For some reason No1 son, who only lives 5 mins walk away, has offered to live here in November while we go on holiday. The 84 inch TV for his play station may also play a part. He has done the groundwork by doing washing and cooking meals but I know my boys. He told his partner our bedroom with a desk is perfect for him to work from home.
Almost daily on this forum people reveal details of appalling treatment by NHS and really serious conditions they have lived with for years. Without exception they are amazingly grounded, warm and kind hearted people. Without doubt you fit that to a T and then some. Really sorry to hear that news but at the same time honoured to have the privilege of reading your story - meeting you in cyberland. Absolute warrior.6.2 this morning following another bout of daytime lows.
I received my official diagnosis for Post Polio Syndrome yesterday.
No worries, I have been chasing this dragon for 20 years. Back at the start, the NHS refused to discuss it and I sat on my hands and waited. Five years back they looked at it and said: "you may have but it hasn't progressed to where it is a problem".
Last two years I've had swallowing issues, blackouts, sleep apnea, muscle issues, fatigue, and, it seems, T2. Hospital had looked at each separately and refused to link them until recently, and now they have conceded.
Like my Asperger's diagnosis, I am quite happy to finally get my PPS recognised, not happy that I have it mind.
Now that it is official they also let me know that there are around 120,000 polio survivors left over from the 50s in the UK and there's a high chance they could develop PPS. Nice to know.
The reason for the final diagnosis is that my symptoms are progressively worsening and there is no known cure for it.
Anyways, final days are still a way off and I'll probably choose euthanasia as my option. Not a religious man so tots and pears aren't necessary, but I thought I'd share it as it will be a factor in my ongoing T2 and may have been the underlying cause.
Enjoy the day
6.2 this morning following another bout of daytime lows.
I received my official diagnosis for Post Polio Syndrome yesterday.
No worries, I have been chasing this dragon for 20 years. Back at the start, the NHS refused to discuss it and I sat on my hands and waited. Five years back they looked at it and said: "you may have but it hasn't progressed to where it is a problem".
Last two years I've had swallowing issues, blackouts, sleep apnea, muscle issues, fatigue, and, it seems, T2. Hospital had looked at each separately and refused to link them until recently, and now they have conceded.
Like my Asperger's diagnosis, I am quite happy to finally get my PPS recognised, not happy that I have it mind.
Now that it is official they also let me know that there are around 120,000 polio survivors left over from the 50s in the UK and there's a high chance they could develop PPS. Nice to know.
The reason for the final diagnosis is that my symptoms are progressively worsening and there is no known cure for it.
Anyways, final days are still a way off and I'll probably choose euthanasia as my option. Not a religious man so tots and pears aren't necessary, but I thought I'd share it as it will be a factor in my ongoing T2 and may have been the underlying cause.
Enjoy the day
My first instinct was to give you a hug OBB...instead I applaud you for your resilience & tenacity in chasing the shameful lengthy denial from our NHS...refusing to be stonewalled...as you say it is important it was recognised I wonder if there are others still battling for a firm diagnosis/prognosis?
I get worse MC...I had to check to make sure yesterday was Tuesday (it was wasn't it?)
Poor Archie...maybe he is just a little unsettled Krystyna with all the (unwanted vet) attention...one of my old cats refused to come into the house for days & days after a trip to the vets...fingers crossed for all of you.
my meter and lab work wasn't on the same continent either as I was getting hb1ac results in the 40s when my meter showed that it should have been in the 30s.
Thank you for that information. I need to look back over chrono meter data and see what biotin levels are/were. Also need to find which foods are high in biotin as I don't take supplements. I just hope tea, avocado and salad aren't high in biotin as that is pretty much my diet. Good to see you back in low 5s and that eye treatment less worrying. Take care
Thanks PM I'll try once Lola has finished climbing the curtains...she's so clever running the entire length of the room then springing onto the curtains (hand made by a dear friend as a house warming gift)...I applaud with the usual words of praise such as you little *&^% & £"$%^ & oh never mind I'm sure you get the drift...going to let them out in a second before the hedge man arrives otherwise they'll drive him bonkers!
Katy won't mind if we stay inside and play 
