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Worried there is something wrong with me?

whatiswrong

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6
Hi there,

Sorry, I made an account just to post this. I have lurked around the forum's for a while now because I have been worried. I find doctor's don't take me seriously and I hate burdening my friends so I'm going to post everything here with a tl;dr at the end. You don't have to read it, I am purely going to vent. For reference, I am a 20yo female, BMI of 22, I don't eat the best I perhaps could (I am a student!) but not the worst either. I try and cook healthy food.

Anyway. my problems started when I was 18. I started getting these random bouts of lightheadedness where I would have to lie down, and unexplained pain under my ribs (especially left side.) The lightheadedness would generally get better with eating and it was manageable, though it got progressively worse. These days I still get lightheadedness, but it comes on super rapidly with little warning, often with this...I don't know how to explain it but I feel super hungry, it feels like I have to eat right now or I will pass out. It is like a switch flicks in my head and BAM I have to rest. I'll start sweating and shaking and I feel my hands shake and I get this rapid heart beat which can be quite painful.

Onto the chest pain, this started about a year ago when I began university. I was sitting in a lecture and I felt my chest tighten up in a very painful way, and my heart rate became super rapid so I could feel it in my ears. I went to the doctors for a sit and wait (and after nearly 2 hours of waiting I nearly left) but they saw me and said my heart rate was over 130 BPM. They gave me an emergency ECG right there and then and they thought my I was having a heart attack so they sent me to hospital. It's worth pointing out I wasn't having a heart attack, although it was practically mimicking one and the hospital sent me home. So I have a very rapid heart beat and get chest pain sometimes, especially when I get a cold/ flu, the fast heart rate/ chest pain is awful.

The next thing to go wrong, so to speak, was my legs. I get cramping in my legs really bad. And once it starts it honestly does not go away until I sleep, no matter what I do. And when I wake up my legs ache so much. Recently this has been joined by pins and needles in my feet and lower legs, as in it will keep going until my feet turn completely numb. Also. I have had scratches on my feet for months and they don't really get better. They don't hurt so it doesn't bother me but it is a bit off. I also get pain in my arms occassionally, but honestly it is more of a twitch in my arms or an electric shock when I move too fast. Sometimes pins and needles but nothing too unbearable in my arms.

And then my periods stopped. Well, not completely, but they started getting further and further apart that I might as well not have them. Also when I did get a period it was very, very painful. Like shooting pains down my legs and being unable to do anything. At this point the doctors did a hormone test and found I had high cortisol, prolactin (I had weird milk problems despite not being pregnant so I had kind of guessed this) and abnormal liver hormones ( I cannot remember what was abnormal about the liver) just that it was weird. I was told I was stressed and that basically I need to calm down. I don't really agree with this, but fair enough.

Then the bladder problems began. It was super painful to go to the bathroom, and even when I wasn't using the bathroom the pain down there was so bad some mornings I would just cry. My boyfriend at the start would get up to comfort me, but I understand that he couldn't keep doing that and so I was left to deal with it. I also am always itching down there, I have had thrush a couple times. I have to go to the bathroom a lot, like several times more than those around me and at least once during the night. I never really noticed until my boyfriend's family started making jokes about how often I use the bathroom. Oh, and if I don't go very quickly I get more awful pain under my ribs, so it can't wait.

Perhaps more concerning to me (sorry this is gross) is that my bowel movements fluctuate a lot. Always between constipation and diarrhoea. I don't know what causes it or what I can do differently but at least it relieves the bloating a little bit. In the last few months I have gotten a lot of pain from bloating, and ibuprofen helps me get rid of the excess "air" and relieves some of the pain but I cannot live off ibuprofen forever. The bloating is always around my tummy area, and sometimes it is quite visible to me. Sex used to be really painful and honestly it still causes loads of cramping afterwards. These days once its (sorry I am about to be crude) inside of me I don't really feel anything at all. It is better than pain during the act I guess, now I just have to cope with the aftermath.

The other weird thing is thirst. So I feel thirsty a lot and drinking water doesn't shift it so I have kind of gotten used to ignoring it. It doesn't matter how much I drink so I tend to just match those around me. Drinking lots and lots of water just means I have to use the bathroom more (and we already established I don't enjoy my bathroom breaks.)

There is a lot more weird stuff I could mention, but I have said enough that I feel it's out of my system. I honestly don't know what's wrong with me, I did once ask if the doctor thought my lightheadedness all the time could be something like diabetes and they laughed me off. Sorry for posting something that is probably not diabetes in such a forum, but I know you're all nice (I've been lurking) and I guess I just want someone to listen to me. This has been going on for years and I know it doesn't sound that bad but it makes me miserable. Thank you for reading, I hope I get better soon.

tl;dr For the last two years I have been in pain; lightheadedness, rapid heartbeat, weird hormones, numbness and pins and needles, bathroom problems, fluctuating bowel movements, bloating, cramps, thirst. 20yo female. Lots of weird stuff going on but doctors don't really care and it takes weeks just to get an appointment, and weeks after that to get a single test. Feeling frustrated and just want to vent, I am sorry it is in a diabetes forum. I hope you all have lovely days.
 
I'm sorry you're getting so little help from your medical professionals. I'm going to tag @Lamont D , who has reactive hypoglycaemia, because some of your symptoms sound as though they could be that. Having said that, we're not allowed to diagnose here, as we're not doctors, but hopefully someone may be able to suggest some questions you can ask your doctors.

I take it you've already had a blood panel of tests and been referred to an endocrinologist?

Also, I assume your doctor has tested your urine for a urinary tract infection, because your bladder problems sound like that.
 
Unfortunately no I was never referred to an endocrinologist. I was put on antidepressants as my doctor keeps telling me I just must be stressed (I still disagree) but I am hoping I can get something like that at some point. I would be nice.

And I've never heard of that condition, I will have a look. Thank you for being so useful. I am thinking about getting a monitor just because I am curious if all of my lightheadedness might be sugar related (it must be, surely!) it's just so expensive on the student budget!

Thank you again! :)
 
I'm sorry you're getting so little help from your medical professionals. I'm going to tag @Lamont D , who has reactive hypoglycaemia, because some of your symptoms sound as though they could be that. Having said that, we're not allowed to diagnose here, as we're not doctors, but hopefully someone may be able to suggest some questions you can ask your doctors.

I take it you've already had a blood panel of tests and been referred to an endocrinologist?

Also, I assume your doctor has tested your urine for a urinary tract infection, because your bladder problems sound like that.

Sorry I realised I should have *replied* and not just posted.

Unfortunately no I was never referred to an endocrinologist. I was put on antidepressants as my doctor keeps telling me I just must be stressed (I still disagree) but I am hoping I can get something like that at some point. I would be nice.

And I've never heard of that condition, I will have a look. Thank you for being so useful. I am thinking about getting a monitor just because I am curious if all of my lightheadedness might be sugar related (it must be, surely!) it's just so expensive on the student budget!

I have been tested for UTI but I don't have one, apparently.

Thank you so much for helping me!
 
The TEE2+ from Spirit Health is about £12 for the meter and a few test strips. That should be enough to carry out a few tests to see if you have a blood sugar problem. Even cheaper would be to find a fellow student with diabetes and ask them to check you.
 
Hi there and sorry to hear you are getting frustrated and anxious about a lack of a clear diagnosis.
None of us are medics here unless we declare otherwise so you could take some of our suggestions/guesses to a GP for a long appointment and ask her/him what he/she thinks:
1) reactive hypos happen if you overreact to sweet and starchyy foods by having a sudden dip in blood glucose levels causing you to feel faint/hungry or panicky if you don't eat.
2) Muscle cramps cau be caused bya few things but lack of magnesium is a strong contender....Dark chocolate, cashews cooked beans, peas, peanuts and brazil nuts are great sources if you don't want to spend a fortune at Holland and Barrett.
3) Racing heart and the stomach issues you mention may be a reaction to a certain type of food. The only way to check would be to eliminate the usual suspects from your diet and then reintroduce. The usual suspects are gluten and dairy.
4) Painful waterworks usuaally mean an infection which your GP can easily check for if you've already tried cystopurin powders from the chemist. If I start to feel the burn, I take grapefruit seed oil twice daily (health food store). Just being stressed can make your vulnerable to these type of infections.

No expert on the hormonal issues but know it is common for young women suffering stress to have irregular periods. Hormones are so reactive to what you eat also and I think dairy is sometimes associated with female sex hromone issues (being oestrogen dominant for example, polycystic ovarian syndrome and very painful periods).

So please go and find a nice GP with time for you even if that's back home at Christmas. Even if you were to conclude that some of the symptoms are anxiety/stress related that would be a step forward to managing that aspect of things maybe? NOT saying that your sytmptoms are not real btw...Take care.
 
The TEE2+ from Spirit Health is about £12 for the meter and a few test strips. That should be enough to carry out a few tests to see if you have a blood sugar problem. Even cheaper would be to find a fellow student with diabetes and ask them to check you.

Thanks so much for the recommendation! I’ll look into that monitor / making a friend :)
 
:):)
Hi there and sorry to hear you are getting frustrated and anxious about a lack of a clear diagnosis.
None of us are medics here unless we declare otherwise so you could take some of our suggestions/guesses to a GP for a long appointment and ask her/him what he/she thinks:
1) reactive hypos happen if you overreact to sweet and starchyy foods by having a sudden dip in blood glucose levels causing you to feel faint/hungry or panicky if you don't eat.
2) Muscle cramps cau be caused bya few things but lack of magnesium is a strong contender....Dark chocolate, cashews cooked beans, peas, peanuts and brazil nuts are great sources if you don't want to spend a fortune at Holland and Barrett.
3) Racing heart and the stomach issues you mention may be a reaction to a certain type of food. The only way to check would be to eliminate the usual suspects from your diet and then reintroduce. The usual suspects are gluten and dairy.
4) Painful waterworks usuaally mean an infection which your GP can easily check for if you've already tried cystopurin powders from the chemist. If I start to feel the burn, I take grapefruit seed oil twice daily (health food store). Just being stressed can make your vulnerable to these type of infections.

No expert on the hormonal issues but know it is common for young women suffering stress to have irregular periods. Hormones are so reactive to what you eat also and I think dairy is sometimes associated with female sex hromone issues (being oestrogen dominant for example, polycystic ovarian syndrome and very painful periods).

So please go and find a nice GP with time for you even if that's back home at Christmas. Even if you were to conclude that some of the symptoms are anxiety/stress related that would be a step forward to managing that aspect of things maybe? NOT saying that your sytmptoms are not real btw...Take care.


Thank you for this great insight! I might try elimating a few things and see how I get on, another person mentions reactive hypos so I reckon I’m going to have to go to a doctor and beg them to take me a bit more seriously. I wish it was an infection causing my bladder problems, something simple! Thank you again for all the advice about food!! :)
 
Stress can do weird things to our bodies. You might want to nip into a chemist, make it at least two hours after you have eaten, and ask if they will take a diabetes reading for you. If you were diabetic, your blood results should have shown the results for HbA1C. I assume that this came back as normal if they haven't said anything. You might want to check with the surgery what the number was. You are looking for something less than 42.

Are you taking enough salt?
 
Stress can do weird things to our bodies. You might want to nip into a chemist, make it at least two hours after you have eaten, and ask if they will take a diabetes reading for you. If you were diabetic, your blood results should have shown the results for HbA1C. I assume that this came back as normal if they haven't said anything. You might want to check with the surgery what the number was. You are looking for something less than 42.

Are you taking enough salt?

I had no idea a chemist might even be willing to do that for me. I will give that a go I think.

I didn't know my doctor would take my HbA1C as a default, I find that relieving as they'd have found something if it was wrong right? I've only really had blood tests for hormones in the past.

You're right about stress, though these days I don't know what causes what, the symptoms causing stress or the stress causing symptoms.

I reckon I have enough salt, though I've never really measured. I'll have a look in that.

Thanks so much for your help!
 
Sorry, but I believe you don't have reactive hypoglycaemia!
However, I believe that you do need to see a specialist.
You have a range of symptoms that tells me that there is something going on other than the stress you are having.
Keep battling, don't give up, it took me a long time to get a diagnosis, and you can only get the requisite tests from an endocrinologist.

Best wishes
 
Check with your surgery to check to see if you actually had the HbA1c test.

You can ask for a printout of your results. This would be a very good thing to have in a file at home.
 
Hi,
Please see a different dr, as chest pain should be investigated.
It doesn't sound like stress to me.
You could also go to hospital when you have the chest pain.
Take care
 
You are very slim, and some of your problems could be down to undereating. I think you should talk to your parents at Christmas, maybe see the family doctor. Take a written list of your symptoms because they are complicated,and your mind goes blank in the doctors chair.
If you ask for a referral to an endocrinologist your doctor will give you one.
 
Hi @whatiswrong. I can understand why you feel overwhelmed with so many things happening.
And from reading, being a T1D, not as professional advice or opinion:
I think you really need an expert such as an endocrinologist, to start to sort out these troubles.
Diabetes can cause leg numbness, thrush (itch, painful sex), frequent urination, thirst (so your GP should be able to do urine and blood tests to help rule things in or out) There are other causes of thirst too. Thrush can be treated with creams etc from the chemist is my understanding. See what they say, and try to obtain the advice from a female chemist or chemist's assistant if you think you would be more comfortable speaking with her.
Stress can cause a high cortisol and prolactin, so I have read, but you need an endocrinologist not only for the ? diabetes part but to rule out other hormone problems.
rapid heart beat can have many causes but wearing a heartbeat monitor (called a Holter monitor) might help sort out if you have any heart rhythm problems - t seems the first 'go to' test when I read about heart rhythm troubles
Tummy troubles again could have dietary or other causes. including irritable colon, diabetes with high blood sugars and coeliac disease (the latter can also cause lack of a certain vitamin (B12) which your doctor can test for - Low B12 can also cause pins and needles in legs and arms. (see mayoclinic.com - B12 deficiency).
The reason doctors have not taken you seriously is difficult to understand. Some, without really thinking things through, might think your symptoms are all due to stress and worry. Others might be embarrassed at not being able to work out what thing (s) is/are causing your troubles and rather than admit they do not know, they tend to blame it on you - a very unfair situation.
Perhaps speak with the practice nurse at your GP's surgery and mention some of the things about possible causes and tests and see whether he/she can get you into see the GP asap., especially to be referred to an endocrinologist asap, not in 3 months time.
Best Wishes. :):):)
 
Some, without really thinking things through, might think your symptoms are all due to stress and worry.

In my experience, admittedly a long time ago, doctors do tend to assume most students' problems are due to stress... That's fine in a lot of cases, but not good when you actually have something non standard wrong with you.
 
Hello @whatiswrong, i just want to know if your diagnosed now? I have the same symptoms as you mentioned for 6months up to now, hope u can help, im just 27, and diabetes is present on my both parent sides
 
I had no idea a chemist might even be willing to do that for me. I will give that a go I think.

I didn't know my doctor would take my HbA1C as a default, I find that relieving as they'd have found something if it was wrong right? I've only really had blood tests for hormones in the past.

You're right about stress, though these days I don't know what causes what, the symptoms causing stress or the stress causing symptoms.

I reckon I have enough salt, though I've never really measured. I'll have a look in that.

Thanks so much for your help!
When you are being treated for thrush, your boyfriend also needs to be treated at the same time, to prevent re-infection being passed backwards and forwards between you.
 
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