maxillofacial clinic at the hospital - all well with the trigeminal neuralgia for now, since I got my levels down to pretty much normal, I’m only getting the odd twinge, maybe a 5/10 on the pain scale once a week instead of the 23/10 I was getting every time I salivated before. She want to feature my case in a presentation she’s giving at a conference, which is all good fun. While I’ve featured in published scientific conference proceedings as a speaker, I’ve never been the subject before :D

I also got the last few years of HbA1c results, that wasn’t pretty... hugest was 131 :meh:

That's very good news.
 

becca59

Well-Known Member
Messages
3,076
Type of diabetes
Type 1
Treatment type
Insulin
Hi peeps, just looking for a wee bit of advice from you lovely people. No matter when I take my Novorapid, 20/30 mins before food, my BG is still rising by about 4 or 5 steps. It will drop back to fairly good levels after about 4/5 hours.

example today before lunch 7.5, waited 30 mins right amount of carbs for insulin and 2 hours later its at 12.2. Its now heading down, sitting at 9.9 about an hour after my 12.2 and by 6 oclock I expect to be around 7.

its the same with breakfast as well

Any thoughts?

Your consultant would be happy with that. The medication is doing what it should. Unless you are prepared to go very low carb, wear a pump and keep altering it or keep reacting to a Libre (as I am attempting to do at the moment!) that’s pretty good going. 10 years ago without the knowledge you have now, you would have been unaware and happy.
 
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becca59

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Messages
3,076
Type of diabetes
Type 1
Treatment type
Insulin
Thanks Chris, after many years of running at probably 9 and 10, I have set myself some goals to bring it down gradually. My last Hba1C was 67, that was in March. The one before that was 78:(

I have an appointment in 2 weeks at diabetic clinic and I am hoping to bring that down to 60. Baby steps. Ultimately my aim is for around 54 and to feel comfortable with a BG of 6 ish

I find that I am OK in work at home, where I have good control of the situation, should I run low. I have a real fear of hypos, had a few bad experiences, so probably tend to err on the high side

When I am out and about at weekends usually to fairly far flung places, with my birdwatching/photography, I will run high. The libre though has given me much more control, perhaps I just to have more faith in my carb counting/insulin dose

This forum and the advice form the guys and gals here has defo helped me take a bit more control

Ooh birdwatching is our thing. Where is your favourite place?
 
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Scott-C

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Messages
2,460
Type of diabetes
Type 1
I'm walking down to George Street this afternoon, as I spent my Edinburgh Festival budget...

Had a day off today, so popped in today to see Jade Byrne's show Pricks at the Pleasance Courtyard. It's about her 28 yrs of T1.

If you can rake another £11 out of the Festival budget, it was pretty good. Only on for another two days, afternoon 2:15.

Bit of North East humour and some dark stuff. I've always found it difficult to explain to non-T1s what a deep hypo is like. Jade does a 5 min piece on it towards the end which really brings home the intensity, mental confusion and doom of a sub-1.5 - won't say any more as don't want to do a spoiler!

https://tickets.edfringe.com/whats-on/pricks
 

smc4761

Well-Known Member
Messages
1,041
Type of diabetes
Type 1
Treatment type
Insulin
Ooh birdwatching is our thing. Where is your favourite place?

Hi Becca, I am from a town near Glasgow so our local RSPB at Barons Haugh is my go to place, usually most weekends. My favourite place however which i go to a couple of times each year is either Lochinver area, very north west of Scotland and the Outer Hebrides, Berneray, North and South Uist
 
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Scott-C

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Messages
2,460
Type of diabetes
Type 1
Still messing with the setting...

I'm still messing with the settings a year into it!

I've not found it yet, but there's apparently an Easter Egg hidden in the xDrip+ settings which lets you play retro versions of Asteroids and Space Invaders on top of your cgm trace...
 
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CranberryIce

Well-Known Member
Messages
410
Type of diabetes
Type 1
Treatment type
Insulin
Not posted for a while- hope everyone is well.

As much as I love being off work & having one mini break after another- really struggling without my ‘normal’ routine. Bloods have been all over the place and I have been in too many social situations where the low carb options were not really there.

So struggled to say the least.

Home now before another road trip next week *sigh*. So time to get my sugars back in range.

On a more positive note.. time to fire up my MiaoMiao which arrived yesterday.
Almost crushed the parcel
as the delivery man decided to leave it under the door mat...!
 

kitedoc

Well-Known Member
Messages
4,784
Type of diabetes
Type 1
Treatment type
Pump
Dislikes
black jelly beans
Good morning y'all, or not so good for me, 2.6 on the Libre and 2.7 on a finger stick so I'm cursing zoo animals right now as it's self inflicted, as I had a 1u correction jab with supper as I appeared to be trending upwards at bedtime. Actually no, I didn't appear to trend up, I didn't look at the gingerbead man and the high point I corrected for must have been the high point, which in year 35 is a daft mistake to make.

But hey, who's counting :)

@kitedoc What I meant :) was that 'Skybury' coffee is grown in Oz near Cairns.
Thank you @kev-w, I did not know this about Skybury. I shall look out for it.
 
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K

Knikki

Guest
I'm still messing with the settings a year into it!

I've not found it yet, but there's apparently an Easter Egg hidden in the xDrip+ settings which lets you play retro versions of Asteroids and Space Invaders on top of your cgm trace...

Guess what I'm Googling for later on :hilarious:

Seems you can set custom alarms on xDrip and select different tunes, but I found out that it does not support MP3 files which in some respect is good because the TV theme tune Stingray going off at 4 in the morning might not be such a good idea :hilarious:
 

Alison54321

Well-Known Member
Messages
1,221
Type of diabetes
Type 1
Treatment type
Insulin
Had a day off today, so popped in today to see Jade Byrne's show Pricks at the Pleasance Courtyard. It's about her 28 yrs of T1.

If you can rake another £11 out of the Festival budget, it was pretty good. Only on for another two days, afternoon 2:15.

Bit of North East humour and some dark stuff. I've always found it difficult to explain to non-T1s what a deep hypo is like. Jade does a 5 min piece on it towards the end which really brings home the intensity, mental confusion and doom of a sub-1.5 - won't say any more as don't want to do a spoiler!

https://tickets.edfringe.com/whats-on/pricks

Thanks Scott, pleased you enjoyed it. I can't really justify the expenditure, I'm afraid. Too many other financial commitments are calling me.
 
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kev-w

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Messages
1,901
Type of diabetes
Type 1
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Insulin
good morning y'all :) 4.1 waking so I just got up in time, I can't go to the Dr and moan " don't like this stuff 'cos it won't let me have a lie in of a weekend" I don't think :p

Yesterday worked out ok once I'd been up a while, down side to the day was no messing with the guitar last night as the crested porcupine rabbit bit me on the end of my index finger when I fed him some spinach, the little sheet :p so that's Harry rabbit 12 - Kev 0 biting the hand that feeds him...
 

Alison54321

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Messages
1,221
Type of diabetes
Type 1
Treatment type
Insulin
good morning y'all :) 4.1 waking so I just got up in time, I can't go to the Dr and moan " don't like this stuff 'cos it won't let me have a lie in of a weekend" I don't think :p

Yesterday worked out ok once I'd been up a while, down side to the day was no messing with the guitar last night as the crested porcupine rabbit bit me on the end of my index finger when I fed him some spinach, the little sheet :p so that's Harry rabbit 12 - Kev 0 biting the hand that feeds him...

I do sympathise, enormously, with you getting bit by a rabbit. But there are some very fine guitarists, like Jerry Garcia, and Django Reinhardt, who had careers with missing, or damaged fingers.

Hope it gets better soon.