For some reason No1 son, who only lives 5 mins walk away, has offered to live here in November while we go on holiday. The 84 inch TV for his play station may also play a part. He has done the groundwork by doing washing and cooking meals but I know my boys. He told his partner our bedroom with a desk is perfect for him to work from home.
Almost daily on this forum people reveal details of appalling treatment by NHS and really serious conditions they have lived with for years. Without exception they are amazingly grounded, warm and kind hearted people. Without doubt you fit that to a T and then some. Really sorry to hear that news but at the same time honoured to have the privilege of reading your story - meeting you in cyberland. Absolute warrior.6.2 this morning following another bout of daytime lows.
I received my official diagnosis for Post Polio Syndrome yesterday.
No worries, I have been chasing this dragon for 20 years. Back at the start, the NHS refused to discuss it and I sat on my hands and waited. Five years back they looked at it and said: "you may have but it hasn't progressed to where it is a problem".
Last two years I've had swallowing issues, blackouts, sleep apnea, muscle issues, fatigue, and, it seems, T2. Hospital had looked at each separately and refused to link them until recently, and now they have conceded.
Like my Asperger's diagnosis, I am quite happy to finally get my PPS recognised, not happy that I have it mind.
Now that it is official they also let me know that there are around 120,000 polio survivors left over from the 50s in the UK and there's a high chance they could develop PPS. Nice to know.
The reason for the final diagnosis is that my symptoms are progressively worsening and there is no known cure for it.
Anyways, final days are still a way off and I'll probably choose euthanasia as my option. Not a religious man so tots and pears aren't necessary, but I thought I'd share it as it will be a factor in my ongoing T2 and may have been the underlying cause.
Enjoy the day
6.2 this morning following another bout of daytime lows.
I received my official diagnosis for Post Polio Syndrome yesterday.
No worries, I have been chasing this dragon for 20 years. Back at the start, the NHS refused to discuss it and I sat on my hands and waited. Five years back they looked at it and said: "you may have but it hasn't progressed to where it is a problem".
Last two years I've had swallowing issues, blackouts, sleep apnea, muscle issues, fatigue, and, it seems, T2. Hospital had looked at each separately and refused to link them until recently, and now they have conceded.
Like my Asperger's diagnosis, I am quite happy to finally get my PPS recognised, not happy that I have it mind.
Now that it is official they also let me know that there are around 120,000 polio survivors left over from the 50s in the UK and there's a high chance they could develop PPS. Nice to know.
The reason for the final diagnosis is that my symptoms are progressively worsening and there is no known cure for it.
Anyways, final days are still a way off and I'll probably choose euthanasia as my option. Not a religious man so tots and pears aren't necessary, but I thought I'd share it as it will be a factor in my ongoing T2 and may have been the underlying cause.
Enjoy the day
IT2S / Nolens volens it is. Looking for reasons is madness6.2 this morning, no idea why but assuming it’s the excess of wine at the weekend. It usually has a knock on effect a few days later.
@Krystyna23040 sorry to read about Archie it’s such a worry when our pets are off colour isn’t it? I do hope he perks so you don’t need to go back to the vet. Great fbg today and great news that the eye injection was stress free, you must be made of very hardy stock.
My first instinct was to give you a hug OBB...instead I applaud you for your resilience & tenacity in chasing the shameful lengthy denial from our NHS...refusing to be stonewalled...as you say it is important it was recognised I wonder if there are others still battling for a firm diagnosis/prognosis?Now that it is official they also let me know that there are around 120,000 polio survivors left over from the 50s in the UK and there's a high chance they could develop PPS
I get worse MC...I had to check to make sure yesterday was Tuesday (it was wasn't it?)hugs for tricks played on your mind.
Poor Archie...maybe he is just a little unsettled Krystyna with all the (unwanted vet) attention...one of my old cats refused to come into the house for days & days after a trip to the vets...fingers crossed for all of you.Husband will monitor him this morning and if no better will ring vet when I get back from classes at lunch time.
my meter and lab work wasn't on the same continent either as I was getting hb1ac results in the 40s when my meter showed that it should have been in the 30s.My meter and lab work ain't even on the same continent whereas yours share similar genes. Your current run of upper 5s will soon pass. You have a proven record of success vs the tale of woe that is my experience. Coffee and Montezumas aand you'll be good
Phew @OldButBold
Takes a long time for NHS recognise something and link the dots...
Sending you hugs in an unlimited basket of hugs for when you feel you need them.
My first instinct was to give you a hug OBB...instead I applaud you for your resilience & tenacity in chasing the shameful lengthy denial from our NHS...refusing to be stonewalled...as you say it is important it was recognised I wonder if there are others still battling for a firm diagnosis/prognosis?
Thank you for that information. I need to look back over chrono meter data and see what biotin levels are/were. Also need to find which foods are high in biotin as I don't take supplements. I just hope tea, avocado and salad aren't high in biotin as that is pretty much my diet. Good to see you back in low 5s and that eye treatment less worrying. Take caremy meter and lab work wasn't on the same continent either as I was getting hb1ac results in the 40s when my meter showed that it should have been in the 30s.
I read @DCUKMod post about of high doses of biotin causing potential assay interference just before my last hba1c.
Hb1ac wasn't mentioned as being a problem but I checked and some labs do an immunoassay to test hb1ac - maybe my lab is one.
I ran out of my usual B vits a month before my last hba1c. They had a scarily high amount of biotin (300ug) and to be on the safe side I also stopped my new B vits that had 50ug of biotin before my test.
Hb1ac came back at 36. If course I have absolutely no idea if stopping biotin was the cause of the lower hba1c. It could be something else completely unrelated. That's the really annoying part of T2D - there is no way of finding out.
Have an hba1c in March and am really interested to see whether hba1c will still be low. My meter says it should be - but that doesn't mean it will be.
@jjraak please please do get help for me regarding my Montezuma chocolate mountain as it is so tempting to eat too much. What is even worse is that they have just opened a shop in Norwich - I almost came out with a huge jar of 100% chocolate buttons on Monday but did manage to resist - but only just.
Thanks PM I'll try once Lola has finished climbing the curtains...she's so clever running the entire length of the room then springing onto the curtains (hand made by a dear friend as a house warming gift)...I applaud with the usual words of praise such as you little *&^% & £"$%^ & oh never mind I'm sure you get the drift...going to let them out in a second before the hedge man arrives otherwise they'll drive him bonkers!have a gentle day with the minxes and a snooze
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