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- 5
I'm posting this for a couple reasons.
1) There are a lot more of us out there than are known, because most people don't know they have it. Hopefully someone else will gain some info.
2) There is not enough information on the Internet, or anywhere about this condition.
I am now diagnosed, but it took 15 years for anyone to have any clue at all, and TBH, I am the one who researched it AND educated my doctors.
Idiopathic Postprandial Syndrome/Adrenergic Postprandial Syndrome is in most cases misdiagnosed as Hypoglycemia. Shortly after eating any sort of carbohydrates, I'm sent into fight or flight mode, anxiety consumes me, I get confusion, disorientation, and almost feel drunk or drugged. My blood sugar never moves really.
Every lab test I've been tested fasting at 99, 95, 97, etc, but have these crazy hypos symptoms, and even have to lie down to have the blood draw because I have passed out before.
eAG = 114
HBA1C = 5.6%
Here are some of my readings:
97, 101, 102, 93, 97, 88, 86, 85, 105, 85, 102, 90, 104, 97, 83, 88, 125, 94, 85, 101, 87, 137, 95, 85, 91, 81, 83, 82, 78, 88, 99, 89, 105, 89, 88, 86, 94, 82, 81, 81, 83, 92, 91
Those are fasting, after meal, some 30 min after, some an hour, some two hours. My blood sugar never really moves much at all. I've never gone under 78, yet I get the feelings and panic of being extremely low, and like I need to call 911.
I've been on the Keto diet for the last 3 months, and prior to that eating low carb. My endocrinologist gave me Acarbose to take if I wanted to eat carby food, but I have no interest in that at this time.
I have no idea how it happened, or what else is going on in my body, but this is where I am at now. My blood pressure seems to be lower than a normal person, and I am aware that norepinepherine is involved somehow. I still don't understand what happens chemically in my body, that causes me to go into fight or flight, so I welcome any conversations with anyone else who has this, or is curious about it.
Thanks, and happy to support anyone in any way here.
Eric
1) There are a lot more of us out there than are known, because most people don't know they have it. Hopefully someone else will gain some info.
2) There is not enough information on the Internet, or anywhere about this condition.
I am now diagnosed, but it took 15 years for anyone to have any clue at all, and TBH, I am the one who researched it AND educated my doctors.
Idiopathic Postprandial Syndrome/Adrenergic Postprandial Syndrome is in most cases misdiagnosed as Hypoglycemia. Shortly after eating any sort of carbohydrates, I'm sent into fight or flight mode, anxiety consumes me, I get confusion, disorientation, and almost feel drunk or drugged. My blood sugar never moves really.
Every lab test I've been tested fasting at 99, 95, 97, etc, but have these crazy hypos symptoms, and even have to lie down to have the blood draw because I have passed out before.
eAG = 114
HBA1C = 5.6%
Here are some of my readings:
97, 101, 102, 93, 97, 88, 86, 85, 105, 85, 102, 90, 104, 97, 83, 88, 125, 94, 85, 101, 87, 137, 95, 85, 91, 81, 83, 82, 78, 88, 99, 89, 105, 89, 88, 86, 94, 82, 81, 81, 83, 92, 91
Those are fasting, after meal, some 30 min after, some an hour, some two hours. My blood sugar never really moves much at all. I've never gone under 78, yet I get the feelings and panic of being extremely low, and like I need to call 911.
I've been on the Keto diet for the last 3 months, and prior to that eating low carb. My endocrinologist gave me Acarbose to take if I wanted to eat carby food, but I have no interest in that at this time.
I have no idea how it happened, or what else is going on in my body, but this is where I am at now. My blood pressure seems to be lower than a normal person, and I am aware that norepinepherine is involved somehow. I still don't understand what happens chemically in my body, that causes me to go into fight or flight, so I welcome any conversations with anyone else who has this, or is curious about it.
Thanks, and happy to support anyone in any way here.
Eric