Type 1'stars R Us

[becca59]

Good luck and with your purse too

Clean bill of health, Lichus Planus best its ever been. (Going to put that into my Libre argument next Monday) Purse very empty £76

 

[Fairygodmother]

The MM1 is going pretty cheaply at the moment. And with the soon coming firmware update will be the same as the MM2, well apart from looks

Ah, my trawling hadn’t got that far. I’m a bit wary of updates as my libre reader failed to comply & still not heard back from Abbott about it - grrr - I think its operating system’s too old.

 

[becca59]

@helensaramay often break a dextrotab in half so I don’t go higher than needed. It surprises me sometimes how much, and what people eat for hypos sometimes. I have definitely discovered that I need nowhere near as much as I thought.

 

[Fairygodmother]

I was recently half watching some American hospital based TV series. A young girl was spotted stealing drugs and went off to the bathroom to inject with a humungous needle (for dramatic effect) and passed out.
I looked at my partner and said "DKA". I was right. It was one of those occasions when the scriptwriters incorporated a political statement about the cost of insulin especially if you don't have insurance.
Based on this and the number of news items I see about it including Bernie Saunders leading an insulin convoy to Canada, I would have thought it is becoming mainstream news but perhaps I am a tad more diabetes focused than the average person.

It was this one particular case - not the one in the link I posted - that hit me. And yes, I’ve known how tough it is to be T1 and not rich in the States for a long time now. I suppose the threat of Hallowe’en’s made it seem like a horrible possibility here too.

 

[becca59]

@Fairygodmother I have to say I was very nervous about updating my reader and upsetting the apple cart. I’m pleased to say it all went painlessly well. Sorry yours has not.

 

[WuTwo]

It is a worry though. If the NHS is "on the table" during trade talks, we'll be sold down the river. I need the insulin and the epilepsy meds. I reckon I can likely live without all the others if I have to.

Thankfully I still know a lot of the old herbal remedies that my family have passed down the years, but not enough of them. Grandma knew so many! I wish I'd taken more of an interest.

 

[Fairygodmother]

@Fairygodmother I have to say I was very nervous about updating my reader and upsetting the apple cart. I’m pleased to say it all went painlessly well. Sorry yours has not.

I’m pleased yours has too. I’m hoping there’ll be some newer ones at the libre training day I’m going to on Thursday and I can get one, but this area’s not known for having a generous CCG.

 

[Antje77]

I feel like it's suddenly my birthday or Sinterklaas
(Sinterklaas is something like christmas, but better.)

I thought I knew about everything, but I just found out about the Novopen 5, which, unlike my Novopen 4, has a little display showing your last dose and how long ago it was taken. Sounds wonderful to me, as it happens I have the pen in front of me and can't remember if I already took the planned insulin or not, it's such an automated thing to do.

In the Netherlands insurance pays for new insulin pens once every 3 years so I called the insurance to ask when the 3 year are up (I guessed februari next year) so I could note the date. They promised to call me back tomorrow.
Being excited about getting this new gadget sometime next year I decided to see if my online pharmacy has those pens, but no insulin pens at all on their website. So I called them as well, as why not make sure you are prepared for things that may happen sometime next year

By now it was 5:25PM, so I didn't really expect them to pick up the phone, but they did. I explained it wouldn't be before next year, but do they deliver insulin pens, especially this one?
The nice woman asked me my insurance number and then asked what color I wanted, silver or blue. I thought she had misunderstood but MY BRAND NEW SHINY BLUE FANCY HIGH TECH INSULIN PEN WILL BE DELIVERED TOMORROW!

Turns out insurance actually pays for 4 pens every 3 years, 2 for both insulins. As I use single use pens for my Tresiba because I use the U200, which only comes in single use pens, I can still get the new pen

I made the nice pharmacy lady happy too. By now it was closing time, and having such a happy customer for the last call of your day is a very nice thing

 

[WuTwo]

My Novepen Echo has the little display. It can be incredibly useful!

 

[MeiChanski]

I feel like it's suddenly my birthday or Sinterklaas
(Sinterklaas is something like christmas, but better.)

I thought I knew about everything, but I just found out about the Novopen 5, which, unlike my Novopen 4, has a little display showing your last dose and how long ago it was taken. Sounds wonderful to me, as it happens I have the pen in front of me and can't remember if I already took the planned insulin or not, it's such an automated thing to do.

In the Netherlands insurance pays for new insulin pens once every 3 years so I called the insurance to ask when the 3 year are up (I guessed februari next year) so I could note the date. They promised to call me back tomorrow.
Being excited about getting this new gadget sometime next year I decided to see if my online pharmacy has those pens, but no insulin pens at all on their website. So I called them as well, as why not make sure you are prepared for things that may happen sometime next year

By now it was 5:25PM, so I didn't really expect them to pick up the phone, but they did. I explained it wouldn't be before next year, but do they deliver insulin pens, especially this one?
The nice woman asked me my insurance number and then asked what color I wanted, silver or blue. I thought she had misunderstood but MY BRAND NEW SHINY BLUE FANCY HIGH TECH INSULIN PEN WILL BE DELIVERED TOMORROW!

Turns out insurance actually pays for 4 pens every 3 years, 2 for both insulins. As I use single use pens for my Tresiba because I use the U200, which only comes in single use pens, I can still get the new pen

I made the nice pharmacy lady happy too. By now it was closing time, and having such a happy customer for the last call of your day is a very nice thing

Oh I stuck with the old 2001 novo pens (one GP at uni said my pen looks ancient) and I only have been able to get the new novo pens where it displays your units and how long ago you've taken it.

 

[MeiChanski]

Hello friends,

I had a bit of a sleep in, well not much of a sleep in when you have a bf who reiterates instructions to his boys on an army simulator game. I'm so glad our house is a detached house otherwise our neighbour would hear my bf's drug runs and where he is hiding his magic mushrooms.
I had a hypo in my sleep, if my bf didn't check I think I would have continued sleeping through it until now. I think Tresiba is to blame because there was no fiasp on board. However for as long as I remember, the dose is perfect but it doesn't like the mornings which is when I try to or aim to get up and take it. Tresiba is like me, it likes the sleep ins and waking up in the afternoon. When I take it in the afternoon, it's fine and hypos to a minimal level.

 

[Robinredbreast]

Clean bill of health, Lichus Planus best its ever been. (Going to put that into my Libre argument next Monday) Purse very empty £76

That's great news @becca59, so pleased for you mine is well behaved as well, must be the summer condolences to your purse

 

[MeiChanski]

My university assignments is not going too well, I'm like Joey from Friends using a thesaurus to make myself sound smart.

 

[Fairygodmother]

My university assignments is not going too well, I'm like Joey from Friends using a thesaurus to make myself sound smart.

Don’t overdo it, the person marking it may not have that big a vocabulary

 

[Fairygodmother]

I love my red and my blue Novopen Echo pens and their 0.5 unit capabilities!

 

[MeiChanski]

Don’t overdo it, the person marking it may not have that big a vocabulary

It's what my bf said,

 

[Scott-C]

There’s an item about the American T1 who’s died.

It was one of those occasions when the scriptwriters incorporated a political statement about the cost of insulin especially if you don't have insurance.

Laura Marston's twitter feed is worth a look if you're interested in the American T1 situation.

https://mobile.twitter.com/Kidfears99

I don't know enough about State-side politics to have a view on how effective she's been, but, as a campaigner and attorney, she seems to have put a lot of good work into arranging things like legal representation for folks doing the Canadian border hop to buy insulin at a tenth of the USA price, and insulin sharing schemes.

Can't find the link now, but she can also be amusingly blunt with non-T1s like Tim Noakes telling T1s that it would be "better" for them to eat less than 50g per day...

 

[MeiChanski]

I read last week or the week before that three american T1s died because of insulin prices and rationing. The big insulin companies are holding onto their patents and walmart insulin is the only insulin to buy without a prescription, which is an old formula etc. It breaks my heart that there are some of us have to pay to live. What is more frustrating is apparently some insurances don't cover insulin but yet you need a job for insurance, no job no insurance but some insurances don't cover. But once you have insurance, apparently it is still expensive for insulin, strips, pumps etc. A bit of a mind boggling political situation that makes very little sense.
I think Tim Noakes needs to be educated before saying anything.
There was a BBC article about a female similar age to me needs something like $6-7million to live until she is like 40-50.

 

[Fairygodmother]

It was the news about the death of Josh that made me upset today. It’s absolutely horrible that capitalist greed has taken over to this extent in the USA. So I say again, keep Trump’s hands off the NHS. It really worries me that the NHS has been underfunded and parts privatised or put in a public private partnership already and that the close relationship with the USA is threatening to get closer.

 

[Fairygodmother]

I read last week or the week before that three american T1s died because of insulin prices and rationing. The big insulin companies are holding onto their patents and walmart insulin is the only insulin to buy without a prescription, which is an old formula etc. It breaks my heart that there are some of us have to pay to live. What is more frustrating is apparently some insurances don't cover insulin but yet you need a job for insurance, no job no insurance but some insurances don't cover. But once you have insurance, apparently it is still expensive for insulin, strips, pumps etc. A bit of a mind boggling political situation that makes very little sense.
I think Tim Noakes needs to be educated before saying anything.
There was a BBC article about a female similar age to me needs something like $6-7million to live until she is like 40-50.

Like for in sympathy with sentiments, not for liking the situation.